As predicated;. Ppl no longer test for #Covid ➡️ Ppl develop #LongCovid but don't know that's what it is ➡️ Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement. If they're 'lucky' will get diagnosis of PVFS..

JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…” TY @blakemurdoch.bsky.social ! edmontonjournal.com/opinion/colu...

📣 1/2. Minutes available from joint meeting of APPG on #LongCovid & APPG on #ME! 🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns 🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain Link ⬇️

This Sunday, June 22nd, I'll be co-hosting this online support meeting. #LongCovid

1/4 📢 The official minutes from the first joint ME and Long Covid APPG meeting are now available! 🔗 appgme.co.uk/meetings/min...

The Trump Organization's newly-announced T1 smartphone will likely be made in China, experts said, despite claims the device will be manufactured in the U.S.

The SAVE ACT suppresses the votes of married women. The GOP veils this horrific bill saying it prevents non-citizens from voting. That’s a lie. Non-citizens are already barred from voting. This bill is intended to strip away a married woman’s rights. #Pinks #OneV1 ⬇️ www.forbes.com/sites/hollyc...

#ProudBlue CALL YOUR REPS! www.npr.org/2025/04/13/g...

PAGING RFK Jr— “The assumption that children and teens recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage.” rollingout.com/2025/06/03/l...

Long COVID is now the most prevalent chronic disease in American kids, surpassing ASTHMA. Children/ teens are NOT immune to damage from covid. "Long COVID is common, affecting up to 10% to 20% of children with a history of COVID-19." That means ANY covid infection. jamanetwork.com/journals/jam...

“3 of the study’s authors write that almost 6 million US children could be affected by long COVID, which is greater than number of kids with asthma” 6 million chronically ill kids How many will be gaslit? Pushed to play through the pain? Told they’re “fine”? What a great time to restrict vaccines

What about pregnant woman? #COVID infection in pregnancy is shown to impact fetal brain development via maternal and placental immune activation. Several adverse neurodevelopmental outcomes have been reported. #NeuroCovid #LongCovidKids www.cell.com/trends/molec...

👏👏👏 to LCAI’s co-founder @sarahoc1.bsky.social and the other mothers of children with #LongCovid in this excellent article ‘Between 5% and 10% of children and adolescents who get covid develop long covid.’ #TreatLongCovid #speirgorm #LongCovidKids #LongCovidAwareness #LongCovidIreland

Every work place, every classroom, every pub a d every event space should have HEPA filters. They can be fitted to most air con systems.

Our monthly online support meeting (at LCAI) for spouses/partners and carers is tomorrow, Sunday at 7pm Irish time. Follow LCAI at @lcaireland.bsky.social Reposts much appreciated #LongCovid #pwME #pwLC #MECFS #LongCovidKids #Ireland #Irish #ChronicIllness

#LongCovid Free event Q&A

#LongCovid #support

“A study in Finland found air purifiers in day cares reduced children’s illnesses by 30%” Clean air in schools & childcare is a no brainer to prevent airborne diseases.. so that children are in school & parents are at work. And it’s the law now in Ireland www.irishexaminer.com/opinion/comm...

Breast cancer survival rate in 1920: 5% Survival rate in 1960: 25% Survival rate in 1990: 64-80% Survival rate in 2025: 91% Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920. Genocide for billionaire tax cuts

🧵 Good to see this article with some interesting people from the field quoted (e.g. Lipkin, Pollack, Sieverts, @exceedhergrasp1.bsky.social): "Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again" www.salon.com/2025/04/01/a... #MEcfs #LongCovid 1/

Great piece in @washingtonpost.com: “The risk of #LongCovid remains: 
@erictopol.bsky.social.. said he knows people who have been infected within the last three to four months who have long covid. ‘It’s nonstop. People are still getting it,’ he said.”

Reducing the Risk of Long COVID in Kids: Why Reinfection Matters and What We Can Do. By The John Snow Project @johnsnowproject.bsky.social johnsnowproject.org/primers/redu...

(1/4) Long COVID showed me the bottom of American healthcare. My reporting for The Atlantic is out today. www.theatlantic.com/health/archi...

Important to also remember that getting Covid once a year is common, so this effect may be essentially continuous. Add in the risk of Long Covid with each infection, and it's clear that global population health will inexorably decrease as time passes. www.cidrap.umn.edu/covid-19/cov...

This is still a thing! It would be shocking, except it isn't anymore, #women #sexism #carolinecriadoperez #medicalbias #genderbias

#chronicillness #cleanair #CleanAirIreland #longcovid #covid #viralspread

#Ireland #CleanAir #CleanAirIreland

Every time my son (who has #LongCovid) goes into school, he risks yet another viral infection, which sets his progress back every time. We could be reducing the spread of illness & improving our children's health. Please read and share #CleanAirIreland #CleanAir #Ireland #Irish #SpeirGorm #school

Please take the time to fill in this survey about your experience of general practise if you are living in #Ireland, are over 18 and have #LongCovid

Tomorrow (Sunday 23rd) 7pm Irish time- zoom support meeting for spouses and carers #LongCovid

Our paper is here: onlinelibrary.wiley.com/doi/10.1111/...

1/We analysed GP Patient Survey data from>750K people in England: Around 1 in 20 people had #LongCovid & nearly 1 in 10 were not sure if they have it. We did adjusted analysis by social & demographic attributes to find out who's more likely to have LC or is uncertain about it. Here's what we found🧵

"If the dice lands wrong and it is you or someone you love next, you will hope – at the very least – there will be help on the way." There won't be. Just so you know. www.theguardian.com/commentisfre...

Segment on BBC Midlands Today covering the new report from Long Covid Support. The NHS has closed over half of its services for #LongCOVID. The BBC found the DoH and NHS England have no idea how many clinics are still running. youtu.be/ILK5P8oT4e8?...

Please take a minute to read Lydia's story. #LongCovid #LongCovidAwareness #Ireland

🧪 #LongCovid youtu.be/ZX_ql12aHGc?...

Some resources for #LongCOVIDAwarenessDay, a thread 🧵 1. The Pacing Guides, for activity management; includes guides for adults, peds, and a cited version for clinicians. Latter two created in conjunction w @longcovidfam.bsky.social and @patientled.bsky.social. www.meaction.net/resource/pac...

🚨 Mythbusting #LongCovid with Dr Amir Khan🚨 Long Covid is real. It’s serious. And it’s affecting millions. On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths. Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.

“Denying the Seriousness of Long COVID Is Dangerous for Me – and You” On Long COVID Awareness Day, pleased to publish this piece for Zeteo from @juliadoubleday.bsky.social

Yes #LongCovidAwareness2025 #LongCovidAwarenessDay #LongCovid #chronicillness

📣 🎬 1/2. Here’s our third video message on #LongCovidAwarenessDay! Prof. Rachael Evans has so very kindly sent the #LongCovid community this message. Thank you @revansbreathe.bsky.social for all your hard work in continuing to push to find answers!🙏 Video in 2 parts for Bluesky - part 2 below ⬇️

📣 🎬 For our fourth video message on #LongCovidAwarenessDay we have the one and only Dr. David Putrino! Thank you for being so incredibly determined!!🙏 @putrinolab.bsky.social @coresinai.bsky.social #LongCovid

📣 🎬 Our fifth and final video message for #LongCovidAwarenessDay is from the amazing #LongCovid advocate, Scott Squires! Thank you @scottsquires.bsky.social for continuing to put a spotlight on the dangers of Covid infection and Long Covid🙏

“We know that over two million people in England and Scotland have #LongCovid, and if you think there are only [around 68] million people in the UK, then that's a huge proportion of people that are being ignored.” - @sarahbarleymc.bsky.social www.independent.co.uk/news/health/...

A #SciencePerspective by @zalaly.bsky.social and @erictopol.bsky.social identifies key issues that need to be prioritized in the study of #LongCovid. Learn more on #LongCovidAwarenessDay: scim.ag/3XKbds3

111K children with #LongCovid in UK and growing as the SarsCov2 virus continues to give them multiple infections every year because there are no mitigations in schools. It doesn't have to be that way. #LongCovidAwarenessDay

On #LongCovidAwarenessDay I want to draw attention to the fact that many people are still living with the effects of Covid, and they often struggle to get the support they need. Government must do much more on research, support, and prevention.

Another brilliant poetry contribution, illustrating so well the difficult path of acceptance of #LongCovid My new life #IrishPoetry #LongCovid #LongCovidAwarenessDay2025 #LongCovidAwareness #LongCovidAwarenessMonth #LongCovidAwarenessDay #Ireland #Irish #poetry #Covid

#LongCovidAwarenessDay2025 #LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth #LongCovidAdvocacyIreland #livingwithLongCovid @thesicktimes.bsky.social @theskylark.bsky.social