RFK Jr. will eliminate as many vaccines as he can. Every step he takes at the CDC is in service of this aim, as well as undermining public health infrastructure overall. He cannot tolerate scientists who know more than he does, so they must go. Another great piece by @melodyschreiber.com.

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

www.theguardian.com/society/2025... Ondine did such a huge job to get recognition for all with Long Covid👇

“This is an existential threat.” "The #LongCOVID community must band together & resist draconian measures,” the anonymous researcher said. “Advocate for some stability for funding for LC research & care.” — @thesicktimes.bsky.social thesicktimes.org/2025/03/27/r...

Thank you so much Sarah for an incredibly impacting address to the clinicians attending the Clinical Post Covid-19 Society Conference in Birmingham yesterday! #LongCovid youtube.com/watch?v=VuwT...

Good. 👇🏼👇🏾

Somehow, I managed to keep my PIP today… What a hideous situation to find yourself in - no one chooses to be ill or disabled! @longcovidsos.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social

“Ondine was an incredible activist for the Long Covid community and driving force behind our participation in the Inquiry. She is sorely missed.” @longcovidsos

Today’s #ThereForME blog is from Jane Ryan, legal representative for the Long Covid groups at the UK’s Covid inquiry. As we mark #LongCovidAwarenessDay, Jane reflects on what we’ve seen so far and what we can expect as the inquiry continues to unfold. www.thereforme.uk/p/probing-an...

“In 2025, Long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and the health service while those with power pretend there’s nothing to see here.” www.theguardian.com/commentisfre...

#LongCovidAwarenessDay www.independent.co.uk/news/health/...

On Tuesday we lost Ondine, the co-founder and CEO of the charity I volunteer for, @longcovidsos.bsky.social Ondine was a force for GOOD. She was clever, articulate and respected. And she was my friend. ❤️‍🩹 My heart goes out to her family and friends ❤️ I am a better person because I knew Ondine. ❤️‍🩹

(1/3) It needs repeating: in 1994, Ukraine was persuaded to give up its nuclear weapons to Russia in return for the US, the UK, and Russia guaranteeing Ukraine’s sovereignty, security, and territorial integrity.

Organisations who believe in real fairness and the positive power of diversity - believe in DEI 👇🏼👇🏾

Brilliant protest. Yosemite National Park workers hung an upside-down American flag — traditionally a symbol of distress or a national threat — thousands of feet off the ground on the side of El Capitan.

Reminder of the sale on all of our #LongCovidAwareness fundraising merch continues through Monday 17th - don’t hang around! Click through to our global store here to get ready for International #LongCovid Awareness Day on 15 March longcovidsos.myspreadshop.co.uk

And research shows #LongCovid can double the risk of a heart attack www.bhf.org.uk/informations...

This news report only highlights how the economic burden of #LongCovid will continue to grow as clinics are closed and key symptoms are ignored or written off as health anxiety. We call on the govt & NHS to recognise and treat #pwLC appropriately Www.longcovidsos.org/bill-of-rights

We were shocked by this Sky News report suggesting with little more than anecdotes that increased presentations at A&E by young people with chest pain is due to health anxiety when chest pain & palpitations are common #LongCovid symptoms

Roses are red, Violets are blue, Long Covid can break your heart, We’d be lost without you Happy Valentine’s Day to our incredible #LongCovid community! Through ups & downs, setbacks and small victories, our community stands strong - offering support, understanding, & hope when it’s needed most.

Please sign, send to your MP & share "Ask your MP to write to the Secretary of State for Work & Pensions re cuts to benefits Disabled people need security & support to move into work when it is right to do so, not cuts & sanctions." z2k.eaction.org.uk/MP-Secretary...

Judge rules Trump’s executive order discriminates against trans people and violates their constitutional rights… #LGBTQ+ #transrights @prideinbelper.bsky.social

This is what faith, courage and allyship look like… 🙏🏼🏳️‍🌈🏳️‍⚧️❤️ #LGBTQ+ #WeSeeYou From 6 mins 30secs. youtu.be/31ylIPemGlE?...

Sending LOVE and COURAGE to every single LGBTQ+ person in American… 💔❤️‍🩹 We See YOU🏳️‍🌈🏳️‍⚧️ You Matter🏳️‍⚧️🏳️‍🌈 #lgbtq+ #ThisIsMeLGBTQ+

MASSIVE respect to Joe Biden and Kamala Harris for sitting through the TRIPE that Trump is spouting… 🫣😖😞

“I reached out to leading clinicians and some of the scientists who dedicate their time and energy, despite pitiful funding, to researching #ME #LongCovid etc I invited them to kindly share a ‘red leaf’ with us. They did not disappoint!” Inspiring 💗

Bravo Senator Paula Simons. “I’m wearing it as a public figure, to give permission to everyone else who needs or wants to mask. I will go on masking, to tell them they are not alone. And to remind everyone else that this thing isn’t done with us yet.” #CovidIsAirborne albertaviews.ca/masking-fear

I have Long Covid. It has given me a nasty autoimmune Desease. Consequently, I am on immunosuppressant medication. I have Flu. I have just been issued antiviral medication by my GP. #LongCovid changes your life beyond recognition. #CleanAir #CovidInjured #ChronicDisability #HappyNewYear2025

In 2025… I shall stand for love ❤️ I shall stand for courage 🧡 I shall stand for justice 💛 I shall stand against hate 💚 I will look for truth💙 I will Pray for peace…💜 May we all know peace in 2025. Happy New Year! 🥳❤️💫 #NewYear2025 #LongCovid

We wrote a paper about our work for Independent SAGE during the pandemic @independentsage.bsky.social #healthpolicy #medsky 🧪 #academicsky www.nature.com/articles/s41...

This.

Our co-founder Ondine Sherwood is quoted in this extensive article on the risks of taking unlicensed & non-prescribed drugs. Our Bill of Rights calls on the government, health services & research funders to guarantee pw #LongCovid the right to safe healthcare www.longcovidsos.org/bill-of-rights

Here I go again… talking about #LongCovid as though no one knows anything about it… or do they 🤔❤️‍🩹 #disability www.derbytelegraph.co.uk/news/local-n...

📢 Participate in Long COVID Research If you have Long Covid, then Keele University wants to hear from you! 👥 Seeking interview participants (18+), in-person, online, or phone. Your insights are crucial! 📞 For info: 01782 731 794 | [email protected] Thank you! 💙 @longcovidsos

Quick flag for any #LongCovid folk doing their Christmas shopping- my friends @longcovidsos.bsky.social have 30% off their fundraising merch today, and then 25% off and free shipping 2-8 Dec Plus lots of #LongCovidAwareness day designs ahead of 15/3 longcovidsos.myspreadshop.co.uk/long+covid+f...

From the closing statement at the UK COVID Inquiry on Children and Young People 27/11/24. Sarah Hannett KC "Long Covid is a new childhood disease whose prevalence is equivalent to childhood diabetes" #LongCovid #LongCovidKids #CovidInquiry

www.bmj.com/content/387/... Yes, #LongCovid is a heterogeneous condition (as stated somewhere buried in this paper in relation to exercise). So why come to the sweeping conclusions about ‚physical and mental rehabilitation‘ (in other words, exercise and CBT)? A prior agenda, perchance?

bjgplife.com/revisiting-m... #LongCovid #ME Reflections about PEM and pacing, and how psychologising conditions like LC and ME hurts everyone, including doctors

“Never mind the millions of us, including children, living with debilitating long Covid, some for coming up to half a decade, with new patients still joining our ranks (and many of us missing from the workforce)” Thanks Elke! ❤️‍🩹 theguardian.com/world/2024/nov…

This is what hope looks like… 😊💫🌷

The National Development team for Inclusion are recruiting an evaluation specialist #recruitment #evaluation #LearningDisability www.ndti.org.uk/about-us/ndt...

Important 🧵on our new peer-reviewed paper: The pandemic is as bad as it ever was for babies - in year to Aug 2023, 6,300 babies under 1 were admitted to hospital wholly or partly BECAUSE of Covid. They are ONLY age group where admissions have NOT gone down over time 1/17

Trying to stay active with Long Covid… today I walked my dog Steve up the road and back! Feeling like a WINNER! 🎉 - oh how my expectations have changed!! 🫣🙄

Today marks the start of DISABILITY HISTORY month. 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻 Long Covid is a New Disability By raising the profile of Long Covid during Disability History Month, we can be a more inclusive society, one that recognises, supports, and learns from people living with Long Covid 🌻🌻

Fave Five: Queer Fiction Set in the Middle Ages: lgbtqreads.com/2023/10/19/f... 🌈📚