How do you explain EDS or HSD to people? @ehlersdanlos.bsky.social is SUPER helpful for folks trying to explain EDS or HSD to loved ones. 🩵🦓🩵 linktr.ee/thezebraalli... #EDS #HSD #ehlersdanlossyndrome #ehlerdanlos #hypermobility #chronicillness #raredisease #chronicpain #invisibleillness

The fights about health care spending that culminated in a government shutdown late last year are still ongoing. @citizencohn.bsky.social details the health care debate happening in Washington right now and what might come next. 🎧 podcast.publichealth.jhu.edu/1003-the-uss...

Make sure you talk to your doc about all medications as soon as you find out you are pregnant. 🤰🫶 And if you haven't already, and it is your first pregnancy, ask your doc to test for your #Rhfactor to avoid complications, like miscarriage. 🩵🦓🩵 #pregnancy #depakote #depakene #medicationmanagement

Following decades of surging adult obesity rates, numbers have leveled out since 2022—but further change is on the horizon. J. Nadine Gracia talks about the latest State of Obesity report from @tfah.bsky.social. 🎧 podcast.publichealth.jhu.edu/1004-the-sta...

@ehlersdanlos.bsky.social Thank you for everything you do for the EDS and HSD Community!!! 🩵🦓🩵 #EDS #HSD #hEDS #ehlersdanlossyndrome #ehlersdanlos #chronicillness #raredisease

Happy Caturday 😽 Are you tired/exhausted/in pain? Take a nap, and do not feel guilty for doing so. It is called Self Care. I mean, look at cats: Master nappers haha linktr.ee/thezebraalliance #caturday #mentalhealth #health #chronicillness #ehlersdanlossyndrome #EDS #raredisease #memes #selfcare

🧛‍♀️😆 linktr.ee/thezebraalliance #chronicpainmeme #meme #chronicpain #chronicillness #EDS #invisibleillness #disability #dynamicdisability

Have you heard of Prader-Willi Syndrome? "Prader-Willi syndrome (PWS) is a rare genetic disorder characterized by chronic hunger, growth hormone deficiency, and behavior challenges." #praderwillisyndrome #PWS #raredisease #rarediseases #chronicillness

Sounds so much more fun when you put it like that 😄🫠😉 🦓 linktr.ee/thezebraalliance #chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth #healthmeme

Never forget that The Zebra Alliance Community is here for YOU 🩵🦓🩵 Do not hesitate to let us know what support you need, and we will do our best to find you the services and resources you need to live better lives. 🫶 linktr.ee/thezebraalliance #EDS #ehlersdanlossyndrome #chronicillness #raredisease

Reviewing vaccine safety and effectiveness scientific understanding and good regulatory judgment. Dr. Jesse Goodman, a former top vaccine regulator and chief scientist at the FDA, explains how the agency came to lead the world in vaccine oversight. 🎧 podcast.publichealth.jhu.edu/1001-vaccine...

The  EDS ECHO Health Advocacy Program  is a virtual program designed for health advocates who are committed to helping people with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

Another one of those nasty rare connective tissue disorders Zebras all love so much. This one is, Shulman Disease/Syndrome. 🩵🦓🩵 @nordrare.bsky.social #ShulmanDisease #ShulmanSyndrome #EosinophilicFasciitis #raredisease #rarediseases #chronicillness

Despite historical assumptions that the hypocoagulable state might protect against #Atherosclerosis, evidence now shows comparable or higher cardiovascular disease risk in #Hemophilia patients. @haemophilia.bsky.social @eahad.bsky.social#Atherosclerosis#Hemophilia Learn more: https://bit.ly/4a4lnua

Understand MG swallowing: https://bit.ly/4411iln This guide breaks down why these symptoms happen, what risks to look out for, and how speech therapists, neurologists, and dietitians can help. #MyastheniaGravis #MyastheniaGravisNews #MGAwareness #Bionews #MGWarrior

💯 🤣 #healthmemes #doctormemes #meme #memes #jokes #chronicillness

Winter storms are on the way in the U.S., and extreme winter weather can pose serious health risks. Swipe for tips on how to stay safe during this winter storm. For more information on winter injury prevention: publichealth.jhu.edu/2024/winter-...

#Cholestyramine, a bile acid sequestrant clinically recommended for the reduction of pruritus, alleviates the symptoms of primary biliary cholangitis (#PBC) by modulating the microbiome-metabolite-host axis. Study in Microbiology Spectrum. Read more: https://bit.ly/49UvII9

A tiny spark of strength deserves recognition, no matter how small: https://bit.ly/4hLgGYt #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

"They make you believe they can change which is relative to how you behave, because ... everything is your fault. Therefore if you want him to change, be better. They dig a dark hole + keep a glimmer of light enough for you to keep going. It is never their fault, always yours.” #mentalhealth #abuse

Some tips and tricks that helped me in my MCAS journey! #mcas #histamine

😂 #healthmemes #chronicillness #memes #meme #jokes

Need some Ehlers-Danlos Syndrome Management Resources? Take a look here- you may find just what you have been looking for: www.ehlers-danlos.com/management/ #ehlersdanlossyndrome #EDS #hEDS #raredisease #chronicillness #HSD #hypermobility #healthcare

The founder of TZA cervical cancer was diagnosed in time to treat it, but barely. Make sure you to go to your yearly check-ups 👍 #cervicalcancer #healthcare

Is there a rare or uncommon illness you are diagnosed with that we have not shared info on? Please let us know! 🤗 @nordrare.bsky.social #raredisease #rarediseases #chronicillness #invisibleillness #eds

Have you heard of NMOSD? Neuromyelitis optica spectrum, or Devic’s disease, is a "rare & debilitating autoimmune disease caused by inflammation in the central nervous system (the optic nerve, brain stem + spinal cord)." Learn about #NMOSD: www.nmosdwontstopme.com/what-is-nmosd #raredisease

Have you been looking for a doctor who knows/specializes in Ehlers Danlos Syndrome? @ehlersdanlos.bsky.social has a great Healthcare Professional Directory! >> www.ehlers-danlos.com/healthcare-p... Not all providers take insurance, esp Medicaid & Medicare: most share this info on their website. #EDS

🤗 @klobuchar.senate.gov, we need more politicians like you 🩵🫶🦓🫶🩵 Caucas: everylifefoundation.org/rare-advocat... #raredisease #rarediseases #chronicillness #chronicpain #invisibleillness #disability #ehlersdanlossyndrome #dynamicdisability

Such wonderful news! 🤗 (No pun intended lol) #chronicillness #raredisease #rarediseases #chronicpain #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome

Are you near Cedars-Sinai? They take Medi-Cal 😍 Ask your GP to see if you can get in. Don't have any insurance? #CedarsSinai offers financial aid packages based on income 😍 #rarediseases #raredisease #chronicillness #ehlersdanlossyndrome #EDS #disability #dynamicdisability #invisibleillness

Have you tried taping? If so, does it help you? If it does, what's your favorite tape (method)? TZA fave is #KinesioTex 💪🙂👉 It's caused the least amount of skin issues for us and stays on for days, even when we shower: amzn.to/4qtSkX0 #kttape #physicaltherapy #chronicillness #chronicpain #EDS #ad

It's a wonderful life 🥰 NOT! 🫩😣🥺👉 Ignorance is bliss for uncompassionate people, but miserable for those who live with chronic illnesses. 🫂 #chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth

Survival rates have risen sharply since the 1970s due to improved treatment and early detection. #Health

😒🤣 #healthmeme #meme #memes #jokes #chronicillness #EDS #rarediseases #medicationsideeffects

Physicians can use an integrated multichannel automatic cellular profiling (#iMAP) system as a complementary technology to the existing clinical cytopathology workflow in #Cholangiocarcinoma (CCA). Study in Small. Read here: https://bit.ly/4jCmd4C #RareDisease #CCA

Coloring Page for your kiddos 🤗🖍️ ... or for you 😉 DYK: A group of Zebra's is called a Dazzle 🦓🦓🦓🌈 linktr.ee/TheZebraAlliance #coloringpage #coloringbook #raredisease #chronicillness #EDS #ehlersdanlossyndrome #zebras

Why is this important to share? These are the top 6 symptoms that our Hyperinsulinism families reported before hypoglycaemia was confirmed in their babies. If you see these signs seek urgent medical advice & ask them to #ThinkHypoglycaemia #ThinkHyperinsulinism

National scientific guidance is now influenced by ideology. Maintaining health has become fragile and costly. Together, these reveal a truth: America is entering 2026 with a healthcare system that's politically vulnerable, more unequal, and more unstable than ever. #healthcare #chronicillness

This is wild + an incredibly awesome discovery! Excited to see how this helps diagnosis + treatment: Researchers found genetic links among 14 psychiatric conditions, showing many share biological foundation. 🧬😄 #mentalhealth #mentalillness #healthcare #chronicillness #bipolar #anxiety #depression

Messages that need to be seen. 🩵🦓🩵 #chronicillness linktr.ee/thezebraalliance #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #HSD

And this, friends, is a perfect example of why we need Harvard to continue getting research funding 💯

Love this 🩵🦓🩵 #mentalhealth #chronicillness

This can be hard! Whether its stomach issues, allergies, cost, or otherwise, we see you 🩵 Some alts: - V8 - Baby Food - (Whole Food) Supplement - Can/frozen - Dice into (very) small pieces / throw in a blender and put into sauce, soup, smoothies - Grow some: Garden or pots #chronicillness #diet

🤯

🥹👏🥹 Congratulations Oleksandra! 👏🥹👏 #Ukraine #gymnastics #disabilities #strength #inspiration

Yes, please 🤗😉 #healthmemes linktr.ee/thezebraalliance #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability #ehlersdanlossyndrome

Have you ever thought about all of the nasty ingredients in the products we use every day and, "I wonder if this triggered genetic/hereditary conditions, or caused some chronic illnesses?" We sure have. #nontoxicliving #healthcare #chronicillness #raredisease #EDS #ehlersdanlossyndrome #disability

Feel this deep in our souls. How about you? 🫠🤪😉 #healthmemes #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability

USA Gov't: Medical research, healthcare, and assistance cost too much. We are cutting funding. Also USA Gov't: We are going to run Venezuela. Sorry for the political post, but we have had enough of this 💩! #healthcare linktr.ee/thezebraalliance

If you know, you know. 🚑 And its even worse if youre Canadian. Just kidding! ... sort of 😅😉 #healthmemes linktr.ee/thezebraalliance #portlandia #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability #mentalhealth