"The site is 'a shiny bauble to distract us from the hard fact that we will not see help or progress in this administration,' she said. 'They have yet to prove otherwise.'" Thank you, @thesicktimes.org and @betsyladyzhets.bsky.social for highlighting this issue. thesicktimes.org/2026/03/31/n...

We need you not to join our ranks: wear a respirator mask, stay home when sick, ventilate to reduce everyone's risk. Do the hard things for all of us, because it's a lot harder when you have #longCOVID. 4/4

On #LongCovidAwarenessDay, we need you to stand with us, as many of us can no longer stand on our own. We need to you speak up, as many of us no longer have the breath to scream. We need you to fight for us, because every ounce of energy we have is spent fighting to stay alive. 3/4

It is also one of job loss and housing instability, food insecurity and medication rationing. Of gaslighting and disbelief. Of being left behind by the world. And slow death. It's preventable. 2/4

There's a liminal area the world ignores after COVID. It's a world of heart disease and neurological damage, of vertigo and vision loss, gastric disorders and endocrine hell. 1/4

Many thanks to @publichealthaction.bsky.social & @airsupportproject.bsky.social for hosting today's Zoom on living with long COVID with @ancirabecky.bsky.social and me. It's been a long six years, but I'm grateful you've been by my side, Becky. Watch here: www.youtube.com/live/NK3-hQN...

Join us! Becky and I will be talking about living with long COVID, what we're doing about it, what keeps us going. You'll need to have a registered (but free!) Zoom account.

Join us! We'll be talking about how long COVID has affected us, what we've done about it, and what keeps us going.

I could have told you that. Everyone could have.

We interrupt this otherwise long COVID-devoted feed for a moment of joy.

Join us! We'll be talking about how long COVID has affected us, what we've done about it, and what keeps us going.

If you’re wondering why the Trump Administration is cutting off health care for people across our state - look no further than the President’s own words: “retribution is coming”

Join us! Becky and I will be talking about living with long COVID, what we're doing about it, what keeps us going. You'll need to have a registered (but free!) Zoom account.

Really looking forward to this, @chimsween20.bsky.social! Y'all, go sign up for this!

Firing of #neuroscience institute chief adds to NIH’s leadership vacuum. Trump administration declines to renew appointment of Walter #Koroshetz, against #NIH director’s wishes. www.science.org/content/arti...

@mollyboom.bsky.social it's hard to believe we're starting a new year without you, Molly. You are loved and missed. That fierce rainbow sunshine.

Thank you, @panagis.bsky.social, for speaking with us! As always, we're appreciate you. Pulmonary town hall, long COVID. youtu.be/1OnfLSXZsEE?...

New Long Covid policy paper from Norway outlines knowledge gaps and lessons learnt for developing preparedness for future pandemics. Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues. www.nordforsk.org/2025/knowled...

Looking forward to it, @panagis.bsky.social!

There's a level of COVID denial that led to 400 million people and over 7 million dead. I won't say I told you so when it happens to you -- I'm not cruel like that. Good luck.

Conflating COVID activists with anti-vaxxers is ableist garbage. Long COVID has upended ~25 million American lives. Anti-vaxxers fuel outbreaks that cause preventable child deaths. Hope this helps

Long Covid plagues 400 million worldwide. COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP. archive.md/eZezE

Town Hall: Inside a Long COVID Clinic, with Julie Sullivan, program manager at the Brigham and Womens COVID Recovery Center, Boston. youtu.be/1iskw3zBLpA?...

Looking forward to it, @panagis.bsky.social!

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to [email protected]. Live stream on FB. Later: YouTube.com/@covidlonghaul…

🚨🚨 Help Needed! 🚨🚨 Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!

BREAKING: Homelessness Minister Rushanara Ali has resigned after she was found to have evicted tenants and hiked rent to £4000 per month More to follow

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to [email protected]. Live stream on FB. Later: YouTube.com/@covidlonghaul…

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social We won't be able to take your questions live. Please submit in advance to [email protected]. Live stream on FB. Later: YouTube.com/@covidlonghaulers

"...you don’t need to provide the VA with any additional documentation to prove service connection. If you meet these criteria and are still experiencing long-term symptoms, you may be eligible to file a VA disability claim." @fpwellman.bsky.social themilitarywallet.com/covid-19-va-...

Guerilla Advocacy: No Camps Virtual rally July 19. youtu.be/Z6X_mqmSdgs?...

Event will be recorded, and media will be present. Replay: YouTube.com/@covidlongha...

@morgfair.bsky.social Grayson and Hayden are on their way to grab their belongings that were left behind in Topeka. They're going to be okay. I told them I'm proud of them, and everything this Carrie Fisher meme says.

We would love to have you join us on Saturday! Space is limited, so register while you can.

Today's Guerilla Advocacy rally with @clhagainstfascism.bsky.social @effies.bsky.social @gregggonsalves.bsky.social @chantzy.bsky.social @beingcharis.bsky.social and poetry by @kristinwrites.bsky.social I hope everyone is able to take at least one nugget from this today. youtu.be/JpYKvimTzXU?...

@covidlonghaulers.bsky.social FYI NY Lawmakers need to hear from real people, not billboards. Call now and say #NoNYMaskBan in the state budget! ⚡Join a phone zap this week: bit.ly/budget-mask-... ☎️ Call Anytime Toolkit:

Thank you so much for being there, @metrauxjulia.bsky.social! Everyone who couldn't make it, we are hosting another rally next Saturday. Looking forward to seeing you there.

Register below!

Please help Brittany, a homeless COVID long-hauler in Florida and mom to a toddler. Thanks!

Filing for Disability, #3, with Beryl Terrell, EDPNA, BLH Disability. #Disability #SSDI #longCOVID #ChronicIllness youtu.be/e4e2P1N3K1o?...

In the New Year @theguardian.com will be putting out a short documentary about my life living with #LongCovid. Please watch it to understand how debilitating this disease is and how urgently we need treatments. Thank you.

Tick tock, still some time left on the clock! You can help families in need affected by long COVID this year with Christmas. Their wish lists are in the link below, wants and needs for everyone in their homes. Thank you for giving and sharing! thevillagechristmas.wordpress.com/2024/11/19/t...

Remember back in April when the first cats were dying after being fed milk contaminated with #H5N1? Guess what scientists found in their brains? No one could have foreseen this. @tryangregory.bsky.social I think I am learning how to predict the future as well. www.tandfonline.com/doi/full/10....

It's not too late to help families in need this Christmas! All have been affected by long COVID, and their wish lists are filled with needs and wants for everyone in their home. You can also help by sharing this post. Happy holidays, everyone! thevillagechristmas.wordpress.com/2024/11/19/t...

It's not too late to help families in need this Christmas! All have been affected by long COVID, and their wish lists are filled with needs and wants for everyone in their home. You can also help by sharing this post. Happy holidays, everyone! thevillagechristmas.wordpress.com/2024/11/19/t...

More than 75 Nobel Prize winners have signed a letter urging senators not to confirm RFK Jr. The letter marks the first time in recent memory that Nobel laureates have banded together against a Cabinet choice. But Kennedy is a threat they could not ignore, one said. www.nytimes.com/2024/12/09/h...

Stages of #Neurocovid denial: Unvaccinated Flight attendant had to retire due to neurological conditions. “I’m still having vax injured type symptoms - but I'm NOT vaccinated" Hey @badmedicaltakes.bsky.social this is case for you.

Coming up Tuesday, December 10! What questions do you have about the immune system, long COVID, vaccines, etc.? With guests @daltmann.bsky.social and @profstevegriffin.bsky.social