New petition UK Save Savannah Victora-May - Prevent Another ME Tragedy. Please sign this petition!!! c.org/QrfRt55v9d

1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before. They speak candidly about their experiences youtu.be/J0ywwLIfH_w?...

Your activism will be even more important this year. Here are 10 crucial things you can do in 2026. https://robertreich.substack.com/p/what-you-can-do-in-2026

Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these This was posted as a comment on my FB page today, but I'm not sure who created it originally. #LongCovid #MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie

2/ Summary thread bsky.app/profile/mecf...

🏆🏆 Wins the Internet 🏆🏆

#HateMAGA #DumpTrump #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive #Venezuela #antitrump #coronavirus #blacklivesmatter #trump #covid #feminism #equality #vote #politics #feminist #donaldtrump #maga #protest #resist #election #liberal #democrat #democracy

Six years without getting sick isn’t a miracle. It’s what happens when airborne problems are met with airborne solutions. Respirators work quietly, consistently, and without spectacle. For the people wearing them, and for those who can’t afford another infection.

Good morning. Let's make a collective resolution: this will be the year in which we start to turn things round.

FU:ME

1 of #365Minerals 🧪⚒️ Quetzalcoatlite: - Named after Quetzalcoatl, an Aztec and Toltec god of the sea, due to its sea-blue colour - Forms in the oxidised zone of tellurium-bearing hydrothermal deposits #minerals - This below is a co-type specimen (one of the specimens used to define the species)

Please feel free to pick at my starter packs for some (not limited to Long Covid, despite name) tbc. I've has some successes in getting clean air into public spaces, but it's an ongoing battle Starter pack 3. go.bsky.app/Q9FoCjK Starter pack 2. go.bsky.app/MjGuFEe Starter pack 1. go.bsky.app/JvVAoFt

A big thank you to everyone who did anything, big or small, for the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome +/or Long Covid cause in 2025 (including simply sharing messages on social media). 👏 Together we can make a difference. 👍 #MEcfs #LongCovid

🧠 Daily Feed of Brain Damage 🧠 Part 2 doi.org/10.3390/ijms...

Dear Jon Stewart c/o @weeklyshowpodcast.bsky.social I recently watched, with great surprise and disappointment, a weeklyshowpodcast segment in which you and other "personalities," gleefully mocked and derided the relatively small subset of individuals who continue to wear a face mask in public.

🫂

I mask bc I am the sole caregiver for a victim of Long Covid. Even a mild cold impacts them severely. They are now almost completely deaf, suffer from vertigo and dizziness, fatigue, short term memory loss, had to relearn how to walk ànd talk, has visual & auditory processing deficits. Heartbreaking

Edited clip from ITV News about #MECFS (thought to be 2013). Michelle is severely affected, largely bed-bound, with light and sound sensitivity. Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”

An article from 2013 appears to describe the same Michelle. Note: it recommends graded exercise therapy, which Michelle tried and did not work. GET has since been withdrawn by NICE because the research was flawed and patients reported it was harmful. www.walesonline.co.uk/news/health/...

8) "The sheer magnitude of the unmet needs is devastating: this population live with disabling and life-limiting symptoms, yet they feel alone and abandoned, receiving little to no institutional support, care or recognition of their suffering."

In the setting of Cövid with repeated infections, how on earth can you tell the difference? We will need to rewrite much of current Medicine. I would suggest we start with this article🙏🏻

My thoughts are particularly with those who are alone or missing loved ones

pca.st/episode/31a3... Excellent summary of 2025 international relations from Western perspective. Only 2.5 US Presidential terms late. Leslie Vinjamuri is especially good.

#Justice4ME #Plan4ME #HumanRights @ashleydaltonmp.bsky.social @davetuller1.bsky.social @decodemestudy.bsky.social @tomkindlon.bsky.social @bmhughes.bsky.social @alastaircampbell2.bsky.social @whitneydafoe.bsky.social @jennyashdirects.bsky.social @longcovidadvoc.com

These moderation lists are maintained via the BlueSky API using searches of popular hashtags, acronyms, phrases, and data that are frequently used on this platform. New lists will be added as time permits. When this API project is stable, lists will be updated hourly.

Merry Festivities whatever your illness, disability, religion or mobility aid choice! 💙💙💙 #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @davidjoffe64.bsky.social

Delighted we’re launching an in-person Long Covid Support Group in West Cheshire, creating a safe, supportive space for people to connect, share experiences & feel less alone. Free and open to anyone living with Long Covid. Please do retweet and help us reach those who may really need this support.

Merry Festivities whatever your illness, disability, religion or mobility aid choice! 💙💙💙 #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @davidjoffe64.bsky.social

NEW article by @theipaper.com (out tomorrow!) will highlight those who remain shielding for a 5th Christmas (~6 yrs) due to persistent high-risks. The government used the most vulnerable to justify closures, and then left them behind without ever "Learning to live with Covid".

Revolutionary singing from the Hamburgbgirls choir www.instagram.com/reel/DSblu2K...

Mapping the government of disability in myalgic encephalomyelitis/chronic fatigue syndrome: A critical feminist account by Joanne Hunt www.scienceopen.com/hosted-docum... Screenshot from latest Science for ME weekly update #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Maeve was my daughter but she could have been anyone. Raised, educated, cared for by me - alone (not Murdoch's Times) but she is the Everyman (sic) of #ME. No one, anywhere in the world, is protected from premature death from medical neglect. The medical establishment was and remains wrong about ME.

Whew.

The story of Farage and Putin, told by British-Ukrainian soldier Shaun Pinner on a destroyed apartment block in Kyiv.

flew too close to the sun, got too excited about intellectual matters. feeling weak, fatigued, send tea and toast asap.

🆘No other outlet is reporting on the Long COVID crisis with the compassion or veracity of @thesicktimes.org. 💰But they need your help to continue this work - please consider donating or, even better, becoming a monthly supporter. Some of my favourite work from this year includes...

#Justice4ME #Plan4ME #HumanRights @ashleydaltonmp.bsky.social @davetuller1.bsky.social @decodemestudy.bsky.social @tomkindlon.bsky.social @bmhughes.bsky.social @alastaircampbell2.bsky.social @whitneydafoe.bsky.social @jennyashdirects.bsky.social @longcovidadvoc.com

How many morons are there in the world?From my bedroom they seem to be breeding! #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @thelancet.com @nhsengland.bsky.social @georgemonbiot.bsky.social

How many morons are there in the world?From my bedroom they seem to be breeding! #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @thelancet.com @nhsengland.bsky.social @georgemonbiot.bsky.social

Thank you for posing this question and raising the issue again @nataliegreenpeer.bsky.social It is important that we use the scientifically valid tools to deal with #airborne viruses.

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @decodemestudy.bsky.social @thelancet.com @nhsengland.bsky.social @georgemonbiot.bsky.social @profstevegriffin.bsky.social @davidjoffe64.bsky.social

Didn't get what they wanted.

Actual Good News: Labour has launched its fair funding formula for local councils. The aim is to push more cash towards deprived communities like Middlesbrough and Birmingham. And less for wealthier areas such as Kensington and the Home Counties. www.theguardian.com/society/2025...

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @decodemestudy.bsky.social @thelancet.com @nhsengland.bsky.social @georgemonbiot.bsky.social @profstevegriffin.bsky.social @davidjoffe64.bsky.social

On Tuesday I wrote to Sofia, asking her either to attach a note to the film and to the platforms on which it is shown, explaining that I was interviewed under false pretences; or to re-edit the film, removing my contribution. I have not received a reply.