Tara Nerte
@taranerte.bsky.social
📤 353
📥 203
📝 183
Not a duck. She/her.
#MECFS
pinned post!
Still looking... 👁️🔍 DMs open, if you know of capable + conscientious + Covid-safe eye doctors in the Kitchener-Waterloo area. 🙏
add a skeleton here at some point
over 1 year ago
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Tara Nerte
The Real McCoy
6 months ago
Underneath that post someone asked what it was like for Isla having the accusation of FII hanging over them. This is what her mom wrote. “It broke Isla emotionally. So damaging, she didn't trust anyone except family after that. Physically, it definitely caused a decline…”
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Tara Nerte
The Real McCoy
6 months ago
If you are unfamiliar with Myalgic Encephalomyelitis (ME) aka
#MECFS
it is a serious complex multisystem disease. But for decades it’s been dismissed, psychologized and ignored.
@georgemonbiot.bsky.social
calls it “the greatest medical scandal of the 21st century.”
add a skeleton here at some point
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Tara Nerte
sarah boothby
6 months ago
@meactionuk.bsky.social
@meactnet.bsky.social
please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
add a skeleton here at some point
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Tara Nerte
sarah boothby
6 months ago
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills
#HumanRights
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Tara Nerte
Yann (ME/LC)
6 months ago
This is Isla at age 8. She died at age 18 with severe ME/CFS. Isla’s mum, who took care of Isla and tried to protect her from abusive medical professionals has been arrested. The state and medical system are trying to blame her for a death resulting from neglect and harmful medical practice.
add a skeleton here at some point
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Tara Nerte
The Guardian
7 months ago
‘Gaza must be eliminated’: Israel’s airwaves are filled with pro-genocide propaganda | Arwa Mahdawi
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‘Gaza must be eliminated’: Israel’s airwaves are filled with pro-genocide propaganda | Arwa Mahdawi
Here is a collection of 20 of the more outrageous statements by Israeli lawmakers or public figures since 7 October 2023
https://www.theguardian.com/commentisfree/2025/jun/27/israel-gaza-propaganda?utm_term=Autofeed&CMP=bsky_gu&utm_medium=&utm_source=Bluesky#Echobox=1751019365
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Tara Nerte
C.H. Romatowski
7 months ago
This is a family I know and I’d be grateful for any leads or shares especially if you know people in the area.
add a skeleton here at some point
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Tara Nerte
Isabel Ramirez-Burnett
7 months ago
My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at
@renegaderesearch.bsky.social
Donate to my birthday fundraiser if you are able. Any amount helps
tinyurl.com/Renegage-Res...
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Isabel Ramírez-Burnett
Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...
https://tinyurl.com/Renegage-Research-Fundraiser
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Tara Nerte
e. hashman
9 months ago
There is no limit to my match this month!! So I've created fundraisers for:
@openmedf.bsky.social
:
openmedicinefoundation.crowdchange.co/50084
@meactnet.bsky.social
:
meaction.funraise.org/fundraiser/e...
But I will match any donations to ME-supporting 501c3s with a receipt.
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Tara Nerte
This is Nevra. Campaigner for health equity in the global south.
#DV
survivor. Wildly generous with her many talents. Severe illness haver, without support in Pakistan as an unmarried disabled woman...
11 months ago
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Unable to be here much lately, but I need you to know about this firecracker activist whose light may be snuffed out without more support. 🔥‼️ Passionate about women’s rights, health, and global equity? Please read on... 🧵
11 months ago
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Tara Nerte
Still looking... 👁️🔍 DMs open, if you know of capable + conscientious + Covid-safe eye doctors in the Kitchener-Waterloo area. 🙏
add a skeleton here at some point
over 1 year ago
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
My Canadian peoples. Looking for recommendations for a reputable online pharmacy. Finally breaking down and considering taking rx medication for my chronic pain and need to have it delivered. Sigh. Any suggestions would be appreciated.
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Tara Nerte
George Monbiot
over 1 year ago
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop.
www.theguardian.com/commentisfre...
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Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot
Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot
https://www.theguardian.com/commentisfree/2024/oct/18/maeve-bothby-oneill-me-chronic-fatigue-syndrome
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Still looking... 👁️🔍 DMs open, if you know of capable + conscientious + Covid-safe eye doctors in the Kitchener-Waterloo area. 🙏
add a skeleton here at some point
over 1 year ago
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Seeking
#Covid
-safe eye doctors (optometrist, & possibly ophthalmologist) in Kitchener-Waterloo. 👁️👁️ 🔸 I’m immune-deficient & chronically ill—can’t take risks. 🔸 Clean air is good, but doctor must be willing to 😷. Please comment or DM if you can recommend someone! 🙏 Reskeets appreciated. 💜
over 1 year ago
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Tara Nerte
Erin Raeburn
over 1 year ago
Canadian MCAS folks: Cromolyn eye drops have been recalled due to infection risk. Apparently the preservative isn't effective enough and there could be mold and bacteria growth.
#MCAS
#ChronicIllness
🇨🇦
www.ctvnews.ca/health/eye-d...
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Eye drops recalled in Canada over infection risk
A Canadian pharmaceutical company is warning consumers not to use some of its eye drops because of potential microbial growth that may result in eye infections.
https://www.ctvnews.ca/health/eye-drops-recalled-in-canada-over-infection-risk-1.7053334
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Tara Nerte
Kelly
over 1 year ago
It’s a terrifying time to be a patient. I have home nursing for BP checks & IV fluids…yet 3 times nurses have tried to administer insulin. I’m not diabetic. What if I were unconscious or unable to correct them? 2 out of 3 got mad at me for correcting them & tried to force the insulin on me /1
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
My Covid cautious people, I am trying to figure out how best to Covid proof the main level of a bungalow that has a separate basement unit. Any thoughts or resources? Thanks
##CovidIsAirborne
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
Israel using water as weapon of war as Gaza supply plummets by 94%, creating deadly health catastrophe: Oxfam Israel damaged or destroyed five water and sanitation sites every three days since the start of this war
www.oxfam.org/en/press-rel...
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Israel using water as weapon of war as Gaza supply plummets by 94%, creating deadly health catastrophe: Oxfam | Oxfam International
https://www.oxfam.org/en/press-releases/israel-using-water-weapon-war-gaza-supply-plummets-94-creating-deadly-health
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Tara Nerte
🇨🇦Joe Vipond🇨🇦
over 1 year ago
Hey All! Quick ask from the
@cancovsoc.bsky.social
. We've been gifted w/ amazing volunteers for many of our committees. But we do need some smart vols to help us with FUNDRAISING!If u care about our work, and have experience in non-profit Fundraising, plz reach out by DM!We'd love your help!
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Tara Nerte
Erin Biba
over 1 year ago
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
Jaskirat Singh Sirdu has served his sentence in the devastating Humboldt crash. Deporting him is cruel. Please consider signing this petition.
add a skeleton here at some point
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Tara Nerte
Kimiko Shibata
over 1 year ago
Worried or upset about the decision to cancel wastewater surveillance testing in Ontario? Contact the Premier’s Office at 416-325-1941. Email:
[email protected]
[email protected]
[email protected]
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
🚨🚨🚨🚨🚨 So our feckless government has decided to defund Ontario's Wastewater Surveillance Program. I have no doubt they needed the funds for their other priorities like BEER. Time to get loud, people. Call Doug Ford and tell him hands off our data. 416-325-1941
#CovidIsNotOver
#GetLoud
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
Speaking of fighting:
#onpoli
#healthcare
add a skeleton here at some point
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Tara Nerte
My IRL friends call me Chris
over 1 year ago
Those words above are from Leila Molana-Allen, PBS' special correspondent in the Middle East. This was an area designated as a 'safe area' by Israel. It forced the displacement of these poor people to this 'safe area' and then slaughtered them in tents. Mostly women & children. Barbarity. Evil.
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Tara Nerte
My IRL friends call me Chris
over 1 year ago
Barbarity. Evil. "I’m receiving videos far too graphic to publish of the horrors in Rafah tonight. A body burned black, dragged from destroyed make-shift tents, a young child in pieces. One toddler has been completely beheaded in the attack. Parents are clutching their dead children, screaming."
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
"There is no conflict that should be excluded from the reach of the law; no child’s life valued less than another’s. The law we apply is humanity’s law, not the law of any given side. It must protect all the victims of this conflict; and all civilians in conflicts to come."
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Tara Nerte
🚨 Anna has
#SevereME
, declining while dependent on her abuser. She must escape to survive. 🙏 Please share this post, in hopes of reaching (especially) Melbourne-area
#CovidCautious
folk willing to befriend Anna. 🧵: other ways to help 🌍 ⤵️ 1/
#DV
#LongCovid
#MECFS
#NEISVoid
#pwME
#pwLC
over 1 year ago
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🚨 Anna has
#SevereME
, declining while dependent on her abuser. She must escape to survive. 🙏 Please share this post, in hopes of reaching (especially) Melbourne-area
#CovidCautious
folk willing to befriend Anna. 🧵: other ways to help 🌍 ⤵️ 1/
#DV
#LongCovid
#MECFS
#NEISVoid
#pwME
#pwLC
over 1 year ago
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Tara Nerte
Susan Kiddie 🍉
over 1 year ago
Stop the Gaza genocide immediately From Dr. Abu Salmiya, Al-Shifa Hospital Director — 'This brief Correspondence is a plea to every human being to help stop this genocide right now—we cannot live like this; the world should not be silent about the killing of civilians in the thousands.
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Stop the Gaza genocide immediately
Since the attacks by Hamas against Israel on Oct 7, 2023,1 the Israeli retaliatory strikes, bombings, and strict sieges have almost never stopped. So far, more than 85% of Gaza's population have been ...
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)00135-1/fulltext#%20
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⚠️ Ontarians Against Infection Spread in Healthcare ⚠️ Opportunity to provide feedback to the CPSO. If you can, please do so 🙏 and share 🔁 Link to survey below 👇 Deadline: Monday, May 6. Kathryn explains in brief 🧵:
x.com/kadamssl/sta...
over 1 year ago
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Tara Nerte
Cats of Yore
almost 2 years ago
Posting this again because a lot of people said they found it helpful! Guide to ALT text:
www.perkins.org/resource/how...
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Tara Nerte
David Davies-Payne
almost 2 years ago
@davetuller1.bsky.social
interviews
@georgemonbiot.bsky.social
. A 40 min summary of the astonishing history & politics of
#MECFS
and
#LongCovid
. If you're a pt or loved one & wondered why there are no treatments & research has been so limited for 30 years👇
www.youtube.com/watch?v=GC5i...
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Interview with Guardian columnist George Monbiot on the mistreatment of ME/CFS patients
Earlier today I spoke with George Monbiot, a British investigative reporter and political activist who has been a columnist for The Guardian for almost three...
https://www.youtube.com/watch?v=GC5i3vQ8vSs
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Tara Nerte
Charlotte Clymer
almost 2 years ago
Anyone who claims to know exactly what’s going on right now and what exactly is about to happen is full of shit. This is one of those moments when we all need to slow down and be skeptical of most “information” out there. The best weapons of propagandists are fear and confusion.
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Tara Nerte
My IRL friends call me Chris
almost 2 years ago
This story is devastating. See these children. Speak of these children. “I saw a boy die from pain,” he had told me earlier. “He was 10 years old, & they were amputating, cutting thru his leg with no anesthesia. He just died. That was in Nasir hospital. He was actually the son of another doctor.”
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Gaza in a Million Pieces
After six months, Arwa Damon is finally allowed in to find a war being waged mainly against children
https://newlinesmag.com/spotlight/gaza-in-a-million-pieces/
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Pleased to accept delivery today from a Canada Post worker who wore a KN95 mask. Thank you for helping reduce the spread of airborne pathogens, and for setting a good example! 👍
almost 2 years ago
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Tara Nerte
Campbell J. Brice ✝️ 🌻 • 🍐 🇺🇦
almost 2 years ago
Excellent presentation from Prof David Putrino
@putrinolab.bsky.social
to (Australian) Federal Parliament yesterday on
#LongCOVID
,
#MEcfs
, and PEM. PEM is ‘behaviourally distinct’ from fatigue, exercise intolerance, effort preference, and deconditioning.
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Parliament - Professor David Putrino
https://www.youtube.com/watch?v=LIb94nvmU8s
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Tara Nerte
My IRL friends call me Chris
almost 2 years ago
"Among the group of children who developed long COVID, all remained asymptomatic during the 14 days following acute infection.. "The fact that approximately 1 in 13 asymptomatically infected children developed PCC [post-COVID condition, or long COVID] is concerning & requires further investigation"
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Tara Nerte
Susan Kiddie 🍉
almost 2 years ago
My fellow
#Covid
conscious people, you are not wrong, you are just early. Keep going. “The oncoming burden of long COVID faced by patients, health-care providers, governments and economies is so large as to be unfathomable."
#LongCovid
www.nature.com/articles/s41...
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The immunology of long COVID - Nature Reviews Immunology
SARS-CoV-2 infection can lead to a diverse array of chronic symptoms, collectively termed ‘long COVID’. In this Review, Altmann and colleagues explore current thinking about the pathophysiology of lon...
https://www.nature.com/articles/s41577-023-00904-7
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Very good anonymous survey from
@physiosforme.bsky.social
that will inform a larger study. Please share.
#pwME
/
#pwLC
(with PEM) who’ve tried vagus nerve stimulation via the ear*: Please consider spending spoons on this. Took me 20min. Well-informed questions. I believe it’ll provide helpful data.
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tvNS survey 2 | Physiosforme
https://www.physiosforme.com/tvnssurvey2
almost 2 years ago
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Tara Nerte
Plague Poems
almost 2 years ago
What I miss most about the time before the pandemic was not knowing how many people how many people I trusted would abandon me in the event of a pandemic.
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Tara Nerte
Cate
almost 2 years ago
We can actually organize towards a society that works for the good of all and meets everyone's needs. We can. We have to listen to what everyone needs to build it, though.
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Tara Nerte
Susan Kiddie 🍉
almost 2 years ago
'We cannot lift our heads, we cannot speak loudly, we can hardly breathe. I'm whispering as I speak to you so the [Israeli soldiers] do not notice that we are here'
www.middleeasteye.net/news/war-gaz...
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Civilians trapped as Israeli forces besiege al-Shifa hospital in Gaza
Besieged Palestinians describe harsh conditions under Israeli siege as the largest medical facility in Gaza is facing intense attacks
https://www.middleeasteye.net/news/war-gaza-civilians-trapped-israeli-forces-besiege-al-shifa-hospital
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Tara Nerte
My IRL friends call me Chris
almost 2 years ago
Gazans aren't starving, they're being starved. "The extent of Israel’s continued restrictions on entry of aid into Gaza, together with the manner in which it continues to conduct hostilities, may amount to the use of starvation as a method of war, which is a war crime.” - Volker Turk, UNCHR
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UN says Israeli restrictions on Gaza food aid may constitute a war crime
High commissioner for human rights describes crisis as human-made as hunger levels worsen
https://www.theguardian.com/world/2024/mar/19/un-israeli-restrictions-gaza-food-aid-war-crime-hunger
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Tara Nerte
Susan Kiddie 🍉
almost 2 years ago
New Oxfam report shows Israel continues to block aid in
#Gaza
despite ICJ
#genocide
court ruling. Rejected aid, including Oxfam water and sanitation gear, is now stockpiling in a warehouse at Al Arish.
www.oxfam.org/en/press-rel...
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Israel government continues to block aid response despite ICJ genocide court ruling, says Oxfam | Oxfam International
https://www.oxfam.org/en/press-releases/israel-government-continues-block-aid-response-despite-icj-genocide-court-ruling
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