🚨📞CALLS needed TODAY! Final push to get Senators to sign on to $210M to fund LC & related conditions in FY27 budget appropriations. This call tool routes to Senators with a script: tinyurl.com/LongCOVIDCall Leave a msg., if needed. More in 🧵on this #FundLongCOVID campaign.👇

💻 Summer student job alert! The Indy is hiring a Research Assistant to conduct research, provide analysis and recommendations for features and content on our website, and draft infographics and other visual aids for articles. Read the job ad for more 👇 theindependent.ca/announcement...

#pwLC #pwME #POTS #NEISVoid LAST DAY to call! Easy tool with script that routes to your Senators tinyurl.com/LongCOVIDCall Info in thread about appropriations ask here. Please call, like, and reshare. Email tool in next post (if needed)

#pwLC #pwME #POTS #NEISVoid Please call your senators by COB tomorrow/Friday for this LC funding appropriations ask. Easy call tool here tinyurl.com/LongCOVIDCall Calling/leaving a message is best but here’s an email tool if needed tinyurl.com/LongCOVIDEmail

Please call or email your Senators by close of business Friday 4/17 & ask them to sign on to the “Dear Colleague” letter for Long Covid funding: Call tool: win.newmode.net/longcovidcam... Email tool: win.newmode.net/longcovidcam...

Deadline for this is tomorrow! Make a pair of quick calls to ask your Senators to support funding for Long Covid in FY27 Appropriations! Call tool: tinyurl.com/LongCOVIDCall #LongCovid #NEISvoid

If you have the time/energy to make a call by Friday, this is one the best bets for new research funding for #LongCovid. Led by hill wiz @meighanstone.bsky.social — asking your Senators to sign on to this "Dear Colleague" letter is one of most important ways to ask for new funding for FY27.

Sending an email took me less than a minute via the link in the thread — if you have the energy, please join me! I’m out of talking spoons today but I’m gonna try to call tomorrow! #FundLongCovid

they got the Church of England supporting the Pope now

US friends ⬇️

Please take a few minutes to contact your senators. We need to #FundLongCOVID #LongCovidKids

📣U.S. Action Item: #pwLC #POTS #pwME #NEISVoid we need your help! Will you contact your Senators & ask them to sign on to the FY27 Senate “Dear Colleague” Letter for over $210 million to #FundLongCOVID in 2027 Appropriations using our EASY low-spoons call/email tool?🧵

Oh, chronic absenteeism after the pandemic has risen to over 60% for high school students in Ontario? That’s because IT’S NOT AFTER THE PANDEMIC Kids are missing school because they are sick, and this is happening on a global scale. @globalnews.ca apple.news/A59EHd4IQS-O...

How our tax system guarantees extreme wealth concentration

“I #MaskUp because I don’t want to become further disabled by another infection.”—Melissa Mazur @phillyphile215.bsky.social, a first wave COVID long hauler who got sick in March 2020 and never got better. Read Interview by @MsJulieSLam.bsky.social www.instagram.com/p/DXFc5ecEcvD/

“My teacher gave us this website today bc it’s hard to research bc the school computers block a lot of sites and we can’t use AI. It’s like Google but it’s a website and you can search — I think it’s called britannica school?” - My third grader

Effective 2025 federal tax rates paid by these corporations: Alphabet: 8.01% AT&T: 4.6% Meta: 3.57% General Motors: 3.09% Amazon: 1.37% Exxon Mobil: 1.31% Disney: -1.57% CVS Health: -3.88% Income tax rate paid by the typical American: 14.5% This is what a rigged system looks like.

Help! I'm looking for people with ME/long covid or similar who do something creative (eg painting, photography) that is inspired by nature to feature in my book. Ideally people more severely affected than me, so bed bound or partially bed bound #mecfs

"I’ve seen the toll #LongCOVID takes on the lives of my friends and colleagues. Like any mass-disabling event, it highlights how little support society gives disabled people." — Skye Tenorio, AD for Strangely Optimistic in the Easterseals Disability Film Chall. Watch www.youtube.com/watch?v=aaVm...

Investigative Journalist Julie K. Brown to Address Columbia Journalism School Graduating Class | Columbia Journalism School journalism.columbia.edu/news/julie-k...

As does our disregard of covid.

You and me both! Doctors are profoundly uninterested in helping me not starve atm

Business Insider: "POTS explained: The disorder that led OpenAI exec Fidji Simo to take medical leave" www.businessinsider.com/what-is-pots...

Question for my 😷 wearing friends…I wore a Well Before KN95 yesterday when I usually wear another brand, same shape. I found it particularly itchy & wonder if this is some sort of MCAS reaction to something in it. Anyone else have this issue? #CovidIsNotOver #CovidIsAirborne

Still riding high from my return to Shadowland Lancaster. Not sure when I'll be back but @djstygian.bsky.social and I agree it'll happen again.

It really is! Starts as a microaggression but ends with woman around the world dying of MAID because medicine couldn’t be bothered to even try to research or treat them

The horse op-ed is an instant classic. I can't tell you how much joy this piece gives me. It should be taught in every introductory writing class in no small part because the horse arguments are so compelling. "I have noticed that human children get to eat cake. But I am bigger than the children."

“‘I feel like I don’t really exist,’ she said, her voice small.” This line stopped me in my tracks bc I literally just said the same words. There’s only so much that can be taken from you before you feel non-existent. Beth was an unusually powerful force for good, but many of us w/ ME feel this way

Being called a "weak link" for masking still no longer bothers me if I take it literally - why yes, I am the weak link… in the SARS-CoV2 transmission chain helping to stop infections ⛓️‍💥

This is a beautiful and deeply moving piece about the extraordinary Beth Mazur. As Julie writes, "my friend was a giant". #MEcfs

“We talked about all M.E. had taken from us. From her, it had stolen her career, her imagined children, snowboarding, often even the strength to get out of bed. But the worst theft was her brilliant technologist’s mind. She told me she constantly felt concussed…” 💔

Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...

The Independent: ‘It gave me a shock’: Cold Feet star reveals debilitating battle with long Covid" 'Actor Hermione Norris, 59, has battled long Covid - describing the condition as a ‘shock’ to her body' www.the-independent.com/arts-enterta...

A federal judge said the American Bar Association can proceed with a lawsuit alleging President Donald Trump's administration adopted an unlawful policy to punish law firms over their past legal work, diversity policies and political ties.

Happy April Fool’s Day! Anyone else learn this song when they were younger? m.youtube.com/watch?v=20um...

"The complete and utter failure of the metaverse is a reminder not just of the fact that the future Silicon Valley is force feeding us is not inevitable, but that quite often these oligarchs quite simply cannot relate to real people." www.404media.co/rip-metavers...

It really is fckd that we keep sacrificing ppl’s health to Long Covid while either looking the other way or openly mocking them. That hundreds of millions are sick & getting sicker from reinfections & we think that’s fine? That we don’t even TRY to stop it from happening to kids. Antisocial as hell.

Please help support Meighan Stone, (@meighanstone.bsky.social), Executive Director @LCCampaign, who has had a raft of health and housing problems, outlined by @phillyphile215.bsky.social, below gofund.me/b2adf0520. She does so much for others and needs our help now. Thx.

Excited to finally get this one out in @Nature_NPJ! In the largest study of its kind to date, we used data from the @visible_health platform to answer a simple question: can we predict symptom fluctuations and crashes from both the physiological and www.nature.com/articles/s41... 1/

This year hit hard. COVIDversary was on a Saturday just like 2020. I got myself a cake (inspired by @emilyesfraser.bsky.social). Never expected to still be sick 6 years later. But what’s worse is living in a society that treats us like collateral damage while people keep joining this club 😔

For #WorldTBDay, New Tongue-Swab TB Test Could Help Eradicate The Disease, WHO Says via @forbes www.forbes.com/sites/judyst...

Excited to get this out in preprint: triple-blind, placebo-controlled microtesla magnetic therapy (MMT) is safe, feasible and effective in reducing cognitive impairment in people with #LongCOVID. I get excited about interventions for cognitive symptoms www.medrxiv.org/content/10.6... 1/

New Reporting: Missing files, FBI investigated possible obstruction of justice following Epstein's death open.substack.com/pub/jkbjourn...

remember when they raised the price of everything during covid (observed) and then just decided to keep them there

Philly Philly representin’ this weekend! 👏👏👏International LC Awareness Day (March 15th) scrolling atop the @pecoconnect.bsky.social building! Check it out, if you are local.

I wrote a @ko-fi.com blog post for #LongCovidAwarenessDay and how that relates to me. It's free, because I need more awareness on the overall desastrous medical situation, but I also feel vulnerable. 🙃 You can read it here: ko-fi.com/post/Long-Co... #LongCovid #MCAS #Disability #ChronicIllness

For #LongCovidAwarenessDay — I know so many of us would love to see progressives start to be consistent in their progressive values: “Governments modelling abandonment.. in time of crisis signal support to fascist, eugenicist & Nazi logic.. pandemics can give rise to fascist political economies”

I hope this #LongCovidAwarenessDay manages to open at least one set of eyes about the scope and depth of this ongoing problem. I hope one more person decides to start wearing K/N95 masks to protect themselves & others from contracting or exacerbating this horrific illness.

i wish we'd life in a world where #longcovidawarenessday wouldn't be needed. both to all those suffering severely, cause ya sure all don't deserve the hell longcovid brought to you and to all those with only mild issues, never aware what they actually have. there's so many without a clue..

@zohrankmamdani.bsky.social dropped the ball, refusing to acknowledge #LongCovidAwarenessDay along with LA, Austin, & other major cities. Ignoring us won't slow the growth of this mass disabling event; it just reminds us again how Disabled lives don't matter to @mayor.nyc.gov. #DisabledLivesMatter