Super cool! If in New York + have EDS, definitely check Hyp+Care out next year! Mark your calendar. 🤗 🩵🦓🩵

Fresh #EDS News from Chronic Pain Partners includes a new lab, genetic news, a new podcast and more: buff.ly/UyLbCzo #EhlersDanloSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #NEISvoid #Medicine #Genetics #Doctors #Nurses #MedEd #Research

When you are "unemployable" + are an EDS er living in Trump's USA = 🥺😖 It has cost my father $36k + CO pays for my healthcare + the hours my son spends caring for me... and we still have 3 months left in 2025 🗓 #ehlersdanlossyndrome #chronicillness You can help us 🩵🦓🩵 linktr.ee/thezebraalliance

Prolotherapy is a treatment that involves injecting an irritant solution (often sugar-based) into ligaments, tendons, or joints. [Thread] youtu.be/sigAJALk6vE?... ⁠

EDS Expenses Exposed: Report Peeks at Financial Burden of Living with Ehlers-Danlos early 2025: buff.ly/sNwdFZ2 #EDS #hEDS #Hypermobility #HSD #NEISvoid #POTS #Zebras #Finances

New EDS savvy clinic Hyp+Care set to open later 2026 in NYC - check it out: buff.ly/DzKxUKv #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Fibro #MCAS #MECFS #LongCOVID #Spoonies #POTS #Dys #NEISvoid #Medicine #zebras #MedSky

Film review: "Exhausted Existence - An EDS Story" by Jennifer Kain 2025: buff.ly/uR4tZCI #EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndrome #Medicine #MedEd #Doctors #Zebras #ChronicFatigue #Spoonies #NEISvoid #Documentary #Nurses #Film

#VascularEhlersDanlossyndrome (vEDS) is a heritable connective tissue disorder that makes the connective tissue very fragile, particularly in the blood vessels and hollow organs. youtu.be/hL2uWv1z7vc?... #Healthcare #HealthProfessionals #Vascular #vEDS

Understanding Your Flare Fettered Friend - how to lend support for your loved ones going into a flare… buff.ly/WI3eZM1 #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Fibro #Spoonies #Zebras #NEISvoid #Pain #CPP #ChronicPain #Support

Hear what EDSers think about the current 2017 Diagnostic criteria that won't be addressed until later 2026: buff.ly/RKGrs5m #EDS #hEDS #HSD #Hypermobility #Medicine #Doctors #Genetics #Zebras #MedSky #FOAMed

EDS Expenses Exposed: Report Peeks at Financial Burden of Living with Ehlers-Danlos early 2025: buff.ly/sNwdFZ2 #EDS #hEDS #Hypermobility #HSD #NEISvoid #POTS #Zebras #Finances

Check out our new Clinician Associated Trauma Series, now available under our Patient Guides on our menu: buff.ly/3Rjsjd5 #EDS #hEDS #HSD #Hypermobility #MedEd #NEISvoid #PTSD #CPTSD #Doctors #Spoonies #Zebras #CPP #Trauma #Medicine

"... found 35 blood proteins that were different in people with #hEDS ... Most of these changes were in proteins linked to the immune system, 🩸 clotting, blood pressure, and inflammation. The largest ... involved the complement system, which helps the body fight infection & control inflammation."

Missed our prior newsletters? You can catch up on all of them here in our archives, any time you like: buff.ly/SOlLwKE #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #NEISvoid #Doctors #MedEd #Medicine #POTS #MCAS #Dysautonomia #Genetics #MedSky

"Recognise ME: Memoir documenting the raw journey through medical gaslighting as a chronic illness patient" by Anneke Vliegen. I met Anneke online through an #EDS support group. Wonderful woman! Read it for free: a.co/8kPkB4A #bookrecommendations #chronicillness

Research Round-up, Edition Five: Pediatrics - the latest on EDS and our kids' health: buff.ly/Ms2IlzT #EDS #hEDS #hypermobility #HSD #Medicine #Pediatrics #MedEd #POTS #Dysautonomia #MCAS #Zebras #NEISvoid #MedTwitter #MedSky #doctors #moms #kids

“It’s All in Your Head”: New Study Confirms What hEDS Patients Have Been Told for Decades buff.ly/L6W8GGv #EDS #Hypermobility #hEDS #EhlersDanlosSyndrome #HSD #Zebras #NEISvoid #Medicine #Doctors #MedEd #Nurses #Psychiatry #MedSky

September is Pain Awareness Month and we're not letting it go by unnoticed... www.chronicpainpartners.com/september-is... #EDS #hEDS #HSD #Hypermobility #Fibro #Pain #MedEd #MedSky #Zebras #NEISvoid #Spoonies #IIH #Migraine #Arthritis #POTS #MCAS #ChronicIllness #Disability

Tomorrow, September 17th starts for healthcare professionals. Sunday the 21st Community Day is open to all. You can attend virtually too. #EDS #HSD #hEDS #zebras #NEISvoid

Will you be our champion? We need your support to keep bringing you the latest and greatest EDS news, thanks! buff.ly/4cUot2T #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #NEISvoid #MedEd #MedSky #MedTwitter #Medicine #Doctors

Missed our prior newsletters? You can catch up on all of them here in our archives, any time you like: buff.ly/SOlLwKE #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #NEISvoid #Doctors #MedEd #Medicine #POTS #MCAS #Dysautonomia #Genetics #MedSky

“It’s All in Your Head”: New Study Confirms What hEDS Patients Have Been Told for Decades buff.ly/L6W8GGv #EDS #Hypermobility #hEDS #EhlersDanlosSyndrome #HSD #Zebras #NEISvoid #Medicine #Doctors #MedEd #Nurses #Psychiatry #MedSky

POTS vs. Anxiety: The Misdiagnosis Maze many patients face buff.ly/3Yps3x7 #EDS #hEDS #HSD #POTS #Hypermobility #Anxiety #MedEd #Doctors #Nurses #MedTwitter #MedX #Medicine #NEISvoid #Spoonies #Zebras

Need a distraction from your chronic illness? Check out - "Out of Spoons: A Spoonie-Centered Coloring Book" from Author and Artist Jules Machias buff.ly/tyEdWbq #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #POTS #MCAS #Zebras #Spoonies #art #Coloring #NEISvoid

Hear what EDSers think about the current 2017 Diagnostic criteria that won't be addressed until later 2026: buff.ly/RKGrs5m #EDS #hEDS #HSD #Hypermobility #Medicine #Doctors #Genetics #Zebras #MedSky #FOAMed

Help us keep this show on the road! We need your support to keep bringing you the latest and greatest EDS news, can you help? buff.ly/4cUot2T #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #NEISvoid #MedEd #MedSky #MedTwitter #Medicine #Doctors

“Primary Care Without the Gaslighting”: How Chronius Health Is Rethinking Care for People with EDS and Complex Conditions buff.ly/LAtmdRt #EDS #EhlersDanlosSyndrome #PrimaryCare #hEDS #HSD #Hypermobility #NEISvoid #POTS #MCAS #Dysautonomia #LongCOVID #Doctors #Disability #MedSky

Research Round-up, Edition Five: Pediatrics - the latest on EDS and our kids' health: buff.ly/Ms2IlzT #EDS #hEDS #hypermobility #HSD #Medicine #Pediatrics #MedEd #POTS #Dysautonomia #MCAS #Zebras #NEISvoid #MedTwitter #MedSky #doctors #moms #kids

EDS Expenses Exposed: Report Peeks at Financial Burden of Living with Ehlers-Danlos early 2025: buff.ly/sNwdFZ2 #EDS #hEDS #Hypermobility #HSD #NEISvoid #POTS #Zebras #Finances

Can I Pet It?: Understanding Animal Helpers www.chronicpainpartners.com/can-i-pet-it... #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Disability #Pets #Animals #ServiceAnimals #ServiceDogs #ESA #Zebras #Spoonies #Dysautonomia #POTS #MCAS

Please share your experiences in the comments. Let's bring awareness to this topic. 🩵🦓🩵 #chronicpain #EDS #ehlersdanlossyndrome #ehlersdanlos #hypermobility #hypermobilityspectrumdisorder #HSD #hEDS #chronicillness

Digesting the Facts: Tackling Gastrointestinal Challenges in EDS buff.ly/41XJxmF #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IBS #NEISvoid #MedEd #Zebras #Spoonies #POTS #MCAS #MedX #MedTwitter

I hope more doctors will stop using anxiety diagnosis instead of really looking at their patient's biology. "Normal" test results are not definitive! #MyalgicEncephalomyelitis is another disease that is too often dismissed, leaving patients to suffer and die without medical support.

If you have watched any of these, please share what you liked about them 😊 🩵🦓🩵 Looks like a pretty great list! We are definitely going to check these documentaries out! 👀 🎥 #EDS #ehlersdanlossyndrome #ehlersdanlos #hEDS #chronicillness

POTS vs. Anxiety: The Misdiagnosis Maze many patients face buff.ly/3Yps3x7 #EDS #hEDS #HSD #POTS #Hypermobility #Anxiety #MedEd #Doctors #Nurses #MedTwitter #MedX #Medicine #NEISvoid #Spoonies #Zebras

We drafted a list of all the new documentaries out about EDS and related conditions. Check out the growing list here now: buff.ly/hJ9BacN #EhlersDanlos #Hypermobility #hEDS #HSD #MedEd #Medicine #Zebras #NEISvoid #MECFS #Spoonies #MedSky #Film #Documentary

The Quiet Weight of Chronic Illness Grief - guest post by Jen J buff.ly/FpIKgDz #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #NEISvoid #Zebras #Spoonies #Disability #ChronicIllness #POTS #MCAS #Dysautonomia #MedEd #Medicine #MedSky

Hear what EDSers think about the current 2017 Diagnostic criteria that won't be addressed until later 2026: buff.ly/RKGrs5m #EDS #hEDS #HSD #Hypermobility #Medicine #Doctors #Genetics #Zebras #MedSky #FOAMed

Are you a professor, doctor, or research professional with a #disability #chronicillness or #neurodiversity and want to help the next generation of scholars with disabilities? Our graduate and professional student organization would love to hear from you!

Need a distraction from your chronic illness? Check out - "Out of Spoons: A Spoonie-Centered Coloring Book" from Author and Artist Jules Machias buff.ly/tyEdWbq #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #POTS #MCAS #Zebras #Spoonies #art #Coloring #NEISvoid

June was Lipedema Awareness Month, an adipose tissue disease that co-occurs with EDS and HSD for many women: www.chronicpainpartners.com/welcome-to-l... #EDS #hEDS #HSD #Hypermobility #Lipedema #Fat #Weight #Diet #Medicine #MedEd #Doctors #NEISvoid #MedSky #Nurses #Dietician #EhlersDanlosSyndrome

Can I Pet It?: Understanding Animal Helpers www.chronicpainpartners.com/can-i-pet-it... #EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Disability #Pets #Animals #ServiceAnimals #ServiceDogs #ESA #Zebras #Spoonies #Dysautonomia #POTS #MCAS

Digesting the Facts: Tackling Gastrointestinal Challenges in EDS buff.ly/41XJxmF #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IBS #NEISvoid #MedEd #Zebras #Spoonies #POTS #MCAS #MedX #MedTwitter

"No other condition in the history of modern medicine has been neglected in such a way as Ehlers-Danlos Syndrome" ~ Professor Rodney Grahame A growing list of documentaries about EDS. Thanks, Chronic Pain Partners. #EDS #HSD #EhlersDanlos #Hypermobility #ChronicFatigue #InvisibleIllness

We drafted a list of all the new documentaries out about EDS and related conditions. Check out the growing list here now: buff.ly/hJ9BacN #EhlersDanlos #Hypermobility #hEDS #HSD #MedEd #Medicine #Zebras #NEISvoid #MECFS #Spoonies #MedSky #Film #Documentary

Research Round-up, Edition Five: Pediatrics - the latest on EDS and our kids' health: buff.ly/Ms2IlzT #EDS #hEDS #hypermobility #HSD #Medicine #Pediatrics #MedEd #POTS #Dysautonomia #MCAS #Zebras #NEISvoid #MedTwitter #MedSky #doctors #moms #kids

The Ehlers-Danlos Society is delighted to announce new members of its CORE Network of Excellence Program, created to address the deep need for improved access to care globally for #EhlersDanlosSyndrome (EDS) and #hypermobilityspectrumdisorder (HSD). www.ehlers-danlos.com/new-core-net... #Healthcare

“Primary Care Without the Gaslighting”: How Chronius Health Is Rethinking Care for People with EDS and Complex Conditions buff.ly/LAtmdRt #EDS #EhlersDanlosSyndrome #PrimaryCare #hEDS #HSD #Hypermobility #NEISvoid #POTS #MCAS #Dysautonomia #LongCOVID #Doctors #Disability #MedSky

What is EDS? Need a good basic primer for your friends, family or doctors? We've got you covered: www.chronicpainpartners.com/what-is-eds/ #EhlersDanlosSyndrome #EDS #hEDS #Hypermobility #HSD #NEISvoid #Disability #zebras #Medicine #Doctors #Nurses #MedEd #MedSky

"Managing your health is a full-time job - one with no paid time off, no clear job description, and no reliable supervisor overseeing your care..." - #EDS Community Collaborative #ehlersdanlos #ehlersdanlossyndrome #chronicillness #raredisease #disability #dynamicdisability #disabilities #healthcare