4 years ago I took my daughter to Germany - she tested positive for microclots. I brought the results back to Canada hoping our peds docs would help- no! they refused to even dabble into the unknown. Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX

When bias becomes a diagnosis, care disappears! Stigmatizing language in medical records can mean the difference between care & neglect. For Children with #LongCOVID, these labels replace investigation with dismissal. Sign & share the Petition: chng.it/7ZSzLXnp5n

How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them? It's time to act. Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n

A parent's intuition is often a child's silent voice. It's time Our health care system starts listening. Sign the petition: chng.it/T4yHRxPX6S kevinmd.com/2025/07/why-...

Which is exactly why we stand united to bring to the forefront issues like Long COVID in children & youth that is NOT a mental health issue but a biomedical one. @cmadocs.bsky.social will be held accountable to respond. If you are with me- pls sign & share: chng.it/T4yHRxPX6S

This is what I thought it was going to be. Sadly, it was a political agenda that was directed instead of listening to the public. I am ashamed to see @cmadocs.bsky.social who claim to be the Docs speaking in the interest of the people,instead taking orders from the minister.

@cochranecanada.bsky.social @cfpc-cmfc.bsky.social @cmadocs.bsky.social @doctorsofbc.bsky.social www.ahajournals.org/doi/10.1161/...

October is #DysautonomiaAwarenessMonth💙 Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness. The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada. Sign & Share: chng.it/7ZSzLXnp5n #CLCN #AdvocacyMeetsResearch

An important read! Our future generation is now suffering because of this. When opinions are not grounded in science and assumptions are made because 'they are just kids and they bounce back' ... bioengineer.org/new-study-in...

CMA Town Hall: A Conversation with the Health Minister - a virtual discussion on Oct. 2nd at 6:30 pm ET An important opportunity to raise awareness and advocate for Children living with Long COVID. events.cma.ca/ereg/index.p...

@cmadocs.bsky.social @cpas-official.bsky.social @cfpc-cmfc.bsky.social @markcarneyforpm.bsky.social

The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow

Le début de l’automne rime avec rentrée scolaire, mais les enfants atteints de CL font face à des cours manqués et à des symptômes persistants. Leur voix oriente la recherche et les soins. 500 signatures sont nécessaires pour présenter la pétition au Parlement. Signez ici : chng.it/7ZSzLXnp5n

Là où la défense des intérêts rencontre la recherche et où la voix des enfants guide nos actions, nous lançons une pétition appelant le gouvernement fédéral à agir pour assurer des soins biomédicaux à tous les jeunes atteints de #COVIDLongue. Signez et partagez : www.change.org/p/demand-fed...

Fall brings kids back to school– but many with Long Covid are still fighting symptoms and missing out. Their voices shape research & care. Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow

Today, on National Day for Truth and Reconciliation, I pause to honor the Survivors. I also hold space for all children facing complex struggles today. Reconciliation means caring for truth, healing, and a better future for all. Every Child Matters. 🧡

Concerning article below about Somatic disorders Functional neurological disorders sent to all BC doctors from This Changed My Practice which is heavily associated with UBC CPD and the UBC Therapeutics Initiative Group thischangedmypractice.com/ssd-fnd/

Relentlessly trying to ensure LC is real in Canadian children and we are not to stop until someone does something. archive.ph/2025.08.17-1...

An invisible toll, a silent crisis of misunderstood symptoms. www.newsweek.com/disabling-ch...

An important read for anyone in Canada with #longCOVID. As a scientist with relevant expertise I have attempted to engage with this process several times, directly and through the public comment system. The lack of interest in input from outside the EBM bubble reported here was also my experience.

🇨🇦🍁 Canada Day Message: Honouring the Strength of All Kids – Including Those with Long COVID. Let’s build a Canada where every child can thrive — healthy, seen, and supported. 🇨🇦🍁

Canadian pediatricians in training need to learn COVID science & follow research, stay up to date- should be mandatory. www.thestar.com/sponsored-se...

I encourage parents & support persons of children to apply. We need parent partners for children on this council. www.longcovidweb.ca/news/pac-exp...

Canadian parents- These recommendations pose a hidden threat. CAN PCC is deliberately vague and broad in their messaging—laying the groundwork for a wide-reaching agenda. The real impact will come during implementation- targeting children through psychiatric channels.

A must watch for Canadian healthcare professionals- doctors especially! www.youtube.com/watch?v=Mkuz...

To all Canadian parents- please engage in this survey, time to vocalize how flawed majority of these recommendations are and amount of harm they will pose on front lines. canpcc.ca/public-comme...

If you are a Canadian parent of a child living with Long COVID, you are warmly invited to join the Children's LC Network. Via CLCN FB group- www.facebook.com/share/g/15Mp... LinkedIn- www.linkedin.com/in/nandini-raj-04628931

There is a pathophysiological basis for Long COVID in children!! They should not have to reach a crisis state for you to believe their distress! www.massgeneralbrigham.org/en/about/new...

Our first annual AGM is coming up, JOIN US!! We would love to have you! 🖤🤘

Hyperimmune Responses & Children's Long COVID – Scientific Insights Webinar- May 29th zoom.us/webinar/regi...

"All doctors have a duty of care and to learn about COVID science"... @markcarneyforpm.bsky.social

The Pathogenesis specific to Pediatrics- from the Yale webinar today. Its NOT rare in children!

Thank you Dr Arif for amplifying, educating AND referring to the ME NICE Guidelines 💙🙏

An organized set of peer reviewed articles rooted in evidence. www.panaccindex.info/p/answered-i...

The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF

To every mother here, who has persevered through so much with our children in their shattering LC journey, the guiding light, the muscle behind their resilience, and above all the vessel of love & care to hold their tears of pain and neverending suffering. I salute you all. 🌷Happy Mother's Day!

Upcoming International ME/CFS Conference 2025 events.mecfs-research.org/en/events/co...

Sharing most recent - protectbc.ca/long-covid-r...

A Protein that impairs energy metabolism within muscles of patients with ME/FCS danilobuonsenso.substack.com/p/discovery-...

For those interested... app.livestorm.co/makewell/mth...

Very concerning. I have posted the summary as screenshots. www.nature.com/articles/s41...

Listen to Dr. Okunola speak about the overlooked reality of LC & other post viral conditions. podcasts.apple.com/ca/podcast/l... In a nutshell....