#MedSky The current lack of clinical guidelines#PansPandasHour leaves families vulnerable to misinformation, the NHS wasting money on inappropriate care, and children suffering life-threatening, chronic symptoms. This is welcome news. 🧠💔 @rthonwesstreeting.bsky.social @claudiahammond.bsky.social

The APPG #PansPandasHour is driving momentum for clinical guidelines—uniting child health, education, SEND & attendance. Why wouldn’t any MP want to back this vital, cross-sector issue? 🧠🤝 @charlotte2153.bsky.social @drrosena.bsky.social @chriswebbmp.bsky.social @greenjennyjones.bsky.social

The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines

Two weeks until the next teacher training session on 19th May See all our upcoming events here: panspandasuk.org/events

Did you know that Twinkl offers a wide range of educational resources on PANS and PANDAS? A big thank you to them for making these valuable materials available. www.twinkl.co.uk/resource/pans-pandas-information-and-cpd-pack-t-s-1643108429

If you work in #YouthMentalHealth #MentalHealth #Education #ChildHealth #ChildRights #EdPsych #ChildrensNurse #Nursing #SEND #CYP #ENT #SLT #OT #Psychology #SocialWork #Paediatrics please tag your MP or share this post 👇👇it could help change the course of a child's life.

@dannychambers.bsky.social @drlukeevans.org.uk @drrosena.bsky.social @stephenmorganmp.bsky.social @annadixonmp.bsky.social @sharonhodgsonmp.bsky.social @chriswebbmp.bsky.social @laylamoran.bsky.social @laurakyrkesmith.bsky.social @sojanjosephmp.bsky.social @libdemdaisy.bsky.social

@clairehanna.bsky.social @columeastwood.ie @robinswannmp.bsky.social @sorchaeastwood.bsky.social @grobinsondup.bsky.social pls consider attending APPG on 30th April in Westminster, thousands of children in NI are suffering from these neuropsychiatric conditions. Remind your colleagues also🙏

#APPG #Westminster 🗓️ 30th April #MPs please consider attending, guidelines are imminent and children in your constituency need representation. #NoMoreLostChildren #Pans #Pandas @teamlabouruk.bsky.social @conservatives.bsky.social @sdlp.bsky.social @sdlpwomen.bsky.social @uuponline.bsky.social

So grateful that my MP @michellescrogham.bsky.social will be at this event. Please consider sharing to ensure these clinicians are heard in parliament on Wednesday @rthonwesstreeting.bsky.social @stephenmorganmp.bsky.social @bphillipsonmp.bsky.social @drrosena.bsky.social @oliviablakemp.bsky.social

Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency. Find out more: panspandasuk.org/post/pans-pa...

#MPs, please support the incredible @panspandasuk.bsky.social + the dedicated clinicians heading to Parliament on April 30th to raise awareness for children with #PANS. If you can’t attend, a share means so much! 💜🧠www.panspandasuk.org/post/pans-pandas-experts-invited-to-speak-at-appg-meeting/

I'll edit: "Nearly 20 councils at risk of insolvency due to a decade of austerity, rising citizen poverty levels, a developmentally inappropriate curriculum, an exclusionary and within child cultural understanding of SEND, and a decimated teaching workforce" @theguardian.com #edpsychs

Sadly clashes with Mental Health Committee morning session, but have serious FOMO about this breakfast workshop!

#RCPCH25 the #PansPandasHour community are thrilled to learn @panspandasuk.bsky.social and expert #NeuroSky #MedSky will be at the @rcpch.bsky.social conference 😍

#EduSky #EdPsych we're at a tipping point! The imminent release #PansPandasHour clinical guidelines will reshape the conversation #SEND #attendance & #childmentalhealth. Engage with #CPD by @panspandasuk.bsky.social today. www.nasen.org.uk/resources/tw...

Please share + help #RCPCH25 reach as wider audience as possible #PansPandasHour! 🌍 The world-renowned clinicians leading talks @panspandasuk.bsky.social workshop at #RCHCPtweets conference will change the future of paediatric neuropsychiatry. #MedSky #NeuroSky

🚨 #EduSky, failing to upskill on #PansPandasHour means failing to meet a statutory duty to support students with disabilities. Training via NASEN is essential to provide accommodations + care. Don't risk non-compliance! #SEND #inclusion #Neurodiversity panspandasuk.org/post/pans-pa...

👏 A huge thank you to LA's for their countrywide response! Their commitment to fulfilling statutory duties for children with #PansPandasHour vital ensuring every child gets support they deserve. 🙌 panspandasuk.org/post/local-aut…#MedSkyk#EdSkyk#NeuroSkyk#SENDND

'Lucy was a completely different child.’ The shocking reality #PansPandasHour. I've seen this lighting fast onset with my 5 yr old post #covid. It is beyond a nightmare. panspandasuk.org/wp-content/upl… @1goodtern.bsky.social @michaelrosenyes.bsky.social

panspandasuk.org/post/local-a... 🤗 to see LAs responding positively to @panspandasuk.bsky.social following recent judicial review. This ruling reinforces the importance of #EduSky #EdPsych #MedTwitter recognising #PANS is a med diagnosis—one that professionals have a duty to acknowledge + act on

www.sec-ed.co.uk/content/best... Thank you @seced.bsky.social for highlighting @panspandasuk.bsky.social to the #EduSky community.

Great to see @panspandasuk.bsky.social feature in @headteacherupdate.bsky.social and @seced.bsky.social this month. #EduSky #EdPsych #EP #MedSky #ChangeIsComing panspandasuk.org/post/childre...

She went to bed healthy and woke up a different child." 💔 #PansPandasHour can steal a childhood overnight. Their stories need to be heard. #Edusky #Edpsych #PansPandasHour #EP #neurosky #MedSky panspandasuk.org/wp-content/u...

A terrifying news day. Musk openly doing Nazi salutes. Trump withdrawing from WHO and Paris climate agreement. Scary stuff. www.theguardian.com/technology/2...

Exciting to see @panspandasuk.bsky.social we’re at the inaugural UK #Neuro alliance Forum at #Parliament. Fast past collaboration and change for our community at the moment! #MedSky #Neuro #GP #NHS #PrimaryCare panspandasuk.org/post/pans-pa...

"Clear, detailed and informative information. Explains the condition well and developed my understanding." - Teacher Training attendee For more details and to sign up for free CPD-accredited training, please go to - panspandasuk.org/events/ #PANS #PANDAS #CPDAccredited #TeacherTraining #Education

Thank you @wendychambld.bsky.social and all the MPs dedicated to the @panspandasuk.bsky.social APPG. Their call for #EduSky #EdPsych #teacher training + better #SEND guidance offers a beacon of hope for thousands of children who deserve the highest standard support. #MedSky

#tics #eatingdisorders extreme #anxiety violent or introverted behaviour. I found it harrowing to watch as a parent. #PansPandasHour #GuidelinesNow ⁦‪

@panspandasuk.bsky.social offer free CPD accredited training. Get your tickets booked! #Edusky #EdPsych #inclusion #SEND #inclusion #mentalhealth #neurodiversity #MedSky www.eventbrite.co.uk/e/supporting...

Children with #PansPandasHour become ghosts in their own lives—disappearing from school, friendships, + even their own personalities. It’s time to shine a light on their struggles + demand #guidelinesnow @rthonwesstreeting.bsky.social @pscommissioner.bsky.social @childrenscomm.bsky.social

Looks to be an exciting collab between @tamingolivia.bsky.social + @panspandasuk.bsky.social Youth Board – supporting 👧🏼 battling excruciating #OCD. While this is worth 🥳 let’s not forget: it shouldn’t fall solely on children + charities to support these kids. Systemic change needed. #guidelinesnow

I ❤️ this from Alex Manfull. Fear of inflammatory reductionism 👀from those relying on lazy stereotypes of hysterical mothers musn’t stop 🩺 from recognising the reality—thousands of 👧🏼 🌎wide report #PANS. Inaction risks misdiagnosis—for some, it is fatal #GuidelinesNow

The UK Government has launched the #UK #Neuro Forum, aiming to enhance support for neurological conditions, including @panspandasuk.bsky.social @rcgp.bsky.social #PansPandasHour #medsky #immunology

Advancing research on #immune conditions & mental health is crucial for understanding @panspandasuk.bsky.social Read about the latest efforts in this field: panspandasuk.org/post/furtherin…#PansPandasHouru#Researchc#Neuror#MentalHealthMattersrs @NIHRBioResourc#immunehealthth

Calling all #NHS👨‍⚕️#GP #paedatrics The first UK #CPD-accredited module for @panspandasuk.bsky.social 👇. Please share with colleagues panspandasuk.org/post/first-uk-…#MedicalEducationo#PansPandasHourur

Supporting a child with @panspandasuk.bsky.social ? Discover how occupational therapy can make a difference. #PansPandasHour steppingstonesforchildren.com.au/supporting-you…#PansPandasHouru#OccupationalTherapyp#OTLifef#OTSkyk#WeAreOTO#NeuroOTOT

Exciting news! The @panspandasuk.bsky.social APPG is reconvening, with an impressive 26 members! Marking a crucial step in raising awareness +improving care for affected families💙 #PansPandasHour @wendychambld.bsky.social #changeiscoming #politics

#PansPandasHour A wonderful reminder from Mike Dater. #Immunology #RheumSky #Peds #Pediatric #Psychiatry #MentalHealth #NeuroSky #Neurology #Neuro #MedEd #MedSky

@louiseselby.bsky.social emphasises a critical distinction: #dyslexia does not develop suddenly. For children experiencing writing changes due to @panspandasuk.bsky.social , this misinterpretation can delay appropriate support and intervention.” 🧠💡 #Edusky #SEND panspandasuk.org/post/when-it...

#EdPsych #PsychResearch #TraumaInformed #Inclusion #ChildMentalHealth #Neurodiversity #SEND 🚨 Not #PANS aware? Feeling out of the loop re rapid health advances? Fear not! 🌟 📚 @panspandasuk.bsky.social has launched 2025 CPD sessions 📅 Don’t miss out panspandasuk.org/events/

#edusky #SEND the @panspandasuk.bsky.social FREE #teacher training is approaching and sure to fill quickly. Stay ahead in the fast-paced world of #neurodiversity and #SEND support! Don’t miss out—sign up for the next #cpd session now! #PANS #SLT #headteacherchat #SENCO

gofund.me/5cd2ba2a www.roehampton.ac.uk/news/2024/de... This is what #hope looks like for @panspandasuk.bsky.social community. If you are able please consider donating/sharing/keeping up to date with Fulvio DAcquisto’s ongoing research efforts. #medsky #paediatrichealth #NHS #DoctorsOfBlueSky

shorturl.at/D2z0r 🌟 Fantastic progress in #Scotland! The Scottish Government is stepping up to support families affected by @panspandasuk.bsky.social with initiatives set to raise awareness, improve diagnosis, and share best practices across #NHS 💪 #medsky #Scotland #paedatrichealth

👋🏻 2025 and 👋🏻 #PANs community 2024 was amazing 🇬🇧 • @panspandasuk.bsky.social launched its manifesto for change. •Reformed APPG driving policy improvements. •New collaboration with the #DYCPHER to help deepen understanding + improve treatments.

Almost at the 15k. These funds and conferences will raise so much awareness for these devastating conditions in children so that #medics and #parents can recognise them early, leading to the best outcome for the child. #Misdiagnosis and dismissal is far too common. #ChildHealth pls keep sharing.

#OCD #Tics #hallucinations #psychosis #frequenturination just some of the symptoms experienced by children with #pans #christmas If you can donate, share or send the community good vibes it will be much appreciated. One more day to raise funds. donate.biggive.org/campaign/a05...

shorturl.at/SkQTK @panspandasuk.bsky.social #BigChristmasGive No 🧒should suffer infection triggered OCD, tics, hallucinations, anxiety +psychosis. This conference will help end the cycle of misdiagnosis. 🙏share @mscaitlinmoran.bsky.social @stephenfry.bsky.social @martinlewis.moneysavingexpert.com