#LongCOVID is not functional neurological disorder (FND), but some patients are getting diagnosed with it. Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB

We're excited to announce our new support group for people living with HIV and other complex conditions, hosted by Gabriel San Emeterio, LMSW @gabrielhse.bsky.social, Senior Fellow at Long COVID Justice and member of the HIV Caucus @plhivcaucus.bsky.social Interest form & details: bit.ly/hiv-group

Looking forward to hearing from our former co-executive director @crankyqueer.bsky.social and many others at this critical event!

We're excited to share this upcoming event presented by Sista Creatives Rising, featuring “stories of BIPOC, COVIDing and Multi-Marginalized Creatives.” Check it out! Art & Mind: COVID, Climate & Our Future Sept. 25, 6:30-9:30pm ET on Zoom FREE tix: givebutter.com/Covidclimatefuture

"Vaccine skeptics" is propaganda. The press needs to stop using the phrase. Kennedy is hiring liars and scammers, not skeptics. All scientists are skeptics. That's what science is. And we should be skeptical of vaccines until they are proven to be effective. Again, that's science.

Foreign aid funds, including for PEPFAR, are being withheld illegally by the Trump administration despite being appropriated by Congress, advocates and experts say. My latest, featuring @agawande.bsky.social and @jenkatesdc.bsky.social: www.theguardian.com/us-news/2025...

Following this news - and hoping to see some larger trials studying this!

Join us for an urgent conversation about disability justice for People Living with HIV #PLHIV and, often underdiagnosed, co-occurring complex chronic conditions like #LongCOVID, #MECFS, & frailty. REGISTER: tiny.cc/hcp1024 Recording & resources will be sent to all who register.

Important alert! Many people in the U.S. are rushing to get another COVID vaccine *before Friday*, bc of fears that the FDA will restrict access to adults 65+ and people at high risk (we don't know exactly how that will be defined.) Learn more in this post & in the comments inc tips on pharmacies!

Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME. Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social

As we head into the 11th #COVID wave in the US, predicted to peak in mid-September, wanted to reshare these vital info resources in English and Spanish from @thesicktimes.org & @longcovidjustice.org on #COVID19 and #LongCOVID

Will health insurance pay for Covid vaccines this fall? It's unclear. Here's what we know and do not. www.nbcnews.com/health/healt... via @nbcnews.com

No, it's not only the US who will suffer from RFK Jr cancelling vaccine research. 1️⃣ You can't just instantly teleport research projects. Cancelling US projects slows global progress. 2️⃣ Preventing pandemics will always be a group project. The US is letting the team down & putting the world at risk.

Meet Jenna! Over the next few weeks, we’ll be introducing people who are working to shift the narrative around Long COVID, as part of our Listening for the Long Haul (LFLH) project.

“I don’t think I’ve seen a more dangerous decision in public health in my 50 years in the business." apnews.com/article/kenn...

My lawyer friends asking me if I want to sue a gov agency for funsies and I’m like dang I’m so glad we have the same idea of fun 😊

As I reported earlier this year, the attacks on social security and its offices will have a disproportionate impact on retirees of color. Latino and Black people are more likely to have their sole source of income in retirement be social security. www.motherjones.com/politics/202...

Exciting news from the world of cute queer community care: Word for Word @wordforwordfactory.bsky.social + babs @itsbabs.bsky.social have teamed up on a new series of pinback buttons as a benefit for @longcovidjustice.org & @thesicktimes.org ! Available thru 8/31 only at WordForWordFactory.com.

Calling all qualified disabled leaders: Apply now for the Disability Rising Fellowship! - Media training & coaching - Speaking & publishing opportunities - $5000 individual or org stipend Ready to shift the narrative? Apply: tinyurl.com/DisabilityRising Deadline: 8/22/25, 11:59 p.m. ET

Boosting this again because it's so important to give positive feedback so we can make the proposed standards a reality! It'll take a few minutes and you have to create an account to leave feedback, but @donoharmbc.bsky.social's guide makes everything super easy!

I wonder if they see scientists (and experts of any kind) as possessing power that they believe could conflict with their own. Think: public health measures during an outbreak, climate action, etc. If knowledge is power, then knowledge-bearers represent a potential threat to their influence.

“I started masking in 2018, particularly on planes, because I noticed that each time I flew, I'd get sick. But life isn't just about me. I mask because I want to be the kind of person that cares about the health and safety of others.” Jade T. Perry ( jadetperry.com ) #MaskTogetherAmerica

“The COVID pandemic began with a myth – that children are spared its ill effects. In contrast, many children were sick with COVID, and we now have a new chronic illness emerging,” Kleinman said www.rutgers.edu/news/study-s... #ChildHealth #LongCovidKids #LongCovid #PaediatricLongCovid

ICYMI: Did you know that Long COVID Justice and The Sick Times worked together to create a series of 30+ resource sheets about Long COVID and associated diseases (LCAC)? ‪ @longcovidjustice.org‬ x @thesicktimes.bsky.social Check out our Long COVID Essential series: www.tiny.cc/LCE

Important warning for anyone tempted to use genAI for medical questions.

Love these pins & so grateful to be a recipient of the funds raised!

Where is all that "health freedom" these guys promised? Cause all I've seen is decreasing choices for my family and myself when it comes to vaccination.

There is no #PandemicJustice without #DisabilityJustice. We’re with you in solidarity, grief and rage at growing authoritarianism and eugenics in the U.S. and beyond. And we’re not giving up.

DMV! Join us for Disability Culture Cabaret: Pride Edition—a night of drag, burlesque, music + poetry celebrating Queer Disabled joy. Presented by Disability Culture Lab, co-hosted by @newdisabledsouth.org + @crushcolonialism.bsky.social. 18+ • Tix + access info below.

PLEASE SHARE! I'm reporting on #H5N1 #BirdFlu (#AvianInfluenza #HPAI) for @thesicktimes.bsky.social, & want to talk to farmworkers or people who work with them re impacts of H5N1 on farmworkers. I'm especially interested in hearing re human cases since Feb 2025. Sources can be anonymous! (1/4)

Washington University School of Medicine is closing its Long COVID clinic at the end of the month after its leading physician announced a sudden departure. bit.ly/4eXBzyw @stltoday.com

Check out these rad pins - We are BEYOND excited & grateful that proceeds are being donated to Long COVID Justice! Big thank you to @itsbabs.bsky.social & @wordforwordfactory.bsky.social 😍

NEW: Long COVID experts are concerned about Canada's new guidelines for "Post-COVID Condition", stating that some recommendations, like exercise, could harm people with the disease. @spichaksimon.bsky.social dives into the guidelines and the how they were created: thesicktimes.org/2025/07/08/e...

Cuts to Medicaid, Medicare, ACA, and SNAP. All programs disabled people rely on. Happy Disability Pride Month.

PSA: It is ok — and necessary — to grieve right now

Stay engaged, stay fighting, get involved on a state and local level, and know that there are more of us than there are of them and we will fight not just for ourselves, but for our people. Yes, this bill will kill people. Those of us fueled by spite will never let lawmakers forget that, or give up.

One of the most straightforward, radical, life affirming actions you can take right now is wearing a K/N95 mask. Community care & self care rolled into one easy act. Show up for yourself and your neighbors.

'Prosecutors allege Orellana was helping protesters withstand less-lethal munitions being deployed by Los Angeles police officers and Los Angeles County sheriff’s deputies after an unlawful assembly had been declared.'

IF YOU ARE IN ONE OF THESE DISTRICTS PLEASE MAKE A CALL RIGHT NOW DOES NOT MATTER IF YOUR VOICE SHAKES CALL AND SAY YOU OPPOSE BBB Scripts here: 5calls.org

There are a lot of parallels between how AIDS was handled initially and how Covid is being handled now. People get so angry at this comparison and call it “disrespectful”, but I think it’s actually more respectful to not ignore history and use the lessons from our queer elders to help people today.

Thank you to everyone calling their Republican Reps and urging them to vote NO on this horrible budget bill! This bill is a matter of life or death for so many people, Thank you to everyone taking action and trying to prevent it from passing!

Tell your Reps: Vote against the Big Deadly Bill! Calls needed ASAP, especially if you have Republican reps! You don’t have to be an expert to make a call, & calling scripts and tools make it quick & easy. Get scripts & tools via the 5 Calls app @5calls, or use AAPD’s tool: www.aapd.com/medicaid

If any of these are your reps, please take 5 min today and call. Scripts and numbers at 5calls.org. Kill this absolute travesty of a bill.

Masking = Love + Community Care. SAVE OUR RIGHT TO MASK! Ask your officials to prohibit mask banning and provide mitigation tools instead. bit.ly/SaveMyRightT...   @longcovidjustice.org @meactnet.bsky.social @covidactiongso.bsky.social @whnde.bsky.social

Tell your Senators: Vote against the Big Deadly Bill! Scripts & easy tools for call or email: Use the @5calls.org app, or the American Association of People with Disabilities @aapd-disability.bsky.social's tool: www.aapd.com/medicaid

Just registered! This is going to be such a great opportunity to get an update on #LongCovid and #MECFS research

There are people who've been sick for 2, 3, 4+ years now & still aren’t believed by the people closest to them. Long COVID is real. Gaslighting is real. Support the people in your life trying to stay safe. You don’t need to experience it to care

Why is it that this country always has endless money for war but not for housing? Bombs but not books? Missiles but not Medicaid? Our priorities are not just backward — they're being driven by wealthy war hawks hellbent on padding their pockets.

Could we lose COVID vaccine access? TONIGHT is the deadline to submit comments (or sign up to testify) at the upcoming meeting of the CDC’s vaccine advisory committee (ACIP), which is now stacked with anti-vaxers. ADD YOUR COMMENT by 11:59pm ET tonight, at bit.ly/VaxComment