A gentle note in case this did not reach the first time. Feel free to email me privately by Dec 19th - [email protected]

ALBERTA: Bill 11 makes healthcare more expensive for everyone by introducing a two-tier system ⚠️ It lets doctors mix public and private work, giving faster access to people who pay while everyone else waits longer. Visit NoTwoTier.ca to advocate against this and FOR Universal Public Healthcare.

@cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social @markcarneyforpm.bsky.social @canadahealthwatch.ca @childhealthcan.bsky.social whn.global/scientific/l...

1/ This may look like “just one story” to many, not a dataset, but it crystallizes a pattern that far too many families are bumping into: when the system cannot explain a young person's symptoms, it downgrades them to lifestyle, instead of upgrading the level of curiosity. www.ad.nl/binnenland/m...

Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social www.nature.com/articles/d41...

On this Giving Tuesday, CLCN is showing up for the children with LC who continue to be overlooked. Giving attention, giving voice, and giving our children the recognition they deserve. #GivingTuesdayCanada #LongCOVIDChildren #CLCN #DriveRecognition #StrengthenCare#LCDiagnosis

❣️A small gesture from CLCN for Canadian Children with Long COVID with warmth: 1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery

@jamapediatrics.com Publishing lifestyle-based pediatric reviews without considering children affected by COVID Infections- including those living unknowingly with Long COVID- it creates an incomplete and potentially unsafe narrative. jamanetwork.com/journals/jam...

Canadian based. For all Canadian clinicians, researchers. @cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social healthlinksed.ca?product=long...

Alberta’s public health care is under attack. Premier Smith wants doctors in both public and private systems — a fast lane for the wealthy, longer waits for everyone else. Our system is already strained. Sign the petition. 💙 notwotier.ca/directmessag...

Further to CLCN's communication with the CBC Ombudsman re: Oct interview w Gill Deacon, I am sharing our response back to CBC. To all my fellow Canadian parents know that CLCN will not let this go unresolved.

Why did CBC’s Feb 2025 segment on rising school absenteeism not mention COVID [email protected] Interviewed the Canadian School Attendance Partnership: grp led by psychologists/psychotherapists who continue to frame a medical crisis in kids as a mental-health issue.

💔 www.instagram.com/reel/DQuP-SE...

🚩This was recently shared with us by a parent and it's deeply disturbing. It appears that this hospital has a troubling pattern in its approach to children living with complex illnesses. Also reportedly being separated from parents for extended questioning- serious ethical & safeguarding concerns.

To my fellow Canadian parents with children living with Long COVID: the Children's Long COVID Network submitted a complaint to the CBC Ombudsman. Please consider sending your own personal letters to CBC to amplify our collective voice.

@cbcnews.ca @cbcnews-mirror.bsky.social Canadians living w Long COVID, especially children, deserve responsible journalism, not "braining training" pseudoscience on National TV. Whoever endorsed this should be ashamed. Appalling, @ianhanomansing.bsky.social. Complaint escalated to the CBC Ombudsman

Strong & credible study. Issue is when national outlets like @ctvnews-mirror.bsky.social keep turning to @isaacbogoch.bsky.social as the "default expert" even outside his field. This catch-all authority flattens complex science and sidelines those with real expertise. www.ctvnews.ca/health/artic...

@spichaksimon.bsky.social thank you for holding @ianhanomansing.bsky.social CBC accountable on this. They have a lot to answer on this. It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.

@carriemcginn.bsky.social @sabrinapoirier.bsky.social @icancmeresearch.bsky.social On Jan 15th, 2026. ow.ly/Fnhy50XiObM

Powerful piece by a pediatrician reminding us of a truth often neglected by Canadian school systems: accommodations aren't privileges-they are rights. Equity means meeting children where they are- but for those with complex illnesses like Long COVID, it often isn't. kevinmd.com/2025/08/why-...

Day3 reflection: "Keeping up with Long COVID and ME/CFS patients means keeping up with the emerging science of Complex Chronic illnesses"- adopting new ways of continuous monitoring, testing. Thank you @icancmeresearch.bsky.social for hosting a groundbreaking conference every clinician should hear.

Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts

1/A new report on children and youth. The alarming part is not in the absolute numbers - its the pattern! Persistent vascular & inflammatory injury in a pediatric population following a virus that many still claim is mild in kids. 📢Major public health red flag www.thelancet.com/journals/lan...

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry. Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

Phenomenal Canadian scientific conference on the emerging research on Long COVID & ME/CFS.

1. @ianhanomansing.bsky.social platformed the Lightening Process as Long COVID "recovery" on National Television -No evidence, No biomedical context, & Huge policy risks. Long COVID is biological. Children deserves science, not illusion.

Recent data showing that re-infections increase the risk of Long COVID and serious complications in children. 🚩Profound fatigue, PEM, and cognitive challenges www.medscape.com/viewarticle/...

@gilldeacon.bsky.social Framing Long COVID as psychological is propaganda! It misleads the public and harms patients- especially children (our future generation) still suffering without biomedical care. Please stop spreading this dangerous misinformation! Who is promoting you to spread this?

@gilldeacon.bsky.social Respecting your courage in speaking on your Long COVID journey, but promoting a "recovery" narrative based on psychological and mind-body interventions in your CBC interview of Oct 26th gravely misrepresented Long COVID in public discourse.

The power of patient agency- physicians bring expertise, patients bring agency, lived experience, and questions. True partnership is key! An insightful and timely read - kevinmd.com/2025/07/why-...

Canada lacks data on children & youth with Long COVID, unlike the 6M in the USA. This insightful and timely article shows how multi-site pediatric data sharing works with consent, governance, and secure systems. ped-rheum.biomedcentral.com/articles/10....

Being punished for being sick. Marked truant. Denied support. Misdiagnosed by our system. New report out on how schools are failing a generation. www.rollingstone.com/culture/cult...

4 years ago I took my daughter to Germany - she tested positive for microclots. I brought the results back to Canada hoping our peds docs would help- no! they refused to even dabble into the unknown. Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX

When bias becomes a diagnosis, care disappears! Stigmatizing language in medical records can mean the difference between care & neglect. For Children with #LongCOVID, these labels replace investigation with dismissal. Sign & share the Petition: chng.it/7ZSzLXnp5n

How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them? It's time to act. Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n

A parent's intuition is often a child's silent voice. It's time Our health care system starts listening. Sign the petition: chng.it/T4yHRxPX6S kevinmd.com/2025/07/why-...

Which is exactly why we stand united to bring to the forefront issues like Long COVID in children & youth that is NOT a mental health issue but a biomedical one. @cmadocs.bsky.social will be held accountable to respond. If you are with me- pls sign & share: chng.it/T4yHRxPX6S

This is what I thought it was going to be. Sadly, it was a political agenda that was directed instead of listening to the public. I am ashamed to see @cmadocs.bsky.social who claim to be the Docs speaking in the interest of the people,instead taking orders from the minister.

@cochranecanada.bsky.social @cfpc-cmfc.bsky.social @cmadocs.bsky.social @doctorsofbc.bsky.social www.ahajournals.org/doi/10.1161/...

October is #DysautonomiaAwarenessMonth💙 Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness. The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada. Sign & Share: chng.it/7ZSzLXnp5n #CLCN #AdvocacyMeetsResearch

An important read! Our future generation is now suffering because of this. When opinions are not grounded in science and assumptions are made because 'they are just kids and they bounce back' ... bioengineer.org/new-study-in...

CMA Town Hall: A Conversation with the Health Minister - a virtual discussion on Oct. 2nd at 6:30 pm ET An important opportunity to raise awareness and advocate for Children living with Long COVID. events.cma.ca/ereg/index.p...

@cmadocs.bsky.social @cpas-official.bsky.social @cfpc-cmfc.bsky.social @markcarneyforpm.bsky.social

The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow

Le début de l’automne rime avec rentrée scolaire, mais les enfants atteints de CL font face à des cours manqués et à des symptômes persistants. Leur voix oriente la recherche et les soins. 500 signatures sont nécessaires pour présenter la pétition au Parlement. Signez ici : chng.it/7ZSzLXnp5n

Là où la défense des intérêts rencontre la recherche et où la voix des enfants guide nos actions, nous lançons une pétition appelant le gouvernement fédéral à agir pour assurer des soins biomédicaux à tous les jeunes atteints de #COVIDLongue. Signez et partagez : www.change.org/p/demand-fed...

Fall brings kids back to school– but many with Long Covid are still fighting symptoms and missing out. Their voices shape research & care. Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow

Today, on National Day for Truth and Reconciliation, I pause to honor the Survivors. I also hold space for all children facing complex struggles today. Reconciliation means caring for truth, healing, and a better future for all. Every Child Matters. 🧡

Concerning article below about Somatic disorders Functional neurological disorders sent to all BC doctors from This Changed My Practice which is heavily associated with UBC CPD and the UBC Therapeutics Initiative Group thischangedmypractice.com/ssd-fnd/