The Sick Times @thesicktimes.org : "we need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet" thesicktimes.org/2025/10/30/w... Register for trial longcovid.scripps.edu/locitt-t/ Screenshot from latest Science for ME weekly update #LongCovid #PASC

🚨 Reminder to Americans as we "fall back": check your smoke alarm batteries if you lost / have a diminished sense of smell due to covid. 1-22-21 ⬇️ "Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19." #longcovid

1/ "The reality is that we have been living in this deeply flawed landscape of 'personal choice', & you’ve made yours": annabookwriter.medium.com/to-my-unmask...

🚨 Attention🚨 Research shows that poor ventilation and elevated CO₂ can slow decision‑making, reduce focus and even decrease output. 👉 Want to dig deeper? shh-uk.org/high-co2-... or link in bio. #WorkplaceWellbeing #SafeAir4All #Longcovidawareness #longcovid

The management meds that were supposed to help tanked their baseline. #CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS

October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS. Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)

His workplace told him to come in anyway after testing positive for COVID. #CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS

The doctor explained that her test results were normal. #onesentencehorror #LongCovid #MECFS #ChronicIllness #CovidIsntOver

Migraine Aura. That's it, that's the sentence. #onesentencehorror #LongCovid #CovidIsntOver #MECFS

Their family refuses to take a COVID test. #onesentencehorror #LongCovid #CovidIsntOver #MECFS

The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is now open for enrollment for people with Long COVID in all states but Hawaii (due to concerns about maintaining temperature control in shipping), DC, and PR: longcovid.scripps.edu/locitt-t/?ut...

University of North Dakota researchers found that the SARS-CoV-2 spike protein drives brain cell aging by triggering TLR7 in human astrocytes. This could explain lingering neurological symptoms in long COVID. jneuroinflammation.biomedcentral.com/articles/10....

They ran out of electrolytes. #onesentencehorror #LongCovid #CovidIsntOver #MECFS

Her smartwatch gave her a high heart rate notification while sitting. #onesentencehorror #LongCovid #CovidIsntOver #MECFS

The CO₂ levels in the windowless room were over 1600 ppm. #onesentencehorror #LongCovid #CovidIsntOver #MECFS

The nurse washed her hands in front of him, but didn’t wear a mask. #onesentencehorror #LongCovid #CovidIsntOver #MECFS

She talked on the phone with her bestie, forgetting about the inevitable PEM crash that would follow. #onesentencehorror #LongCovid #MECFS #CovidIsntOver

Welcome to Emerge Australia’s #mecfs and #longCOVID Action Forum event in Parliament House, Canberra, today. Our event, “From stigma to science: educating for change” is live streamed. You can register here: us02web.zoom.us/meeting/regi... We will be live posting on this thread. 🧵

🚨 New episode just dropped: Twist, Turns, & Crashes: Part 2. 🚨 Noah returns for a discussion on the grief of losing athletic dreams. Spotify: open.spotify.com/episode/0mIj... Apple: podcasts.apple.com/us/podcast/c... Transcript: covidlonghaulerspodcast.substack.com/p/transcript... #LongCovid

💙 Call for contributions 💙 For the book about #ME & #LongCovid we'd love to include real voices from the community about experiences with Drs The form is short & anon Every story matters 💙 forms.gle/jSCvZN39xAum...

A warning for those pursuing a ketogenic diet for their Long C-19 👇🏻👇🏻👇🏻👇🏻 www.science.org/doi/10.1126/...

We have been living with unnecessary infections in hospitals for years. Ffp3 respirators work. They do outside too! No need to keep catching covid and risking #Longcovid. www.theguardian.com/world/2021/j...

Neuropsychiatric symptoms, impaired visual perception, and gray matter volume differences are evident in pediatric long COVID cases. The severity of neuropsychiatric symptoms during the acute phase may predict the degree of chronic-phase brain volume alterations. www.pedneur.com/article/S088...

✨ Did you know Long COVID can impact every part of the body? The Lancet documented 203 symptoms across 10 body systems, and the average patient reported 56 different symptoms across 9 systems.

If you can’t take Paxlovid, Metformin is another great alternative to help prevent Long Covid. www.medicalnewstoday.com/articles/com...

Studies show SARS-CoV-2 lingers in the gut of Long COVID patients for months, even over a year. Their gut microbiome also differs significantly from those who fully recovered.

Catching SARS-Cov-2 reduces IQ. The IQ drop is measurable even in asymptomatic covid infections where the person doesn't identify as having long covid (in other words they do have long covid but don't realise it) Study: www.nejm.org/doi/full/10....

Back in May, we partnered with @emergeaustralia.bsky.social  🌍 Now we’re highlighting the powerful tools that came from it. These free education modules help you: ✔️ Understand PEM ✔️ Recognize orthostatic intolerance ✔️ Build a pacing plan Explore them now: https://emerge.org.au/lea-ea-bhc/

MEAction welcomes caregivers of people with chronic diseases such as ME, Long COVID, MCAS, etc. to an international support group on Sat 20 Sep, 8.30 pm GMT [held 3rd Sat each month] tinyurl.com/2np2tw2x

We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)

When you get a vaccine or a medical checkup, we expect the healthcare worker to wash their hands and wear gloves. We should think the same about wearing masks in medical settings. Viruses can spread pre-symptomatically; masks are another effective infection control measure.

These covid infographics are amazing, check out this account 💪🏻 #LongCovid #CovidIsntOver

People with #LongCovid can feel over time that we are on a rollercoaster against our will... Check out Episode 13: Twists, Turns, and Crashes: open.spotify.com/episode/3UGn...

🚨 New episode, Ep 13: Twists, Turns, and Crashes just dropped! We sit down with Noah... #LongCovid Spotify: open.spotify.com/episode/3UGn... Episode writeup: covidlonghaulerspodcast.substack.com/p/twists-tur... Transcript: covidlonghaulerspodcast.substack.com/p/transcript... 🧵 1/3

And if you fear that you will now be at higher risk of death and complications because you cannot stay up to date on vaccines, please consider for a moment that that is the burden you’ve been happy to put on disabled and vulnerable people for several years.

If you are angry, as you should be, that restricting access to the vaccine will make covid worse and more dangerous, please start wearing a mask, which actually does a significantly better job of preventing transmission in the first place.

“I probably wouldn’t be able to play them so well now [..] Lack of use, plus three bouts of COVID, probably phased out the plectrum for me” Legendary Dire Straits guitarist Mark Knopfler on how SARS-CoV-2 infection affected his ability to play music #LongCovid www.guitarplayer.com/players/mark...

From Canada: "the high prevalence of new-onset chronic symptoms in the latter stages of the pandemic is concerning, especially considering that most infections occurred post-vaccination" bmjopen.bmj.com/content/15/7... Screenshot from latest Science for ME weekly update #LongCovid #PASC

What if your body couldn’t bear light, sound, movement — or even touch? Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years. For people living with Very Severe ME, this isn’t a metaphor — it’s reality. 🧵

Study examines impact of long COVID on healthcare use US adults with long COVID had a nearly 3-fold increased risk of additional hospitalization compared with those who had SARS-CoV-2 infections but not long COVID. www.cidrap.umn.edu/c...

Today, is severe #ME/CFS Awareness Day. What is “severe” ME/CFS? About 25% of ME/CFS sufferers are homebound or bedbound, meaning they cannot easily move around or leave their homes without significant assistance. Eating, drinking, and breathing can be extremely difficult. #pwME #MECFS 1/4

June 21st was the last CDC update of SARS-CoV-2 genomics. That is inexcusable and represents an abdication of responsibility

"When you have cancer you you have a team looking after you When you have MEcfs or long covid or another non seen illness you have no one .. nada." Credit: AmbrosineShit... @AmbrosineSh... #UnitedForME #SevereMEDay #MySeveralWorlds #pwME #MillionsMissing

For folks (like me) hoping to get a Novavax/Sanofi Covid vaccine in the US this fall (cf quoted post 👇), here's a recent Twitter 🧵 w/ more info about the JN.1 target choice: threadreaderapp.com/thread/19532...

🚨 New Special Episode, "Episode 12: Genes, Brains and Pain: The genetic basis of ME/CFS" just dropped! #LongCovid #MECFS Spotify: open.spotify.com/episode/5cOq... Transcript: covidlonghaulerspodcast.substack.com/p/transcript... Writeup: covidlonghaulerspodcast.substack.com/p/genes-brai...

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to [email protected]. Live stream on FB. Later: YouTube.com/@covidlonghaul…

I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/

More women than men are getting long COVID. You are also more likely to get it if you are poor and unable to rest or if your child returns to school with Covid. No child should be in school with Covid until a test is negative. Then they should also have a period of time without sports to recover.🧵