When Ezra Klein of all people says the Dems are losing by compromising, you KNOW you fucked up

What happens to disabled people WILL ALWAYS happen to you.

I love this. I have hated that in the past few years it has felt like American flags are reserved for Republicans. Fuck that shit, this is our country too.

I don’t do the disability advocacy thing out loud as much anymore, but being at school this week had me thinking about the way well-meaning abled people move to help and what actually helps. This is not shaming anyone. But I appreciate when folks who do instinctually help move intentionally. 🧵

Shout-out Big Mike at the Keene, NH Pride Festival who manhandled my wheelchair tire back into the rim it had yeeted itself off of - may your pillow always be cool. 🏳️‍🌈🌈🥰

Check your cyclobenzaprine! #NEISVoid #chronicillnes #disability

There is a kind of mouse that has been bred over decades to be suitable for skin cancer research. They are *ridiculously* expensive. They're also living animals. You have to feed them and clean their enclosures and take care of them, or they die.

If we’re going to make any progress, we’ve got to quit engaging with the pretext. The DC invasion isn’t about crime, is about authoritarianism. Occupying LA isn’t about immigration, it’s about the racial hierarchy. Stop engaging with the phony pretext.

...great...

We just learned about a 3rd dimension of how Covid can affect our arteries. erictopol.substack.com/p/covid-and-...

Oooo, I was just looking for some new, good historical romance recs!

NEW: Scientists made a sugar-coated nanoparticle that blocks the SARS-CoV-2 virus from binding to human cells — cutting infection in lab tests by ~99%. Not a vaccine. A microscopic shield. 🛡️🦠 www.news-medical.net/news/2025081... #BlueSky  #MedSky 🧪 #IDSky #SciSky#fmsky #pedsky

“[service or place] is not wheelchair accessible” in 2025 is going to make me lose whatever shreds of calm I had left. Looking at you, Europe, and your oh-so-sophisticated public transit.

If you have republican senators and representatives, call them and say, “I didn’t vote for CANCER! Come on now, canceling mRNA research is too far.”

Today is @oliviawrites.bsky.social 's event at East City Bookshop in DC and I am SO EXCITED!! 🎉

“Defund the police was a bad slogan.” Yeah whatever. Call it what you want, but this is a conversation about money, and what local governments choose to prioritize

Disability is not a vacation. It’s not like that time you took a week off sick from work. It’s a 24/7 job. It’s unrelenting pain, fatigue and suffering. It’s dealing with a medical system that ignores and gaslights you, a society that views you as expendable & people who resent you for existing

I'm really interested to see studies like this and with bigger sample numbers- how I describe my quick muscle fatigue to my PT is like: that lactic acid buildup feeling that I used to get after a long workout, I now get in my arms when I try to fold laundry for 30 seconds.

Don’t worry, I’m about to take my morning nap, as per usual.

A candidate who is willing to throw transgender people under the bus is a candidate who will use anyone’s rights as a bargaining chip to win elections.

Right now is a perfect moment to push pause & check n w/ what your body is telling you. Just saying.

Reposting to read later.

when RFK says he wants to “end chronic disease,” what people hear is “he wants to cure us” but what he means is “i want to cull the weak”

Today a doctor asked the question most disabled patients dread… “What do you want ME to do about it?” I wanted to scream: Your job! Help me! Solve the problem! Provide treatment! But I didn’t. I remained calm. I avoided being “difficult” I left with no answers 🧵

long covid disproportionately impacts the already disabled, the poor, trans and queer people, working class people and BIPOC. and as soon as ruling class realized this, they clawed back all welfare state expansions and set about creating the sociological end of the pandemic

PSA: There’s a difference between wearing a mask or respirator & wearing a gaiter or face covering to disguise identity. It’s important to discern & communicate this nuance because if you don’t, you might encourage elected officials to ban masks for everyone, which would be a public health disaster.

I just finished reading Back After This by @lindaholmes.bsky.social and it was SO delightful. I genuinely laughed out loud so many times, I scared my cat. Highly recommend!! 🥰

Five years we have been asking and five years we have been ignored. Now we have blatant eugenics and people wringing their hands and wondering how we got here.

DOE wants to eliminate regulations which require buildings receiving fed funding to be accessible to disabled people. We need comments submitted by TOMORROW MONDAY 6/16 Pls help push back! Instructions+template: dredf.org/action-alert... More background: www.disabilityscoop.com/2025/06/09/e...

“We didn’t know” is a flimsy excuse. Parent, you need to read this. If you don’t know, you can’t demand clean air in schools. And if you ignore all info that says Covid is wrecking your kids’ health, they will soon be chronically ill and wonder why you didn’t do anything to protect them. Organize! ✊

Masks are under serious threat at being banned widely due to politicization. This would be a public health disaster. If you are only wearing a mask at protests, please consider also wearing them elsewhere. The more people mask, the more we normalize masks and protect them against bans.

Best is if you do these things while listening to World's Greatest Dad: open.spotify.com/track/0eOosm...

If I am wrong about masks, which I'm not, and you wear one, it costs you, what? A moment of discomfort? I have large breasts. I wear a bra on a daily basis. There are way worse discomforts than masks in this world.

If I am right about masks, which I am, and you wear one, you protect yourself and others from a disabling disease that we are still learning fun new (horrible, upsetting) things about. You also protect yourself against other things, including allergens, cigarette smoke, and lettuce in your teeth.

it’s truly so wild to hear electeds talk about ICE like it’s in the goddamn constitution when it’s been around for less than half my life and they’re older than I am

Trump's rhetoric works because he TELLS LIES and then USES MEDIA AND SOCIAL STRUCTURES TO REINFORCE THOSE LIES. Trying to prove him wrong doesn't work because he'll just tell more lies. The people in his thrall are not convinced because they examined the evidence and found it supports him.

There needs to be five-alarm level public health messaging about this. This was published in JAMA -- the Journal of the American Medical Association -- last month. jamanetwork.com/journals/jam...

Elected Democrats call Trump out on his lies instead of pretending that Trump has a factual basis for his claims challenge

There’s also this neat thing that happens where doctors don’t take you seriously, so you do a bunch of searching and come back with information and they accuse you of colluding with Dr. Google. Lots of us learn everything we can because doctors won’t.

"there is NO (emphasis mine) motivation like suffering" PHEW, yes!

I got the new LMNT lemonade and it's so yummy but it's giving me a mast cell reaction 😭😭😭

A cool thing is if we even just masked in the places where it’s easy—the grocery store, the subway, sitting at your desk at work—we’d likely take a big bite out of the overall transmission rates, and then there’d be a lot less risk in the settings where mitigation is hard, like at meals.

COVID vax have been found to reduce stillbirths, preeclampsia, & other negative health outcomes. This RFK “guidance” will cause death & disability. Fascists are weaponizing your body. Illness is a bullet. Your maskless face is a gun. Refuse to comply. Wear an n95. Give/get mask mutual aid:

I got used to not shopping at Target quickly, so I'll just keep it going

What people don't seem to understand is that even if *they* are not using Medicaid, a large share of their providers' patient population does. That means that their healthcare providers may be unable to stay solvent and in practice when Medicaid is cut. We all lose when Medicaid is cut.

Remember when the claims were that it would be a seasonal winter virus? We’re a long way from that.

“But you don’t look sick!” Many disabilities are invisible. It doesn’t make them any less real. We’ve also been conditioned by society to hide our pain. People don’t want a reminder of chronic illness & disability. They want us to sell them the comfortable lie. To say we’re “fine” We’re not fine

Oh I know! Because most seemingly credible public health institutions lied and said it was no biggie and they didn’t need to protect themselves (also it’s probably well over 300 thanks to spotty reporting, and at times has been up to 2000 in the last year)