“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

Brain scans show #COVID can alter children’s development. Areas tied to language and listening sometimes improve with time. But changes in memory, emotions, and focus persist. Families say reinfections can wipe out recovery. Prevention matters. Kids must be included in research and care.

Very concerned that we still don’t know much about the long term effects of this horrific virus

Brain scans show #COVID can alter children’s development. Areas tied to language and listening sometimes improve with time. But changes in memory, emotions, and focus persist. Families say reinfections can wipe out recovery. Prevention matters. Kids must be included in research and care.

A community member’s letter already got a response from a staffer. If you haven’t sent yours yet, now is the moment. Every letter adds pressure and keeps kids in the conversation.

Nearly six million kids in the U.S. are living with Long COVID. HHS just announced new commitments — but children weren’t mentioned. If kids aren’t named, they risk being excluded from research, care, and policy. Tell Congress: Children must be part of every Long COVID action.

Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan. Here’s why pediatric research and policy cannot wait: 🔗 longcovidfamilies.org/children-mus... #PediatricLongCOVID #LongCOVID

Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan. Here’s why pediatric research and policy cannot wait: 🔗 longcovidfamilies.org/children-mus... #PediatricLongCOVID #LongCOVID

A child keeps losing their place reading, complains of headaches, struggles with memory. Teachers may see distraction, but a new study shows brain changes months after COVID. Symptoms: headaches, dizziness, attention & memory issues, mood shifts, sleep trouble. This is #pediatricLongCOVID.

A child keeps losing their place reading, complains of headaches, struggles with memory. Teachers may see distraction, but a new study shows brain changes months after COVID. Symptoms: headaches, dizziness, attention & memory issues, mood shifts, sleep trouble. This is #pediatricLongCOVID.

Day 2 at RECOVER–TLC begins with what families most want to hear: potential avenues for future treatment. Researchers are exploring new strategies to address symptoms, improve quality of life, and accelerate answers for children living with Long COVID.

Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned. #PediatricLongCOVID

RECOVER TLC Workshop Day 1 (Part 2) Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study: • Kids’ bodies feel side effects more intensely • Younger children can’t always explain what feels wrong #PediatricLongCOVID

Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned. #PediatricLongCOVID

Six million kids live with Long COVID, and there are still no treatments. At the RECOVER TLC Workshop, we are pressing for pediatric trials and answers. New blog: longcovidfamilies.org/long-covid-i... #PediatricLongCOVID #PublicHealth #Kids #Pediatrics

Six million kids live with Long COVID, and there are still no treatments. At the RECOVER TLC Workshop, we are pressing for pediatric trials and answers. New blog: longcovidfamilies.org/long-covid-i... #PediatricLongCOVID #PublicHealth #Kids #Pediatrics

Early studies of Long COVID treated kids like smaller adults. Families pointed to what else they were seeing — symptoms unique to children. Long Covid Families makes sure those realities shape research and guide the path to care. Blog: longcovidfamilies.org/blog-early-p... #PediatricLongCOVID

Early studies of Long COVID treated kids like smaller adults. Families pointed to what else they were seeing — symptoms unique to children. Long Covid Families makes sure those realities shape research and guide the path to care. Blog: longcovidfamilies.org/blog-early-p... #PediatricLongCOVID

Covid is rising as kids return to school. Some children don’t bounce back—weeks later they’re still exhausted, dizzy, or struggling to focus. Parents and pediatricians: see the early warning signs at longcovidfamilies.org. Early intervention matters. #PediatricLongCOVID

Covid is rising as kids return to school. Some children don’t bounce back—weeks later they’re still exhausted, dizzy, or struggling to focus. Parents and pediatricians: see the early warning signs at longcovidfamilies.org. Early intervention matters. #PediatricLongCOVID

NPR’s “COVID kindergartners” story skips Long COVID. In the RECOVER Early Childhood study, 16% of children in the study were identified as having it. Calling delays “pandemic effects” erases families’ reality — and blocks real solutions for a chronic illness changing kids’ development. #LongCOVID

NPR’s “COVID kindergartners” story skips Long COVID. In the RECOVER Early Childhood study, 16% of children in the study were identified as having it. Calling delays “pandemic effects” erases families’ reality — and blocks real solutions for a chronic illness changing kids’ development. #LongCOVID

COVID is definitely not doing anything to the immune system guys. Ashish Jha said so which makes it true. Ignore doubling risks of some HPV-related cancers: idp.springer.com/authorize?re...

Deseret News: 'How vulnerable are kids to long COVID?' 'Families, doctors take experience with long COVID to Congress to ask for help' 'Long COVID Families and doctors who treat the condition hope Kennedy keeps that promise' www.deseret.com/lifestyle/20...

"I don’t know how to convince everyone that we can’t give up. So many people consider COVID to be endemic, or accept that everyone will eventually become infected, thinking nothing more can be done... but I know a better world is possible and we will move forward together."

A grim but important read. In those who die ages 25-44, 62% of those deaths are BECAUSE we're Americans, in ways that both are and aren't related to #COVID. Rather, our shoddy HC infrastructure means a young person's first adverse health event can be their last. slate.com/technology/2...

BMJ article highlights evidence Covid can change adult immunity, raising infection risk after mild illness. We do not yet know what this means for children. Families see the signs: kids sick again and again, illnesses once rare. We need a bigger investment in pediatric research now.

1. 'The findings of this study unveil a silent yet profound legacy of COVID-19: genomic instability as a potential driver of long-term health complications in survivors... bmcinfectdis.biomedcentral.com/articles/10....

2. ... In conclusion, COVID-19 is not just a transient infection but a catalyst for long-term genomic disruption, leaving behind a trail of cellular damage that *may shape the health of survivors for years to come*'. *my emphasis.

A new study highlights the power imbalance adults with Long COVID face. Even with a recognized condition, many are dismissed — told it’s all in their heads. But what happens when the patient is a child? 🧵 1/

A new study highlights the power imbalance adults with Long COVID face. Even with a recognized condition, many are dismissed — told it’s all in their heads. But what happens when the patient is a child? 🧵 1/

Every new COVID wave means more children living with Long COVID. It can appear as new symptoms, a worsening condition, or an entirely new diagnosis. Families need answers now. Learn more: longcovidfamilies.org/pediatric-long-covid #PediatricLongCOVID

Evidence shows vaccination may lower the risk of Long COVID in children. The American Academy of Pediatrics recommends COVID vaccination as an important step in protecting kids’ health.

Millions of children are living with Long COVID. Families report debilitating symptoms. Doctors and research confirm it. In this article, we spoke about how Long Covid Families is making sure children’s voices drive change. #PediatricLongCOVID

US study of over 12,000 military personnel found wearable devices detected persistent heart rate and HRV changes in 9.4% of COVID-positive cases, offering an objective way to spot potential Long COVID effects weeks after infection. www.nature.com/articles/s41...

In a study of nearly 3,800 people, 11% developed long COVID. Risk wasn’t equal. People experiencing food insecurity, financial stress, skipped care, discrimination, or crowded housing were far more likely to be affected. www.sciencedaily.com/releases/202...

Six million children in the U.S. (and growing) have #LongCOVID, yet they’re still left out of the national conversation. Without the care and support they need now, we risk weakening tomorrow’s workforce and undermining the future they deserve. #ChronicIllness #Kids #ChildrenAreOurFuture

Six million children in the U.S. (and growing) have #LongCOVID, yet they’re still left out of the national conversation. Without the care and support they need now, we risk weakening tomorrow’s workforce and undermining the future they deserve. #ChronicIllness #Kids #ChildrenAreOurFuture

This is important. Years ago, my kid's pediatrician wouldn't prescribe Tamiflu b/c he believed it causes neuropsychiatric events. (I eventually got the Rx from a sympathetic ped. elsewhere who also wrote me an Rx "just in case" - & I later needed it. Very thankful for that sensible doctor.)

We see officials saying #COVID cases are rising but healthy kids don’t need to worry. This study found reinfection doubles the risk of Long COVID in kids. Sincerely, families who believed you when you said our kids weren’t at risk — and now they’re disabled.

When Long Covid affects a child’s learning, schools must remove barriers through accommodations or modifications. Our Resource Hub explains the supports available and how to request them from your school. 📖 Learn more: longcovidfamilies.org/schools-and-... #PediatricLongCOVID #BackToSchool #Kids

LCF is featured in this article highlighting the urgent crisis of #PediatricLongCOVID. Too many children are being dismissed or denied care for disabling symptoms. Awareness Week brought national attention, but much more is needed. Read and share: www.newsweek.com/disabling-ch...

Thank you, @bhanlon15.bsky.social, for helping raise visibility. Children deserve to be seen and supported. #PediatricLongCOVID #CenterFamiliesReflectRealityDemandAction

Today in DC, LCF families are walking the halls of the Senate with stories, drawings, and photos from children too sick to travel. We’re here so they aren’t forgotten. You can help. Send a letter to Congress: actionnetwork.org/letters/chil... #PediatricLongCOVID #ActForKids

Ella’s family is heartbroken as she steps away from what once gave her joy. This is pediatric Long COVID. We raise awareness so families like Ella’s feel seen and children get care. Learn more at www.longcovidfamilies.org #PediatricLongCOVIDAwareness

Ella’s family is heartbroken as she steps away from what once gave her joy. This is pediatric Long COVID. We raise awareness so families like Ella’s feel seen and children get care. Learn more at www.longcovidfamilies.org #PediatricLongCOVIDAwareness

He used to spend afternoons skating with friends. Now pain and brain fog keep him home. Ben says he's really lonely. This is #PediatricLongCOVID. Help us raise awareness — share his story. We share real stories from families in our community. Images are illustrative to protect privacy.

He used to spend afternoons skating with friends. Now pain and brain fog keep him home. Ben says he's really lonely. This is #PediatricLongCOVID. Help us raise awareness — share his story. We share real stories from families in our community. Images are illustrative to protect privacy.

Reminder that @longcovidfam.bsky.social is having a pediatric Long COVID Awareness week *this week*. Please see the link below to register! longcovidfamilies.org/advocacy/ped...