Glad to see this @wired.com guide on high quality masks! A KN95 can help protect you and your loved ones from COVID-19 and other airborne viruses, especially during this busy travel season. I only wish Wired wrote about the pandemic in the present tense 🙏😷 www.wired.com/story/best-d...

I have $639 left, thank you SO much to the generous people who already donated 😭

The Conversation: Long COVID’s hidden toll: the South Africans still battling fatigue, anxiety & memory loss 'Listening to these stories reminded us that long COVID is not just a medical condition..deserves empathy, research & sustained public health attention' theconversation.com/long-covids-...

Mucosal Viruses in ME/CFS: A Missing Piece of the Puzzle? www.mdpi.com/1422-0067/26... "Emerging evidence from saliva, mucosal tissues, & longitudinal studies suggests latent viruses can persist and periodically reactivate at mucosal sites, potentially driving immune dysregulation" #MEcfs #PwME

Brazilian singer Eva Rodrigues Praia Walkey has passed away in her 40s after fighting #LongCovid for five years. She endured lengthy hospital stays, 400 days in a coma, a cesarean section the day she was first hospitalized with hypoxia, 2 cardiac arrests, and lost 20% of her lungs

We always see a surge of infectious disease, including COVID, RSV, etc etc around Thanksgiving and Christmas. Unless you want to gift your fam with a few weeks sick this year, mask up as you travel!

I unfortunately have had to do the same and literally hand my doctors this sheet along with the allergy list I provide at every appointment. It really is despicable bc it shouldn’t matter. People who were fat, disabled, not active etc deserve the same quality of care as others. It’s terrible.

Ordinarily enrolling a thousand patients is a very protracted process of months or years—the speed of enrollment here is a chance to send a message that more trials should center patients like this one does. To sign up or learn more:

Many men won’t stay with their partners when they become chronically ill. Others stay, but gaslight you and don’t believe you’re really sick. I had an ex sneak me food he knew I was allergic to. His goal? “Prove” it was in my head. When the anaphylaxis resolved, I dumped him

Cold and wet Sunday morning and Albertans are still showing up for their Trans neighbours, and everyone else targeted by attacks on human and civil rights.

UK health officials urge extra precautions, including wearing a mask if you have symptoms, as 4 winter viruses spread: RSV, Flu, COVID and Norovirus. Source: archive.md/z6uDK

reminder that there are SARS-1 survivors who are still chronically ill. it’s horrible that they convinced so many of us that SARS-2 is no big deal.

A waking death A century before Long Covid, encephalitis lethargica left survivors frozen in time-living reminders of what happens when a pandemic ends but its patients remain Long Covid..ME/CFS.. medicine still struggles to explain By Ming Yang healthchecksonhistory.substack.com/p/a-waking-d...

Sunday Times: '‘Living dead’ talk about lives shattered by Long Covid' ‘Zombies’ rise up at SICK Pride event to raise awareness' 'About 5-million to 10-million South Africans battle with the symptoms of Long Covid..extreme fatigue, brain fog..' www.sundaytimes.timeslive.co.za/news/2025-11...

Calling Long COVID a “shadow” and claiming the acute phase has “faded” is misleading. COVID hasn’t faded, it still causes waves of ongoing transmission, repeat infections, hospital pressure, Long COVID and deaths. It’s not a shadow; it’s still shining a light on an ongoing crisis. archive.md/9Tcay

@thesicktimes is the first news source I’ve seen mention ME/CFS as one of the conditions connected to EBV

I agree, I donated as well.

This is another oft-undescribed thing! Often people who have "recovered" still experience PEM, just at much, much higher levels of activity.

!! Thank you so much to everyone who’s volunteering for this, and who’s been sharing with their friends. It’s so exciting to see science move forward this fast!

I got this from the library and the recipes are generally too much exertion for me right now, might try again later. Cooking is a huge energy sink even when it’s simple.

I’m tired Grandpa

Amy mentions that she’s pretty sure that the White House has put in Far-UVC systems in addition to good air ventilation and purification. I would love to find a source confirming this. #cleanair www.existentialhope.com/podcasts/amy...

There should be infinitely more interest in this medical mystery. How many doctors can even name the phenomenon described below? I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!) #MedSky

Remember the 800 times I’ve said you cannot contain the “let er rip” attitude to just covid? Humans don’t think like that. This was always an obvious consequence, and it’s their own damn fault.

I think what it shows is how our national institutions are failing #pwME - as demonstrated by the PFD report following #MaeveInquest in 2024. Nothing has changed since the PFD, afaik, but reinforcement of systemic failings described/quoted in government led Final Delivery Plan - and Justice4ME.uk

Love these images from MELCuSA's Sick Pride! www.facebook.com/MECFSFoundationSA/posts/pfbid0sE5mGTESDrFPqSA1fnaZiK2bR2C15ExgH2wfvmW5NtqzPFCj7b6wYx5N7dUpaugKl

Having one of those better days where I’m immediately afraid to overdo it. #ME/CFS

Remarkable how challenging this concept can be in a medical setting 🫠

if there was a way to power through ME/CFS with exercise, no-one would have ME/CFS. it's the first thing almost anyone tries.

Tried to watch Grave of the Fireflies last night and woke up with some nasty #PEM probably from crying too much. #ME/CFS

"You think your pain and your heartbreak are unprecedented in the history of the world, but then you read." - James Baldwin

#pwME #LongCovid #ME One of the medical expressions I hate most: 'suboptimal'. It means 'we f-ked up and don't know what else to do' but nobody but the in-group medics know. Angry. Yes, I am, still. Living with unrelenting rage is tiring. Hopefully it is shortening my life expectancy.

Every dollar fuels groundbreaking research to find life-changing answers. All donations to OMF to help further biomedical research on #ME/CFS are tripled from November 1 through December 2, 2025: www.omf.ong

Ah yes. I listened to a story about this where the teacher didn’t realize there was a problem (and basically blamed the students) until their own kid was struggling. Reminds me a lot of doctors who don’t believe ME/CFS is real until they have it themselves.

So I try not to give too many gory details about life with long covid, but I also think it’s important to give a clear picture of what can happen to anyone. Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.

welcoming committee at Masked choir. .we sing in N95 masks with open doors and air purifiers

Every Remembrance Day, they set off canons that my nervous system absolutely cannot handle. Airpods have been a lifesaver. #ME/CFS

If you can, please share/donate this fundraiser for my friend Siraj and his brother Ribhi: www.gofundme.com/f/ribhi-and-...

Clean the air FFS. www.cbc.ca/news/health/...

the way when doing something that feels meaningful a little piece of you heals at the experience, starved and lapping it up, and another piece of you breaks, at having to rip yourself away from it after only mere minutes, perhaps hours if you’re lucky, never days, only a glimpse #MECFS

The simple, honest public health messaging we should’ve seen everywhere from early on in the pandemic. Instead—as with almost every other aspect of modern life—profits & politics were put before people & their health. Protect yourself from #COVID to preserve your long term health.

Edmonton has had a disturbingly high number of frostbite amputations the last two winters. With freezing temps on the way, both the City and the Government of Alberta must do more to prevent people from freezing in the cold. edmontonjournal.com/opinion/colu... #ableg #yegcc

1) There's a new Medscape article on the ME/CFS treatment trials discussed at the IACFS/ME conference. - Nacul is testing LDN in Canada - Scheibenbogen is pursuing immunoadsorption in Germany - Fluge is trialing daratumumab in Norway - Sato is testing rituximab again in Japan

Journalists often don’t seem to ask to see the evidence of harassment, which leads to such odd stories where it may very well exist but also maybe not? 💁🏻‍♀️

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I love The Sick Times 💙

Danielle Smith putting us on the map #Alberta

This video feels like a response to when I expressed doubt that conservatism guards against false knowledge. bsky.app/profile/drfi...