A teen with Long COVID is leading a project to thank pediatric researchers who are changing care for kids. Families, teens, and caregivers can share a note, artwork, or short video to show their gratitude. How has pediatric research touched your life? Share here: share.hsforms.com/1-0SDJZ0yRnO...

Even after infection, vaccination still matters. A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID. Study in Vaccine, summary via CIDRAP: #PediatricLongCOVID

A new study from Mass General Brigham found that children exposed to COVID-19 during pregnancy were more likely to have developmental diagnoses by age 3, including speech, motor, or learning delays. Risk was highest when infection happened later in pregnancy. 1/3

When you talk about Long COVID in kids, use information about kids—not adults. Adult symptoms are different and can make it harder for families to get help. Use recent research since we're learning new things all the time. Pediatric symptom list: longcovidfamilies.org

Children with Long Covid are already being pushed out of classrooms because schools aren’t built to handle dynamic disabilities. Now the protections that should help them could be dismantled. Read the full piece by Judy Stone in Forbes: www.forbes.com/sites/judyst...

Children with Long Covid are already being pushed out of classrooms because schools aren’t built to handle dynamic disabilities. Now the protections that should help them could be dismantled. Read the full piece by Judy Stone in Forbes: www.forbes.com/sites/judyst...

Halloween can take extra planning for families navigating Long COVID, but celebration and joy remain part of it. Our new blog looks at how families adapt the season while keeping the focus on what matters most - connection, care, and belonging. Read it here:

Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible. #PediatricLongCOVID

Including pediatric cancer facilities. Some children contract COVID while receiving cancer treatment and go on to develop Long COVID. Protecting them means stronger infection control everywhere care happens and family education on importance of avoiding infection. #PediatricLongCOVID

Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible. #PediatricLongCOVID

Start Here: If you think your child may have Long Covid From @longcovidfam.bsky.social This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school. hubs.ly/Q03P6mLp0

Some kids in Chicago waited a month longer for their COVID shots because of delays in the Vaccines for Children program. When access depends on income, prevention breaks down. Every child should be able to get vaccinated on time. 🔗 Health News Chicago

A new study found Paxlovid (nirmatrelvir-ritonavir) lowers the risk of Long COVID in adults over 50 — but not in teens. We still need research focused on children and how to protect them from Long COVID. #PediatricLongCOVID #LongCOVID

Rolling Stone reports what families already know: kids with Long COVID are missing school because they’re sick, not unmotivated. Chronic illness is driving absenteeism—and systems aren’t built to respond. It’s time to face what this means for children and education. #PediatricLongCOVID

Pediatric Long COVID is reshaping child health and education. Families, clinicians, and researchers are stepping up where systems fall short. Stay connected to what’s next. 🔗 Sign up for updates: share.hsforms.com/1U22QefztSam...

We're inviting people who've engaged with the SLCC webtool (long-covid-care.org.uk) to take part in its evaluation to help us improve the tool &make it more relevant& helpful to pw #LongCovid. This involves a short survey(10-15m)& potentially interview(if interested) For more info: shorturl.at/ADoh0

New Lancet Study: 2x Risk of Long COVID After Reinfection Risks of other serious outcomes also rise sharply. This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem. #LongCOVID

New Lancet Study: 2x Risk of Long COVID After Reinfection Risks of other serious outcomes also rise sharply. This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem. #LongCOVID

Thank you, Violet Affleck, for using your voice at the United Nations to call for clean air and masking — and especially for naming children with #LongCOVID. Too often, kids are left out of these conversations. Families are grateful to see their children’s realities recognized on the global stage.

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

Brain scans show #COVID can alter children’s development. Areas tied to language and listening sometimes improve with time. But changes in memory, emotions, and focus persist. Families say reinfections can wipe out recovery. Prevention matters. Kids must be included in research and care.

Very concerned that we still don’t know much about the long term effects of this horrific virus

Brain scans show #COVID can alter children’s development. Areas tied to language and listening sometimes improve with time. But changes in memory, emotions, and focus persist. Families say reinfections can wipe out recovery. Prevention matters. Kids must be included in research and care.

A community member’s letter already got a response from a staffer. If you haven’t sent yours yet, now is the moment. Every letter adds pressure and keeps kids in the conversation.

Nearly six million kids in the U.S. are living with Long COVID. HHS just announced new commitments — but children weren’t mentioned. If kids aren’t named, they risk being excluded from research, care, and policy. Tell Congress: Children must be part of every Long COVID action.

Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan. Here’s why pediatric research and policy cannot wait: 🔗 longcovidfamilies.org/children-mus... #PediatricLongCOVID #LongCOVID

Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan. Here’s why pediatric research and policy cannot wait: 🔗 longcovidfamilies.org/children-mus... #PediatricLongCOVID #LongCOVID

A child keeps losing their place reading, complains of headaches, struggles with memory. Teachers may see distraction, but a new study shows brain changes months after COVID. Symptoms: headaches, dizziness, attention & memory issues, mood shifts, sleep trouble. This is #pediatricLongCOVID.

A child keeps losing their place reading, complains of headaches, struggles with memory. Teachers may see distraction, but a new study shows brain changes months after COVID. Symptoms: headaches, dizziness, attention & memory issues, mood shifts, sleep trouble. This is #pediatricLongCOVID.

Day 2 at RECOVER–TLC begins with what families most want to hear: potential avenues for future treatment. Researchers are exploring new strategies to address symptoms, improve quality of life, and accelerate answers for children living with Long COVID.

Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned. #PediatricLongCOVID

RECOVER TLC Workshop Day 1 (Part 2) Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study: • Kids’ bodies feel side effects more intensely • Younger children can’t always explain what feels wrong #PediatricLongCOVID

Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned. #PediatricLongCOVID

Six million kids live with Long COVID, and there are still no treatments. At the RECOVER TLC Workshop, we are pressing for pediatric trials and answers. New blog: longcovidfamilies.org/long-covid-i... #PediatricLongCOVID #PublicHealth #Kids #Pediatrics

Six million kids live with Long COVID, and there are still no treatments. At the RECOVER TLC Workshop, we are pressing for pediatric trials and answers. New blog: longcovidfamilies.org/long-covid-i... #PediatricLongCOVID #PublicHealth #Kids #Pediatrics

Early studies of Long COVID treated kids like smaller adults. Families pointed to what else they were seeing — symptoms unique to children. Long Covid Families makes sure those realities shape research and guide the path to care. Blog: longcovidfamilies.org/blog-early-p... #PediatricLongCOVID

Early studies of Long COVID treated kids like smaller adults. Families pointed to what else they were seeing — symptoms unique to children. Long Covid Families makes sure those realities shape research and guide the path to care. Blog: longcovidfamilies.org/blog-early-p... #PediatricLongCOVID

Covid is rising as kids return to school. Some children don’t bounce back—weeks later they’re still exhausted, dizzy, or struggling to focus. Parents and pediatricians: see the early warning signs at longcovidfamilies.org. Early intervention matters. #PediatricLongCOVID

Covid is rising as kids return to school. Some children don’t bounce back—weeks later they’re still exhausted, dizzy, or struggling to focus. Parents and pediatricians: see the early warning signs at longcovidfamilies.org. Early intervention matters. #PediatricLongCOVID

NPR’s “COVID kindergartners” story skips Long COVID. In the RECOVER Early Childhood study, 16% of children in the study were identified as having it. Calling delays “pandemic effects” erases families’ reality — and blocks real solutions for a chronic illness changing kids’ development. #LongCOVID

NPR’s “COVID kindergartners” story skips Long COVID. In the RECOVER Early Childhood study, 16% of children in the study were identified as having it. Calling delays “pandemic effects” erases families’ reality — and blocks real solutions for a chronic illness changing kids’ development. #LongCOVID

COVID is definitely not doing anything to the immune system guys. Ashish Jha said so which makes it true. Ignore doubling risks of some HPV-related cancers: idp.springer.com/authorize?re...

Deseret News: 'How vulnerable are kids to long COVID?' 'Families, doctors take experience with long COVID to Congress to ask for help' 'Long COVID Families and doctors who treat the condition hope Kennedy keeps that promise' www.deseret.com/lifestyle/20...

"I don’t know how to convince everyone that we can’t give up. So many people consider COVID to be endemic, or accept that everyone will eventually become infected, thinking nothing more can be done... but I know a better world is possible and we will move forward together."

A grim but important read. In those who die ages 25-44, 62% of those deaths are BECAUSE we're Americans, in ways that both are and aren't related to #COVID. Rather, our shoddy HC infrastructure means a young person's first adverse health event can be their last. slate.com/technology/2...

BMJ article highlights evidence Covid can change adult immunity, raising infection risk after mild illness. We do not yet know what this means for children. Families see the signs: kids sick again and again, illnesses once rare. We need a bigger investment in pediatric research now.

1. 'The findings of this study unveil a silent yet profound legacy of COVID-19: genomic instability as a potential driver of long-term health complications in survivors... bmcinfectdis.biomedcentral.com/articles/10....

2. ... In conclusion, COVID-19 is not just a transient infection but a catalyst for long-term genomic disruption, leaving behind a trail of cellular damage that *may shape the health of survivors for years to come*'. *my emphasis.

A new study highlights the power imbalance adults with Long COVID face. Even with a recognized condition, many are dismissed — told it’s all in their heads. But what happens when the patient is a child? 🧵 1/

A new study highlights the power imbalance adults with Long COVID face. Even with a recognized condition, many are dismissed — told it’s all in their heads. But what happens when the patient is a child? 🧵 1/