Tess Falor, Ph.D.
@tessfalor.bsky.social
📤 3463
📥 426
📝 73
Founder - Renegade Research
#MECFS
#LongCovid
reposted by
Tess Falor, Ph.D.
Renegade Research
2 months ago
We held a Volunteer Info Session today for people wanting to volunteer for Renegade Research! Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more 🧵 1/
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reposted by
Tess Falor, Ph.D.
Renegade Research
2 months ago
Volunteer Info Session recording:
www.youtube.com/watch?v=H40w...
@tessfalor.bsky.social
,
@isabelrb.bsky.social
,
@ellybrosius.bsky.social
,
@katboniface.bsky.social
,
@mayalongcovid.bsky.social
with org overview, volunteer work, current/future projects Slideshow:
docs.google.com/presentation...
2/
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Renegade Research Volunteer Information Session
YouTube video by Renegade Research
https://www.youtube.com/watch?v=H40wbxE9J-s
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This is coming up this Saturday at noon ET. Join us to meet our awesome team and learn out how you can get involved!
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2 months ago
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The Amatica team is doing amazing patient-led decentralized work. Can't wait to hear more on the 21st!
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2 months ago
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Exciting news! The community raised enough money to cover all of the samples for David Esteban's study. We don’t have to raise the full $7k, because a lab has offered to run them for lower cost! 🙌
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10 months ago
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reposted by
Tess Falor, Ph.D.
Elly Brosius, MS
10 months ago
Total so far is $4,356 of $7,000 goal raised! Pls donate if possible - every $5 matters - more than double the impact of this PASC (Long Covid) metabolites study (lab closed that was to process the samples). This research will likely help people with ME/CFS as well and other populations.
#medsky
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reposted by
Tess Falor, Ph.D.
KimK ... one day at a time 🇨🇦
10 months ago
Wow! Making good progress on this fundraiser
@tessfalor.bsky.social
😊 Just a little more to go folks... donations of any size will help complete this very important
#longCovid
study!
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reposted by
Tess Falor, Ph.D.
KimK ... one day at a time 🇨🇦
10 months ago
The majority of the work has been completed on this
#longCovid
research project... just needs a little push to button-up. Read more and donate if possible as below per
@tessfalor.bsky.social
who is one of the participants in the study!
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reposted by
Tess Falor, Ph.D.
Stephanie Mathis, MLS(ASCP) 😷💜
10 months ago
#LongCovid
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Dates are set! May 13-19.
#InnovationInn
5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.
add a skeleton here at some point
10 months ago
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reposted by
Tess Falor, Ph.D.
C.H. Romatowski
10 months ago
Hey y’all—David Esteban’s
@patientled.bsky.social
funded Long Covid study has hit a snag just before the finish line—the cost to process samples went up. They’ve collected 43 but now can only run 20. $7000 would cover the rest! Thanks so much for giving or boosting!
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Support David Esteban's study on Microbial Metabolites in Long COVID
* Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...
https://www.zeffy.com/en-US/fundraising/esteban-study
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3 years ago I joined a panel of patients to determine how to allocate $4.8 million to Long COVID, ME/CFS, & dysautonomia research (the
@patientled.bsky.social
research fund). It was an amazing experience working with patients like
@ahandvanish.bsky.social
@themegascope.bsky.social
& many more. 🧵
10 months ago
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reposted by
Tess Falor, Ph.D.
Katharina 🦋🍋🍀
10 months ago
Round Table on lactate levels in
#MECFS
and
#LongCovid
! 👇 Thank you
@sunsopeningband.bsky.social
@ciarawrightphd.bsky.social
@tessfalor.bsky.social
@isabelrb.bsky.social
@katboniface.bsky.social
@doc4care.bsky.social
and everyone else from
@renegaderesearch.bsky.social
for your great efforts!
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reposted by
Tess Falor, Ph.D.
Renegade Research
10 months ago
You are invited to attend our next Renegade Research
#Clinician
Roundtable on April 11, 2025 ✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more.
us06web.zoom.us/webinar/regi...
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reposted by
Tess Falor, Ph.D.
Ror Preston
12 months ago
Very excited to say that
@crunchme.bsky.social
's first report is out and about 🙌 The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions Our goal here is to bring together the key info needed to make the case for taking action *now*!
drive.google.com/file/d/17fgU...
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Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples. It's happening. My house. April or May 2025. @RenegadeRes
#RenegadeResearch
#InnovationInn
#ResearchRetreat
🔬🏡
11 months ago
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It's so exciting to see an
#MEspine
related paper published! Good timing before the
#MEspine24
(or I guess now
#MEspine25
) research roundtable tomorrow!
www.frontiersin.org/journals/neu...
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Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1484504/full
12 months ago
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reposted by
Tess Falor, Ph.D.
#MEAction NC
about 1 year ago
Looking forward to the part about "possible treatments in ME/CFS" Jan 24, 2025 1p Eastern US Hosts include
@renegaderesearch.bsky.social
@tessfalor.bsky.social
@isabelrb.bsky.social
@richellesepulveda.bsky.social
Robert Naviaux, MD. Q. Can NextGen Metabolomics be used to help diagnose CFS? A: Yes!
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I've been obsessed with Bob Naviaux's work for a few years now. He takes an evolutionary perspective, which I've been interested in for over a decade. Next Friday he will bring in another of my favorite topics -
#MEspine
(mechanical spine issues leading to
#MECFS
Sx)
tinyurl.com/4c34kety
about 1 year ago
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We had a great
@remissionbiome.bsky.social
primary Preliminary results meeting today! Watch the recording:
youtu.be/Y4Un2rQLKTw
about 1 year ago
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reposted by
Tess Falor, Ph.D.
Katharina 🦋🍋🍀
about 1 year ago
Let's start the new year with a few people really worth following if you're interested in
#MECFS
and
#LongCovid
:
@scheibenbogen.bsky.social
@putrinolab.bsky.social
@sunsopeningband.bsky.social
@exceedhergrasp1.bsky.social
@isabelrb.bsky.social
@tessfalor.bsky.social
More ⬇️
go.bsky.app/42cuLif
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reposted by
Tess Falor, Ph.D.
Elly Brosius, MS
about 1 year ago
To prep for
@renegaderesearch.bsky.social
@tessfalor.bsky.social
talk on 1/24/2025, you might scan Dr. Naviaux and his lab's ME/CFS page. (This talk is part 3 in series exploring mechanical, brainstem, and molecular basis hypotheses of ME/CFS.)
naviauxlab.ucsd.edu/science-item...
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Chronic Fatigue Syndrome research – Naviaux Lab
https://naviauxlab.ucsd.edu/science-item/chronic-fatigue-syndrome-research/
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reposted by
Tess Falor, Ph.D.
Renegade Research
about 1 year ago
Together, we can lead the way toward understanding, treatment, and ultimately, long-term remission. Help us keep up the momentum! 👉 Donate today:
zeffy.com/en-US/fundra...
(To make a larger donation or donate crypto DM
@tessfalor.bsky.social
) 6/8
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Accelerate research and care for ME/CFS & Long COVID
Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...
https://zeffy.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755
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reposted by
Tess Falor, Ph.D.
Renegade Research
about 1 year ago
Exciting news this Giving Tuesday! We’re excited to announce that our nonprofit, Renegade Research, has been awarded a grant from Vitalik Buterin's Kanro Filantropic Fund to kickstart 8 innovative patient-led research projects focused on
#MECFS
&
#LongCOVID
. 1/8
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reposted by
Tess Falor, Ph.D.
Thomas F. Varley
about 1 year ago
Since the COVID-19 pandemic washed over the world, institutions have utterly failed to reckon with the grim reality of Long COVID. In response, patients and citizen scientists have stepped up to do the science NIH won't.
#Science
#LongCOVID
#SciComm
,
synergies.substack.com/p/doing-the-...
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Doing the science ourselves
Facing a void of institutional research and clinical interventions, long COVID and other chronic illness sufferers are doing something remarkable: they're doing the science themselves.
https://synergies.substack.com/p/doing-the-science-ourselves
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We're all so different with how we respond to medications & other supplements. What works for one person could make another significantly worse. We really need precision personalized plans for complex, chronic illness.
about 1 year ago
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Started a Renegade Research list.
bsky.app/profile/did:...
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about 1 year ago
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Hi everyone! I'm back. :) Will try to be more active in here.
about 1 year ago
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reposted by
Tess Falor, Ph.D.
Katharina 🦋🍋🍀
about 1 year ago
And Tess Falor and Isabel Ramirez-Burnett presented a mind-blowing expected 1 billion (!)
#LongCovid
sufferers by 2033 in their
#UniteToFight2024
talk:
youtu.be/vypEPfWlHCU?...
@tessfalor.bsky.social
@isabelrb.bsky.social
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T. Falor & I. Ramirez-Burnett: Catalyzing change with patient/caregiver led research (Day 1,Block 5)
YouTube video by UniteToFight
https://youtu.be/vypEPfWlHCU?si=fcDN_5G4JJspcLlW
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We're in @ScienceNews!
www.sciencenews.org/article/pati...
"Patient-led research “moves orders of magnitude faster than traditional modes of research,” @PutrinoLab says, because it focuses on the questions that are of greatest concern to patients, leading more quickly to impactful results."
almost 2 years ago
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Exciting news! We got my single-cell immune profiling data back from ImYoo Health. There's a clear signature of gene expression changes in CD14 monocytes during the AmoxiClav & for months afterwards! Here's one example, but there are many more genes affected.
almost 2 years ago
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reposted by
Tess Falor, Ph.D.
María Richardson
almost 2 years ago
@remissionbiome.bsky.social
@tessfalor.bsky.social
have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support
youtu.be/WaM2mPzR64w?...
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reposted by
Tess Falor, Ph.D.
Isabel Ramirez-Burnett
about 2 years ago
Close to a year ago,
@tessfalor.bsky.social
messaged me and randomly said she was making me a “my intent” bracelet. She asked me if there was a word that defined me. My answer was
#COMMUNITY
! A week later the bracelet showed up at my door and I have not taken it off since 🧵 1/3
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reposted by
Tess Falor, Ph.D.
Isabel Ramirez-Burnett
about 2 years ago
Targeting exponential decay of suffering around the world. The conditions brought us together, but we have built a community that is focused on what we can accomplish together. We laugh, cry, celebrate, comfort and hold onto each other as a beautiful biome!
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The
@remissionbiome.bsky.social
#Renegade50
are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.
about 2 years ago
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During my 2009
@remissionbiome.bsky.social
event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.
about 2 years ago
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Telling
@drt.bsky.social
that I also had a
@remissionbiome.bsky.social
event. :)
about 2 years ago
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reposted by
Tess Falor, Ph.D.
Long Covid Lad
about 2 years ago
@remissionbiome.bsky.social
@drt.bsky.social
@tessfalor.bsky.social
This neuroinflammation study with PET scans is still recruiting. Might be worth seeing if we could get some before and after images for local participants?
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The 1st of the
@remissionbiome.bsky.social
#Renegade50
will be starting AmoxiClav this weekend!! I just ordered this gong to be delivered to him from Amazon Germany to kick off the party. I❤️our rogue band of pirates 🏴☠️.
about 2 years ago
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We're almost up to the anniversary of
@remissionbiome.bsky.social
starting to take off! The hashtag
#RemissionBiome
didn't even exist this time last year.
over 2 years ago
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reposted by
Tess Falor, Ph.D.
Isabel Ramirez-Burnett
over 2 years ago
If you are an individual WITHOUT
#MECFS
#LongCovid
or any other
#postinfectious
condition, generally relatively healthy and have a Biomesight result in the last 6 months that you’d be willing to share with
@remissionbiome.bsky.social
please contact me.
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Yay! I can't wait to try Visible Health Plus.
over 2 years ago
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Oh, we realize. 😁
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over 2 years ago
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reposted by
Tess Falor, Ph.D.
Julie Rehmeyer
over 2 years ago
forms.gle/q16Qb6sDJjef...
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BlueSky Invites for the Chronic Illness Community
Please fill out this form if you're the chronic illness community and you'd like to either (1) donate invite codes or (2) request an invite.
https://forms.gle/q16Qb6sDJjefC3xJ6
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Y'all need to follow Elly Bailey on Tiktok. She's making some awesome videos about her
@remissionbiome.bsky.social
#Renegade50 experience!
www.tiktok.com/@toerabbit/v...
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Elly on TikTok
Remission Biome update #mecfs #longcovid #remissionbiome
https://www.tiktok.com/@toerabbit/video/7286553710497615150?_r=1&_t=8gHH9TAKTdb
over 2 years ago
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reposted by
Tess Falor, Ph.D.
RemissionBiome MECFS/LongCovid Patient-led Research Project
over 2 years ago
Wanna know more about #Renegade50's? Our own Rachel Horton interviewed with #Renegade50 participant Elly Bailey for you. Pre-Long COVID she was a professor and journalist. We're so happy to have you in the team Elly. Thank you ❤️
www.youtube.com/watch?v=urpz...
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reposted by
Tess Falor, Ph.D.
Isabel Ramirez-Burnett
over 2 years ago
I am still seeing way too many #Longcovid patients who had a very active lifestyle continuously trying to exercise regularly while feeling horrendous. Please decouple general health recommendations for otherwise healthy individuals from #LC - your body needs that energy resource for basic functions.
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reposted by
Tess Falor, Ph.D.
Isabel Ramirez-Burnett
over 2 years ago
I am so excited to see the first few members of the #Renegade50 get through their testing & prep, walking towards the acute phase of the protocol already seeing improvements. #patientled #communitydriven #sciencebased #individualized WE are
@remissionbiome.bsky.social
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During my childhood, I had a family member who would often say, "I just feel like being lazy today". It was said as an apology & with embarrassment. Often after saying it, they would get up & start cleaning or running errands.
over 2 years ago
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