Today at the protest downtown, white organizers with 50501 called the police on a vendor for selling Black Panther merchandise in their protest even though he only had a small table and stayed out of the public right of way. Here is the vendor’s statement:

I keep meaning to post more. Lots going on getting settled in our new home and rehearsing for a show in NYC. I crashed today. ☹️ And have lots of MSK pain lately. It’s so hard to rest and pace when I need to. The world doesn’t slow down for chronic illness and disability.

A second child has died of measles in Texas. The child was unvaccinated. Tragic and preventable, this is a direct consequence of anti-vaccine disinformation.

We’ve signed this letter by @longcovidkids.bsky.social to Wes Streeting & @ashleydaltonmp.bsky.social. Millions suffer complex chronic illnesses without effective care. And no dedicated #LongCovid research funding from Gov. since 2021. Economic impact is mounting. This can’t go on. #FundOurFuture

It’s time to mask back up (N95 or better please!) Resistance is easier when you have your health. Coping with fascism, climate change, supply chain disruptions & food shortages will be easier if you have your health. Disabled people need your solidarity. Protect us & protect yourself. Mask up

Columbia University agreed to a mask ban to appease Trump. The school is no longer safe for disabled individuals, not to mention anyone who protests or speaks out on civil rights or Palestine. Whatever your politics, mask bans should enrage you. They violate our freedom to avoid infection.

PS I remember being in the ICU seeing multiple patients die every shift and having people accuse physicians of killing patients by intubating them (when they couldn’t breathe). The reckoning I’d like to see is on why people were so keen to demonize the people sacrificing ourselves to care for them.

If you have a federal grant, I *highly* recommend going to this Friday's webinar on responding to grant terminations. Lisa Brown, former general counsel at Dept of Ed, will present along with other lawyers. Friday, March 21, 2-3 pm. More info & register here: www.linkedin.com/pulse/regist...

Finally: LONG COVID. Post-Viral Epidemiology is up. -symptoms -why it happens -who believes in it -why it sucks so bad -what you can do Dr. Wes Ely is THE guy when it comes to Long Covid. Spread this around to anyone it might help -- which is everyone. www.alieward.com/ologies/post...

This is so upsetting: “Johns Hopkins University, one of the country’s leading centers of scientific research, said on Thursday that it would eliminate more than 2,000 workers in the United States and abroad because of the Trump administration’s steep cuts, primarily to international aid programs.”

Today @thesicktimes.bsky.social: An honor to feature Angela Laffin, founder of @lcawarenessint.bsky.social, with an essay discussing the history behind #LongCovidAwarenessDay2025 and how people can get involved tomorrow. #CureLongCovidNow ! thesicktimes.org/2025/03/14/o...

5 years have passed and millions are affected globally All are still waiting for a cure #LongCovidAwarenessDay

BREAKING: Hundreds of Jews and allies have taken over Trump Tower chanting “We want justice, you say how. Bring Mahmoud home now!” and “Fight Nazis, not students.” The civil disobedience is spawned by the ICE arrest of Palestinian student Mahmoud Khalil.

Today is a MAJOR day for #LongCOVID awareness week! Contact HHS Sec Kennedy, state and local health depts, demand masking in healthcare facilities, & help support those fighting for public health! Instructions: bit.ly/LCA-THU

3/2/21, Newsweek: "COVID a 'Cruel' Chronic Condition for Some Long Haulers, Says NIH Director Francis Collins" Collins: "..we need to find out everything we can about how to help them." '..the NIH received $1.15 billion in funding..to investigate..' www.newsweek.com/covid-cruel-...

I do wonder how much of the right wing turn against the rhetoric of “trauma” comes from its application giving medical credibility to the suffering of rape victims.

‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten

I wish I could repost this a bunch of times for emphasis. The way society is ignoring long covid - and government is defunding support for long covid - is maddening. And then they ask "why are more ppl on disability benefits"? I WONDER COULD IT BE THE MASS DISABLING PANDEMIC?

Imagine being a teenage girl now. Your male peers are all watching Andrew Tate and doing Nazi salutes and every week the most prestigious magazines in the world run a piece about how it’s a social emergency that you’re not having babies in the 10th grade.

Big numbers for the latest @BisexualBrunch and At 3hr13m we’ve our 3rd listener bi story of this ep- Andrew White from doncaster tells their pansexual journey story. Listen to The full show with samanthabaines Ashley Byrne & Lewis Oakley now bisexualbrunch.buzzsprout.com/903484/episo...

Had my first rehearsal yesterday (on the 1st day of Long Covid Awareness Month). It felt fucking incredible to have my brain on board the entire time learning & remembering the choreography. I’m hurting and crashy today, but oh the thrill to be back in NYC tap dancing. ☺️

USDA says it accidentally fired officials working on bird flu and is trying to rehire them In a statement, an Agriculture Department spokesperson told NBC News that officials are "working to swiftly rectify the situation." www.nbcnews.com/politics/dog...

CW: unimaginable horror related to suicide and deportation Truly unbearable: an 11 year old took her life after being bullied by classmates threatening to call ICE on her family. www.independent.co.uk/news/world/a...

"POTS is dizziness on standing" "ME is fatigue" "Sjogrens is dry mouth/eyes" "MCAS is hives and anaphylaxis" "Antiphospholipid syndrome is clotting" "Endometriosis is heavy/painful periods"

In happier news, today is National Black Women Physicians Day. My fellow Black women physicians and I proudly stand on the shoulders of Dr. Rebecca Lee Crumpler (1831–1895), who, in 1864, became the first Black woman to earn a medical degree in the United States.

If you want to “Make America Healthy Again,” one of the worst things you can do is slash the budget of the world's largest public funder of biomedical research, the National Institutes of Health.

New tattoo! Every year, I do a big rainbow Pride garden on my front lawn. Started in 2017, as a response to a hateful man across the street. 🏳️‍🌈

dear reporters: please try to add alt text on your images! lots of disabled folks use bluesky (along with the rest of the internet) and many others allied in their struggle do not want to share posts that ignore them. i won’t share your posts if you don’t use alt text!

Trying to find moments of tranquility as we live through this terrible time.

BREAKING: Republican Congressman Andy Biggs has introduced a bill to abolish OSHA. The entire text of the bill reads "The Occupational Safety and Health Act of 1970 is repealed. The Occupational Safety and Health Administration is abolished."

People forget that OSHA also regulates laboratory safety. In the case of infectious diseases, dangerous substances and others, eliminating OSHA protections is a matter of life and death. #OSHA

Trump/Musk shutting down USAID puts us all at greater risk.

Join DSA, CIR-SEIU, and NY Docs for a rally tomorrow, Monday Feb 3rd @ 6:30PM at St. Vartan Park - East 35th & 2nd Ave to demand NYU-Langone reverse its recent decision to stop providing gender-affirming care to trans patients under 19. RSVP: actionnetwork.org/events/prote...

New car. Not letting it try to kill me like the last one did. In all seriousness though, I’ve worked so hard the past 5 years to keep my body going with Long COVID. Obviously, it’s only getting harder now with [gestures broadly at everything]. Finding joy & empowerment where I can.

“First do no harm”

OMG—American Airline flight ✈️ 5342 (American Eagle) has collided with a helicopter 🚁 on approach to DCA airport just over the Potomac River. The AA 5342 is a Bombardier CRJ700 with a capacity of 68-73 passengers.

Just released memorandum from OPM: Federal facilities will now have a bathroom ban for transgender people. It will go into effect on the 31st. It also has a slew of effects and puts into place the 1st anti-trans EO policies for every agency. This will have a ton of impacts very quickly.

I’m seeing people applauding RFK Jr for saying “yes” to Long Covid research. Please do NOT applaud this man. Yes it’s a good sign a Republican Senator asked about Covid. But RFK Jr is dangerous, his hires will be dangerous, this will not advance the cause of Long Covid

I have been keeping my citizenship certificate, SS card, NY PT license, and NJ PT license, plus my driver’s license, on me at all times. I travel a lot around NYC and NJ. ICE is everywhere.

Happy Lunar New Year!!! Not a fan of what’s been happening for you in the Gregorian year so far? Today is a good opportunity to start the year afresh. Reflect. Recommit. Re-energize. Embrace the new moon energy of rebel, reform, and rebirth. May it bring you health and prosperity! 🌚 🧧

Saw a photo of ICE walking into a deli in The Bronx today. I was there, right outside that deli, in December. Even took a photo, because I was in my grandma’s old neighborhood. Brian thinks I’m gonna be ridiculous walking around NYC with my papers (and PT licenses). But, what else can I do.

If I could help non disabled people understand one thing about being disabled, it would be how important maintaining a baseline is. When you’re chronically ill, your baseline is everything. Even minor setbacks can be catastrophic, so we have to do a risk analysis before literally ANY activity 🧵

Also to clarify the first post-being disabled at work can be stigmatized for everyone, visible or invisible. Stigma contributes to people w/ invisible disabilities not even asking for accommodations because they don't want to "out" themselves.

Being open about disability at work (for those with invisible disabilities) can be very stigmatized. I'm afraid the snitch line for federal workers on "DEI hires" will set any progress on this so much.

“If there are no good people left in the world, I want to be the last one. And, that’s the ethos every single one of us can take.” ~ @aoc.bsky.social

what are we reading this week? quote this and tell us 🌈📚

No I'm not crying after reading @miamingus.bsky.social's "To the You that Used to Be Home: An Anatomy of a Disabled Heartbreak" in @sfdirewolf.bsky.social's Disability Intimacy: Essays on Love, Care and Desire, you are.

"It's not their fault, they just don't know any better" is something that can be true about small children, not grown adults who are responsible for their actions and treatment of others.

% p. 44: Given how many drugs weren‘t tested in woman—or, even when they were, evidence of differences was ignored—it is perhaps not surprising that women are 50 to 75 percent more likely than men to have an adverse drug reaction. 4/