I’m a subject in the Recover Autonomic IVIG trial and was told months ago that funding cuts won’t impact this study. Today my nurse is no longer monitoring vital signs during my 6 hour infusion because of budget cuts. 🙄 #LongCOVID

Thank you @rollingstone.com for the front page coverage Make the invisible visible. Long Covid is REAL and a growing crisis

It’s been 1,233 days for me suffering from a bedridden to homebound existence. For many others it’s been 5 years. We need help. #LongCOVIDAwarenessDay #LongCOVIDAwarenessDay2025

#LongCOVID #POTS #ME patients, please don’t ignore important symptoms. I’ve done a solid job of ignoring chest pain and recently found out I’ve had a heart attack and am in early stage heart failure.

Happy Groundhog Day to fellow #pwLC, #pwME who feel like they are perpetually trapped on repeat. #LongCOVID

Solidarity and peace to those suffering with #LongCOVID this holiday season. 😘 It’s my 4th year being homebound and unable to celebrate, and so far is the most difficult yet.

Many of us at the @TheWHN worked many hours on this PSA and it has began getting a lot of attention. Thanks! whn.global/public-servi...

A lot of people don't realize that many patients with #LongCovid are now often being treated in Brain Injury Clinics, together with patients recovering from traumatic brain injury after a concussion. It's been hard to keep up with the literature, but here is a new one published yesterday #NeuroCovid

Analysts at Swiss Re (one of the largest reinsurers in the life insurance industry, with huge financial incentives to get this right) estimated that current COVID policies will see excess deaths of ~3% in the US and ~2.5% in the UK for at least the next decade. www.swissre.com/press-releas...

Long Covid isn’t FND. Pass it on. www.mdpi.com/2075-4426/14...

My first post has to be about #LongCOVID 🔹 400 million individuals affected worldwide 🔹 $1 trillion in annual economic costs 🔹 Countless lives & communities shattered The time for a comprehensive policy and research response is now! Details in our review here www.nature.com/articles/s41...

‘Working days lost to long Covid could be costing the economy billions of pounds every year as patients struggle to cope with symptoms and return to work, finds a new study led by UCL researchers.’ www.ucl.ac.uk/news/2024/no...

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 1/

#LongCovid is definitely more than fatigue in my experience, but glad it’s getting more media attention.

Happy to tell my story and contribute to this article. #longcovid #pots #mecfs