Post-Viral ME/CFS with POTS in a Pediatric Patient: A Case Report danilobuonsenso.substack.com/p/post-viral...

14yro with Long Covid treated with ivabradine and anticoagulation danilobuonsenso.substack.com/p/14yro-with...

CASE REPORT - A neuroscientist with Long Covid on low dose rapamycine danilobuonsenso.substack.com/p/case-repor...

A Pathogenic Monocyte Signature in Long COVID: What It Means for Buonsenso and the Kids danilobuonsenso.substack.com/p/a-pathogen...

"These findings reinforce an urgent message that children and adolescents can develop #LongCovid not only after an initial infection, but also after reinfection. The public health implications are substantial." @buonsenso.bsky.social www.thelancet.com/journals/lan... #LongCovidKids #Children

Long COVID is here to stay—even in children 😢 @buonsenso.bsky.social These findings reinforce an urgent message that children and adolescents can develop long COVID not only after an initial infection, but also after reinfection. The public health implications are substantial. Before this study,

Plasmapheresis, apheresis, and why people with Long Covid or ME/CFS talk about them danilobuonsenso.substack.com/p/plasmapher...

Long COVID: When the Fire Inside Never Turns Off — A Personal Reflection danilobuonsenso.substack.com/p/long-covid...

after years of illness and gaslighting, this kid with #LongCovid is leaving again❤️ grateful for this mum’s email. Why IVIG and immunemodulation work most time is written since two years in my book tinyurl.com/4tsvhwat and blog substack.com/@mecfslongco...

Energy Metabolism and Immune Signatures in ME/CFS: What the Latest Paper Means for Kids and Families danilobuonsenso.substack.com/p/abnormal-e...

Long COVID, Immune Dysregulation & What It Means for Kids — New Insights and Future Therapies danilobuonsenso.substack.com/p/long-covid...

When I started the #longcovid in kids journey we were literally alone. Now, we arrived to speak about long covid in children in @TheLancetInfDis Podcast!❤️ MY LONG COVID JOURNEY, WHAT I DO AND WHY IN MY BOOK: tinyurl.com/4tsvhwat 🔊 Spotify: bit.ly/4p7jnpy

You Are Not Alone – Let’s Connect Families, Young People and Communities Living with Long Covid and ME/CFS danilobuonsenso.substack.com/p/you-are-no...

a new major study on Nature immunology further reinforces the overwhelming evidence of chronic immune activation in #longcovid, perfectly justifying off label use of immune modulators (eg IVIG) in the most severe cases that cannot access trials. Saying since a few years in my book lnkd.in/dPHkH3re

So the Pediatric Infectious Diseases games are ready to go in 2d! Impressive amount of different european countries participating this year!

When Patients Ask for a Cure: A Doctor’s Honest Reflection on Long Covid and ME/CFS danilobuonsenso.substack.com/p/when-patie...

Oxaloacetate, long COVID and ME/CFS: what the new trial shows — and a pragmatic (non-prescriptive) scheme for clinicians danilobuonsenso.substack.com/p/oxaloaceta...

with the only and one!!

Low-Dose Rapamycin for ME/CFS and Long COVID: New Clinical Data, Promising Hints, and Ongoing Caution danilobuonsenso.substack.com/p/low-dose-r...

What’s new in the Long COVID / ME/CFS endothelial story — and what that means for treatment danilobuonsenso.substack.com/p/whats-new-...

you’ll read several success papers about #nirsevimab and #RSV but to make it a successful and long term sustainable interventions you need to read also of out chorus provocative voices, like this one ! rdcu.be/ePXTa

Long COVID and the AMPA Pathway: New Clues from Brain Imaging danilobuonsenso.substack.com/p/long-covid...

Conversations on IVIG and Monoclonals in #LongCovid #MECFS danilobuonsenso.substack.com/p/conversati...

new on covid impact on kids www.tandfonline.com/eprint/ZY2VI...

The latest from @buonsenso.bsky.social rings so true: Yet when patients and families ask for treatments, the answer is almost always: “There are no approved options.” open.substack.com/pub/danilobu... #PedSky #LongCovidKids #pwLC #pwME

glad our team contributed to another very important study on iGAS. PEGASUS network www.sciencedirect.com/science/arti...

“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients danilobuonsenso.substack.com/p/we-cant-do...

again viruses and dementia. those of you negating this slow science progression and patients prevention options. all started w #LongCovid revolution. years ago I said LC is clearly giving this indication and now science is confirming all in my book: tinyurl.com/4tsvhwat

Working (and Keeping Your Salary) When Long COVID or ME/CFS Makes Full-Time Work Impossible danilobuonsenso.substack.com/p/working-an...

I have a strongest feeling and growing evidence that lung ultrasound will play a growing role not only in diagnosing pneumonia but also in understanding which cases need antibiotics rdcu.be/eJ1tQ

Can IV Saline Help Kids and Adults with ME/CFS? danilobuonsenso.substack.com/p/can-iv-sal...

glad @TheLancetInfDis gave #LongCovid kids the voice they deserve, and with a powerful title as I love. that’s a big change compared with the past t.co/TyOo8jmQOr

The Lancet @buonsenso.bsky.social The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral circulation. Governments, health-care systems, and #LongCovidKids www.thelancet.com/journals/lan...

Helping Your Child Through Long Covid or ME/CFS: What Parents Can Do, Age by Age danilobuonsenso.substack.com/p/helping-yo...

Nasal Azelastine and COVID Prevention: What a New Study Tells Us — And Why It Might Matter for Long COVID / ME/CFS danilobuonsenso.substack.com/p/nasal-azel...

one of the best feedback I could receive, mostly from the emotional perspective. you can join the discussion on #ivig for #LongCovid or #mecfs on my blog open.substack.com/pub/danilobu...

this message tells a lot about #LongCovid 1- pts recognized soon can recove, also entirely 2- reinfections can bring you doing again this means a general predisposition against over reaction to viral infection, but also to try to avoid reinfections and maybe to treat them

When I was a teenager, an early diagnosis and good advice would have been life changing.

What Is ME/CFS — And Why Should Pediatricians Care? danilobuonsenso.substack.com/p/what-is-me...

dear patients with #LongCOVID #MECFS , parents, the journey is not easy and we don’t always find the best solution soon, but please don’t give up, being better is possible!! more in my blog: danilobuonsenso.substack.com book: tinyurl.com/4tsvhwat

Is My Child Just Tired — or Is It Something More? danilobuonsenso.substack.com/p/is-my-chil...

Could Intravenous Immunoglobulin (IVIG) Help in Long Covid and ME/CFS? danilobuonsenso.substack.com/p/could-intr...

one of my fav studies on a very advanced model to predict MIS-C (post covid complication) outcomes, with a great potential to be translated to kawasaki as well doi.org/10.1111/apa....

another IGIV first infusion and already first steps going well you can follow updates on my blog danilobuonsenso.substack.com

im exploring solutions to facilitate access to multiple visits to international chronic patients Accessible Medicine for All: danilobuonsenso.substack.com/p/accessible...

Glad I could coordinate this important european study. shows again the long term effects of viral infections, if someone still doubts pubmed.ncbi.nlm.nih.gov/40838764/

years after struggle & neglect, with a step by step approach these two amazing girls are out of home travelling from france to UK. not a cure yet but returning to life is amazing, for them & me as their doctor ❤️ what I do: open.substack.com/pub/danilobu... or tinyurl.com/4tsvhwat

for those of you haven’t done so, a reminder of how Long Covid will revolutionize the way you see medicine, neuropsychiatry and cardiovascular risk. all associated with viral infections link english version tinyurl.com/4tsvhwat italian : amzn.eu/d/gzfLrZC

Tools for Improving Quality of Life at Home for Children with Long COVID or ME/CFS danilobuonsenso.substack.com/p/tools-for-...

this 26yro g was a professional national athlete, playing the european karate finals and had to give up olympics due to #LongCovid . 4yrs of neglect and stopping all activities, only now seeing the lights