✨ Fireside Chat Ep 24 ✨ 📅 Wed 17 Sept | 18:00 BST | YouTube Live 'Muscle & Movement: Rethinking Long Covid & ME/CFS' Dr Rob Wust and @binitakane.bsky.social on why PEM is nothing like deconditioning and what research reveals about muscle changes in these conditons. www.youtube.com/watch?v=8i4i...

New publication: Establishing a framework of measurement for use in Long COVID research and practice: protocol for a scoping review involving evidence review and consultation @longcovidweb.bsky.social Read it below: bmjopen.bmj.com/content/15/9...

Congratulations to Dr. Francisco Ibáñez-Carrasco for the publication of the paper "Qualitative insights from an online community-based exercise intervention for persons living with HIV" Read it here: www.frontiersin.org/journals/reh...

Congratulations to Dr. Chavon Niles, 2025-2026 Catalyst Grant recipient for the project ‘Untold Stories of Long COVID: A Photovoice and Narrative Study Among Black and Racialized Communities in Ontario’. @drjillcameron.bsky.social @kellyobrien25.bsky.social

Congratulations to Dr. Euson Yeung, 2025-2026 Catalyst Grant recipient for the project 'Defining Entry-Level Competencies for Safe Rehabilitation of Individuals with Post-Exertional Malaise: A Delphi Study’. @drjillcameron.bsky.social @kellyobrien25.bsky.social

Published today 📣 Community Engagement in #LongCOVID Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study onlinelibrary.wiley.com/doi/10.1111/...

The Symposium "Innovating futures with digital technology: Rehabilitation and healthy ageing with complex chronic conditions" will be held October 3rd, 2025 at the University of Manchester (in-person). Registration & further info can be found here: rehabcovidnetwork.med.utoronto.ca/event/2025-d...

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET! Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers. 🗓️ Register: us02web.zoom.us/webinar/regi... #LongCOVID

New PLRC-funded work out from Rob Wust & team! Skeletal muscles in #LongCovid and ME *differ* from skeletal muscles induced by bedrest. LC and ME is not deconditioning! 1/ www.medrxiv.org/content/10.1...

"Children should be included in ongoing and future clinical trials for Long Covid Age-related protections & regulations must be incorporated, including obtaining institutional review board/research ethics approval along with paediatric assent & parental publications.ersnet.org/content/erj/...

Todd Davenport’s #KeyMessages from the #COVIDRehab forum: 📌 Long COVID symptoms have a basis in bioenergetic impairment, which can be demonstrated using 2-day CPET

Todd Davenport discusses Abnormal Post-Exertional Recovery in People Living with Long COVID: Insights from Two-Day Cardiopulmonary Exercise Testing at #COVIDRehab forum with @sunsopeningband.bsky.social

Can automated language analyses identify cognitive deficits in Long COVID? Tijana Simic & Kathleen Fraser present research at the #COVIDRehab forum: 📌Long COVID affects >1 million Canadians, causing long-term symptoms not well-captured by standard cognitive testing

This was an excellent keynote by @julialmv.bsky.social from @patientled.bsky.social.💙 Thank you so much for using both research and personal experience to further the discussion on wearable technology and #LongCovid rehabilitation. #CovidForum

Alice MacLean discusses people's experiences of attempts to return to work and school with Long COVID. Key message at #COVIDRehab forum: 📌 Existing policies are not well-designed for episodic disabilities like Long COVID

Kiera McDuff & Julia Nathanson’s discuss Establishing a Framework of Measurement for Long COVID Research and Practice: Updates from a Scoping Study Involving Evidence Review and Consultation. 📌The selection, utility and interpretation of outcome measures for Long COVID must be advanced

Tania Janaudis-Ferreira starts Research Session 2. Understanding the Impacts of Post-Exertional Malaise in Individuals with Long COVID Participating in a Physical Rehabilitation Trial. Key finding: 📌 Identifying complexities involved in effective, safe physical rehabilitation for Long COVID

Angela Cheung gives an update on CANCOV, RECLAIM and Long COVID web at #COVIDrehab forum.

Samantha Hancock presents research on Long COVID and One’s Ability to Work at #COVIDRehab forum

Samantha Hancock’s #KeyMessages from the #COVIDRehab forum: 📌 The return-to-work process for people with Long COVID is non-linear and individualized

Simon Décary’s #KeyMessages from the #COVIDRehab forum: 📌 Quebec implemented a 15-site integrated care model, delivering care to thousands of Long COVID patients from 2020-2025

Now for our second panel discussion, Navigating the Maze of the Continuum of Care for Rehabilitation Living with Long COVID, with Sue Birch, Elizabeth Racz, Michelle DiLauro, Fran Wolfe and Cara Kaup at #COVIDRehab forum

Jessica DeMars from Breathewell Physio speaks about her role in treating patients as a physiotherapist and providing safe rehab for post-exertion malaise (PEM)

"We need to look at things like disability justice and understanding our own biases - our role can expand to that empathetic listening and help people manage these conditions"

#LongCOVID clinical evaluation, research and impact on society: a global expert consensus “This work forms initial guidance to address the spectrum of Long COVID as a disease and reinforces the need for translational research and large-scale treatment trials for treatment protocols”

@uoftcovidrehab.bsky.social @longcovidphysio.bsky.social @drjillcameron.bsky.social

CIHRRC (Canada-International HIV & Rehabilitation Research Collaborative) is now on Bluesky! We will be sharing updates on CIHRRC member activities, publications, and upcoming meetings and opportunities. In the meantime, check out our website to learn more about CIHRRC: cihrrc.ca

Published today in @plosone.org “Episodic disability framework in the context of #LongCOVID: Findings from a community-engaged international qualitative study” @kellyobrien25.bsky.social @longcovidsupport.bsky.social @patientled.bsky.social journals.plos.org/plosone/arti...

Join us on Friday April 25, 2025 for the 2025 International Forum on COVID Rehabilitation Research. This is a FREE hybrid event!

Shared research agenda setting in #LongCovid. Grateful to colleagues for being a part of this important open access work: "Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum." @longcovidphysio.bsky.social journals.lww.com/cptj/pages/a...

🚨New pre-print🚨 “It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with #LongCOVID – Results from an international community-engaged qualitative research study www.medrxiv.org/content/10.1...