Many studies suggest problems with the immune system in ME/CFS. In addition to our recently published factsheet (tinyurl.com/mecfsimmunity), we have now published a simpler overview of how ME/CFS and immune system are associated: tinyurl.com/meimmune

Here's a preview of an amazing documentary coming out this week by @longcovidkids Explaining long covid in kids, with testimonies....this will be a tear jerker, but a gooder. www.facebook.com/share/v/14Kq... Heart wrenching…please share far and wide if you are able…we owe this to our children!

‪@longcovidkids.bsky.social‬ In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day. Made in collaboration with young people with lived experience. youtu.be/e0U7K54RiSg?...

✨ Did you know Long COVID can impact every part of the body? The Lancet documented 203 symptoms across 10 body systems, and the average patient reported 56 different symptoms across 9 systems.

Dysfunction of natural killer cells (immune cells that can destroy infected cells) has frequently been implicated in ME/CFS. The findings of a recent study exploring gene variants (alleles) further support the role of these immune cells in ME/CFS. www.meresearch.org.uk/natural-kill...

As COVID-19 cases continue to increase, it's important to know accurate information about COVID-19 in order to protect yourself and others! Get the facts about common myths, and take steps to protect yourself and others.

The 'Biomedical & Basic Science Research' session at the 2025 #LCWSymposium explores experiences of healthcare professionals, brain activity changes linked to #LongCOVID, & pulmonary pathophysiology. Date: Oct 20, 2025, 1.45–2.45 PM NT Register now: bit.ly/4hRoczz

SEPTEMBER 8, 2025 LONG COVID THE ANSWERS! A GREAT WEBSITE FULL OF SCIENCE BASED INFORMATION AND A LIBRARY OF EDUCATIONAL VIDEOS! longcovidtheanswers.com?fbclid=Iwb21...

A study has found that haptoglobin – a protein that plays a crucial role in recycling iron and protecting the body from the harm caused during oxidative stress – may be linked to post exertional malaise. Read more: tinyurl.com/47n95ae8

Neurovascular Sequelae of SARS-CoV-2: A Comprehensive Analysis of Blood-Brain Barrier Disruption, Microthrombosis, and Cognitive Impairment in Long COVID Study reveals how SARS-CoV-2 hijacks testicular lipid metabolism to replicate. Covid Could Be Quietly Aging Your Arteries by Five Years.

And all that crap adds up and takes away from your energy threshold and often becomes a vicious curcle lasting days/weeks

Results from a small study of 24 people with ME/CFS and 24 healthy controls has provided clear justification of the need for researchers to further investigate the role steroid hormones may play in ME/CFS disease mechanisms. Read more here: tinyurl.com/kyceup2y

UPCOMING WEBINAR! REGISTER NOW! solvecfs.org/event/the-un... #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem #me

🦠 SARS-CoV-2 reinfections may increase risk of Long COVID 👨‍🦳 Persistent infections from viruses, bacteria, fungus, and parasites can accelerate human aging 💊 A new clinical trial to test immunotherapy drug Anktiva #LongCOVID research updates: bit.ly/45KqyMq Source @thesicktimes.org

Please join the Community Symposium on the Molecular Basis of ME/CFS with opening remarks by Ronald W. Davis, PhD, Stanford University, followed by a welcome from Linda Tannenbaum, OMF CEO. 🗓️ September 5, 2025 ⏲️ 8:00 am – 2:30 pm PST 💻 Zoom 👉 Register here: ow.ly/9zRg50WIbO3.

AUGUST 20 SCIENCE WEDNESDAYS! #Neutrophils are a type of white blood cell. They play an important role in the immune system, especially in fighting infections. Neutrophil dysfunction is associated with chronic inflammation, making them particularly relevant for #MECFS. www.omf.ngo/neutrophil-a...

NEW ARTICLES - AUGUST 19, 2025 Headline: Why scientists are rethinking the immune effects of SARS-CoV-2. Headline: “The field is coming of age”: Long COVID researchers gather in Santa Fe to foster collaboration. docs.google.com/document/d/1...

Mast cells are a type of white blood cell that plays an essential role in the body's immune system, particularly in allergic reactions 🤧 and defense against pathogens 🦠. More info in comments #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #science #medical #canada

ME/CFS and PEM… No matter how much we think we know what to do I for one can always use such reminders especially in such palatable and concise simple visuals. And more often than not I tend to walk away with a slightly better understanding of MECFS and PEM which is huge in terms of management.

Researchers from around the world will be attending the Keystone Symposia Sante Fe: Long COVID and Other Post Acute Infection Syndromes! Aug 10–13, 2025 Scientific Organizers: Akiko Iwasaki, Avindra Nath, Hannah Davis, and Daniel M. Altmann. REGISTER HERE www.regionviidhre.com/events-calen...

AUGUST 8, 2025 MITOCHONDRIA AND ME/CFS! www.meresearch.org.uk/mitochondria... #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem #me

Not enough space here, but check out this Important research, posted on our I.G www.instagram.com/p/DNGLh8MRIQ...

August 5, 2025 @ 12pm ET Canada is on the brink of setting a historic national standard for airborne protections — but it’s under threat. Join us for a crucial Town Hall featuring Dr. Dick Zoutman to discuss this matter. Your voice and presence matter. Register: necsi-edu.zoom.us/meeting/regi...

And in most cases, add PEM and the fact that our cells are not regenerating like before....this can snowball very quickly. In my case ,3 weeks straight, has been the longest I wasn't able to move or do anything from CFS and others mentioned above. It's no joke people. #cfs #longcovid #pem #me

Quick sheet to give you an idea #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem #me

ACCEPTING CANADIAN PARTICIPATION! #MECFS research of potential treatment (Hydrogen Water): Volunteers needed. New study of OTC supplement for chronic fatigue symptoms. Home-based. Participants paid up to $100. contact the study coordinator: [email protected]

‘post-COVID-19 condition’ from healthy controls, those with ME/CFS, and those with fibromyalgia. Will put rest of text in comment, check it out. #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #canada Read more: bit.ly/4o6g4zv

The full program for the 3rd Canadian Symposium on #LongCOVID is now available. Explore sessions on clinical care, biomedical research, and lived experience: bit.ly/3H0cVR8 Register now to attend in person or online, October 20–21, 2025: bit.ly/4hRoczz #LCWSymposium #longcovid #covid

CANADA! This is urgent, please share and take the time to complete. DNHBC has made easy to follow instructions, but if you don't have time/capacity to comment on all sections, please complete Section 9 which focuses on Healthcare!! We need as much public comments as possible! #CovidIsNotOver

Headline: Diagnosis and Management of Long COVID in Children and Adolescents: An update after 5 years of Clinical and Research Experience. Updated library #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #pem

Naturally, there is a lot of interest around ME/CFS and the brain, especially considering symptoms such as cognitive dysfunction. More about a study that explored brain differences related to the type of disease onset involved in developing ME/CFS bit.ly/4m4ZOgs Source @meresearchuk.bsky.social

🧠 What is Dysautonomia? 🌀 It’s not “just anxiety.” It’s not “in your head.” Dysautonomia is a real neurological disorder that affects how your body regulates things like heart rate, blood pressure, digestion, and temperature. And for millions, it’s completely life-altering.

JULY 12, 2025 DR. DAVID PUTRINO SHARES HIS STRATEGY BEHIND THE SINGLE VS. COMBINATION DRUG TRIALS WITH DR. FUNMI OKUNOLA. m.youtube.com/shorts/tNbbE... #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #pem #canada

Here's the summary of the article from Simon Source: The Sick Times Share share share, this is ridiculous. #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada www.instagram.com/p/DL5VNUVMLp...

ATTENTION ALL: It is extremely important for us to be somewhat aware of the ongoing challenges and obstacles LC advocacy can be confronted with…and this awareness itself is an essential part of advocacy for our community. thesicktimes.org/2025/07/08/e...

JULY 7, 2025 www.youtube.com/watch?v=tMGz... Professor Todd Davenport relays his clinical experiences with Dr. Funmi Okunola - Long COVID the Answers. #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #mask #masking #britishcolumbiacanada #canada

"Long COVID is a real condition, and neurological symptoms are not imagined or exaggerated. Dismissing these concerns can not only delay recovery but also undermine trust in the healthcare system." www.onlymyhealth.com/neurological... Source: ME Association

🎥 Video Update: A Muscle Biopsy Study to Understand the Molecular Mechanisms of #PEM More in comments #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #pem #canada 👉 Watch the interview and learn more about this study: ow.ly/HFhc50WkrZ4.

What is the threshold over which PEM is induced in chronic illness? This is a hugely important question for sufferers, and one for which Rob Wüst is trying to find an answer. open.spotify.com/episode/6vL3... #covid #covid19 #longcovid #longcovidawareness #me #cfs #worldwide #science #medical

Biomarkers are measurable clues within the body that tell us about the presence of a disease, and can give information about disease progression. In case you missed it, we have published an article to help you understand what makes a good biomarker: bit.ly/mecfsbiomarker @meresearchuk.bsky.social

In this video, Dr. David Putrino discusses the nuanced relationship between movement, heart rate variability ( #HRV), and post-exertional malaise ( #PEM) in people living with complex chronic illnesses like #ME/CFS, Long Covid, Fibromyalgia, and Chronic Lyme Disease. youtu.be/pfoxIWgmWrM?...

Keep that in mind please and stay safe #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem

NEW ARTICLES - JUNE 25, 2025 ****Trigger Alert**** Headline: Evaluating IL1RA-Autoantibodies Across SARS-CoV-2-Related Diseases. Headline: Long term effect of COVID-19 on brain metabolism and connectivity. docs.google.com/document/d/1... Library updated daily

Dr. Sarah Annesley, who is currently working on research funded by ME Research UK, has written an article for 'The Conversation' titled “It’s not just chronic fatigue: ME/CFS is much more than being tired.” More in comments Source @meresearchuk.bsky.social

Dr. David Putrino's lecture at the ME/CFS and Long Covid Conference Digging Deeper in Stavanger, Norway 8th May 2025. youtu.be/HfODHSlS-7s?... #covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #pem

***Long Covid Web Patient Advisory Council (PAC) Call for interest*** As some of us are reaching the end of our term, and due to step down at some point this year, there is an opportunity to join the PAC! Please take a look at the link mailchi.mp/utoronto/abs... More info in comments

PolyBio Research Foundation continues to push the envelope in terms of medical research in the field of better understanding the role of the immune privileged vagus nerve in IACCs. polybio.org/projects/vag... #covid #covid19 #longcovid #longcovidawareness #me #cfs Source @polybiorf.bsky.social

NEW Headline: Severe COVID causes long-lasting coronary microvascular dysfunction, new data show. Headline: Immune Dysregulation Could be the Tipping Point for Long COVID. Headline: Study suggests kids with severe COVID-19 have lasting metabolic changes. docs.google.com/document/d/1...

#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem

" Clinical and Translational Medicine" has identified significant differences in the responses of extracellular vesicle particles in the body which play a key role in communication between cells following exercise between males with ME/CFS and male sedentary controls. tinyurl.com/3uwc7ehz