When a holiday is NOT a holiday!

Trying to book an accessible holiday is marginally less difficult than trying to buy a new car and a new wheelchair at the same time! #ThereForME @davetuller1.bsky.social #ME #Chronicillness #LC #PEM @meassociation.org.uk @longcovidsupport.bsky.social @davidjoffe64.bsky.social

By the time Starmer is replaced this summer, we'll have had two wasted years, in which a country crying out for transformation instead got more of the same, or even worse where environmental legislation is concerned, and a high possibility of Farage running the next government. Thanks Keir.

Trying to book an accessible holiday is marginally less difficult than trying to buy a new car and a new wheelchair at the same time! #ThereForME @davetuller1.bsky.social #ME #Chronicillness #LC #PEM @meassociation.org.uk @longcovidsupport.bsky.social @davidjoffe64.bsky.social

This! 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇺🇲👇👇👇👇🇺🇲🏴󠁧󠁢󠁳󠁣󠁴󠁿

USA: States Join WHO Network After U.S. Withdrawal "Illinois on Tuesday followed in California’s footsteps to become the second state to join the World Health Organization’s pandemic response network after President Donald Trump withdrew the U.S. from the organization." Source: archive.md/ylPeO

The low energy version took 10 minutes and it’s so good to know that these questions are being asked!

Interpreting studies do's and don'ts From IACFS/ME Newsletter

Incredible effort from the team, community and huge thanks to The @biggive.bsky.social !

Right, so they're still guilty, after being acquitted?

Doubtless your special knowledge is superior to that of the jury, who reviewed all the evidence, and heard all the arguments.

CBS: 'How federal policing upended daily life, public trust in Minneapolis' '"We're talking about citizens of the United States [who] are too scared to come out on a city street in America" "We will be grappling with this five to ten years from now" www.cbsnews.com/news/how-fed...

From @danielmissailidis.bsky.social on X We're starting another round of home blood collections today for two ME/CFS and Long COVID studies! If you live in Victoria, Aus and are interested in participating, please fill out the following: redcap.latrobe.edu.au/redcap/surve... #MEcfs #LongCovid

Thank you Hilda, as always, for speaking up. In my world it's called candour. Without it, candour, all our hopes for knowledge founded on verifiable facts are as broken as the promises of equal access to justice for everyone, regardless of personal wealth.

11. This story is being spun as one bad apple. That awful man went off-piste and betrayed the national interest. Yes, he did, and he did it secretly in his disgraceful dealings with Epstein. But in other respects he undermined democracy with the full backing of the government. It was the policy.

The thread on one page: skywriter.blue/pages/did:pl...

Powerful clip from Kilroy early 90s. A parent responds to Peter White explaining his approach to #MECFS. “She's seen psychiatrists and again she was told… it's in the mind, go back to college. She went back to college, she collapsed.”

#ThereForME @theguardian.com @davetuller1.bsky.social @cgatist.bsky.social #ME #Chronicillness #LC #PEM #POTS #LivesWeCannotLive #MissingMillions @meassociation.org.uk @longcovidsupport.bsky.social @davidjoffe64.bsky.social @nhsengland.bsky.social @thelancet.com @rcgpt.bsky.social

#ThereForME @theguardian.com @davetuller1.bsky.social @cgatist.bsky.social #ME #Chronicillness #LC #PEM #POTS #LivesWeCannotLive #MissingMillions @meassociation.org.uk @longcovidsupport.bsky.social @davidjoffe64.bsky.social @nhsengland.bsky.social @thelancet.com @rcgpt.bsky.social

Carers UK has announced the theme for Carers Week 2026, which will run from 8th-14th June. This year’s campaign will focus on building carer friendly communities – calling for better recognition and support for unpaid carers. https://meassociation.org.uk/132r #CarersWeek #pwME #LongCovid

Another week, another opportunity for psychiatry to recognise #ME as a serious post-viral illness #ThereForME @theguardian.com @davetuller1.bsky.social #ME #LongCovid #Lyme #POTS #PEM @meassociation.org.uk @longcovidsupport.bsky.social @ashleydaltonmp.bsky.social @davidjoffe64.bsky.social

Our phones have indeed been listening to our conversations and feeding us relevant adverts... www.cbsnews.com/news/google-...

Living with #MECFS All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness. From Lu Baker Art instagram.com/lubakerart (repeat) #CFS #PwME #ChronicFatigueSyndrome

Archive of this story here. You can use translate option in Chrome browser, possibly others too: archive.is/2026.02.01-1...

Suicide is the biggest killer in #ME @ashleydaltonmp.bsky.social @wesstreeting.bsky.social @alastaircampbell2.bsky.social

Jon Stewart on tue newly released Epstein files www.facebook.com/share/v/1Cqd...

Amazon has cut a combined 28,000 jobs since October. Its CEO made $40M+ in 2024 UPS has announced 78,000 job cuts since last year. Its CEO made $24M. HP announced up to 6,000 layoffs in November. Its CEO made $21M. This is what I mean when I say the system is rigged.

so the government’s been sitting on these files without arresting anyone because all their biggest donors are in it huh

Today I saw ICE gas little white kids in the streets of Portland with chemical weapons. Imagine what they're doing to brown and black kids in the detention camps

JANE FONDA: “I know Don Lemon. My husband created CNN. And I will fight for their right to speak… they arrested the wrong Don. This is how autocrats act. We can’t fall for it.”

"Those Who Were Already Here" centerleftstack.substack.com/p/those-who-... Someone with long Covid eloquently thanks those with ME/CFS who have supported with advice, etc. the Long Covid new arrivals with similar symptoms & impairments #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis

A powerful introduction to a parliamentary debate in the Netherlands on post-acute infection syndromes (PAIS), including #LongCOVID, #MECFS, chronic Lyme & post-sepsis conditions. Dutch MP Kostić describes it as one of the biggest medical scandals of recent decades. (29/1/26)

Some brilliant (and deadly writing) from Xan Brooks about Melania a film seemingly as uninteresting as its eponymous heroine. www.theguardian.com/film/2026/ja...

Anonymous image seen on Threads and reproduced her for your enjoyment. #WinsTheInternetToday

The Australian view on visiting the USA at present. Apparently, these were posted to the US Embassy in response to their advert for expedited visas 😂😂 Suffice to say, Aussies aren't going to add to the tourist dollars

Big fan of the cider in BC 😎😎

Dr. Anne MacIntyre speaks about the importance of early diagnosis of #MECFS so patients can get appropriate rest. She also raises concerns about children being forced into things such as exercise programmes. Clip from Kilroy, early 1990s.

the arrest of journalists in minneapolis, including don lemon, is more evidence that the only move the administration knows how to make is to use force, and does not know how to respond when that force is met with defiance and indifference.

British Association for Counselling and Psychotherapy 'Letter to the Ed' chroniclivingtherapy.com/wp-content/u... Screenshot from Chronic Living Therapy @chronicliving123.bsky.social newsletter #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @lammasleaves.bsky.social

Great! One thing I said to my GP re vaccine eligibility was “the WHO and DWP class ME as neurological, so I don’t see why the NHS can’t”. She wrote it in my notes!

This should be a great evening. Oxford, Thursday. See you there. www.eventbrite.co.uk/e/food-syste...

You are welcome. I really wish we could have a #MECFS Biomarker/Diagnostic Test Conference or Symposium to: - create a biomarker protocol - create a biobank protocol (definition, exclusions, medical diagnosis) - 2-Day CPET biobank - Put all researchers on diagnostics on the same page

Thanks again. I understand that the BioQuest data won’t be available for another 18 months or so. We will need to apply for data access then.

Shocker, Labour saying one thing in opposition and doing something else in government. Then wondering why they’re losing support.

It was a tragedy long before the pandemic, in no small part the consequence of psychiatry hijacking post-infectious illnesses & then actively blocking biomedical research Without their influence the consequences of the last 6yrs would simply not exist Have they apologised? No, they’ve doubled-down

www.facebook.com/reel/8805296... Absolutely brilliant!

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @decodemestudy.bsky.social @thelancet.com @nhsengland.bsky.social

Yet they knew it was airborne in 2022 and they know from the Covid inquiry evidence and have done nothing. Truly awful. bsky.app/profile/elho...

Honestly, @elhopkins.bsky.social No one gets a pass