Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET! The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied. Register here: us06web.zoom.us/webinar/regi...

We want to thank HHS Secretary Kennedy and fellow hosts for convening last week's #LongCOVID roundtable. The COVID-19 Longhauler Advocacy Project’s (C19LAP) leadership watched with great interest. 1/

Please join the COVID-19 Longhauler Advocacy Project in proudly welcoming our newest Board of Directors, Tammy Wilshire and Brooke Keaton. We’re honored to have their leadership, expertise, and unwavering commitment as part of our team. Learn more about them below! 1/

Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed, and protected. Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en 1/

URGENT ACTION NEEDED FROM MINNESOTANS! MN risks losing its Long COVID program among the nation's best with top staff. Legislators seem set on defunding it before session ends May 19. ALL MN constituents, friends & family please urgently send letters, call & advocate repeatedly! bit.ly/SAVEMNLCPROG

Studies across 14 nations show 25% to 30% rate of long COVID Among the 25.1% of participants who said they experienced long-COVID symptoms, 12.8% reported sleeping disorders. www.cidrap.umn.edu/c...

The WH is reportedly planning a 40% cut—$20B—to NIH in its FY 2026 budget request, slashing it to $26.7B. This would be catastrophic for medical research. www.msn.com/en-us/health... Congress must reject it. Our lives depend on it. Contact them today! 1/2

Is Covid Rewriting the Rules of Aging? Brain Decline Alarms Doctors as millions of long-Covid patients continue to struggle with cognitive difficulties. Ft: C19LAP BOD Ken Todd. www.wsj.com/health/welln...

This is public health in action. Clear communication and getting the word out is the critical first step to protecting communities. (But please retire the flawed RECOVER 12-Sx Study & instead use the consensus 2024 NASEM Long COVID definition). @mdhumanservices.bsky.social #longcovidawsreness

"The cuts in all of our agency are not affecting science," he said. "Front-line enforcement jobs and health delivery jobs are preserved." Closing the Office for Long COVID Research & Practice certainly affects science & health delivery. abcnews.go.com/Politics/rfk...

For every 10% increase in the percentage of observed individuals who were fully masked, the odds of detecting SARS-CoV-2 in school wastewater decreased by nearly 10%. ajph.aphapublications.org/doi/10.2105/...

RECOVER pathobiology studies funding restored. Showing up when called upon matters. It doesn’t always work, but sometimes it does, and can make a huge difference. thesicktimes.org/2025/03/28/u...

5050 Letters Sent! Keep it going! Send yours today! Tell a friend! actionnetwork.org/letters/long...

We are up to 3,800!#TellaFriend

From 450 this morning to 2,909 at 5pm est! Keep it going, tell a friend! It takes 30 seconds to participate.

Interested in talking to the media? docs.google.com/forms/d/1Qhy...

In 30 seconds you can support millions with Long COVID. Tell the admin to keep their hands off #LongCOVIDPrograms! actionnetwork.org/letters/long...

To the millions we serve, A statement from our founder on the devastating closure of the HHS Office for #LongCOVID Research & Practice. Within, find an action network to easily write @SecKennedy @POTUS & Congress & a volunteer form. longhauler-advocacy.org/so/ebPNEWBYA...

Five years later, we are not alone. #LongCovid damage is nothing short of baffling. @sanders.senate.gov @duckworth.senate.gov @kaine.senate.gov Don’t forget about us. Thank you @nbcchicago.com for helping #LongCovidAwareness by sharing our story. nbcchicago.app.link/s4hgLRPnXRb

5 years after onset of COVID-19 pandemic, suburban mother remains impacted by long COVID www.nbcchicago.com/top-videos-h... Thank you to C19LAP member Susan for this piece on NBC. #LongCOVIDAwareness

Did you know we have a chapter for each US state & territory as well as several community-based chapters like BIPOC, LGBTQ, Pediatrics and Pregnancy, Caregivers, Labor Force + - they just turned 4 today! www.longhauler-advocacy.org/team-community 1/2

A Day of Rest, A Lifetime of Advocacy 🙏 Thank you for standing with us this #LongCOVIDAwareness2025 Today, we rest—but tomorrow & everyday thereafter, we keep fighting for #LongCOVID. Save our daily calendar! bit.ly/LCAD2025. #LongCOVIDDayofRest #StrongerTogether

On Wednesday we had the honor of hosting a webinar “Five Years Later: The Ongoing #COVID & #LongCOVID Crisis & the Future of Public Health” w/ @mtosterholm Dir. Of @CIDRAP & #C19LAP founder @K_Bishof for #LongCOVIDAwareness Day. Watch the webinar here: www.youtube.com/embed/FHqq5N...

One in five people infected with COVID-19 develop Long COVID which is thought to be caused by autoimmunity, immune dysfunction, and viral persistence. #LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025

Long COVID is a systemic disease state occurring after a COVID-19 infection that can affect anyone, anytime, and every organ system. #LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025

COVID-19 is a gateway to lifelong disability, altering the immune system and increasing the risk of reinfections, autoimmune disorders, and life-threatening conditions. #LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025

TODAY IS LONG COVID AWARENESS DAY! On #LongCOVIDAwarenessDay, help raise #awareness by sharing facts about #LongCOVID! #FactsMatter 15 Facts | 15 Hours | #FiveYearsLater See the thread below for individual facts to post! Share them all, tag a friend. #longcovidawareness2025

Join us for a #MomentOfSilence on #LongCOVIDAwarenessDay Sat. Mar. 15th to honor millions impacted by #LongCOVID. -Log on at 3:10 | ends 3:20 PM EST -Wear teal, bring a candle to light Register Here: bit.ly/LCA2025MOS #LongCOVIDMomentofSilence #LongCOVIDAwareness #LongCOVIDAwarenessDay

3/14- A Day for Public Visibility, Support, & Mourning #LongCOVIDDeath & #LongCOVIDDisability has devastated millions. Today, we honor all bereaving #LongCOVID & demand action. Head to bit.ly/LCAD2025 for our dailytoolkit & instructions! #LongCOVIDAwareness

It’s official! March 15 isn’t only International Long Covid Awareness Day, it’s also now recognized as #LongCovid Awareness Day in California! Thank you to Marked by COVID founder Kristin Urquiza for facilitating and C19LAP volunteer Becky Letts for representing! #LongCOVIDAwareness

Today is a MAJOR day for #LongCOVID awareness week! Contact HHS Sec Kennedy, state and local health depts, demand masking in healthcare facilities, & help support those fighting for public health! Instructions: bit.ly/LCA-THU

Did you know it was Long COVID Awareness Week? Join us for a week of actions and events that help raise awareness and drive solutions for #LongCOVID. #LongCOVIDAwareness cannot happen without you! Head over to www.longhauler-advocacy.org/lcad-2025 for ways you can get involved!

Long COVID Awareness Week Wednesday 3/12 Today, we highlight the needs of both children and adults with Long COVID and the caregivers who support them. Participate in todays actions here: bit.ly/LCA-WED #LongCOVIDKids #LongCOVIDCaregivers

TODAY AT 3pm EST Topic: Five Years Later: The Ongoing COVID & Long COVID Crisis, & the Future of Public Health Register zoom.us/webinar/regi...

#LongCOVIDAwarenessWeek 3/11- A Day for Recognizing Government Failures & Successes #ContactNationalLeadership to act on #LongCOVID & #FundLongCOVID Research, Education, Treatments, & Prevention. Head to bit.ly/LCAD2025 for our daily calendar & instructions! #LongCOVIDAwareness2025 #PublicHealth ⬇️

BHC joins in the recognition and raising awareness of Long COVID and its impact on millions of lives. 💙🌍 Please share and like. 📢✨ Remember to pace as you engage in advocacy efforts. ⏳💜 #LongCovidAwarenessWeek #LongCOVID

Join @c19lap.bsky.social and @mtosterholm.bsky.social on March 12 at 3pm ET for a critical discussion on COVID in 2025. Learn about ongoing impacts, Long COVID, and paths to better pandemic preparedness. Register: zoom.us/webinar/regi... #LongCOVIDAwareness2025 #LongCOVID #PublicHealth

#LongCOVIDAwareness2025 3/10– A Day of Community Recognition & Support Today begins #LongCOVIDAwarenessWeek & #FiveYearsLater, we stand together to recognize & uplift those impacted by #LongCOVID & cont the fight. Head to bit.ly/LCAD2025 for our daily calendar & instructions! #LongCOVIDMassFollow ⬇️

Join C19LAP and the global Long COVID community during #LongCOVID Awareness Week March 10th through 16th! #LongCOVIDAwareness2025 Our Week-Long Toolkit is available here. Links will go live tonight for daily actions. www.longhauler-advocacy.org/lcad-2025 Today, you can do 3 things: 1/3

#LongCOVIDAwarenessWeek starts Monday! COVID-19 Longhauler Advocacy Project has a daily toolkit on actions and events! Links will go live Sunday. Check it out here! Https://www.longhauler-advocacy.org/lcad-2025 You are also encouraged to change your profile picture for March!

Join C19LAP March 10-16 to kick off #LongCOVIDAwarenessWeek! We'll be sharing our actions & events daily across social media & email which will bring you to our daily toolkit! Join the #LongCOVID community, spread the word, & be part of the movement! #LongCOVIDAwareness2025 1/

March 15 is #LongCOVID Awareness Day, but action is needed daily! Here are five things you can do to help this month: • Use #LongCOVIDAwareness2025 & #LongCOVIDMassFollow to share • Change your profile picture • Reach out to policymakers • Host a COVID-safe event • Donate to support our community

Change your profile picture for #LongCOVIDAwareness2025 (or forever!) - save the below and upload it as your profile picture. We are trying to work on a profile ring (tbd on availability- see comments for example).

Change your profile picture for #LongCOVIDAwareness2025 (or forever!) - save the below and upload it as your profile picture. We are trying to work on a profile ring (tbd on availability- see comments for example).

March 1st Kicks Off #LongCOVID Awareness Month! Join us during #LongCOVIDAwareness2025 to raise #LongCOVIDAwareness, promote #LongCOVIDEducation, & advocate for needed #LongCOVIDResources & to #PreventandCureLongCOVID! Stay tuned for #C19LAP actions & events coming soon!

Five Years Later: The Ongoing COVID & Long COVID Crisis, & the Future of Public Health Join C19LAP founder, @KBishof.bsky.social & @mtosterholm.bbsky.social, @CIDRAP.bsky.social Director (UM), for a webinar on March 12th at 3pm EST. Register & share: bit.ly/c19lapostweb #LongCOVIDAwareness2025

Five Years Later: The Ongoing COVID & Long COVID Crisis, & the Future of Public Health Join C19LAP founder, @KBishof.bsky.social & @mtosterholm.bbsky.social, @CIDRAP.bsky.social Director (UM), for a webinar on March 12th at 3pm EST. Register & share: bit.ly/c19lapostweb #LongCOVIDAwareness2025

Calling all International #LongCOVID orgs & groups! Contribute to an international calendar for #LongCOVIDAwareness2025 Day | Week | Month! -Add Events: bit.ly/LCAD2025AE -Sign on: bit.ly/LCAD2025SO #UnitedForLongCovid #PreventandCureLongCOVID #COVID #PublicHealth

A good summary of whats gpong on thesicktimes.org/2025/02/21/t...

Contact your memebers of Congress and demand they extend access to telehealth services, which will end 3/31/25, unless extended by Congress. Find your members of Congress here: www.congress.gov/contact-us 1/3