Covid virtual Memorial Vigil Today, March 2nd @ 8pm ET/5pmPT #MarkedByCovid We Remember #LongCovidAwareness

Support Kiki’s law (IL Right to Mask bill SB3340). Submit witness slips! Family & friends #MaskUp so people like kidney-transplanted Kiki can live a fuller life without isolation. Everyone deserves mask protection from sickness. Anyone in the US can help! Info: bit.ly/Kiki_Freedom

Last week, #MEAction joined a Maryland bill hearing to support House Bill 27, a proposal that would create the Maryland Long COVID Research Fund & establish a Long COVID Innovation Grant & Loan Program through the Maryland Technology Development Corporation (TEDCO). www.meaction.net/post/meactio...

It looks like we might be last up today for those tuning in to the SB0392 Youtube: @mga-fin9827

Watching House Health Committee Testimony today, 2/10/26 HB0027 Long Covid Innovation Grant & Loan Program Word on the ground is that things are delayed & starting closer to (or at) 2:30pm #LongCovid #Maryland

Submit Written Testimony Alert! Tuesday, Feb 10th ONLY! 8am-6pm ET SB 0392 Long Covid Innovation Grant & Loan Program Submissions are required to have a my MGA account NOT required to be a Maryland resident Please see linked 🧵 for details #LongCovid

Second chance to support this exciting Long Covid legislation tomorrow/Tuesday February 10th! Submit your testimony between 8am & 6pm Eastern Time. You don’t have to be in Maryland! Instructions here: docs.google.com/document/d/1...

Deadline alert: Fri, Feb 6! ~written testimony for HB 0027: the Maryland #LongCovid Innovation Grant & Loan Program Awesome community members created a "how-to" google doc detailing steps necessary to share testimony 💙 One member has made themselves available to help with those who need it. See 🧵

DEADLINE: Friday, Feb 6th!** **apologies for limited time frame** If #LongCovid has negatively impacted your life, please consider adding your testimony to HB0027 Written Testimony can **ONLY** be submitted **(Fri) Feb 6th between 8am – 6pm ET** Must be in pdf form (yep, only PDF form)

Great news! Maryland #LongCovid Innovation Grant & Loan Program is cross-posted in the #Maryland Senate as SB 0392. Same info applies as with HB 0027.

HB0027 Maryland #LongCovid Innovation Grant & Loan Program State level R&D funding Hearing: Feb 10th at 2pm Testimony: Submitted Feb 6th-Feb 10th

“We have seen asthma, allergic rhinitis, hives/urticaria, environmental and food allergies, with the most common being asthma. But then there is also a good subset of patients developing mast cell activation symptoms,” -me www.medscape.com/viewarticle/...

Tues, Jan 20th @ 4pm ET Community Support link in bio "Come As You Are" Not linked to Maryland state, just 4pm ET.

Tuesday, January 20th at 4pm!

Continuing to highlight each episode (and make sure their slides get shared on the early episodes) Episode 4: Biomechanical Manifestations in Pediatric ME/CFS YT: tinyurl.com/RoweMECFSped... #thoracicOutletSyndrome #MyalgicEncephalomyelitis

Colorado needs help getting signatures for a petition for masks in Healthcare settings. Theyre 60 away! Anyone can help. #MaskUp #StillMasking

Happy Holidays! Grateful for all of you

Can you sign & share our letter to HHS? freakinfrail.org Thank you to the 1600 who have signed! Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.

To all of my fellow chronically ill friends and those with disabilities, I want you to know something. Your worth is not measured by what your body lets you produce. I know the holidays are a tough time for many people, it can dredge up lot of different feelings, but you are not alone. #NEISVoid

Evidence-Based #Pediatric ME/CFS Webinar Series Episode 5 Dr Peter Rowe #Neuroanatomic Considerations in Pediatric ME/CFS Youtube.com/@MEActMaryland

Important share right here from #MEAction: a list of crisis resources. www.meaction.net/crisis-resou... #MECFS #disability #chronicillness #MillionsMissing

Share your shop! All community members are welcome to share a link or tag their shops in this thread. Whatever holiday you are celebrating this time of year, you are welcome to join in and do a little gift shopping or selling! #pwME #MECFS #LongCovid #MyalgicE #Holiday

“Due to the reinfection in 2024, I’m no longer able to sit out in the garden - a pleasure that took me two and a half years to build to, and only one reinfection took away from me again." Lydia Fischer Dooley, disabled by #LongCOVID triggered by a 2nd COVID in 2022. www.instagram.com/p/DSP9ch5ES8...

Final Community Support Call of 2025 Tuesday, December 16th @ 4pm ET. As always, it is "Come As You Are" Hope to see you there.

Nothing gets us through a week more than hearing Dr. Rowe talk about what gives him hope for the future of ME. We needed this today. Thx @solveme.bsky.social! #MyalgicEncephalomyelitis #MECFS #biomechanical #neuroanatomy #NEISvoid

Neuroanatomical Considerations in Pediatric ME/CFS Monday, December 15th at 1pm Dr Peter Rowe's 5th #Evidencebased #Pediatric #MECFS webinar series #MedEd #MedSky Provider-oriented & patient accessible #livedexperience panel Available online at: Youtube.com/@MEActMaryland #Neuroanatomy

Tuesday, Dec 2nd @7pm Advocacy Meeting New Zoom link in Bio ALT TEXT: (words from above) 4 cheerful cartoon penguins pose in winter gear along with snowflakes on a light blue background @meactmaryland logo bottom right corner #MECFS

Community is caregiving. Sending you all a virtual hug today. I appreciate you all 💜

Today at 3pm ET! #caregiver #UnitedForMW ##pwME

This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground. Remember, HOPE is a sweet rebellion. #MEAction is a lantern in the darkness. We can only continue our work with your support. www.meaction.net/lantern-in-t...

Tues, Nov 4th @7pm Advocacy Meeting **New** Zoom Link in Bio #MEAction #Advocacy #MECFS #LongCovid

Today is the day after Halloween & this pumpkin is not scary ... Not like Medicaid cuts are scary for millions of Americans - they're life and death. #savemedicaid #aca @meactnet.bsky.social

Let’s be clear. If the federal government doesn't make changes to health care during this shutdown, then a lot of Americans WILL lose access to our healthcare as we know it. We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!

TeamBlueZoo's cutest member protests for Healthcare reform Things are so scary, that no dressing up was required Because the facts are the facts & they look dire Affordable health care (ACA) has expired #SaveMedicaid #ADA @meactnet.bsky.social

We are offering one time payments to disabled folks in the South who will not receive their SNAP benefits this month. If you need help, please find more information and details at ndsdj.org/snaphelp. If you’d like to donate to the fund, go to ndsdj.org/snapdonate We take care of each other ❤️

🧵 "RFK Jr. has betrayed millions of Americans like me who suffer from chronic illness" by By Effie Seiberg who has ME/CFS and also discusses long Covid www.sfchronicle.com/opinion/open... archive.ph/KPhx4#select... #MEcfs #LongCovid 1/

Exciting News! Dr. Melanie Hoppers will be an expert panelist at the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition hosted by the @umisr.bsky.social  A major step toward innovation in #LongCOVID, #MECFS & #POTS care. Learn more: https://bit.ly/3KXI3T7 #IACC2025

I think the best thing I’ve ever done when it comes to my doctors’ appts is creating a FUNCAP timeline. My husband and I sat down together and filled it out for different points in time. It paints a clear picture of #MECFS and the dangers of post-exertional malaise.

The IACC Case Competition is happening this Friday! Here is the link to sign up to and virtually. I cannot wait to hear what University of Michigan students came up with to help those who suffer from chronic illness and Long Covid. www.bus.umich.edu/Conferences/...

Join us tomorrow- Oct. 28th at 3 pm ET for a virtual workshop! Get your ticket today. www.meaction.net/event-detail... Grief and complex chronic illness go hand in hand. We are excited to have Marisa Renee Lee bring her knowledge to our community. #pwME #Grief #MECFS #LongCovid #ChronicIllness

Tomorrow Tuesday, October 21st @ 4pm ET Community Support Zoom #MEAction Maryland "Come As You Are" We've got new zoom links, so email us or check or link tree (in bio). #MECFS #LongCovid #CommunitySupport

11/22/21, Medical News Today: 'Through my eyes: Long neuro-COVID' 'My heart rate would increase further, to 170 bpm, on standing and with minimal exertion, such as getting a drink or using the bathroom.' 'I haven’t watched TV or driven in 10 months.' www.medicalnewstoday.com/articles/thr...

5-page @scienceforme.bsky.social post-exertional malaise ( #PEM ) fact sheet www.s4me.info/docs/PEM_Fac... Headings: -Characteristics of PEM -Symptoms of PEM -Exertion and other PEM triggers -Effects of exertion that are not PEM -Living with PEM -Examples of PEM -Research on PEM #MEcfs #CFS #PwME

Tues, Oct 7th at 7pm 1st meeting of the 2025-2026 Advocacy Year. NEW ZOOM link in bio. #MEAction website link not yet updated 10/5

🧵 "Myalgic Encephalomyelitis in Childhood: How the Paediatrician Can Help" by Nigel Speight This useful document was handed out at #MEAction stall at March 2025 Royal College of Paediatrics & Child Health Conference #MyalgicEncephalomyelitis #PwME @meactionuk.bsky.social 1/

Yes and yes! Hope you can join tomorrow! #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #disability

One more day! This fantastic Mayo Clinic #MyalgicEncephalomyelitis #CME has just the rest of today & tomorrow, Sept 30th left. Send it to your providers ASAP! #MECFS #MedSky

Telehealth is crucial for the tens of millions of Americans w/ #MyalgicEncephalomyelitis, #LongCovid, or dozens of other major illnesses and/or #disabilities. Please help us save telehealth! Even if you're healthy, this greatly impacts someone you love❤️