#Boston to offer free vaccines at series of clinics www.boston.gov/government/c...

I was not prepared for this cover of Blink 182's I Miss You. Seriously, give it a listen! youtu.be/AnbEBT1xUgg?...

-advocate for better use of our taxes by gov'ts to clean indoor air -advocate for ⏬️ class sizes (reduce close contact spread in classrooms) We don't have to get infected. We must try to prevent infection at all cost. Our futures, and those of our children, depend on it.

Masking up and advocating for clean air at #UNGA w/ Violet Affleck and @myrabatchelder.bsky.social!

We 🩵 Clean Air. Filtered air is a human right! Go Violet! #MaskTogetherAmerica

#NEISvoid find of the day! A collective of people with Long Covid have made a spoken word album of poetry and music, and the proceeds go to @patientled.bsky.social Patient-Led Research Collaborative! So cool! Check it out: www.playitforward.com/projects/voi...

Ben, age 14 talks about brain fog. "I had to do a #Maths test, I did the thing on the same day, I did revise & I knew what to do- it was there but I just didn't know how to do it. It was at the back of my brain but not the front" "It had completely gone" 👂http://bit.ly/4nNmIdb #LongCovidKids

7 days to go- a new film, a project close to our hearts, in collaboration with #CombinationDance Together, we’re giving young people with #LongCovid the voices & visibility they deserve. Because no child should be left behind. 🙏 @bendybrain.bsky.social @sedsconnective.org #Dancers #LongCovidKids

The Sick Times: 'Violet Affleck advocates for children with Long COVID, masks, and clean indoor air at United Nations event' "She also advocated for children with Long COVID, citing a recent JAMA resource...." “It is neglect of the highest order..." thesicktimes.org/2025/09/23/v...

My friend and colleagues report called "Raiding the Genome: How the United States Government Is Abusing Its Immigration Powers to Amass DNA for Future Policing" is out now: www.law.georgetown.edu/privacy-tech...

NEW: At a UN event today, advocate Violet Affleck gave a short speech on pediatric #LongCOVID. She also talked about how clean air and masking could help address the ongoing COVID-19 pandemic and protect children from the disabling disease. thesicktimes.org/2025/09/23/v...

Excellent research on concrete value of diversity in research! Gender- and race-diverse teams= more novel research, more citations & longer-term impact. Researchers from underrepresented groups produced more novel research but their work was systematically undervalued and less likely to be adopted

#MEAction Minnesota state chapter lead Terri Wilder shares how advocacy works and updates us on the fight for ME and Long COVID in Minnesota: www.meaction.net/post/advocac... #Minnesota #PwME #MECFS #LongCovid

Leeds researchers studied 154 people with long COVID and controls. They found lasting inflammation in 73% of patients and loss of key immune cells in 50%, pointing to overlapping causes and possible paths for targeted treatment. www.medrxiv.org/content/10.1...

Harry had heard of Long Covid before but didn’t think he would get it because he had heard that ‘children don’t get badly ill’ from Covid. Before catching Covid in September 2021, Harry enjoyed activities and sports. Listen to Harry: www.hexi.ox.ac.uk/Family-exper... #COVIDInquiry #LongCovidKids

Kids with Long Covid have a different symptom profile to adults. They often get sore tummies, sore legs, rashes, concentration issues, and get sick a lot.

✨Please share!✨ My newsletter is out. 🌊COVID in wastewater HIGH to VERY HIGH (S & W) 👧Kids post-COVID infection Depression & Anxiety 💊Why combo therapies for Long COVID? 🧠Neurocognitive Long COVID 💉House Approp. Cte tries to fund mRNA technology & much more buff.ly/Wjn9EvL #medsky #pedsky 🛟😷🧪

sharing my notes from the long covid round table for those who were not able to attend live. theyre no where near perfect and i tried to remove all snide remarks

Jasmine is 16. She first caught Covid in Aug 2020. She took a couple of wks off school but found she couldn’t manage going back. After 1yr, she went back to school on a reduced timetable - after 2wks caught Covid again -her symptoms got worse. bit.ly/4nF3vu5 #CovidInquiry #LongCovidKids #Pandemic

Every day, I find myself wishing that our new book, Read This When Things Fall Apart: Letters to Organizers in Crisis, was already out in the world, because I think it could really help people right now. Preorders really make all the difference in terms of helping a book become widely available.

I’d be so grateful if #MedSky would share this—it’s a really quick way to get up to date with a common and debilitating outcome of Covid infection.

Walkthrough of the #WeAreStillHere exhibition that opened yesterday.

Can we reach consensus on an ME research case definition? Prof. Leonard Jason et al. from the De Paul University in Chicago are seeking #pwME’s and their carers’ input thorough a new survey: redcap.is.depaul.edu/surveys/?s=P... #ME/CFS

🚨URGENT: Beloved leader Blanca AGAIN ordered to report to ICE. Mark your calendars to join us September 16th at 7 am. 🔗bit.ly/BlancaUpdates #Boston #LUCE #EpiscopalCityMission

CURE ID Survey on Long COVID Treatments cure.ncats.io/create/case/... Image is screenshot from Massachusetts ME/CFS & FM Association September e-newsletter #LongCovid #PASC

Watch Rosies interview clip here from BBC news. #Translink #Glider #NorthernIreland #LongCovid #LongCovidKids #CovidInquiry @baldypidge.bsky.social

And Lenny Jason's (DePaul University) 'Maintenance and Incidence of ME/CFS following Mono' RECOVER pathobiology grant is still collecting data and hopes to be releasing some reports on it over the next year, to my knowledge.

@pidringer.bsky.social My computer would cooperate for this presentation. I will need to wait for the recording. Not all hero’s wear capes. Thank you for continuing to be one of mine.

We're hearing desperation from people with lived experience of #LongCOVID. Being disbelieved, running through all savings and 401k... Steve talks about the Belmont Principles. (We all have to study these for our IRB trainings. They're ethical principles of research.) www.hhs.gov/ohrp/regulat...

The Break: Wild how many people found our materials on social media-- one person said, "can I thank you?-- you explained ME to me" 😭 One person said the Pacing Guide saved their kid. www.meaction.net/pacing-and-m...

““Now, if people with long COVID and severe PEM are largely stuck in their homes or beds and excluded from trials, is the long COVID research as it stands representative of the full population of people with long COVID?” ⬅️⬅️⬅️ Say it louder for the people in the back!!! #Covid #LongCovid #PEM #Stats

#LongCovidKids 😰🫂

The National Institutes of Health’s flagship long COVID initiative, RECOVER—short for Researching COVID to Enhance Recovery—has after a year of deliberation selected several drug candidates to test as treatments for the condition. cen.acs.org/pharmaceutic... @cenmag.bsky.social

New: US CDC removes #Covid dashboard & replaces it with fewer (confusing) metrics, data is harder to find & interpret; US/UK surges heat up; #LongCovid “highly prevalent” in teens globally, is hitting doctors and nurses hard; dogs are very susceptible to Covid, more: www.patreon.com/posts/covid-...

Infection with a virus that infects and inflames the brain was associated with depression and anxiety in kids. And we shoved them into classrooms without fresh air or masks anyway. Cos we are such fantastic adults. Well done. /s journals.plos.org/plosone/arti...

#pwLC #pwME #NEISVoid check out this excellent recap of the NIAID/NIH meeting on Long COVID research held the past 2 days in Bethesda, MD

Fantastic presentation at #RecoverTLC2025 Every researcher working on #LongCOVID studies need to watch this. 👏👏👏

A really good summary of #LongCOVID in children, from Julia Doubleday: www.thegauntlet.news/p/long-covid...

Please Trust the Scientists youtube.com/shorts/AYm9w...

Insidious narrative. @mjnabuurs.bsky.social you are more gracious than I am. Their surety that they are the expert 😡 #CovidisAirborne

Long Covid is not well defined and symptoms affect many organ systems, likely very under diagnosed, and treatments are not established. Masks aren’t popular. Vaccines are hard to get (if possible at all). Good times.

Happy to have been able to speak with Besty for this piece. Very grateful for @thesicktimes.org reporting!

Biomedical research takes a longtime, so a personal grade of D to B- is good. 95% of rare diseases, for instance, have no treatment so I'm not surprised things are moving at the pace they are for Long Covid (doesn't mean in a perfect world they wouldn't move faster).

This is so chilling and totally tracks. If my state did not have paid family medical leave it would have stretched us to the breaking point.

CIDRAP: 'Studies show how common long COVID is globally and in teens' 'Long COVID..is shown to be highly prevalent in a new global analysis of studies published in Open Forum Infectious Diseases' www.cidrap.umn.edu/covid-19/stu...

#CovidIsNotOver #LongCovidKids #CovidImmuneCompromise (!!!)

In a discussion on COVID Defense Strategies, Dr. Michael_Hoerger @michael-hoerger.bsky.social laid out the daunting challenges and the merciless school system for high-risk students, including those with #LongCOVID. FB: www.facebook.com/share/v/1ZLS... YouTube: www.youtube.com/watch?v=n5_R...

“Children are not spared from Long COVID. A study from Taiwan shows that in children ages 6 to 18 years, COVID infection can lead to changes in the brain that are associated with persistent headaches, memory, and attention problems.”

Healthy to bedridden. The stark reality of Long COVID in children. Pediatric Doctor, Danilo Buonsenso MD explains how children present with Long COVID in his clinic. Find out more at longcovidtheanswers.com #longcovidtheanswers #longcovid #children