Can you sign & share our letter to HHS? freakinfrail.org Thank you to the 1600 who have signed! Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.

Great stuff. Print on demand items like this might arrive after the New Year so give or ask for Bonfire e-cards if you need something soon. Love the Renegade Chef apron!

Many #MECFS #pwME #LongCovid patients are discussing the #BornFreeProtocol by Joshua Leisk, which some have used to improve symptoms It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2... 1/2 🧵

🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too! 👉 Sign up today: www.omf.ngo/studyme/ #UnitedForME #MECFSresearch #POTS #pwME #pwLC

The holidays can be tough when you’re living with a chronic illness. 💙 Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease. 🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup

⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign! There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-... #pwME #pwLC #MECFS #LongCOVID

1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community

It's Giving Tuesday. Please support this relatively new organization that has made an impact with free educational videos, securing discounts on helpful supplements and tests, bringing together researchers, clinicians, and patients, with more.

#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st. Thank you!

I once asked a bookseller at a large indie store how many people would have to buy a book for it to get the attention of the store buyer and cause an additional order and they said: Three.

Adding a bookmark for this page!

Prodrome Science, the store for plasmologens including Glia and Neuro, gave us the affiliate code discount “Falor35” to save 35%! 💸 Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.

#MECFS and #LongCovid organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes. With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵

Attention Amazon Shoppers: @renegaderesearch.bsky.social is an Amazon Affiliate! We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs. Categories are on the left: health devices, pets, comfort, science, books, & more. Pets a.co/0hrS2JF

This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.

Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME. Google form to apply is here 👇 docs.google.com/forms/u/3/d/...

This support meeting for ME/CFS, LC, people with PEM, is TODAY! 9:30 AM Pacific US (Sorry) 11:30 AM Central US 12:30 PM Eastern US 5:30 GMT

Art gives emotion a body.

Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?... With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa 5/

A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike 10/

Kristen Johansson details her journey with Lyme disease and how it led her to public health in the newest issue of Hopkins Bloomberg Public Health magazine. Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...

I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠

Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions. Able-bodied & folks with energy-limiting syndromes welcome. Virtual Info Session, Sat Nov 15. 12 pm Eastern US. Host nonprofit is @renegaderesearch.bsky.social

Follow these folks for uplifting and caring vibes. Love their strategy of 5️⃣ areas volunteering has the power to make the biggest difference: - tackling loneliness and isolation, - improving health and wellbeing, - breaking down barriers, - equipping communities, and - creating social cohesion.

Tues, Nov 4th @7pm Advocacy Meeting **New** Zoom Link in Bio #MEAction #Advocacy #MECFS #LongCovid

See see/take our polls on #TheAnesthesiaQuestion on X about anesthesia / sedation / numbing (including dental) responses for pw ME/CFS (CCCriteria)(linked in this post), for people with hyper-mobile connective tissue issues, & for people with neither (coming soon). x.com/RenegadeRes/...

Reminder - the Long COVID Treatment Trial - Tirzepatide (LoCITT-T) is open in 49 US states (all but Hawaii), DC, & PR. More info & eligibility survey here: longcovid.scripps.edu/locitt-t/?ut... We're hosting a webinar w/ Q&A on 11/5, register here: scrippsresearch.zoom.us/webinar/regi...

2 of 3 polls of #TheAnesthesiaQuestion by @renegaderesearch.bsky.social are up on X. This 1 is for people with (pw) connective tissue issues. Another is for pwME/CFS or LC who meet CCC def. Both open for a few more days. The 3rd one will be for people with neither. x.com/RenegadeRes/...

When using Microsoft Word or Google Docs, don't just make text bigger and bolder to make it a heading. That will work for sighted users, but screen reader users will miss that and just hear it as normal paragraph text. Use actual heading styles, like level 1 through 6.

Join us once again for an informal @renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.

Reminder Sat Oct 25 2 pm ET US Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social Live Space on the bird / ex site.

Tomorrow Tuesday, October 21st @ 4pm ET Community Support Zoom #MEAction Maryland "Come As You Are" We've got new zoom links, so email us or check or link tree (in bio). #MECFS #LongCovid #CommunitySupport

Vestibular disorders affect people's balance as well as their visual perception of their world around them. Don't make animations, sliders, videos, or rapid movement start automatically, as autoplaying elements could trigger a bad reaction in people who have vestibular disorders.

A bench with a view. Photo taken in the field at the base of Glastonbury Tor

Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with @kaufmanmd.bsky.social @ruhoy.bsky.social & Tania Dempsey, MD. 2 pm ET USA, Friday, Oct 17, 2025 A Clinician's Roundtable by @renegaderesearch.bsky.social Recording posted to YouTube soon. us06web.zoom.us/webinar/regi... #MedSky

October Meeting Day Today 🗓️ @MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom Wed. 10/15/25, (3rd Wed every month) 12:30 PM ET USA We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies. www.meaction.net/event-detail...

We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....

Meeting Day Today 🗓️ @MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom Wed. 9/17/25, (3rd Wed every month) 12:30 PM ET. We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies. www.meactions.org/event-detail...

👋 Meet young EMERG and get to know us! 1/3 #youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS. youngemerg.com/aboutus.shtml

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

Live X Space about PEM, crashing, PENE, PESE language. by @renegaderesearch.bsky.social Has about 80 people on it at the moment. Monday, Sept 8, at 5pm ET x.com/RenegadeRes/...

Can anyone recommend an #MECFS & #POTS knowledgeable doctor in the DC area?

The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...

This 30+ minute zoom starts in 50 minutes. ME/CFS Program to look at symptoms, treatments, your previous tests, history, genes, and make more sense of it and find targeted aides.

As NALC President Brian Renfroe testified on Capitol Hill yesterday, no letter carrier should have to fear for their life while serving our communities. Tell Congress to pass the bipartisan Protect Our Letter Carriers Act: nalc.org/action www.rawstory.com/amp/usps-267...

🗓️Upcoming launch! Join us live on 26 July from 02:40 BST/03:40 CEST to watch our Vega-C rocket take flight once again. #VV27 will carry Airbus's four CO3D satellites and CNES MicroCarb mission. 🚀 Launch is scheduled for 03:03 BST/04:03 CEST.

@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open