FAC’s Seventh R of Christmas: RELAX 🎄 For people living with fibromyalgia, RELAXation is a science-backed strategy. RELAXation activates the parasympathetic nervous system, which helps turn the volume down on pain signals. Finding ways to RELAX isn’t a luxury, it’s smart symptom management.

#FAC’s Second Holiday Hangout: Knitting with Janice! Join us for a cozy knitting session, all skill levels welcome Bring a project, some yarn, or just yourself. No pressure, just connection 🗓 Dec 9, 2025 ⏰ 6 pm ET 🔗 fibrocanada.ca/.../a-place-... #HolidayHangout #Fibromyalgia #Community #Support

REFINE Living with #fibromyalgia means the holiday pace can lead to flare-ups & exhaustion. REFINE your season by adjusting expectations to match your real energy ➡️Choose one event instead of three ➡️Set clearer boundaries ➡️Ask for help ➡️Protect your health and make room for joy. #FAC

FOR EVERYONE WHO COULDN'T ATTEND YESTERDAY BECAUSE OF A FAULTY ZOOM LINK - HERE IS THE REPLAY: fibrocanada.ca/en/fibro-cha... This important day remindsed us that disabilities, both visible and invisible, deserve understanding, accessibility, and inclusion. #FAC #inclusion #support

FAC’s Third R of Christmas: REALITY With fibromyalgia, recognizing your REALTY is essential Work with your REALITY not against it ➡️pace yourself ➡️plan around your energy ➡️simplify tasks ➡️communicate your limits Protecting your health is not lowering expectations it's smart self-management

FibroChat – Honouring the International Day of Persons with Disabilities 🗓️ Dec 3, 2025 ⏰12 PM ET ➡️https://fibrocanada.ca/en/fibro-chat-dec-3-2025 Join #FAC with Trudy & Lynn to talk about #Inclusion , #Accessibility & what they mean for people living with #fibromyalgia @PowerOverPain_

💜 #FAC’s First R of Christmas: REMEMBER 💜 #REMEMBER: ▶ Living with fibromyalgia means your energy may be different this year & that’s okay ▶ To pace, avoid overload, and respect limits ▶ To give yourself the compassion you give others. This season, REMEMBER to show yourself compassion.

🎨 Join FAC’s first Holiday Hangout of 2025! Trudy will host a Craft & Chat so bring a craft or just come to chat. Relax, create & connect with others living with fibromyalgia. 🗓 Dec 2 | ⏰ 6 PM ET 🔗 fibrocanada.ca/en/a-place-t... #FAC #HolidayHangout #Support #Crafts #Chat

🎉 #FAC’s #HolidayHangouts are back! 🎉 Join us Tuesdays @ 6 pm ET in Dec & early Jan for relaxed virtual meetups, craft, knit, play games, Qi Gong, journaling & more. Everyone with fibromyalgia is welcome! 💜 Sign up here: fibrocanada.ca/en/facs-holi... #Fibromyalgia #Community

🎉 #FAC’s #HolidayHangouts are back! 🎉 Join us Tuesdays @ 6 pm ET in Dec & early Jan for relaxed virtual meetups, craft, knit, play games, Qi Gong, journaling & more. Everyone with fibromyalgia is welcome! 💜 Sign up here: fibrocanada.ca/en/facs-holi... #Fibromyalgia #Community

🎉 #FAC’s #HolidayHangouts are back! 🎉 Join us Tuesdays @ 6 pm ET in Dec & early Jan for relaxed virtual meetups, craft, knit, play games, Qi Gong, journaling & more. Everyone with fibromyalgia is welcome! 💜 Sign up here: fibrocanada.ca/en/facs-holi... #Fibromyalgia #Community

Join #FAC’s Virtual Town Hall 🗓 Monday, Nov 24, 2025 ⏰1:00 PM ET ➡️ fibrocanada.ca/en/town-hall... Got questions about fibromyalgia? We’ve got answers! Join this friendly, open chat to learn, connect & help shape what FAC does next Free & open to everyone

Join #FAC’s Virtual Town Hall 🗓 Monday, Nov 24, 2025 ⏰1:00 PM ET ➡️ fibrocanada.ca/en/town-hall... Got questions about fibromyalgia? We’ve got answers! Join this friendly, open chat to learn, connect & help shape what FAC does next Free & open to everyone

FibroChat – Honouring the International Day of Persons with Disabilities 🗓️ Dec 3, 2025 ⏰12 PM ET ➡️https://fibrocanada.ca/en/fibro-chat-dec-3-2025 Join #FAC with Trudy & Lynn to talk about #Inclusion , #Accessibility & what they mean for people living with #fibromyalgia @PowerOverPain_

International Men’s Day Men get fibromyalgia too & many stay silent because they’re told pain makes them “weak" It doesn’t Speaking up, seeking support, refusing stigma & being a role model takes real strength #Movember2025 #InternationalMensDay #FAC #Fibromyalgia #MenHurtToo

STILL TIME TO SIGN UP!! Join our FAC Peer Support Spotlight: Mindfulness & Qi Gong 📅 Nov 18, 2025 ⏰ 5 PM ET ➡️https://fibrocanada.ca/en/de-stress-day-with-qigong-november-18-at-5pm-est (FAC members only) 🇨🇦 Gentle movement. Calm mind. Real connection. #Fibromyalgia #StressAwareness

Living with fibromyalgia means living with pain on a daily basis. When pain is unmanaged or misunderstood, some people may turn to substances just to cope Addiction isn’t a choice or a failure, it’s a response to pain & lack of proper support #FAC #NAAW2025

The obvious is proven over and over again. Stop messing with a virus that damages the immune system. www.cidrap.umn.edu/covid-19/stu...

“A lot of people worked for a long time to achieve that measles elimination status, and to lose it in one year because of a failure of government action … for a disease that’s totally preventable, it just makes me sad." -Dr. James Talbot, former CMOH for Alberta. www.cbc.ca/news/canada/...

Join #FAC’s Virtual Town Hall 🗓 Monday, Nov 24, 2025 ⏰ 1:00 PM ET | 📍 Zoom ➡ fibrocanada.ca/en/town-hall-chat-november-24th Got questions about fibromyalgia? We’ve got answers! Join this friendly, open chat to learn, connect & help shape what FAC does next Free & open to everyone

💜 World Kindness Day 💜 Kindness costs nothing but can mean everything. For those living with #fibromyalgia, a kind word or small gesture can make a big difference. Let’s choose kindness both for ourselves and others. #WorldKindnessDay #FAC #KindnessMatters @CMHA_NTL

Do something to reduce stress this #StressAwarenessWeek Join our FAC Peer Support Spotlight: Mindfulness & Qi Gong 📅 Nov 18, 2025 ⏰ 5 PM ET ➡️ Sign up: fibrocanada.ca/.../de-stres... (FAC members only) Gentle movement. Calm mind. Real connection. #Fibromyalgia #StressAwareness

Day 6 #PainAwarenessWeek Children & teens have fibromyalgia too #Juvenilefibromyalgia causes pain, fatigue & brain fog that can affect school & friendships yet it’s often misdiagnosed or overlooked Early diagnosis & support matter #FAC #NPAW2025 @kidsinpain.bsky.social @paincanada.bsky.social

@icancmeresearch.bsky.social #ICANCME2025 Wow what an agenda for Day # 3

Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.

Covering the @icancmeresearch.bsky.social live over on the other app. Will be posting a brief summary of the day's talks as well. x.com/SpichakSimon...

And coverage for Day 1 of the #ICanCMEConference by the @icancmeresearch.bsky.social. Features a link to my live tweets. simonspichak.beehiiv.com/p/icancme-da...

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry. Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

Excited for day two of the excellent @icancmeresearch.bsky.social conference! Starting now! #ICanCME2025

We are excited and ready for day 2 of @icancmeresearch.bsky.social! #MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon! #ICanCME2025 #pwME #MECFS

I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously. #ICanCME

We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME. Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs. #ICanCME2025 #Paediatric #Children

@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵

💜 Semaine de la douleur – Jour 5 💜 Vivre avec la #fibromyalgie, c’est affronter une douleur invisible. L’A#FC rend hommage à votre courage, votre voix et votre force à continuer, même votre jours difficiles. #SemaineDeLaDouleur #DouleurChronique @painbc.bsky.social @paincanada.bsky.social

💜 Pain Awareness Week – Day 5 💜 Living with #fibromyalgia means facing pain others can’t always see. Today, #FAC honours your courage, your voice, and your strength to keep going, even on your hardest days. #PainAwarenessWeek #ChronicPain @painbc.bsky.social @paincanada.bsky.social #NPAW2025

Yellman talking about pyridostigmine now. One of my faves for #POTS +ME(+ND). It leads to improved cardiac output due to its effect on the nerves through acetylcholine. IMO, issues in acetylcholine in ME and in #ADHD. #ICanCME2025

Brayden Yellman taking about dysautonomia and #MECFS now! #ICanCME2025.

Just gave the talk!! (Whew.) Sabrina said "please go slowly for the interpreter" and that added five minutes, just goes to show how quickly I usually talk!

I need to take a break if I'm going to be able to present, tomorrow

Response to Exertion in #pwME: ~Delayed recovery ~Physical/cog exertion are more likely to trigger PEM than emotional stress ~24 hr delay typical but not certain; varies patient to patient, and in instance to instance ~Duration typically ~1wk ~Beware "rolling PEM" where person is always in PEM

Todd Davenport now, talking #PEM (post-exertional malaise) at #ICanCME2025 conference. 🧪

Dusenbery highlights the astonishing underfunding of conditions that affect more women than men.

Maya Dusenbery is giving the opening talk about bias in women's health. She's talking about two sources of issues in women's health: the gap due to bias; and the knowledge gap as well, b/c we research primarily men's bodies. 🧪 Her book linked below: www.amazon.com/Doing-Harm-M... #ICanCME2025

Getting ready for Day 2 at the #ICanCME2025 conference! I'll be delivering a talk about neurodiversity in #pwME and IACCs in general. Hope to see you there!

#ICanCME2025 is happening this week! This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far. And please be patient with us this week if we run into any issues. 🤞💙

Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME). Huge shout-out for the respect for lived experience! Wonderful start! #ICanCME2025 #NothingAboutUsWithoutUs @icancmeresearch.bsky.social, applause to planning team!

Davenport emphasizes that #PEM can arise from different provocations, not just exercise, including emotional, social, sensory stressors. Davenport is going to discuss differences in exercise responses and recovery in #MECFS vs healthies 🧪 #ICanCME2025

Yeah, I had to stop, folks! It was really good, though, and what I liked most about it was the wide-ranging series of topics so far. It hasn't felt like any other research conference I've attended. #ICanCME2025 has a combination qual/quant vibe that's really appealing.

At the #ICanCME2025 conference today! Sabrina Poirier & Maeghan Taverner's intros blew me away. ~Acknowledging labor from people with lived experience ~Setting out expectations ~Moment of silence for those we've lost This is what a conference designed by people with lived experience looks like 🧪

Jour 4 — Semaine de la sensibilisation à la douleur La douleur de la fibromyalgie bouge et change, des muscles endoloris à la brûlure ou pression La douleur est réelle #Fibromyalgie #DouleurChronique #MaladieInvisible #NPAW2025 @paincanada.bsky.social #AFC