🚨 Mythbusting #LongCovid with Dr Amir Khan🚨 Long Covid is real. It’s serious. And it’s affecting millions. On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths. Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sherwood

Today, we honour Ondine. Every post we share on #LongCovidAwarenessDay is dedicated to our co-founder, friend, inspiration & relentless advocate, Ondine Sherwood. Her passion, determination, & unwavering fight for recognition & support have left an indelible mark on the world.

Watch us pack your #LongCovid Awareness pins with love, in gorgeous spring sunshine accompanied by birdsong 🕊️🌞🌷 Another batch winging their way to you today! Buy yours at longcovidsos.org/shop - there’s still time! #longcovidawareness #longcovidawarenessday #fyp #packanorderwithme #birdsong

The last week has seen direct and indirect denials of #LongCovid’s existence & attacks on the #LongCovid community. In a world of denial, it’s not easy to know who supports us. Advocacy on social media & through community networks helps us weather these storms together.

And don’t forget our new #LongCovidAwareness ribbon pin badges, sold directly by us at longcovidsos.org/shop - international & UK shipping available, starting at £3+P&P Wear it with pride, and show solidarity with our #CovidConscious community 🩵🩶🖤

Reminder of the sale on all of our #LongCovidAwareness fundraising merch continues through Monday 17th - don’t hang around! Click through to our global store here to get ready for International #LongCovid Awareness Day on 15 March longcovidsos.myspreadshop.co.uk

Our ribbon pin represents all that is positive and powerful about our #LongCovid community. Pre-order yours today and wear it with pride. International & UK shipping begins early March, ready for International Long Covid Awareness Day on 15th March www.longcovidsos.org/shop

Huge thanks to everyone who has pre-ordered our new limited edition #LongCovidAwareness ribbon pins, we didn’t expect so many sales so soon! Our team have written about why these pins are such an important & powerful sign of our community’s strength www.longcovidsos.org/post/new-rib...

🚨 Limited Edition Alert! 🚨 Show your support for Long Covid Awareness Day on March 15th with our exclusive enamel pin! 💙✨ Pre-order NOW before they’re gone—let’s raise awareness together! ⬇️ www.longcovidsos.org/shop #LongCovid #LongCovidAwarenessDay #WearItWithPride

We were shocked by this Sky News report suggesting with little more than anecdotes that increased presentations at A&E by young people with chest pain is due to health anxiety when chest pain & palpitations are common #LongCovid symptoms

#LongCovid making you feel muggy-headed? We’ve got a mugnificent 22% off fundraising mugs - and more- to lift your spirits (and your coffee) for #LongCovidAwarenessDay on 15 March longcovidsos.myspreadshop.co.uk/accessories+...

Last night, the Trump administration stated that it would not fire probationary employees. However, layoffs of probationary employees have already begun at several offices, including the CFPB, OPM, and GSA, and are still continuing today.

A late alert for all of our international followers - 22% off all our fundraising merch today through Monday 17th. Express your feelings about #LongCovid, raise awareness, and be ready for #LongCovidAwarenessDay on 25 March. longcovidsos.myspreadshop.co.uk/f+lc+-+aware...

How are you? I’m fine…. Why do we do this? 🤐 Because explaining all of it is exhausting - physically, mentally, and emotionally. #LongCovid is complex, and most people don’t truly understand it. And many would rather not know.

Our statement on Andrew Gwynne’s sacking as junior minister for Public Health and Prevention www.theguardian.com/politics/202... #longcovid #AndrewGwynne @longcovidsupport.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social

Statement of Concern regarding the future of #LongCovidClinics across the UK (in pics & alt text) We are receiving many messages from the #LongCovid community about announced/ potential closures. We are actively pursuing this issue urgently as answers are needed. We hope better news lies ahead 🤞

The protective effects of natural infection against repeated exposure to SARS-CoV-2 reduced substantially after the emergence of the Omicron variant, according to a study in Nature. A decline was observed in both the level of protection and duration of immunity in the post-Omicron era. 🧪

Labour is expected to finalise a package of benefit cuts in the next fortnight in a “radical overhaul” that could affect hundreds of thousands of disabled people. My col. in today’s paper on a system that expects those with the least to lose the most.  www.theguardian.com/commentisfre...

#LongCovid sufferers in Britain .. lives devastated by "invisible" condition...costing countries billions of dollars Significant numbers taken out of the workforce, desperate, forgotten, struggling, please share and support us raising awareness www.context.news/socioeconomi...

1. If Trump runs out of immigrants to persecute, I suspect the next target for his performative sadism will be people with disabilities. Already, without a shred of evidence, he has blamed the air crash on disabled air traffic controllers, with horrible, stereotyping slurs about their disabilities.🧵

4. Already, he is attacking trans and gay people, Black and Brown people, Muslims, women, political opponents, journalists .... For the far right, the list of potential victims never ends. Either we stand with all those they target, or we will be picked off one by one.

This account is for sharing info with US scientists, both extramural and intramural to NIH, about attacks on science in the US. Education is power, and we can help advocate for science and medicine together. 💪🧪 We are a team of NIH people. Please ask us questions you might have.

Covid 'brain fog' likely factor in train's near-miss www.1news.co.nz/2025/01/30/c... A locomotive engineer experiencing brain fog after #COVID infection likely played a role in a KiwiRail coal train's near miss with another train, an investigation has found. No one could have foreseen this. 🙄

A reader with a terminal illness emailed in despair. What she told me should shock us all | Frances Ryan

This is the worst news for Rugby Union in the UK for decades. The Six Nations is the only time most people here give a shit about rugby. You take that off free-to-air TV and the sport becomes a closed shop with no shot at ever growing.

"The evidence of Dr Ritchie was a significant outlier being inconsistent with all expert evidence adduced in the Inquiry."

"Our clients are troubled that you have referred to a long outdated guidance and have apparently not considered the overwhelming scientific evidence in the Covid-19 Public Inquiry supporting airborne transmission. Further your statement incorrectly reports the WHO position"

Our #LongCovid Groups legal team has written to @gwynnemp.bsky.social to express our concern about comments made in his letter to @timfarron.bsky.social regarding #covid transmission #CovidIsAirborne - it is not primarily spread by droplets

The economic impact of #Longcovid was devastating on economies in 2024. We need to take preventions seriously. @uklabour.bsky.social

ATTN people interested in the UK Covid response! A volunteer & I have created a new website sagesearch.info#top to make it much easier to search all documents that fed into, or produced by, official SAGE from Apr 2020 - July 2021. Filter by category, type, date; text search of summaries! 1/3

We are calling for: 🏥 Recognition that #CovidIsAirborne 🏥 Appropriate guidence on measures to limit transmission of respiratory viruses: FFP3 masks, ventilation, air purification in healthcare settings, clinical and non-clinical #LongCovid Groups 2/3

🧵Today our legal team has written to UK Covid Inquiry Chair to invite her to make urgent interim recommendations to make healthcare settings safe During mod 3 we heard how the refusal to accept that #CovidIsAirborne led to inadequate PPE The IPC guidence must be revised 1/3

We wrote a paper about our work for Independent SAGE during the pandemic @independentsage.bsky.social #healthpolicy #medsky 🧪 #academicsky www.nature.com/articles/s41...

Our co-founder Ondine Sherwood is quoted in this extensive article on the risks of taking unlicensed & non-prescribed drugs. Our Bill of Rights calls on the government, health services & research funders to guarantee pw #LongCovid the right to safe healthcare www.longcovidsos.org/bill-of-rights

🧵📢We are excited to announce the publication of our new, revised and updated leaflet for GPs, developed with Post Covid ClinSoc & @rcgp.bsky.social It provides a comprehensive, easy reference to help doctors recognise, diagnose and identify treatments for #LongCovid www.longcovidsos.org/gp-leaflet

Let’s vaccinate against COVID. It reduces the risk of long COVID. This should be a no-brainer.

Having one of those days where #LongCovid feels endless? We’ve got the perfect t-shirt for you… Today is the LAST day to get 25% off + free shipping in our online fundraising store. Get your orders in fast & help us campaign for answers! longcovidsos.myspreadshop.co.uk/long+covid+f...

You loved our FU LC slogan, so how about telling the world that #LongCovid can break your heart? Get 25% off & free shipping on our whole range through 8 Dec, so you can tell the world for less! longcovidsos.myspreadshop.co.uk/'long+covid+...

Excellent thread and article summarising research progress in #LongCovid - what we know, what is being examined, and what we can hope to see

Another cracking mythbusting column from @francesryan.bsky.social 👏

"NHS to review ME services after death of Maeve Boothby O’Neill: Health minister and Nice commit to work to improve patient outcomes after landmark inquest" (The Times): www.thetimes.com/uk/healthcar...

Ever felt like saying “FU” to #LongCovid? If so we have just the T-shirt/badge/hoody/mug/hat/bag for you - in all sorts of colours and sizes. Get 25% off & free shipping through 8 Dec, so you can share your frustration with the world for less! longcovidsos.myspreadshop.co.uk/f+lc+-+aware...

We have submitted our response to the @nhsengland.bsky.social consultation on their 10 Year Plan, which includes 12 proposals for policy change. Our Bill of Rights for people with #LongCovid is at the core of our response. Read about it here: www.longcovidsos.org/post/long-co...

🎄Ho Ho Ho! Christmas is coming! 🎁 Help us fundraise by shopping with us- every purchase helps raise awareness of Long Covid & supports a small charity working to advocate for and assist those affected. ✨ 25% OFF + FREE SHIPPING until 8th December! ✨ longcovidsos.myspreadshop.co.uk

Our rapid response to the recent BMJ systematic review, according to which CBT and GET are probably effective for Long COVID, is now online: www.bmj.com/content/387/...

New from Canada: Upregulation of olfactory receptors and neuronal-associated genes highlights complex immune and neuronal dysregulation in #LongCOVID patients www.sciencedirect.com/science/arti... All LC patients had ME/CFS (CCC) #PASC #PwLC #MEcfs #CFS #PwME

Quick flag for any #LongCovid folk doing their Christmas shopping- my friends @longcovidsos.bsky.social have 30% off their fundraising merch today, and then 25% off and free shipping 2-8 Dec Plus lots of #LongCovidAwareness day designs ahead of 15/3 longcovidsos.myspreadshop.co.uk/long+covid+f...