New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to www.physiosforme.com/o2survey

We would love your support in helping us to increase our reach. Please like, share, and subscribe to the videos on YouTube and on here. 💙

Hey there. Have you watched yet? What are you waiting for? It’s great content, driven by #PwME! #ICanCME2025

Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis! Please check out the criteria and deadlines in the application. icancme.ca/research/sma...

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @uoftmedicine.bsky.social

Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙 The theme of our #Canadian conference was “Nothing About Us Without Us”. Please #subscribe to our channel to help us drive engagement and watch and like our videos too. youtube.com/@icancmerese...

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social

@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social

Thank you for the great work!

Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup. simonspichak.beehiiv.com/p/day-3-of-t...

If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

@icancmeresearch.bsky.social #ICANCME2025 Wow what an agenda for Day # 3

It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience. Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social 👉#Blog bit.ly/3LwLXCp @icancmeresearch.bsky.social

Are you registered? If so, please join us for our last day together! 💙

We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME. Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs. #ICanCME2025 #Paediatric #Children

@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵

I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously. #ICanCME

We are excited and ready for day 2 of @icancmeresearch.bsky.social! #MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon! #ICanCME2025 #pwME #MECFS

Excited for day two of the excellent @icancmeresearch.bsky.social conference! Starting now! #ICanCME2025

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry. Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

And coverage for Day 1 of the #ICanCMEConference by the @icancmeresearch.bsky.social. Features a link to my live tweets. simonspichak.beehiiv.com/p/icancme-da...

Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME). Huge shout-out for the respect for lived experience! Wonderful start! #ICanCME2025 #NothingAboutUsWithoutUs @icancmeresearch.bsky.social, applause to planning team!

Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.

Covering the @icancmeresearch.bsky.social live over on the other app. Will be posting a brief summary of the day's talks as well. x.com/SpichakSimon...

1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November. The main presentations take place at: 1 pm - 5 pm Eastern Time 6 pm - 10 pm London Time 7 pm - 11 pm Brussels Time #ICanCME2025

#ICanCME2025 is happening this week! This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far. And please be patient with us this week if we run into any issues. 🤞💙

Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...

The more I think about public education, climate change, science funding, the more I realize that Republican policy is predicated on the illusion that you can harm others in your environment without harming yourself.

Yay! We were locked out of this account because we forgot the password. Who can relate? 🙋🏻‍♀️ But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.

Please join @putrinolab.bsky.social and I for this free webinar on Tuesday where we will be talking about increasing accessibility and collaboration in research. 👇 Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙

The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/... #PatientEngagement

Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...

Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3 cihr-irsc.gc.ca/e/54121.html...

You can protect yourself & your loved ones from COVID with these 6 steps: 😷 Wear a respirator mask 🏠 Stay home if sick ⏰ Test if you have symptoms 🌳 Let fresh air in or meet outdoors 💉 Stay up to date with your vaccinations 💡 Talk to your GP about COVID medicines. youtu.be/FlBfq22nxt8?...

"Many of our colleagues in the media continue to minimize the disease and the ongoing COVID-19 pandemic — but not The Sick Times." - @mileswgriffis.bsky.social It's our birthday! One year of covering the #LongCOVID crisis without denial, minimizing, or gaslighting. bit.ly/3USv2w6

Hey everyone. Please sign the international list if you haven’t already. Our friends in the US need our support! Canadians benefit greatly from the advocacy and research done in the US too. 💙

Anyone know how to fix an invalid handle? I’ve noticed a few of us with them.

I have also started one for #PatientPartnership in #research in Canada. It is still quite small still but will grow as our colleagues join us on this app. Anyone can follow us to learn more about patient partnership - how it works and where to find #resources. go.bsky.app/BPJWoAc

I have started a Starter Pack for ME and Long COVID. 💙 It includes some mutuals with other packs but also some new faces too. :) Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙 go.bsky.app/6R7bqc7

Sharing this again because we need to find each other and our communities on here. 💙 We need to be connected now more than ever. 💛 If you create new starter packs, please include as many of us as possible. go.bsky.app/KnwWePQ

Three decades ago today. The Daily Herald, Utah, US. 19th October 1994. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

Long ϹΟVΙD patients suffer high rate of autonomic disorders: research globalnews.ca/news/1081866... CanadaHealthwatch.ca 🍁 The most important health news, in one place.

Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses. Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible. Let’s help each other with safe suggestions.

🧵 New: "Diagnosis and Management of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome" Free full text: www.mayoclinicproceedings.org/article/S002... New, sympathetic guidelines. Have some status as in Mayo Clinic Proceedings & are eligible for CME #MedEd #MEcfs #CFS #PwME #MedBluesky 1/

It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications. It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings. It’s in the ✨top 0.2%✨ most shared research products of all time. It’s been live less than a week. tinyurl.com/ywd3kmjs