Nasal Azelastine and COVID Prevention: What a New Study Tells Us — And Why It Might Matter for Long COVID / ME/CFS danilobuonsenso.substack.com/p/nasal-azel...

one of the best feedback I could receive, mostly from the emotional perspective. you can join the discussion on #ivig for #LongCovid or #mecfs on my blog open.substack.com/pub/danilobu...

this message tells a lot about #LongCovid 1- pts recognized soon can recove, also entirely 2- reinfections can bring you doing again this means a general predisposition against over reaction to viral infection, but also to try to avoid reinfections and maybe to treat them

When I was a teenager, an early diagnosis and good advice would have been life changing.

What Is ME/CFS — And Why Should Pediatricians Care? danilobuonsenso.substack.com/p/what-is-me...

dear patients with #LongCOVID #MECFS , parents, the journey is not easy and we don’t always find the best solution soon, but please don’t give up, being better is possible!! more in my blog: danilobuonsenso.substack.com book: tinyurl.com/4tsvhwat

Is My Child Just Tired — or Is It Something More? danilobuonsenso.substack.com/p/is-my-chil...

Could Intravenous Immunoglobulin (IVIG) Help in Long Covid and ME/CFS? danilobuonsenso.substack.com/p/could-intr...

one of my fav studies on a very advanced model to predict MIS-C (post covid complication) outcomes, with a great potential to be translated to kawasaki as well doi.org/10.1111/apa....

another IGIV first infusion and already first steps going well you can follow updates on my blog danilobuonsenso.substack.com

im exploring solutions to facilitate access to multiple visits to international chronic patients Accessible Medicine for All: danilobuonsenso.substack.com/p/accessible...

Glad I could coordinate this important european study. shows again the long term effects of viral infections, if someone still doubts pubmed.ncbi.nlm.nih.gov/40838764/

years after struggle & neglect, with a step by step approach these two amazing girls are out of home travelling from france to UK. not a cure yet but returning to life is amazing, for them & me as their doctor ❤️ what I do: open.substack.com/pub/danilobu... or tinyurl.com/4tsvhwat

for those of you haven’t done so, a reminder of how Long Covid will revolutionize the way you see medicine, neuropsychiatry and cardiovascular risk. all associated with viral infections link english version tinyurl.com/4tsvhwat italian : amzn.eu/d/gzfLrZC

Tools for Improving Quality of Life at Home for Children with Long COVID or ME/CFS danilobuonsenso.substack.com/p/tools-for-...

this 26yro g was a professional national athlete, playing the european karate finals and had to give up olympics due to #LongCovid . 4yrs of neglect and stopping all activities, only now seeing the lights

How Can Children and Families with Long COVID or ME/CFS Prepare for the Next COVID Waves? danilobuonsenso.substack.com/p/how-can-ch...

for those of you not trusting the burden of #longcovid in kids, see how a huge success is for a girl going out for shopping with mum. plus how IGIV works in some cases. In saying this since 2020 and wrote a book to convince you : 📕🔗 tinyurl.com/4tsvhwat

know this may feel self referential and biased but I think believe that you still need an easy, fun and serious at the same time reading my story on #LongCOVID is still more than worth it tinyurl.com/4tsvhwat

that’s in italian but another young woman with #LongCovid #MECFS feeling better with ivig, only issue sustaibability of multiple infusions

Crashes and Sleep: Managing the Toughest Moments in Children with Long COVID or ME/CFS danilobuonsenso.substack.com/p/crashes-an...

another proof of 2 IMP KEY MESSAGES: - IVIG make big difference to some pts with #longcovid #MECFS - trials fail because it’s difficult to measure the changes this mum report - a lesson on how a life is impacted for these patients updates on blog danilobuonsenso.substack.com

some patients with #longcovid and/or #mecfs have so much benefits from IVIG, mostly young adults & adolescents. if you want a trial i’m happy to do, if you know agencies interested in funding It I can accept patients from all over the world but most is how happy are parents ❤️

Helping Kids with Long COVID or ME/CFS Manage Memory and Concentration Problems danilobuonsenso.substack.com/p/helping-ki...

if you’re unsure about the burden of #longcovid and #MECFS on families you just navigate my blog and feel it danilobuonsenso.substack.com

I don’t when share paper about #SARSCoV2 persistence in the brain (and rest of the body) and link between covid and cognitive decline as it is already one of the strongest associations in the history of medicine and does not require debate, maybe just actions #LongCovid

🚨🚨URGENT ACTION! Colleagues questions we sometimes use off labels for #LongCovid #MECFS but see the mail below, they prescrive CBT which is out of guidelines and also dangerous! WTF the hell is wrong with you?

“Do Less to Do More”: Practical Pacing Tips for Kids and Teens with Long COVID or ME/CFS danilobuonsenso.substack.com/p/do-less-to...

update on the use of covid monoclonals in my center : substack.com/@mecfslongco... #LongCovid #LongCovidKids

honored to have contributed to this piece on #LongCovid with such a dream team link.springer.com/article/10.1...

The Role of Genetics in Long COVID danilobuonsenso.substack.com/p/the-role-o... Traduci post

I so much believe in #longcovid that I think that all childhood infections may play a role in several (without known cause) neuropsychiatric illnesses. in this piece we summarize what is already known and why my statement should not surprise you pubmed.ncbi.nlm.nih.gov/40619589/

someone has to say this otherwise you keep failing all trials & biomarkers. nowadays #longcovid is (post-covid) #mecfs. full stop. all the rest are covid induced known complications (cardio events, diabetes, etc)

step by step #longcovid #MECFS

🚨 friday I meet AZ to discuss possible uses of covid monoclonals and if I can find a way to use it for #LongCovid - #MECFS what should I ask? me: let me use them to prevent reinfections these pts worsen with new covid (& maybe we cure LC?)

it’s great that patients are getting better and provide good feedbacks, but also greater that some colleagues are collaborating so that patients don’t need to travel more in my blog danilobuonsenso.substack.com

Could GLP-1 Receptor Agonists Be Useful in ME/CFS? several potential benefits, and for sure n1 indication to those of my pts that are overweight danilobuonsenso.substack.com/p/could-glp-...

when drs say “danilo use of IVIG is off label” they should ask themselves “why I leave patients suffering when there is a treatment with a 50-70% evidence based chance of helping them feeling better ? #LongCovid #MECFS

Randomized But Not Real: Why RCTs Can't Solve Long Covid and ME/CFS danilobuonsenso.substack.com/p/randomized... #LongCovid #MECFS

Yes, improving is possible. don’t lose hope #LongCovidKids #longcovid #mecfs

I eventually did it. I recorded a blog post out sunday where I discuss why all RCT as thought today will always fail to find a cure for 😍#longcovid and #mecfs. does not mean we will not find a cure and that trials are not necessary, but.. danilobuonsenso.substack.com

IMHO one of the most important limiting points in #LongCovid care, yet mostly not discussed. my latest piece: Not Having a Diagnostic Code for Long COVID Could Crash Healthcare Systems Like a Computer Bug doi.org/10.1111/apa....

Let’s Shape This Together: What Do You Want to Read Next? danilobuonsenso.substack.com/p/lets-shape...

More on Autonomic Dysfunction following Covid-19 danilobuonsenso.substack.com/p/more-on-au...

A 🧵 inspired by a Dutch mother who finally sees her daughter getting her life back: I share these stories not to boast about my success in managing #longcovid ( I admit it gives me immense satisfaction, considering these are people who have been sick for years and no longer had a life), but: 1/

Neurocognitive problems after Covid-19: the "experiment" that may - and should - revolutionize psychiatry (and medicine) danilobuonsenso.substack.com/p/neurocogni...

glad we have now put our important multinational study on the impact on nursevimab in young children. first study of its kind

Predisposing and Precipitating Factors in Epstein–Barr Virus-Caused Myalgic Encephalomyelitis/Chronic Fatigue Syndrome danilobuonsenso.substack.com/p/predisposi...

Cette revue est une synthèse précieuse des connaissances actuelles sur la pathogenèse du #CovidLong. #Apresj20 #LongCovid #PostCovid #EM#MEcfs #Recherche @buonsenso.bsky.social

from needing to travel from Norway to receive care for severe #longcovid to sending me this message. I’m the happiest doctor n the world today ❤️ blog: danilobuonsenso.substack.com book: tinyurl.com/4tsvhwat