Reporter Laura Weiss (@lauralew105.bsky.social) is looking to speak with people with #LongCOVID who are on Medicaid and concerned about losing benefits due to work requirements or otherwise due to Trump's spending bill. Contact her at (lauraweisswrites at gmail dot com).

English GPs adopt ‘Jess’s rule’ to help ensure they do not miss serious illnesses

@johnmilnehorsham.bsky.social and cross party parliamentarians write to Wes Streeting with concerns about the ME/CFS strategy www.libdemvoice.org/john-milne-m...

A sufferer’s insight into the mystery of ME/CFS. #myalgicencephalomyelitis www.conservativewoman.co.uk/a-sufferers-...

Thirty-five years ago today. The Western Daily Press, England. 21st September 1990. #cfsme #mecfs #myalgicencephalomyelitis #myalgice "Absolutely nothing is being done to help sufferers like myself".

Today, thirty-five years ago. The Evening Express, Portland, US. 20th September 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

The Times (UK), 20th September 1993. A letter in reply to a piece from Dr. Thomas Stuttaford a few days earlier. #myalgicencephalomyelitis #cfsme #myalgice #mecfs

Today, thirty-four years ago. The Independent, UK. 20th September 1991. #mecfs #myalgicencephalomyelitis #cfsme #myalgice

Exploratory study on autoantibodies to arginine-rich human peptides mimicking Epstein-Barr virus in women with post-COVID and myalgic encephalomyelitis/chronic fatigue syndrome. www.frontiersin.org/journals/imm...

UK JCVI: "COVID-19 is now a relatively mild disease for most people". Government are ignoring the effects of Long COVID: "mild" symptoms don't mean it isn't doing long-term damage. #LongCovid

Cognitive Behavioural Therapy for the Treatment of Chronic Fatigue Syndrome in Adults – A Meta-Analysis. www.frontiersin.org/journals/psy...

The country’s pension insurance system pushes people to go through rehabilitation (“Reha”) clinics before they can access disability supports. #longcovid #myalgicencephalomyelitis thesicktimes.org/2025/09/16/g...

18th September 1998 - twenty-seven years ago today. The Daily Telegraph, UK. #myalgicencephalomyelitis

Update (UK), 15th September 1976 - forty-nine years ago today. Melvin Ramsay. “While treatment is essentially empirical it cannot be too strongly stressed that rest is imperative in the acute phase of the disease.” #myalgicencephalomyelitis #cfs #mecfs #myalgice #cfsme #chronicfatiguesyndrome.

Please read this! A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself. "I gaslit myself, pushed myself, gave myself the wrong advice" Source: www.reddit.com/r/covidlongh...

The late Dr. Thomas Stuttaford, 14th September 1993 - thirty-two years ago today. #myalgicencephalomyelitis #cfsme #myalgice #mecfs

Today, thirty-one years ago. The Western Daily Press, England. 14th September 1994. #myalgice #myalgicencephalomyelitis #cfsme #mecfs

"we risk elevating conjecture into dogma, and mistaking fashion for fact." #longcovid #myalgicencephalomyelitis www.conservativewoman.co.uk/long-covid-f...

A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦 Via @davetuller1.bsky.social

Professor Catastrophe from @longcovidadvoc.com longcovidadvocacy.substack.com/p/professor-...

Ayrshire Post and Troon Herald, Scotland, 12th September 1986. Thirty-nine years ago today. "Exercise should never be undertaken where M.E. is suspected as this worsens all symptoms". #myalgicencephalomyelitis

Relating to Akureyri in 1948. #myalgicencephalomyelitis www.ruv.is/frettir/innl...

The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group The process so far has been extremely progressive I am hugely optimistic that a world-leading guideline will be produced #pwME #MECFS

Guess who's mentioned in this. www.theguardian.com/uk-news/2025...

📝Meanwhile from the COFFINetwork, the dying end of the CFS paradigm. Their main criticism of DECODE ME seems to be that the BPS approaches they've had decades & millions to prove & failed to might not be believed in anymore. No sh*t Sherlock! www.coffi-collaborative.com/post/respons...

#Savannah #vsME update. A good MDT which ran over to twice the length of time allocated. Dr Weir and I were both invited, spoke at length and were heard. The absence of NHS ME specialists _anywhere_ in the UK is the biggest probem for every ICB, including Lewisham and Greenwich.

Today, thirty-eight years ago. The @meassociation.org.uk asks for £189,000 over three years. Instead they got a one-off payment of £5000. 9th September 1987. #myalgice #cfsme #MyalgicEncephalomyelitis #mecfs

Twenty-eight years ago today. The Coventry Evening Telegraph, England. 9th September 1997. #cfsme #mecfs #myalgice #MyalgicEncephalomyelitis “…many home tutors were unaware that the condition affects memory and concentration, making learning exhausting and difficult”.

Thirty-eight years ago today. The Sydney Morning Herald, 9th September 1987. #myalgicencephalomyelitis

@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social this is on your watch

as her advocates. As a reg SW, I have emailed to share PFD report, NHS Devon clinical guidance, and newly published NHS e-Learning module 3: a lot to digest for any busy hospital. As yet no invitation to join Zoom or MSTeams meeting. #pwME, please post support to Savannah. She is afraid for her life

🧵 Savannah update - please share widely. Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME. All her energy is being spent on calling for help. There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join 1/2

The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched. Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with? learninghub.nhs.uk/Resource/712...

Pro wrestler Jonathan Gresham’s doctors told him it’s possible that he has complications from a COVID infection This is what happens when everyone acts like COVID doesn’t exist Even “young, healthy, athletic” ppl become “vulnerable” #LongCOVID #COVIDisNotOver #COVIDisntOver #LongCOVIDAwareness

The lingering pandemic: The chronic toll of untreatable #longCOVID geneticliteracyproject.org/2025/09/04/t...

Pacing, conventional physical activity and active video gaming to increase physical activity levels for adults with myalgic encephalomyelitis/chronic fatigue syndrome: a pilot feasibility study. www.researchgate.net/publication/...

Hah. David Tuller puts it so well.

Screening a bunch of #MECFS studies at the moment and came across this - remains one of the worst papers ever published in a credible #psychology journal Just look at the sample size & design Unbelievable this ever saw the light of day. Shows how VIP psychologists get an easy ride in peer review

Followers of @rfh1955.bsky.social might be aware that her name cropped a few times in the account.

Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS. www.nature.com/articles/s44...

Genetic Literacy Project: The lingering pandemic: The chronic toll of untreatable long COVID 'Long COVID may well lead to a broader health crisis, but it is also a scientific opportunity' 'It also renews attention to post-viral illnesses such as ME/CFS' geneticliteracyproject.org/2025/09/04/t...

Today in 1991. The Daily Post, England. 4th September. “Instead of giving the child the ‘dustbin’ label of psychiatric illness, the medical profession should be brave enough to admit there are still illnesses and viruses which aren’t understood”. Mentions Ean Proctor. #myalgicencephalomyelitis

Today I've joined Action for ME in writing to @rthonwesstreeting.bsky.social on the chronic underfunding of ME/CFS research. Despite their prevalence, these conditions are still poorly understood and are without effective treatment.

Medscape: 'Long COVID Hitting Doctors and Nurses Hard' 'Jeffrey Siegelman, MD, contracted COVID-19 in August 2020 and, 3 months later...he’s still dealing with the symptoms, as one of many healthcare providers who have long COVID.' www.medscape.com/viewarticle/...

Long COVID could hold key to ME/CFS, MS. #longcovid #myalgicencephalomyelitis #multiplesclerosis www.latrobe.edu.au/news/article...

Thirty-three years ago today. The Coventry Evening Telegraph, England. 3rd September 1992. “A Coventry MP has called on the government to fund research into the causes of 'yuppie flu'”. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

As some followers may be aware of, the person named in the article is somewhat controversial. #myalgicencephalomyelitis

A quarter of a century ago today. The Waterloo Region Record, Canada. 2nd September 2000. About hypochondria. Mentions #cfsme #mecfs #myalgice #MyalgicEncephalomyelitis “Women most likely to anguish”.

Twenty-six years ago today. The Widnes Weekly News, England. 2nd September 1999. “…one neurologist he was referred to asked ‘what do you want me to do?’” #myalgice #MyalgicEncephalomyelitis #cfsme #mecfs

Study Reveals Details of Overactive Immune System in Patients with Chronic Fatigue Syndrome (ME/CFS). www.eurekalert.org/news-release...