Help BOOST to achieve the goal 💥💙🩵 please 🙏 DONATE if you can &/or help spread the word! 👇⬇️ shorturl.at/x1Vyx JUSTICE FOR M.E. 🔥 💪 #vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME! Great CHANGE is on the horizon!

Thank you 🙏 @georgemonbiot.bsky.social Here’s an interview with George and @davetuller1.bsky.social to learn more…! m.youtube.com/watch?v=SpLM...

This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius. It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can: www.totnespulse.co.uk/product/tick...

Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help

Thanks, George 🙏 For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic. He also used harassment as a distraction from criticism during a talk on GWI. threadreaderapp.com/thread/15273...

They desperately want to be able to work, to socialise, to experience all the other joys of life. But because the condition is so poorly understood, they have been repeatedly treated as if they were “malingerers” or “hysterics”. Which suits the government just fine.

In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.

Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched. Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with? learninghub.nhs.uk/Resource/712...

@ashleydaltonmp.bsky.social Please note

Let’s reached the 1st target 🎯 in the 1st weekend it’s been live?! 💪 💥 JUSTICE FOR ME 🤞 🌟 💫 shorturl.at/x1Vyx I fully endorse this! #meawareness

Please donate to Justice For ME if you can and/or help spread the word; shorturl.at/x1Vyx #meawareness #Justice4ME @swastrosarah.bsky.social 💙💪

I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue. This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2

The inquest into how Maeve died from medical neglect of #ME/cfs in 2021 found in 2024 there are no Consultant doctors for ME anywhere in the UK. She became unable to wash her own hair; later unable to chew. #MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social 2/2

www.youtube.com/watch?v=heJM... As Dr Whitely says in this interview, if there is no job in the NHS, there is no medical training. Without medical training, misdiagnosis and risky mistreatments are how the NHS is transformed into a sick service. Outstanding work from @jenniejacques1.bsky.social 1/2

New Video on jenniejacques1 YouTube The Monster In ME. Watch here ⬇️ m.youtube.com/watch?v=heJM... Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋 #pelvicvenouscongestionsyndrome #thoracicoutletsyndrome

Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME). We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.

Results 💥 @decodemestudy.bsky.social www.decodeme.org.uk/initial-dna-...

Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.

The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx). We're letting you know the timing in advance so you can pace beforehand. Thank you to our participants & supporters.

NEW video/interview with Dr Peter Rowe on Orthostatic Intolerance #meawareness #longcovid #pots #eds WATCH here; m.youtube.com/watch?v=qsJA... Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!

November’s newsletter is now live on our website smileforme.org.uk/november2024 Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵

A big thank you to everyone who joined in and supported @bake4me.bsky.social’s The Wicked Christmas Bake Off by @jenniejacques1.bsky.social Congratulations to the star bakers ⭐️🩵

1/ Introducing PolyBio’s new interactive website module, where you can learn about our #LongCovid Research Consortium projects, technologies, and findings across international institutions: polybio.org/consortium-p...

Smile For ME is a UK charity, founded in 2012. We send personalised presents, which we call Smiles, to nominated people affected by ME to brighten their day and make them smile 😊 Nominate: smileforme.org.uk/nominate Support: smileforme.org.uk/supportus

Officially launching very soon with @bake4me.bsky.social & @smileformecharity.bsky.social * The Wicked Christmas 🎄 Bake Off! 💙 www.bake4me.co.uk

STAY TUNED for our next bake off with @jenniejacques1.bsky.social & lead actress Laura Pick from Wicked the musical UK on the Celeb Judging panel! Raising funds and awareness for @smileformecharity.bsky.social with an exclusive interview coming soon! #meawarenss www.bake4me.co.uk

New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment. youtu.be/RiwX9Y0NbiQ?...

Welcome to BlueSky, @jenniejacques1.bsky.social