It's time to invest in biomedical research of complex chronic illness, harnessing patient expertise and community! Thanks @betsyladyzhets.bsky.social for this piece with @remissionbiome.bsky.social @meactnet.bsky.social +. Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS

@remissionbiome.bsky.social @tessfalor.bsky.social have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support youtu.be/WaM2mPzR64w?...

#MESpine #CCI #MCAS

Here's the recording of the second Peter Rowe talk! He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS. youtu.be/WaM2mPzR64w?...

Free webinar tomorrow by Dr Rowe, with Q&A. #MECFS #LongCovid #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

Recording of Part 1 here:

Happening tomorrow at 2pm EST! Register here: us06web.zoom.us/webinar/regi... (If you already registered for the 1st one, you don't have to register again.)

Part 2 - Peter Rowe, MD Feb 16 at 2pm EST Dr. Rowe will cover: ✨Bio-mechanical issues including thoracic outlet syndrome ✨Neuro-anatomic problems including cervical stenosis & CCI ✨Mast Cell Activation Register here: us06web.zoom.us/webinar/regi...

Want to understand why and how many people are using nicotine patches for #LongCovid and #MECFS? Start here! Linktr.ee/thenicotinetest

Register to join us next week, if you didn't register for the first one: us06web.zoom.us/webinar/regi... (If you already registered for the first one you don't have to register again. It's the same link.)

Watch the recording of Dr. Peter Rowe's talk that he just did for the community: youtu.be/hTNpWjbVhsY?... It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.

Reminder that part 1 of Dr. Rowe's talk is today at 2pm EST! Sign up link 👇 us06web.zoom.us/webinar/regi... #MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

RemissionBiome20 gets you 20% off... and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀 Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉

Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝 Have you made your calls yet today? Call guide here: longcovidmoonshot.com

During my 2009 @remissionbiome.bsky.social event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.

The @remissionbiome.bsky.social #Renegade50 are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.

The Microbiome's Impact on Health - my interview with Dr. Alessio Fasano ancestralhealth.substack.com/p/the-microb...

Community engagement makes research better, a win for science! www.nature.com/articles/s41...

@lifeanalytics.bsky.social machine learning for the win! www.thecrimson.com/article/2023...

Not protecting the most vulnerable is criminal. We know that cancer patients are at greater risk of contracting and complications from ID. How can we end this madness?

In a world where you can be anything: Be kind, be honest, be in service of others. We only live once & don't take anything with us. At the end of my journey, I want to have been loved & trusted. Today, I want laugh, find joy in the everyday things & never lose my humanity!!!

Throughout my illness, I have gone through financial devastation from medical bills and not being able to work. There were many times when I saw people having access to trx I couldn't even think of having. I clawed myself out some of the worst times by 1/

β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target the Trinity of Infection, Immunity, and Inflammation in COVID-19 - PMC www.ncbi.nlm.nih.gov/pmc/articles...

My very first conversation with @tessfalor.bsky.social about what has become @remissionbiome.bsky.social - I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.

Frontiers | Reaction of Human Monoclonal Antibodies to SARS-CoV-2 Proteins With Tissue Antigens: Implications for Autoimmune Diseases www.frontiersin.org/articles/10....

Excellent 🧵 about CDC's new page on "chronic symptoms following infections" www.cdc.gov/ncezid/what-...

The weight of a pineapple can certainly feel like the weight of the galaxy www.sciencealert.com/the-immune-s...

My episode of www.ancestralhealth.org/ today podcast with @jenbrea.bsky.social is now out. Listen and subscribe on Substack ancestralhealth.substack.com/p/mecfs-and-...

For The First Time, Scientists Show Structural, Brain-Wide Changes During Menstruation : ScienceAlert www.sciencealert.com/for-the-firs...

Targeting exponential decay of suffering around the world. The conditions brought us together, but we have built a community that is focused on what we can accomplish together. We laugh, cry, celebrate, comfort and hold onto each other as a beautiful biome!

Happy to share that I’ve won a 2023 health impact award, alongside a list of truly amazing (and way more well-known!) people. It’s an honour to be recognized for my writing & the awareness I’ve tried to raise for my conditions. www.verywellhealth.com/impact-award...

We beg for healthcare. In Canada we get a cold shoulder & the “offer” of MAID. Help is coming—from *within* the community. What happens when some geniuses with #MECFS trigger remission, then support a bunch of renegades through the same protocol? We’re finding out. 💪 linktr.ee/remissionbiome ⤵️

And, she's @drt.bsky.social's sister. Welcome, Tanya. So happy to have you in the team

Our own Rachel Horton interviewed with one of the youngest participants of #Renegade50. Thank you so much for sharing your story, Adrienne. We are so happy to have you in the @remissionbiome.bsky.social team and looking forward to seeing you playing bassoon again. www.youtube.com/watch?v=ieMG...

We're almost up to the anniversary of @remissionbiome.bsky.social starting to take off! The hashtag #RemissionBiome didn't even exist this time last year.

Brain fog in long COVID: A glutamatergic hypothesis with astrocyte dysfunction. ⁦Katrin Boniface did an amazing presentation on glutamate at the ⁦ @remissionbiome.bsky.social science round table. She’s been up to this for a while. www.sciencedirect.com/science/arti...

Yay! I can't wait to try Visible Health Plus.

If you are an individual WITHOUT #MECFS #LongCovid or any other #postinfectious condition, generally relatively healthy and have a Biomesight result in the last 6 months that you’d be willing to share with @remissionbiome.bsky.social please contact me.

"The degree to which even subtle disease-associated perturbations in IDR sequences altered the function of this major chromatin remodeler along the genome was surprising, and led us to explore the basis of the changes down to amino acid grammar," phys.org/news/2023-10...

Can't wait to share this interview!!!!

Oh, we realize. 😁

Videochatting with my beloved (and with my partner) because I'm at my mom's place in a different city getting ready for @remissionbiome.bsky.social. I told them about the Prodrome news and they're very excited for us 🪅.