Am I the only person who clicks to the original source when seeing a recap article on news aggregators? #Media

Spent #LongCovidAwarenessDay in bed, unable to stay upright. Missed the moment, but not the meaning. To every patient navigating this illness, and especially to our caregivers: I see you. All of you. Be well. #LongCOVID @longcovidsos.bsky.social @longcovidadvoc.com @longcovidsupport.bsky.social

Crashed hard, been gone weeks. Severe post-exertional malaise. Not resting by choice, resting because the alternative is worse. “Why I Can’t Just Meet You for Dinner” explains the economics of it. #PEM #LongCOVID #MECFS #PwME substack.com/@darthfoo/p-...

March 2026, CDC: "Living With Long COVID" 'Long COVID is a serious illness that can result in chronic conditions, require comprehensive care, and can sometimes cause disability.' www.cdc.gov/long-covid/l...

I wasn’t afraid either, back in 2021 when I first got sick. I thought I just needed to push through. I thought capability was about willpower, about refusing to let limitations define me. Post-exertional malaise #PEM taught me otherwise. It taught me very, very quickly. substack.com/@darthfoo/p-...

A quote from my piece, The Loneliness of Being Misunderstood, about the invisibility of having #LongCOVID & #MECFS. #PwME #ChronicIllness “The quote, whoever actually wrote it, describes standing behind a glass wall, hoping someone will look through and truly see you.” substack.com/home/post/p-...

Ten days horizontal in a dark room. The deepest #PEM crash of my life. When I’m upright, everything gets worse. I’m scared. #PwME #LongCOVID #MECFS

M.E.: "How it can shrink one's world, bit by bit" by Kornelia Paulsen (who no longer appears to be on X or IG). #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #SevereME

Here’s a quote from my recent piece, titled The Loneliness of Being Misunderstood. It’s focused on the challenges of living with #LongCOVID & #MECFS, two illnesses largely invisible to the general public. 1/3 substack.com/home/post/p-...

A quote from my latest piece, The Loneliness of Being Misunderstood, about the challenges of “invisible” chronic illness. “I have written before about the brutal economics of living with #LongCOVID and #MECFS. The energy budgets. The interest rates on overexertion.” substack.com/home/post/p-...

A quote from my latest piece, The Loneliness of Being Misunderstood, about the challenges of “invisible” chronic illness. “I have written before about the brutal economics of living with #LongCOVID and #MECFS. The energy budgets. The interest rates on overexertion.” substack.com/home/post/p-...

Pushed through three shifts in eight days and now I’m paying the full price. Flat on my back, staring at the ceiling. People kept warning me I could get worse. That’s starting to feel less like a warning and more like a diagnosis. #PEM #LongCOVID #MECFS #ChronicIllness

Here are some lyrics from my song, Invisible Weight, about ME/CFS and Long COVID. “The air outside tastes like another life I watch it from the window, can’t join the fight Every plan I make can turn on a dime One good hour can cost me days of time” #PEM #LongCOVID #MECFS #ChronicIllness

I’ve been on my back all day, staring at the ceiling, “making friends with shadows on my wall.” I wrote earlier about how work went yesterday. Spoiler alert, I’m in a #PEM crash. #LongCOVID #MECFS #ChronicIllness substack.com/home/post/p-...

So uh I own this beaut now! Looks even better in person plus there's a little bonus Elec Man sketch. And a rad Mega Man zine full of @cak3oman.bsky.social's art and a sweet postage stamp sheet. Made my day, thank you so much cak3o!

I’ve been on my back all day, staring at the ceiling, “making friends with shadows on my wall.” I wrote earlier about how work went yesterday. Spoiler alert, I’m in a #PEM crash. #LongCOVID #MECFS #ChronicIllness substack.com/home/post/p-...

Yesterday was rough. The migraine hit at 9:30 in the morning and never let up. Blurred vision all day. Dizzy. Nauseous. Holding on to walls, shelving, tables just to stay upright. It lasted my entire shift. #LongCOVID #MECFS #PEM #Crash #ChronicIllness #Music #Song substack.com/home/post/p-...

A quote from my recent piece, Size Matters Not, about adjusting to a new life with #chronicillness. “PEM is what happens when you don’t respect the swamp. When you try to lift the X-wing through sheer determination without understanding how energy actually works.” #PEM #LongCOVID #MECFS #Disabled

A quote from my new piece, Size Matters Not, about everything Jedi Master Yoda taught me about managing #ChronicIllness. #PEM #LongCOVID #MECFS #StarWars “Yoda and Obi-Wan discuss whether Luke can be trained, Yoda expresses his doubts. Luke is reckless, impatient, too old to begin the training.”

My recent piece, Size Matters Not, explores living with #LongCOVID, #MECFS, and post-exertional malaise (PEM) through the wisdom of a certain green Jedi master. #PwME #PEM #StarWars substack.com/home/post/p-...

Still below baseline. Bad PEM. Work tomorrow 9-5. Long COVID and ME/CFS don’t care about your schedule. #LongCOVID #MECFS #PwME #ChronicIllness #PEM

Five hours later & I can barely walk. Muscle weakness is horrible. Might make it upstairs if Beth helps. Migraine won’t quit. Pain in arms, legs, feet nearly unbearable. Living with this is hard. The cost of existing keeps compounding. Hope your day is better.​​​​​​​​​​​​​​​​ #PEM #LongCOVID #MECFS

#Shrinking on #AppleTV is a masterpiece.

Worked 8 hours in PEM. Blurred vision, dizzy, pain everywhere, muscles barely holding me up. This is Long COVID and ME/CFS. Four days to recover, then repeat Sunday. #LongCOVID #MECFS #PwME​​​​​​​​​​​​​​​​

As I lie here in a post-exertional malaise (PEM) crash, I keep reminding myself to read my own post from a few months ago, Why I Can’t Just Meet You for Dinner. #PEM #LongCOVID #MECFS open.substack.com/pub/centerle...

This 👇👇👇👇👇👇👇

I wrote about the recent changes at #Lucasfilm after #KathleenKennedy departure. Here are my thoughts on the future of #StarWars Here’s a quote from the piece, Living in the World Between Worlds: substack.com/home/post/p-...

He’s turned the presidency into the world’s largest ATM machine.

@starwarsexplained.com I just finished watching your video on the #KathleenKennedy changes, I loved it and totally agree. I posted my thoughts on the Lucasfilm charges earlier today and thought I’d share it with you. #StarWars substack.com/home/post/p-...

I love #StarWars. I have loved it since I was young, obsessively and completely. That love gives me permission to want it to be better than safe. I also recognize that my recent pace posting new pieces increases my #fatigue and #PEM. #MECFS #ChronicIllness #KathleenKennedy

This is post-exertional malaise #PEM. This is what Johns Hopkins describes as “a delayed worsening of symptoms…after minimal physical or mental activity.” This is the reality where “the malaise & other symptoms experienced are not in proportion to the amount of activity that has been done.”

A quote from my new piece, The Accounting Error. “The post-holiday crash hit exactly as expected. The brutal economics of chronic illness don’t lie. You spend energy you don’t have on celebrations and gatherings, and the body presents its bill with interest.” substack.com/home/post/p-...

Post-holiday crash hit hard. Walked to the end of the driveway for trash cans & now can’t stay upright. This is post-exertional malaise in action: seemingly minor tasks stealing days of function. I wrote about why I can’t just meet for dinner: #PEM #MECFS #LongCOVID substack.com/@darthfoo/p-...

Post-holiday crash is real. “Energy budget” on family time & now I’m paying the interest. That’s post-exertional malaise. Not tired. Not lazy. Physiologically incapable of producing energy my body needs. This is what I mean when I say I can’t just meet you for dinner: substack.com/@darthfoo/p-...

A quote from my new piece, “Those Who Were Already Here.” About my gratitude to the Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). #MECFS #LongCOVID #ChronicIllness substack.com/home/post/p-...

A quote from my recent piece about my gratitude to the Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) community, Those Who Were Already Here. Please check it out and let me know your thoughts. #LongCovid #MECFS

1 of 9 My #SevereME Christmas * All day mostly alone * No TV, music or twinkly lights due to extreme sensory sensitivities * I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …

A quote from my new piece, Those Who Were Already Here. Words can’t begin to express my gratitude to members of the ME/CFS community. “The people who live with #MECFS did not greet #LongCOVID with surprise. They greeted it with recognition.” substack.com/home/post/p-...

A quote from my recent piece, “The Holiday Tax.” #LongCovid #MECFS #ChronicIllness #Holidays #Disablility “The guilt compounds like the PEM itself. Every invitation I decline, every gathering I miss, every moment I can’t be present for feels like I’m failing the people who matter most.”

Finished my shift at 5pm. Should’ve been home by 6pm. Instead, I sat in my car in the parking lot for 90 minutes because the migraine hit hard enough that driving wasn’t an option. Light sensitivity, vision blurred to hell, dizzy enough that operating a vehicle would’ve been criminally stupid.

Here’s a quote from my new piece, The Holiday Tax. “Here’s the thing about the holiday season when you have PEM: it’s not just one event. It’s weeks of compounding demands. Thanksgiving wasn’t an isolated cost. It’s still being paid. Christmas won’t be either. And then there’s New Year’s.”

"Some may be navigating how to ask for precautions from reluctant family members in order to attend holiday gatherings, while some may be experiencing dread around turning down invitations to events they're not comfortable attending." www.oliviabelknaptherapy.com/post/navigat...

The math: 8 hours of work yesterday = today I can’t stay upright long enough to eat the bagel I just made. #LongCovid #MECFS #PEM substack.com/@darthfoo/p-...

“Healthy people optimize their lives through addition: more experiences, more connections, more accomplishments. I’m optimizing through subtraction. And the clarity that comes from extreme constraint is something I never expected to value.” #LongCovid #MECFS substack.com/home/post/p-...

I’m excited to share my latest work, “The Small Life.” It explores the little things that still bring me joy as I navigate #LongCovid and #MECFS. #ChronicIllness substack.com/home/post/p-...

Massive win by the @penguinsnhl.bsky.social tonight!!

I’ve been working on a new piece, here’s a quote: “People talk about #disability like it is a single moment. One day you are fine, the next you are not. But in reality it is more like a shoreline that slowly breaks apart. A gradual unmaking instead of a sudden collapse.” #PEM #LongCovid #MECFS

Just finished an 8-hour shift. Traveling to family for the holiday tomorrow, 3-hours round trip, we’ll be gone all day. That leaves me only 2 days to recover for my 8-hour shift on Sunday. My #PEMCrash will worsen next week. 🤦‍♂️ #PEM #LongCovid #MECFS substack.com/home/post/p-...