Art gives emotion a body.

Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?... With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa 5/

A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike 10/

Kristen Johansson details her journey with Lyme disease and how it led her to public health in the newest issue of Hopkins Bloomberg Public Health magazine. Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...

I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠

Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions. Able-bodied & folks with energy-limiting syndromes welcome. Virtual Info Session, Sat Nov 15. 12 pm Eastern US. Host nonprofit is @renegaderesearch.bsky.social

Follow these folks for uplifting and caring vibes. Love their strategy of 5️⃣ areas volunteering has the power to make the biggest difference: - tackling loneliness and isolation, - improving health and wellbeing, - breaking down barriers, - equipping communities, and - creating social cohesion.

Tues, Nov 4th @7pm Advocacy Meeting **New** Zoom Link in Bio #MEAction #Advocacy #MECFS #LongCovid

See see/take our polls on #TheAnesthesiaQuestion on X about anesthesia / sedation / numbing (including dental) responses for pw ME/CFS (CCCriteria)(linked in this post), for people with hyper-mobile connective tissue issues, & for people with neither (coming soon). x.com/RenegadeRes/...

Reminder - the Long COVID Treatment Trial - Tirzepatide (LoCITT-T) is open in 49 US states (all but Hawaii), DC, & PR. More info & eligibility survey here: longcovid.scripps.edu/locitt-t/?ut... We're hosting a webinar w/ Q&A on 11/5, register here: scrippsresearch.zoom.us/webinar/regi...

2 of 3 polls of #TheAnesthesiaQuestion by @renegaderesearch.bsky.social are up on X. This 1 is for people with (pw) connective tissue issues. Another is for pwME/CFS or LC who meet CCC def. Both open for a few more days. The 3rd one will be for people with neither. x.com/RenegadeRes/...

When using Microsoft Word or Google Docs, don't just make text bigger and bolder to make it a heading. That will work for sighted users, but screen reader users will miss that and just hear it as normal paragraph text. Use actual heading styles, like level 1 through 6.

Join us once again for an informal @renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.

Reminder Sat Oct 25 2 pm ET US Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social Live Space on the bird / ex site.

Tomorrow Tuesday, October 21st @ 4pm ET Community Support Zoom #MEAction Maryland "Come As You Are" We've got new zoom links, so email us or check or link tree (in bio). #MECFS #LongCovid #CommunitySupport

Vestibular disorders affect people's balance as well as their visual perception of their world around them. Don't make animations, sliders, videos, or rapid movement start automatically, as autoplaying elements could trigger a bad reaction in people who have vestibular disorders.

A bench with a view. Photo taken in the field at the base of Glastonbury Tor

Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with @kaufmanmd.bsky.social @ruhoy.bsky.social & Tania Dempsey, MD. 2 pm ET USA, Friday, Oct 17, 2025 A Clinician's Roundtable by @renegaderesearch.bsky.social Recording posted to YouTube soon. us06web.zoom.us/webinar/regi... #MedSky

October Meeting Day Today 🗓️ @MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom Wed. 10/15/25, (3rd Wed every month) 12:30 PM ET USA We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies. www.meaction.net/event-detail...

We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....

Meeting Day Today 🗓️ @MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom Wed. 9/17/25, (3rd Wed every month) 12:30 PM ET. We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies. www.meactions.org/event-detail...

👋 Meet young EMERG and get to know us! 1/3 #youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS. youngemerg.com/aboutus.shtml

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

Live X Space about PEM, crashing, PENE, PESE language. by @renegaderesearch.bsky.social Has about 80 people on it at the moment. Monday, Sept 8, at 5pm ET x.com/RenegadeRes/...

Can anyone recommend an #MECFS & #POTS knowledgeable doctor in the DC area?

The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...

This 30+ minute zoom starts in 50 minutes. ME/CFS Program to look at symptoms, treatments, your previous tests, history, genes, and make more sense of it and find targeted aides.

As NALC President Brian Renfroe testified on Capitol Hill yesterday, no letter carrier should have to fear for their life while serving our communities. Tell Congress to pass the bipartisan Protect Our Letter Carriers Act: nalc.org/action www.rawstory.com/amp/usps-267...

🗓️Upcoming launch! Join us live on 26 July from 02:40 BST/03:40 CEST to watch our Vega-C rocket take flight once again. #VV27 will carry Airbus's four CO3D satellites and CNES MicroCarb mission. 🚀 Launch is scheduled for 03:03 BST/04:03 CEST.

@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open

Sign up! Free webinar Fri 7/25 1pET Community Briefing: Coaching & Consulting Medical Program by @renegaderesearch.bsky.social 10 patients accepted to start. Need your own clinician as well, not all can afford it. By learning what it is, all may pick up tips. Link: us06web.zoom.us/webinar/regi...

Zooniverse DOES sound amazing! @renegaderesearch.bsky.social @isabelrb.bsky.social @tessfalor.bsky.social @ellybrosius.bsky.social what do you think of this? Have you heard of it? People-powered research sounds familiar! Zooniverse share.google/STOhUiY7JKXi...

This Friday. A chance to hear presentations and ask questions about ME/CFS biochemistry and clinical applications. Register to get reminders from zoom. Recordings are usually posted within days of the events.

This Friday! Register and get reminders. Attend live to ask questions in the zoom Q&A. Recording pops up within a few days after. Born Free protocol has its issues yet I know many people who found some help within it. This is an opportunity to learn more.

Monday face! Have a wonderful week! #Canon #Birds #Wildlife #Photography

Nasa astronaut on ISS, caught this sprite over Mexico and the US this morning. Sprites are TLEs or Transient Luminous Events, that happen above the clouds and are triggered by intense electrical activity in the thunderstorms below. Source: NASA Astronaut Nichole Ayers

Don’t miss our next clinician’s roundtable where our medical director, John Haughton, MD, and Joshua Leisk from the Born Free protocol will discuss biochemical dysfunction and clinical approaches in MECFS and Long Covid. Registration link: us06web.zoom.us/webinar/regi...

I created a People's Packet of over 600 letters for every state. Print, sign, mail. Go to the linktree in my bio and download. If you can spare, buy me a coffee, it's all done for you. 💙 Share widely please, I have an audacious goal of 50 million letters.

We're launching a $5 Campaign to get the Clinical Care Guide into the hands of providers worldwide. $5 = 1 guide. 1 provider. 1 life changed. 💙 Donate now: loom.ly/q08sVxQ 📘 Learn more: loom.ly/-Gjg9w8 #MECFS #LongCOVID @openmedf.bsky.social

Dr. John Baratta ran the Long COVID clinic at UNC. He and I delivered a talk together on #MECFS and #LongCOVID with Gillian, a person with lived experience. UNC's was one of the first talks on our 2024 #TeachME #TreatME campaign. Baratta was lovely, and their program was really at the forefront. 🧪

Next ME/LC @renegaderesearch.bsky.social Roundtable is Fri July 11 at SPECIAL TIME of 2:30 PM EDT USA Josh Leisk, Independent Theoretical Biochemist from Sydney, Australia, known for the Born Free Protocol, and Renegade Research med director John Haughton, MD @doc4care.bsky.social Link in thread.

Thread about when fed funding cuts did (closed it) to the helpful LC clinic at UNC and what you might do to let Congress know this is not ok.

TODAY. We cope together. Laugh together. Tear up together. Find help & helpers together. Sharing our experience & information together lifts us up. And it saves energy + time finding next treatment or test. Support group success depends on right mix of facilitators + visitors. This group rocks!

WEDNESDAY JUNE 18 12:30 PM Eastern Join @meactnet.bsky.social's North Carolina Chapter for a monthly support call on the 3rd Wednesday of the month at 12:30 PM ET. We welcome people with ME/CFS or Long Covid, along with their caregivers, family, friends, allies. www.meactions.org/event-detail...

NOTE DEADLINE OF THE 16th! The US Department of Energy s trying to get rid of important rules of Section 504 that will take effect July 15 unless “significant adverse comments” are received by June 16th. Take action with @dredf.bsky.social: dredf.org/action-alert... #disability #pwME #MECFS

Renegade Research is looking for a #fundraising volunteer to lead our fundraising team. If you have experience in fundraising for non-profits, please reach out. Thanks!