Anna's powerful #artwork made us all weep when we first saw it. I support @helen-goss.bsky.social request to the Scottish Health Sec. Children too sick to attend #education are loosing their childhood behind closed doors, the devastating situation must be seen - CYP need support now. #Childhood

Thx @helen-goss.bsky.social for sharing this very vulnerable & utterly exhausting reality of being a caregiver while battling your own health issues & the incompetence of the healthcare system (and others): helenmmgoss.substack.com/p/long-covid... @coopspeak.bsky.social @theresisters.bsky.social

@georgemonbiot.bsky.social definitely worth a read. Quite the scandal North of the wall 🏴󠁧󠁢󠁳󠁣󠁴󠁿🙏🏼

Outstanding piece on Long Covid in the UK. Since we know vaccination reduces the risk of developing Long Covid, the UK government really should be massively widening access to vaccines. www.telegraph.co.uk/global-healt...

Sigh. www.reddit.com/r/UKParentin... #covid19 #longcovid #longcovidkids #winter #illness #cleantheair

this was the beginning of my slides on how and why we provide off label therapies to the most severe patients with #longcovid before providing my filled one, would love to know - what you do - what you would like to do - as patients, what would you like to receive

"Prof @putrinolab.bsky.social , Mount Sinai, believes that there are at least 10 different plausible explanations for why people develop #PEM, ranging from sleep disruption to hormonal impairments & inflammation of the lining of blood vessels" www.bbc.com/future/artic... #LongCovid #LongCovidKids

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 1/

A really excellent article on post viral fatigue, though I see 2 errors: 1. There is no uncertainty that SARS-CoV-2 causes mircoclots. 2. "pacing" is defined as = graded exercise therapy. Its not, & confusing them is harmful. #ME #CFS #MECFS #IACC #LongCovid #LongLyme www.bbc.com/future/artic...

Best thing about Scottish winter is seeing the gritter map back in action! traffic.gov.scot/gritter-tracker No one can be annoyed at being stuck behind "You're a Blizzard, Harry" or "Spready Mercury" 😂 Gritter names: google.com/amp/s/www.huff…#scotlandn#wintere#snowo#uksnowow

The EM images of microclots from @resiapretorius.bsky.social group are something else.

Working in the Long Covid/ME space in the UK is a lonely place. As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.

Light dusting of snow. First of the season 🌨️❄️☃️ #Aberdeenshire #snow #winter

This was not on my Christmas list. #H5N1

First Bluesky Post!! 🤩 Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹 Excited to engage in discussions on #research and #collaboration

So proud of @sammiemc.bsky.social flying the LCK flag 🥹 Well done and thank you for the monumental effort 👏🏼🎉👏🏼 #LongCovidKids #LongCovid

A catch up thread on the UK Covid Inquiry as relates to #LongCovid & #LongCovidKids in Scotland. Yesterday, Caroline Lamb, NHS Scotland and Director General of Health and Social Care gave testimony. Thread... 1. Scottish Government funding £2.5m for Long Covid (no paed research)

“The evidence suggests the more times you get Covid, the higher the chance there is of you getting long Covid.” @drclairetaylor.bsky.social The number of adults in the UK with #longCovid was estimated to be around 2 million in 2022. But in 2024, there was a rise of 300,000, with long Covid.

I can personally confirm Dr Taylor is amazing! Wish we could clone her or put her in charge of NHS ME/LC/PoTS care.

If you have become invalid, validate yourself 🎉 If only life was that simple 😅 #invalidhandle

Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care. www.thecourier.co.uk/fp/lifestyle... Meet the Perthshire GP long Covid sufferers turn to when no one else can help… @drclairetaylor.bsky.social #longcovid #longcovidkids

Reply to the post you want to save with the 📌 emoji and follow this feed: bsky.app/profile/did:... All of your "pinned" posts will be saved there 😊

More covid infections = more long covid " ... the more times you get Covid, the higher the chance there is of you getting long Covid ... the number of adults in the UK with long Covid was estimated to be around 2 million in 2022 ... in 2024, there was a rise of 300,000, with long Covid." 😰😰😰

Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care. www.thecourier.co.uk/fp/lifestyle... Meet the Perthshire GP long Covid sufferers turn to when no one else can help… @drclairetaylor.bsky.social #longcovid #longcovidkids

Just realised that on the desktop version of Bluesky, it looks just like twitter 😐 makes it much easier to switch! Have some northern lights from earlier this year, because, why not.

If you attending the international conference in #Rome this week come say Hi 👋. Our founder and CEO will be there and is looking forward to connecting. #LongCovidKids #LongCovid #LongSky

I was honoured to be asked to present at the conference this week and join leading experts driving change & awareness for paediatric #LongCovid 🌍🦸🏻‍♀️🦸🏽🦸‍♂️🦸🏾‍♀️ #Pacing started Sunday ready for the trip…l’m excited. #LongCovidKids

Danilo @buonsenso.bsky.social is a pediatrician doing a fantastic job investigating #LongCovidKids and #LongCovid. Please follow him and check his work if you are interested in the topic! www.thelancet.com/journals/ecl...

Room for one more Twitter refugee? 🫡 I was told there would be infinite cats here...