Pediatric Long COVID cannot be understood by simply adapting adult models. Children show different symptom patterns and developmental impacts. Research design and interpretation must reflect pediatric realities. #PediatricLongCOVID

Kids with Long COVID often look fine at events, then crash days later. This is post-exertional malaise (PEM)—symptoms spike after activity, not during. When parents leave early or skip events, it's medical management, not anxiety. #LongCOVID #ChronicIllness

We spent 100+ hours inside pediatric research this year, bringing the daily reality of Long COVID into national study design. Follow this feed to stay close to the work shaping care and education for children. #PediatricLongCOVID #LongCovidFamilies

Your kid wants to be in class with their friends. Long COVID has other plans. We help families navigate the impossible—schools that don't get it, doctors who dismiss it, kids who crash by noon. Real support. Real impact. Real kids staying connected. $25 keeps this work going.

At the 3rd Long COVID International Conference in Boston, Dr. Rakesh Bhattacharjee from UC San Diego presented new RECOVER findings on sleep in the youngest children. Infants and preschoolers who had COVID were more likely to have disrupted sleep.

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At the 3rd Long COVID International Conference in Boston, Dr. Rakesh Bhattacharjee from UC San Diego presented new RECOVER findings on sleep in the youngest children. Infants and preschoolers who had COVID were more likely to have disrupted sleep.

Pls sign this **urgent** petition ana.quorum.us/campaign/pro...

Stanford Medicine: 'Infection Connections' 'How past microbial incursions can lead to neurodegenerative diseases' ' Each such discovery is a concrete step toward finding a way to relieve humanity of the burden of chronic disease...' stanmed.stanford.edu/infections-l...

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Did you know #LongCovid heavily impacts anesthesia response, and because of that, these patients need specific requirements and protocols before receiving anesthesia? Neither do I. Anesthesiologist and neurologist Tihamér Molnar described his research with Long Covid patients in Hungary.

There is a lot of good research and amazing people working on #LongCovid in Europe! Yes, the road is long, but after today, I feel my hope is restored. Some of my favorite moments from today's meeting at the National Institute for Infectious Diseases Lazzaro Spallanzani in Rome:

At the 3rd International Long COVID Conference, Kennedy Krieger shared five symptom patterns seen in their pediatric post COVID clinic. These were children whose symptoms were serious enough and who had access to specialty care. @kennedykrieger.bsky.social

At the 3rd International Long COVID Conference in Boston, Dr Kay Rhee from UC San Diego and RECOVER presented new findings on how a child’s daily environment shapes the risk of Long COVID. @ucsandiego.bsky.social

At the 3rd International Long COVID Conference in Boston, Dr Kay Rhee from UC San Diego and RECOVER presented new findings on how a child’s daily environment shapes the risk of Long COVID. @ucsandiego.bsky.social

At the 3rd International Long COVID Conference, Kennedy Krieger shared five symptom patterns seen in their pediatric post COVID clinic. These were children whose symptoms were serious enough and who had access to specialty care. @kennedykrieger.bsky.social

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At the Long COVID International Conference today, Dr Sindhu Mohandas from Children’s Hospital Los Angeles presented new findings on why some children develop long COVID after infection while others do not. #PediatricLongCOVID 1/

A new Nature Immunology report cites Long Covid Families for raising a key point about pediatric trials. School hours, meals, long drives, siblings. When studies plan for real life, children can actually take part. This is real progress for pediatric research. www.nature.com/articles/s41...

At the Long COVID International Conference today, Dr Sindhu Mohandas from Children’s Hospital Los Angeles presented new findings on why some children develop long COVID after infection while others do not. #PediatricLongCOVID 1/

At the PolyBio symposium, Dr Lael Yonker presented pediatric Long COVID research. Her team is studying how neutrophils respond in children and whether viral reservoirs in the gut allow spike protein to enter the bloodstream and trigger NET release. @polybiorf.bsky.social

At the PolyBio symposium, Dr Lael Yonker presented pediatric Long COVID research. Her team is studying how neutrophils respond in children and whether viral reservoirs in the gut allow spike protein to enter the bloodstream and trigger NET release. @polybiorf.bsky.social

Medical Republic: 'Fibromyalgia finally gets a genetic fingerprint' 'Additionally, certain risk loci overlapped with long covid (BPTF) and ME/CFS (OLFM4, RABGAP1L/GPR52), two poorly characterised disorders, albeit with different lead variants.' www.medicalrepublic.com.au/fibromyalgia...

Kids with Eczema: COVID Vaccine Linked to Big Benefits Study findings: • 38-52% fewer infections • 30% lower asthma risk • 44% less allergic rhinitis The vaccine may help stop kids w/ eczema from developing asthma and allergies as they grow - a common problem for these children.​​​​​​​​​​​​​​​​

A teen with Long COVID is leading a project to thank pediatric researchers who are changing care for kids. Families, teens, and caregivers can share a note, artwork, or short video to show their gratitude. How has pediatric research touched your life? Share here: share.hsforms.com/1-0SDJZ0yRnO...

Even after infection, vaccination still matters. A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID. Study in Vaccine, summary via CIDRAP: #PediatricLongCOVID

A new study from Mass General Brigham found that children exposed to COVID-19 during pregnancy were more likely to have developmental diagnoses by age 3, including speech, motor, or learning delays. Risk was highest when infection happened later in pregnancy. 1/3

When you talk about Long COVID in kids, use information about kids—not adults. Adult symptoms are different and can make it harder for families to get help. Use recent research since we're learning new things all the time. Pediatric symptom list: longcovidfamilies.org

Children with Long Covid are already being pushed out of classrooms because schools aren’t built to handle dynamic disabilities. Now the protections that should help them could be dismantled. Read the full piece by Judy Stone in Forbes: www.forbes.com/sites/judyst...

Children with Long Covid are already being pushed out of classrooms because schools aren’t built to handle dynamic disabilities. Now the protections that should help them could be dismantled. Read the full piece by Judy Stone in Forbes: www.forbes.com/sites/judyst...

Halloween can take extra planning for families navigating Long COVID, but celebration and joy remain part of it. Our new blog looks at how families adapt the season while keeping the focus on what matters most - connection, care, and belonging. Read it here:

Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible. #PediatricLongCOVID

Including pediatric cancer facilities. Some children contract COVID while receiving cancer treatment and go on to develop Long COVID. Protecting them means stronger infection control everywhere care happens and family education on importance of avoiding infection. #PediatricLongCOVID

Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible. #PediatricLongCOVID

Start Here: If you think your child may have Long Covid From @longcovidfam.bsky.social This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school. hubs.ly/Q03P6mLp0

Some kids in Chicago waited a month longer for their COVID shots because of delays in the Vaccines for Children program. When access depends on income, prevention breaks down. Every child should be able to get vaccinated on time. 🔗 Health News Chicago

A new study found Paxlovid (nirmatrelvir-ritonavir) lowers the risk of Long COVID in adults over 50 — but not in teens. We still need research focused on children and how to protect them from Long COVID. #PediatricLongCOVID #LongCOVID

Rolling Stone reports what families already know: kids with Long COVID are missing school because they’re sick, not unmotivated. Chronic illness is driving absenteeism—and systems aren’t built to respond. It’s time to face what this means for children and education. #PediatricLongCOVID

Pediatric Long COVID is reshaping child health and education. Families, clinicians, and researchers are stepping up where systems fall short. Stay connected to what’s next. 🔗 Sign up for updates: share.hsforms.com/1U22QefztSam...

We're inviting people who've engaged with the SLCC webtool (long-covid-care.org.uk) to take part in its evaluation to help us improve the tool &make it more relevant& helpful to pw #LongCovid. This involves a short survey(10-15m)& potentially interview(if interested) For more info: shorturl.at/ADoh0

New Lancet Study: 2x Risk of Long COVID After Reinfection Risks of other serious outcomes also rise sharply. This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem. #LongCOVID

New Lancet Study: 2x Risk of Long COVID After Reinfection Risks of other serious outcomes also rise sharply. This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem. #LongCOVID

Thank you, Violet Affleck, for using your voice at the United Nations to call for clean air and masking — and especially for naming children with #LongCOVID. Too often, kids are left out of these conversations. Families are grateful to see their children’s realities recognized on the global stage.

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

Brain scans show #COVID can alter children’s development. Areas tied to language and listening sometimes improve with time. But changes in memory, emotions, and focus persist. Families say reinfections can wipe out recovery. Prevention matters. Kids must be included in research and care.

Very concerned that we still don’t know much about the long term effects of this horrific virus

Brain scans show #COVID can alter children’s development. Areas tied to language and listening sometimes improve with time. But changes in memory, emotions, and focus persist. Families say reinfections can wipe out recovery. Prevention matters. Kids must be included in research and care.