Blog from @chronicliving123.bsky.social on the low take-up of NHS training on ME/CFS. #MEDeliveryPlan chroniclivingtherapy.com/empty-classe...

It is heartening to know that we have an ally in this role who understands the decades of neglect faced by the #ME community. I sincerely hope you can meet with @tessamunt.bsky.social very soon and that we will see a step change in government actions on #ME and Long Covid. #ThereForME

A very important article. Many people are aware that medical care for the physical symptoms of Long Covid is lacking. It is less well understood that people who have Long Covid and mental health needs are also often ill served by the therapists they approach. #LongCovid

@anujdawar.bsky.social "Yes, it is absolutely bonkers that your uncle’s favourite Saturday jumper has suddenly become the breakout star of 2026. But that’s exactly why it’s so satisfying." www.theguardian.com/fashion/2026...

Because it needs saying, over and over again it seems: #LongCovid #ME

“I was at the Baftas – and while hearing the N-word was unsettling, all anger should be aimed at the BBC. By failing to remove John Davidson’s tic from the broadcast, editors let down both black and disabled people.” Jason Okundaye #BAFTA #JohnDavidson www.theguardian.com/commentisfre...

Brain retraining has done nothing for this woman‘s ME/CFS. How she could come to the conclusion that brain retraining is not nonsense, I don’t even understand from that article. What does she think it has done for her relapsing and remitting condition?? #ME www.theguardian.com/society/2026...

BBC Inside Health: James Gallagher speaks to Prof Chris Ponting, Prof Rosemary Boyton, and Sir Stephen Holgate about ME/CFS, Long COVID, and recent advances in research, alongside people living with ME/CFS (28 mins) youtu.be/mSga69kqUy4?...

For anyone who wants to follow up on Joe Dispenza mentioned in this article, this podcast is a good place to start: podcasts.apple.com/gb/podcast/c...

I find it appalling you would write such a piece and not even once mention that there are people currently being starved by the NHS, 5 years after Maeve died for those exact same reasons, and despite a coroners prevention of future deaths report demanding urgent action & safe hospital beds for us.

I find it fascinating how constant the flow of these articles is. It's interesting to note that they never make reference to people with severe ME or LC, such as the 21yo man in Austria who recently underwent assissted suicide due to unbearable symptoms.

Want to read something good about #ME today? Read this from Brigitte's german magazine.

Many disabled and chronically ill people are demonized for not working full-time jobs, when the truth is they can be forced out due to inaccessible policies. www.theguardian.com/world/2026/f...

Thank goodness for William Dalrymple 🙏🏼 @willdalrymple.bsky.social

Pretty sure this was an #Oatly advert I saw in the Tube in London in November 2018... As someone who breastfed two humans I found it obnoxious even then. Fine with me if they get chucked out the dairy aisle in supermarkets.

#ME/CFS and Long Covid. They can then apply this knowledge to any treatment plan. For example, we know there is an energy production dysfunction in this patient group: any treatment needs to take this into account.” Natalie Hilliard @chronicliving123.bsky.social @physiosforme.bsky.social

How does working with patients who have Long Covid or M.E. differ from working with other patients? “Fundamentally, the usual ‘reconditioning’ model of Physiotherapy does not work for this patient group. It is therefore imperative that Physiotherapists understand the evolving pathophysiology of

Every complaint I had against Chomsky concerned the same problem: the way he excused or dismissed atrocities committed by his team: ie regimes and forces opposed to Western hegemonic power. As his friend, Epstein was given the same pass. In other words, it's not an anomaly. It's the same story.

@tessamunt.bsky.social @joplatt.bsky.social @georgemonbiot.bsky.social I'm sure you're all aware of this case of yet another #pwME being seriously harmed while under @england.nhs.uk care. It also makes it very clear that there are very serious problems with BACME being involved in care of #pwME

Greater #Cambridge is bucking the trend on house-building - with the lag between planning approval and spades in the ground much shorter than average www.cambridgeindependent.co.uk/news/greater...

Did an article on how to access it in English for anyone who might struggle to work out Google translate: chroniclivingtherapy.com/brigitte-spe... Includes links to specific articles with a synopsis so you can choose which to read.

Brigitte, a mainstream German women's magazine, has published a special edition about #MECFS drvjdg.clicks.mlsend.com/ty/cl/eyJ2Ij... Google translation www-brigitte-de.translate.goog/gesund/mecfs... Screenshot from @chronicliving123.bsky.social newsletter #CFS #PwME @lammasleaves.bsky.social

British Association for Counselling and Psychotherapy 'Letter to the Ed' chroniclivingtherapy.com/wp-content/u... Screenshot from Chronic Living Therapy @chronicliving123.bsky.social newsletter #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @lammasleaves.bsky.social

Vielleicht sollte ich das klarer formulieren: Das #biopsychosoziale Modell ist kein wissenschaftliches Modell. Es versäumt es nicht nur, die Konzepte richtig zu definieren, sondern unterscheidet auch nicht zwischen kausalen, korrelativen und falschen Korrelationsbeziehungen. 1/4

Thank you to all #hcps with #LC and #ME who completed the survey. It is now closed. We had 170 people complete the survey and we are just finishing nearly 30 interviews. As always we are v grateful to all participants using their valuable energy to take part @physiosforme.bsky.social

An Austrian ME/CFS patient sued against the withdrawal of her allowance. Vienna Higher Regional Court has ruled in her favour,criticizing the methods of experts who reviewed the case & dismissed the D-A-CH consensus statement on #MECFS Translation www-kleinezeitung-at.translate.goog/lebensart/ge...

‘If you’re disabled, you’re not ill.’ Sir Charlie Mayfield (author of the Keep Britain Working review) This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics. I’m disabled because I’m chronically ill with #MECFS.

At the #ICanCME2025 conference today! Sabrina Poirier & Maeghan Taverner's intros blew me away. ~Acknowledging labor from people with lived experience ~Setting out expectations ~Moment of silence for those we've lost This is what a conference designed by people with lived experience looks like 🧪

Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a baroness — I’ve put together a short thread about her involvement in #MECFS. twitter-thread.com/t/1981309222...

“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients danilobuonsenso.substack.com/p/we-cant-do...

October International Research and Advocacy Roundup emerge.org.au/news/october... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid

This was submitted February 2024! www.nature.com/articles/s41...

Just dealing with an ME enquiry: a lot of people understandably want to know what they can do to help improve their health. But people also need to try to avoid making themselves worse. Pretty obvious for long-term patients, but can be an awkward topic to bring up. #MEcfs #PwME #CFS

Thank you 🙏 @georgemonbiot.bsky.social Here’s an interview with George and @davetuller1.bsky.social to learn more…! m.youtube.com/watch?v=SpLM...

From the September 2025 Chronic Living @chronicliving123.bsky.social Therapy newsletter Open Letter to the British Association of Counselling & Psychotherapy (BACP) magazine by @lammasleaves.bsky.social et al chroniclivingtherapy.com/open-letter-... #MyalgicEncephalomyelitis #MEcfs #CFS #PwME

It can feel lonely navigating the #LongCOVID crisis. We report on this common, life-changing disease that affects over 400 million people worldwide. Sign up for our newsletter and join others who want fact-based news without COVID-19 denial, minimizing, or gaslighting. thesicktimes.org/newsletter/

Sounds promising. (So long as they don’t go the graded exercise /psychology route)

20 people were injured at Heathrow airport on Monday+the Usual Suspects suggested the event may have been a Mass Hysteria/Mass Psychogenic Event as people caught ‘THE IDEA OF ILLNESS’ from each other People with #ME #LC will be familiar with this nonsense The REAL cause turned out to be CS gas 🤦‍♀️

Useful new blog post by @lammasleaves.bsky.social : "Picturing M.E." oaktreestudio.co.uk/2025/09/04/p... Includes photos and images "that realistically portray M.E. (includes links to collections/albums of examples)" #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

New resource: "A collection of photos that could reasonably be used to illustrate articles about M.E. ( #MyalgicEncephalomyelitis), sometimes known as MECFS, & (outdated term) #ChronicFatigueSyndrome" from @lammasleaves.bsky.social unsplash.com/collections/... #MEcfs #CFS #PwME

*cut first for Please @bsky.app could you give us an edit button? I hate my typos

I understand gaps will be filled and corrections made in due course to allow #pwME to avoid #PEM by living at a less breakneck speed than legal deadlines permit. This is the type of reasonable adjustment needed to include patients & family carers in any activity for intended for their benefit. 2/2

I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue. This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2

On behalf of all MECFS sufferers - here and gone - thank you to whoever is taking this action. Donate if you can 💙🕊️

Almost two years ago, our beloved, brilliant #bethmazur ended her life while visiting me. The grief has softened with time, but the impact has reshaped me. I've written about it here: jrehmeyer.substack.com/p/holding-wh...

This is why pwME get so upset when newcomers to the field don’t engage existing experts. We have lost so, so much time, and critical information, to people who refuse to build on existing knowledge.

Covid accelerates vascular aging An 18-country, 38-center study of ~2,000 participants —Effect predominantly in women, adding 5 years of aging —Seen with non-hospitalized and mild-moderate Covid —Reversible in some at 1-year; vaccination link to protection apps.crossref.org/pendingpub/p...

“I am proud that this study was run differently, with lived experience at its heart. Proud that our community stepped up en masse to participate, and proud that we are at the forefront of scientific research into this debilitating illness.” - Sian Leary, DecodeME PPI

Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME). We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.