Please call or email your Senators by close of business Friday 4/17 & ask them to sign on to the “Dear Colleague” letter for Long Covid funding: Call tool: win.newmode.net/longcovidcam... Email tool: win.newmode.net/longcovidcam...

Cool cool so you have to meet means testing to retain your Medicaid coverage, but offices are understaffed so the people who administer that means testing are hopelessly behind.

Join us on May 6 to celebrate the launch of Listening for the Long Haul, our new Long COVID oral history website! WEDS MAY 6 4:30-6:00pm ET Zoom Register: tiny.cc/lflh-launch

This #LongCOVIDAwarenessMonth, we’re excited to announce that our new oral history website is live! Featuring 100+ hours of interviews of people living with #LongCOVID. We’re building a living history of Long COVID, and bringing voices from the margins to the center. ListeningForTheLongHaul.org

Have you tried "off-label" meds for Long COVID and associated conditions (LCAC)? Learn more in this resource from our Long COVID Essentials series, created in partnership w/ @thesicktimes.org: longcovidjustice.org/off-label-meds

March is Long Covid Awareness Month and I got enamel ribbon pins made! Purchase here to support: www.ebay.com/itm/36623394... Wear on your mask, backpack, or shirt 🩵🩶🖤 @c19lap.bsky.social @longcovidkids.bsky.social @longcovidadvoc.com @longcovidjustice.org @longcovidsupport.bsky.social

Thanks everyone who supported this campaign! Shout out to @cleanairla.bsky.social for spearheading these efforts 💜

Medical insurers are in the premium collection business, not the claims payment business

More coming soon, don’t miss a thing! www.panaccindex.info/subscribe

Although there is no known cure for Long COVID, there are many over-the-counter treatments that have helped patients find some relief from symptoms! Learn more in this resource from our Long COVID Essentials series, created in partnership w/ @thesicktimes.org: longcovidjustice.org/supplements-otc

Our hearts are with all of you fighting for justice, on Valentines Day and beyond. We can’t do this alone, and we won’t leave anyone behind. MakesMeSick.org @meactnet.bsky.social

Disabled, chronically ill, & marginalized communities have long histories of organizing, educating, & caring for each other. We carry on this legacy by creating evidence-based resources on Long COVID & associated conditions – check out our explainer series, made with @thesicktimes.org! tiny.cc/LCE

Action alert - We're co-sponsoring @meactnet.bsky.social's ICE Makes Me Sick campaign. Use this easy tool to send a quick message to your House reps: makesmesick.org?source=direc... Tell reps to stop bankrolling ICE violence while slashing our healthcare & homecare. Fund healthcare, not violence!

The HIV Complexities Project (a program of Long COVID Justice) is excited to share this event hosted by our friends & comrades at Black South Rising @blacksouthrising.bsky.social, featuring three powerhouse speakers! ❤️‍🔥❤️‍🔥❤️‍🔥 Register: tiny.cc/Reckoning-Feb-4 #NationalBlackHIVAIDsAwarenessDay #NBHAAD

I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following: (1/3)

In this week's episode of the People's Health Briefing, Dr. Aboelata shares updates on contagious illnesses as well as dives in the overview and complications of measles. www.youtube.com/live/NnUfNce...

The closing of ~80% of #LongCOVID clinics—which provided services that PCPs couldn’t—due to funding cuts, provider burnout and lack of approved treatments, is leaving ‘millions’ of LC patients to suffer without care. @scienceline.org 🧵 scienceline.org/2026/01/long...

We have seen a wave of dangerous proposals and policy changes from this administration that threaten the rights, freedom, and safety of disabled people. That’s why we’ve put together a resource debunking misinformation about autism and why it matters so much! autisticadvocacy.org/debunking-au...

It’s World AIDS Day today. We’re thinking about the practices our communities have developed to keep each other alive—and the shifts we need to see in public health, from small groups to large institutions.

Did you know that trans people are more likely to report having Long COVID than cis people are? On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people. Created with @longcovidjustice.org longcovidjustice.org/lc-in-trans-people

We're thinking about these powerful words from disability justice activist @miamingus.bsky.social, and reflecting on all the work we must do to keep fighting for Long COVID justice and #disabilityjustice!

Pandemic precautions should be universal & sacred! We’re gathering resources to make sure we can keep this work going into 2026. Have you found our work helpful? Let us know by making a gift tiny.cc/give2lcj or sharing a comment! Every dollar makes a big impact for our small org, from $5 to $500

Medical masks were never designed to protect the wearer — and leading safety authorities are finally saying so. Only respirators (like N95s) qualify as Personal Protective Equipment (PPE). Read more: whn.global/whn-joins-in.... #PublicHealth #N95 #MaskUp #Masking

Whenever people complain about the number of folks relying on food stamps, it is worth reminding them that SNAP is, by too large of a degree, a subsidy for corporations that refuse to pay a living wage and their political allies who reject public policy prescriptions to reduce income inequality.

RFK Jr. will eliminate as many vaccines as he can. Every step he takes at the CDC is in service of this aim, as well as undermining public health infrastructure overall. He cannot tolerate scientists who know more than he does, so they must go. Another great piece by @melodyschreiber.com.

Does your doctor need more info on Long COVID? Our new webpage features resources made FOR doctors, BY doctors! longcovidjustice.org/providers

ICYMI: A call for all People Living with HIV and allies: it's time to reignite our movement to fight for our lives and improve our quality of life. HIV COMPLEXITIES THURS OCT 16, 6:30–8:00 PM ET Zoom • Free! Learn more & register: longcovidjustice.org/events/#hcpweb

When you feel yourself becoming complacent or surrendering to hopelessness or apathy, remember that everything that exists today exists because someone(s) dreamt it up and decided to put in the work to make it a reality. We can create new ways of doing things, new ways of being, new worlds.

#LongCOVID is not functional neurological disorder (FND), but some patients are getting diagnosed with it. Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB

We're excited to announce our new support group for people living with HIV and other complex conditions, hosted by Gabriel San Emeterio, LMSW @gabrielhse.bsky.social, Senior Fellow at Long COVID Justice and member of the HIV Caucus @plhivcaucus.bsky.social Interest form & details: bit.ly/hiv-group

Looking forward to hearing from our former co-executive director @crankyqueer.bsky.social and many others at this critical event!

We're excited to share this upcoming event presented by Sista Creatives Rising, featuring “stories of BIPOC, COVIDing and Multi-Marginalized Creatives.” Check it out! Art & Mind: COVID, Climate & Our Future Sept. 25, 6:30-9:30pm ET on Zoom FREE tix: givebutter.com/Covidclimatefuture

"Vaccine skeptics" is propaganda. The press needs to stop using the phrase. Kennedy is hiring liars and scammers, not skeptics. All scientists are skeptics. That's what science is. And we should be skeptical of vaccines until they are proven to be effective. Again, that's science.

Foreign aid funds, including for PEPFAR, are being withheld illegally by the Trump administration despite being appropriated by Congress, advocates and experts say. My latest, featuring @agawande.bsky.social and @jenkatesdc.bsky.social: www.theguardian.com/us-news/2025...

Following this news - and hoping to see some larger trials studying this!

Join us for an urgent conversation about disability justice for People Living with HIV #PLHIV and, often underdiagnosed, co-occurring complex chronic conditions like #LongCOVID, #MECFS, & frailty. REGISTER: tiny.cc/hcp1024 Recording & resources will be sent to all who register.

Important alert! Many people in the U.S. are rushing to get another COVID vaccine *before Friday*, bc of fears that the FDA will restrict access to adults 65+ and people at high risk (we don't know exactly how that will be defined.) Learn more in this post & in the comments inc tips on pharmacies!

Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME. Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social

As we head into the 11th #COVID wave in the US, predicted to peak in mid-September, wanted to reshare these vital info resources in English and Spanish from @thesicktimes.org & @longcovidjustice.org on #COVID19 and #LongCOVID

Will health insurance pay for Covid vaccines this fall? It's unclear. Here's what we know and do not. www.nbcnews.com/health/healt... via @nbcnews.com

No, it's not only the US who will suffer from RFK Jr cancelling vaccine research. 1️⃣ You can't just instantly teleport research projects. Cancelling US projects slows global progress. 2️⃣ Preventing pandemics will always be a group project. The US is letting the team down & putting the world at risk.

Meet Jenna! Over the next few weeks, we’ll be introducing people who are working to shift the narrative around Long COVID, as part of our Listening for the Long Haul (LFLH) project.

“I don’t think I’ve seen a more dangerous decision in public health in my 50 years in the business." apnews.com/article/kenn...

As I reported earlier this year, the attacks on social security and its offices will have a disproportionate impact on retirees of color. Latino and Black people are more likely to have their sole source of income in retirement be social security. www.motherjones.com/politics/202...

Exciting news from the world of cute queer community care: Word for Word @wordforwordfactory.bsky.social + babs @itsbabs.bsky.social have teamed up on a new series of pinback buttons as a benefit for @longcovidjustice.org & @thesicktimes.org ! Available thru 8/31 only at WordForWordFactory.com.

Calling all qualified disabled leaders: Apply now for the Disability Rising Fellowship! - Media training & coaching - Speaking & publishing opportunities - $5000 individual or org stipend Ready to shift the narrative? Apply: tinyurl.com/DisabilityRising Deadline: 8/22/25, 11:59 p.m. ET

Boosting this again because it's so important to give positive feedback so we can make the proposed standards a reality! It'll take a few minutes and you have to create an account to leave feedback, but @donoharmbc.bsky.social's guide makes everything super easy!

I wonder if they see scientists (and experts of any kind) as possessing power that they believe could conflict with their own. Think: public health measures during an outbreak, climate action, etc. If knowledge is power, then knowledge-bearers represent a potential threat to their influence.