Margaret O’Hara
@margaretohara.bsky.social
📤 239
📥 182
📝 39
Patient Advocate in
#LongCovid
and
#HyperemesisGravidarum
Patient Involvement in Research in
#NHS
reposted by
Margaret O’Hara
Billy Bragg
1 day ago
Free stickers suitable for flag-bearing lampposts. Send a large A4 envelope with a 1st class large stamp to me at Bragg Office, PO Box 6830 Bridport DT6 9BH and I’ll send you a sheet.
#ReclaimtheFlag
🏴🏴🏴🇬🇧
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Red Hot World
1 day ago
Experts feared it would take 193 years to reduce London's deadly levels of NO₂ air pollution to legal levels. This week Mayor Sadiq Khan announced his team had defied the howls of pro-fossil fuel and motoring lobbyists to achieve the life-saving target in just 9 YEARS. Here's how they did it 🧵
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Long Covid Kids
1 day ago
A 'mum whose daughter has struggled for years with the effects of Covid is inviting SNP health secretary Neil Gray to hear her story in person at their home' “Her room is like a hospital. She’s very sick and that’s what I want him to see.”
@helen-goss.bsky.social
bit.ly/3IJ3PZY
#LongCovidKids
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Westhill mum of long Covid girl invites SNP health chief to see suffering for himself
Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better.
http://bit.ly/3IJ3PZY
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Margaret O’Hara
Jonathan Howard
2 days ago
add a skeleton here at some point
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Margaret O’Hara
Denis - The COVID Info Guy
4 days ago
Japan: "Okayama study underscores risk of long COVID, new variant" Of the 774 long COVID Omicron patients, 370 were in the ‘early recovery group’ (within 6 months). The other 404 (52%) had symptoms 180+ days, with some lasting 2–3 years. Women made up about 60% of this persistent group.
#LongCOVID
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Okayama study underscores risk of long COVID, new variant | The Asahi Shimbun: Breaking News, Japan News and Analysis
OKAYAMA--More than half of patients who visited Okayama University Hospital’s COVID-19 aftercare (CAC) outpatient clinic continued follow-up treatments for 180 days or more, a group of researchers sai...
https://www.asahi.com/ajw/articles/16027197
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Binita Kane
4 days ago
Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.
stevebheadteacher.wordpress.com/2025/09/30/d...
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Dear Bridget Phillipson, Please Can We Talk About Health?
Dear Bridget Phillipson, Please can we talk about health? It’s autumn 2025. We’re one month into the school year, in England. Two of my children are ill, again.With Covid, again.It̵…
https://stevebheadteacher.wordpress.com/2025/09/30/dear-bridget-phillipson-please-can-we-talk-about-health/
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Eric Topol
6 days ago
The accompanying editorial tells the sad truth that is largely being ignored
www.thelancet.com/journals/lan...
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Margaret O’Hara
Nikki Smith
6 days ago
Proud to have been involved in this work! Not surprised by this major under-recording of
#LongCovid
in healthcare records but it proves that using healthcare records/coding as evidence of the number of p/w Long Covid is substantially inaccurate…and downright dangerous.
add a skeleton here at some point
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Margaret O’Hara
Billy Hanlon
6 days ago
New York Times: “Long Covid Risk for Children Doubles After a Second Infection, Study Finds” ‘The new research provides evidence that Covid reinfections can increase the risk of long-term health consequences’
www.nytimes.com/2025/09/30/h...
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Long Covid Risk for Children Doubles After a Second Infection, Study Finds
https://www.nytimes.com/2025/09/30/health/long-covid-children.html
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Prof Christina Pagel
6 days ago
important article highlighting the continuing benefit to both mother and newborn of vaccinating pregnant women against Covid. The US under RFK Jr just stopped recommending vax for pregnant women. The UK has withdrawn vax for pregnant women too - I think both are very stupid decisions.
add a skeleton here at some point
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Margaret O’Hara
Long Covid Support
7 days ago
📣 1/4. Paper out from the UK’s LOCOMOTION study on incidence of
#LongCovid
diagnosis. 🚩 Huge under-recording of Long Covid in primary healthcare records! Big thank you to our Members & co-authors
@nikki-s.bsky.social
&
@ruairidhm.bsky.social
for their hard work🙏 Link to paper on below 🧵 ⬇️
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Margaret O’Hara
Long Covid Kids
7 days ago
"We teach our children to say sorry. It’s time the government did the same for children and young people with Long Covid"
@sammiemc.bsky.social
CEO & Founder, LCK
www.dorsetecho.co.uk/news/2550166...
#Dorset
#COVIDInquiry
#RockSolidAction
#LongCovidKids
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Calls for government to apologise over Long Covid failings as inquiry resumes
A WEYMOUTH campaigner is calling on the government to apologise to children over its handling of Long Covid.
https://www.dorsetecho.co.uk/news/25501669.covid-inquiry-resumes-weymouth-woman-calls-apology/?fbclid=IwZnRzaANHeq9leHRuA2FlbQIxMQABHtmhSVwLzOymXaUs_5ZJcz1cs3G9jIUFba7bS3Zesk0tsPCWR22RBGzpv5ig_aem_b5wiJWJUi3WMoTs5muiJ6g
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Margaret O’Hara
Dr. Genevieve Eastabrook, MD FRCSC (she/her)
9 days ago
AI medical tools found to downplay symptoms of women, ethnic minorities Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients. None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
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AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
https://arstechnica.com/health/2025/09/ai-medical-tools-found-to-downplay-symptoms-of-women-ethnic-minorities/
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Carole Cadwalladr
8 days ago
This tweet has been doing the rounds on Twitter now that Nathan Gill has pleaded guilty. If only someone had tried to investigate UKIP & Russian interference 🧐 There’s another timeline where the Guardian supported me, doubled down on the investigation & I look 5 years younger ..
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Ian Dunt
9 days ago
'Rather than addressing the fundamental problems with existing verification systems, the Britcard threatens to digitise and amplify the very hostile environment policies that created these problems in the first place'
blogs.lse.ac.uk/politicsandp...
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The Britcard – progressive or concerning? | British Politics and Policy at LSE
The Government is considering Labour Together's proposal to introduce mandatory digital ID cards in an effort to tackle irregular migration. There are problems with that.
https://blogs.lse.ac.uk/politicsandpolicy/the-britcard-progressive-or-concerning/
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Margaret O’Hara
Boo-trino Lab
10 days ago
A few days out from
#UNGA80
, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who 1/
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Long Covid Kids
9 days ago
#Research
Impact of COVID-19
#infection
on the sleep of
#infants
and
#toddlers
Conclusion: Our findings demonstrate that COVID-19 infection causes significant and prolonged disruptions to sleep architecture in infants and toddlers
pubmed.ncbi.nlm.nih.gov/40993557/
#LongCovidKids
#LongCovid
#Sleep
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Impact of COVID-19 infection on the sleep of infants and toddlers - PubMed
Our findings demonstrate that COVID-19 infection causes significant and prolonged disruptions to sleep architecture in infants and toddlers, with these effects persisting beyond the acute infection ph...
https://pubmed.ncbi.nlm.nih.gov/40993557/
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Margaret O’Hara
Prof Danny Altmann
9 days ago
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Margaret O’Hara
Long Covid Scotland
10 days ago
While we welcome the Scottish Government announcement of £4.5 million recurrent
#LongCovid
and
#MECFS
funding, serious concerns remain. Patients are told money is being allocated, but there is no clarity on how it will be used. Read the full statement on our website:
www.longcovid.scot/blog/res...
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Margaret O’Hara
Andrea Love, PhD | Biomedical Scientist
12 days ago
The strongest predictor of autism is genetics. Data: • If one identical twin has ASD, the other has a 90–99% chance. • Compare that to 31–67% chance for fraternal twins. • Non-twin siblings have ~20% likelihood of ASD, 7-fold higher than general population. 1/
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Elke Hausmann
13 days ago
‚„Immunity debt” doesn’t exist, but immune damage does. Children are sicker now than pre-pandemic – many with disabling chronic illnesses. This cycle of harm can only stop when we accept reality – there’s no off ramp without cleaning classroom air.‘
#LongCovid
add a skeleton here at some point
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Margaret O’Hara
Andrea Love, PhD | Biomedical Scientist
13 days ago
Will
@hsph.harvard.edu
take action given they hired Andrea Bacarrelli in 2024 AFTER he falsified links between Tylenol use in pregnancy & autism in federal court (& was paid $150,000) and THEN published the same claims in a journal with a history of fake peer review & falsified data 1/
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I know there’s a lot going on in the world but you all have to stop and look at my kittens. They were abandoned in our street 2 months ago. When we took them in not quite 4 wk ago, they were terrified and hid all the time. Now they’re on the sofa right next to me snoozing happily.
12 days ago
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Margaret O’Hara
Butterflies Katz ⓥ
14 days ago
jamanetwork.com/journals/jam...
A 2024 study published in JAMA involving 2.4 million children in Sweden, used sibling-control analysis. When comparing siblings—one exposed to
#acetaminophen
in utero & one not—the researchers found NO increased risk of
#autism
, ADHD, or intellectual disability.
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Margaret O’Hara
BuDS Disability Service
13 days ago
President Trump has claimed that Leucovorin is a “gamechanger” in autism treatment, and that “it could help make our kids healthy again”. This is entirely false. BuDS has prepared a detailed briefing on this matter, which can be found at the link:
buds.org.uk/president-tr...
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President Trump's Claims About Leucovorin & Autism
BuDS' response to President Trump's claims about Leucovorin and autism
https://buds.org.uk/president-trumps-claims-about-leucovorin-autism/
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Margaret O’Hara
David Davies-Payne
14 days ago
"described for the first time widespread abnormalities in the function of unmyelinated C fibers, both somatosensory and sympathetic, that could represent a common pathophysiological mechanism explaining the multiplicity of symptoms in
#longCOVID
"
#MECFS
onlinelibrary.wiley.com/doi/10.1002/...
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Microneurography Reveals Unmyelinated Small Nerve Fiber Dysfunction in Long COVID
Objective To review the microneurography findings of long coronavirus disease 2019 (COVID) patients who presented to the clinic with multisystem involvement affecting neurological, cardiovascular, g.....
https://onlinelibrary.wiley.com/doi/10.1002/ana.78045
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Margaret O’Hara
Eric Topol
13 days ago
To be clear, there are no data that provide a link between short-term use of Tylenol during pregnancy and autism. In fact, one of the best prospective studies w/ sibling controls, if anything, pointed to a protective effect for use less than 7 days
acamh.onlinelibrary.wiley.com/doi/10.1002/...
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Margaret O’Hara
David Corn
14 days ago
This ought to be engraved somewhere.
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Danilo Buonsenso
15 days ago
Nasal Azelastine and COVID Prevention: What a New Study Tells Us — And Why It Might Matter for Long COVID / ME/CFS
danilobuonsenso.substack.com/p/nasal-azel...
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Nasal Azelastine and COVID Prevention: What a New Study Tells Us — And Why It Might Matter for Long COVID / ME/CFS
Introduction
https://danilobuonsenso.substack.com/p/nasal-azelastine-and-covid-prevention
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Margaret O’Hara
Supporting Healthcare Heroes UK (SHH-UK)
15 days ago
🌬️ Clean air isn’t a luxury - it’s a necessity. At SHH UK, we’re calling for urgent action for
#SafeAir4All
. Everyone deserves to breathe safely. It’s time to act. 🌍💙
#LongCovidAwareness
#PublicHealth
#SafeAir4All
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Margaret O’Hara
Eleanor Fielding
16 days ago
Same cartoon with added medical reference. The link is in the ALT+ Justice4ME
#Plan4ME
@ashleydaltonmp.bsky.social
@davetuller1.bsky.social
@decodemestudy.bsky.social
@tomkindlon.bsky.social
@bmhughes.bsky.social
@alastaircampbell2.bsky.social
@whitneydafoe.bsky.social
@longcovidadvoc.com
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Margaret O’Hara
Esther
16 days ago
#COVID
causes vascular damage. Here is Dr Rae Duncan talking about the risks.
www.youtube.com/watch?v=ydRl...
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Dr Rae Duncan explains Long Covid as a vascular disease
YouTube video by Sally Bourliakas
https://www.youtube.com/watch?v=ydRlZ-k8A7Y
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Margaret O’Hara
Elke Hausmann
17 days ago
‚He adds: 'we are the unfortunate aftermath of the pandemic that people don't want to think about. They just want to put their things in their ears and move on with life. We can't do that though, because we're living with long Covid.'‘
#LongCovid
add a skeleton here at some point
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Margaret O’Hara
Elke Hausmann
16 days ago
TV tonight
#LongCovid
2/2
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Margaret O’Hara
Dr Elisa Perego
17 days ago
"A systematic review and meta-analysis published in Open Forum Infectious Diseases reported a pooled prevalence of long COVID as 36% worldwide."
#LongCovid
remains common and a public health emergency
www.eatg.org/hiv-news/mor...
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More than one-third of individuals with COVID-19 experience long COVID
Long COVID remains a globally persistent condition, with a pooled prevalence of 36% worldwide, highlighting the urgent need for follow-up studies and policy responses.
https://www.eatg.org/hiv-news/more-than-one-third-of-individuals-with-covid-19-experience-long-covid/
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Margaret O’Hara
Prof Sheena Cruickshank
18 days ago
Important study (that rather flies in the face of recent vaccine decisions) that considers the risk of Covid (and long Covid) on the cardiovascular system and the need to note and rehabilitation to better manage CV symptoms. Also suggest vaccines are an important tool to prevent such complications
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Cardiovascular disease prevention and management in COVID-19: a clinical consensus statement of the European Association of Preventive Cardiology, the European Association of Cardiovascular Imaging, t...
Abstract. The coronavirus-associated disease 2019 (COVID-19) pandemic has posed significant challenges due to the complex interplay between SARS-CoV-2 infe
https://academic.oup.com/eurjpc/advance-article/doi/10.1093/eurjpc/zwaf540/8255559#532077239
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Margaret O’Hara
Martin McKee
20 days ago
Can anyone explain to me what counts as legitimate protest in the U.K. these days? I’m baffled. We should celebrate attacks on police as vibrant free speech but condemn pensioners with slogans on t-shirts and
@ledbydonkeys.org
with a projector?
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Margaret O’Hara
Prof Nisreen Alwan
22 days ago
Poverty is evil and must be tackled to achieve a well society, but poverty is not the cause of racism. Racism is an ideology which may be nurtured by all sorts of things including ignorance but it is false to simplistically say that poverty generates it.
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Margaret O’Hara
Ed Davey
23 days ago
Elon Musk openly called for violence on our streets yesterday. I hope politicians from all parties come together to condemn his deeply dangerous and irresponsible rhetoric. Britain must stand united against this clear attempt to undermine our democracy.
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Margaret O’Hara
Dee Lomas
22 days ago
What we know about protests. When it’s morally right it’s peaceful and when it’s morally wrong it’s always violent. Tells you everything you need to know about which side you should be on. Fvck nationalism and fvck the far right.
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Margaret O’Hara
Tuttle Tuttle Toil & Trouble 🎃
23 days ago
I shouldn't be shocked, but I'm still always brought up short to realize how many people think "civility" means "white people speaking in relatively calm voices" no matter what vile shit they say.
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Margaret O’Hara
Hypervisible
26 days ago
“AI isn’t magic; it’s a pyramid scheme of human labor,” said Adio Dinika, a researcher at the Distributed AI Research Institute…These raters are the middle rung: invisible, essential and expendable.”
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How thousands of ‘overworked, underpaid’ humans train Google’s AI to seem smart
Contracted AI raters describe grueling deadlines, poor pay and opacity around work to make chatbots intelligent
https://www.theguardian.com/technology/2025/sep/11/google-gemini-ai-training-humans
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Margaret O’Hara
David De Sancho
25 days ago
Why the surprise, doctor? I think there is a reasonable consensus that is emerging about mid-term trends
ourworldindata.org/un-populatio...
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Peak global population and other key findings from the 2024 UN World Population Prospects
Falling fertility rates, migration movements, and China’s population decline.
https://ourworldindata.org/un-population-2024-revision#the-world-population-is-projected-to-peak-slightly-earlier-than-in-previous-projections
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Margaret O’Hara
emily fraser 🌿🐌✨
26 days ago
Michael Peluso’s team at UCSF is looking for pre-Covid
#pwME
in the SF Bay Area. I've heard great things about their Long Covid work and suspect this study will be fruitful!
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Margaret O’Hara
thetranscendedman
26 days ago
Ann Arbor and New Haven researchers reviewed 429 studies with over 2 million people and found long COVID affects 36% worldwide, lasting up to 2 years, with fatigue, respiratory and neurological issues most common, and higher risk if unvaccinated.
academic.oup.com/ofid/advance...
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Global Prevalence of Long COVID, its Subtypes, and Risk factors: An Updated Systematic Review and Meta-Analysis
AbstractBackground. This mega-systematic review evaluated the global prevalence of long COVID, its subtypes and symptoms, and assessed the effects of risk
https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677
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Margaret O’Hara
Dr David Joffe MB BS(Hons), PhD, FRACP
27 days ago
Covid is not kind to the poorest amongst us 💔
jamanetwork.com/journals/jam...
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Long COVID and Food Insecurity in US Adults, 2022-2023
This survey study analyzes associations of post–COVID-19 condition (ie, long COVID) with food insecurity among US adults based on the 2022 to 2023 National Health Interview Survey.
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2838652?utm_campaign=articlePDF&utm_medium=articlePDFlink&utm_source=articlePDF&utm_content=jamanetworkopen.2025.30730
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Margaret O’Hara
Alex Andreou
27 days ago
NOTHING will prepare you for this 45-second story arc. From "I'm just doing this because I love the flag, it's totally grassroots, and I'm not part of anything political"... to who actually gave him the flags the night before. Anyone who believes it is an innocent movement needs to see this.
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Margaret O’Hara
T. Ryan Gregory 🇨🇦
27 days ago
Clean the air FFS.
add a skeleton here at some point
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Margaret O’Hara
Long Covid Support
27 days ago
1/4 This morning, the UK Covid-19 Inquiry opened Module 9: Economic Response, looking at how government decisions in the early years of the pandemic affected people’s lives. Dr Lucy Moore and Nigel Rothband, Chairs of
@longcovidsos.bsky.social
and Long Covid Support, were present. 🧵👇
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Margaret O’Hara
Elke Hausmann
26 days ago
Do they really think we are all sitting around waiting for drugs? While we obstinately refuse to consider other ways to recovery? If they had any inkling of what it‘s like living with
#LongCovid
and
#ME
, they‘d know that we try anything to get better. If any of it worked, we wouldn’t be here.
add a skeleton here at some point
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