Meteen ondertekend. Hoort zegt het voort! https://petities.nl/petitions/maak-geld-vrij-voor-longcovid-en-andere-pais-onderzoek-en-behandeling?locale=nl #LongCovid #pais @longcovid @mecfs

Opinie: Honderdduizenden zieke Nederlanders wachten op perspectief, maar niemand ziet het www.volkskrant.nl/columns-opin...

Je zou het bijna vergeten in de politieke chaos, maar bij de vorige miljoenennota is er een jaarlijks bedrag van 50 miljoen voor Long Covid uit de begroting geschrapt. Dit keer raken de onderzoeksbudgetten op, en wordt C support "afgebouwd". En volgende keer stopt de... [zie afbeelding]

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne @georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

🍉 #Gazadebat vibes: youtube.com/watch?v=Yawa... 🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘 #RodeLijn #NooitMeerWasNu #NederlandBRIEST🤬

dat je haast opgelucht bent dat ze het in israël zelf eindelijk ook gewoon hardop zeggen: nos.nl/l/2576664#UP...

Just another ME-day #LongCovid, #ME/cfs

I am starting to think the massive and sudden disinvestment in health and welfare - Biden allowing the CARES ACT to expire - and now the gutting of Medicaid, Pell Grants and SNAP is not despite the increase of people w disabilities, but rather because of it

Researchers also believe EBV plays a role in a wide range of serious conditions — from lupus and certain cancers to rheumatoid arthritis — and may trigger some cases of chronic fatigue syndrome. Some suspect it could be a hidden driver of long Covid. www.bloomberg.com/news/article...

Worth watching for a better understanding how Wüst et al‘s paper shows that the effects of deconditioning are different in healthy people and people who are sick with #LongCovid and #ME - we might be deconditioned as well, as a result of trying to avoid physical PEM, but that is NOT the main story!

Chronisch zieke Nederlanders worden door de Belastingdienst in een hokje geplaatst: wie weinig verdient en hoge zorgkosten aftrekt, geldt als ‘risicovol’. Geautomatiseerde systemen pikken er duizenden aangiftes uit voor extra controle. Wat volgt is een eindeloze strijd over bonnetjes en bewijs.

This Dutch article calls out the continued & inappropriate use of cognitive behavioural therapy for kids with #mecfs. nltimes.nl/2025/05/31/d...

Met dr. Vivienne Matthies-Boon, een zwartboek vol schrijnende ervaringen met CGT en GET en een enquête over dwang bij kinderen met een PAIS. #ME #PAIS #LongCovid

Als je niet #DeStraatOp kan vandaag in Amsterdam 13uur op De Dam, verspreid dan dit artikel! Vóór de democratische #rechtstaat ofwel #recht voor iedereen. #rodelijn ook voor democratische #vrijheid. decorrespondent.nl/16109/dit-is...

Griffith University: 'Drug typically used for opioid addiction could be long COVID treatment' 'Low-dose naltrexone has been identified as a potential treatment for Long COVID after a Griffith University study, published in Frontiers in Molecular Biosciences..' medicalxpress.com/news/2025-05...

The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF

“Het idee: antisemitisme is iets van toen, niet van ons, maar van de nazi’s. Iets dat we in de tijd kunnen bevriezen. Een zelfgenoegzame houding die ertoe leidt dat we het hedendaagse racisme niet onder ogen zien.”

#Covid #LongCovid

Extremely useful and nuanced overview article of therapeutic studies that target autoantibodies in #MECFS, #LongCovid and #PAIS.👇 www.tandfonline.com/doi/10.1080/...

A friend’s film “Mulberry Tree” about the healing relationship of a woman with long covid & a 100yo tree is streaming for free at the Latino and Native American Film Festival until April 20: thelatinonativeamericanfilmfestivallanaff.ottchannel.com/media/mulber... #LongCovid #Disability #Healing

1. Absolutely outstanding article on the increasing prevalence of Mild Cognitive Impairment (MCI) diagnoses amongst patients with Long Covid. This possibility is the primary reason I avoid infection with SARS-CoV-2. www.wsj.com/health/welln...

It was such a pleasure to have @resiapretorius.bsky.social over @amsterdamumc.bsky.social! Happy to see the #microclots assays worked right away 😀. We can now screen and select #LongCovid patients, to see whether we can also detect microclots using total body PET scan (powered by #ZonMw).

Gisteren waarschuwde ik in mijn oratie bij de Open Universiteit voor de maatschappelijke gevolgen van falend milieubeleid. Vandaag zet @ftm.nl daar nog eens wat cijfers bij: de schade van het falend stikstofbeleid wordt inmiddels geschat in honderden! miljarden. www.ftm.nl/artikelen/ui...

"Many of us might have moved on from worrying about COVID, but the risk of life-altering effects from your next bout of illness remains real." “This is a disease where we have no diagnosis, no treatment, no cure. And we really need to fix that” #LongCOVID #COVIDisNotOVER Source: archive.md/CUDUV

Low Dose Naltrexone Could Be the Key to Reversing Immune Dysfunction in Long COVID Patients www.thailandmedical.news/news/low-dos...

On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. Learn more & register for tomorrow's organizing meeting: www.meaction.net/2025/04/08/w... #pwME #MECFS #MyalgicE #LongCovid #disability

BREAKING! Long COVID individuals found to have a disruption in the critical brain bridge linking the brainstem and cerebellum www.thailandmedical.news/news/breakin...

Alle Macht aan de Makers. Hoe een nieuwe publieke omroep écht kan werken. www.linkedin.com/pulse/hierbi...

📣📣📣💙 Delen is lief!!

Tuller Time! Please help to keep @davetuller1.bsky.social funded for another 6 months of crucial work for people with ME Are you Dutch without creditcard? I have a tikkie to make donating easier! #MillionsMissing #mecvs #Longcovid #mecfs #postcovid #qvs #postlyme #PAIS #PAIZ

"...It makes evolutionary sense for an infectious disease to damage the brain, (...). An infectious disease that degrades a host’s ability to assess risk and regulate behavior is a disease that has more chances to infect and reinfect a host species..." #LongCovid open.substack.com/pub/minorher...

There’s so much scattered research on #energylimitingconditions that I’m collating as much as I can - working one by one thru a list of 48 hypotheses that might explain how they work. #3: ACCELERATED AGING, 1st heard of this via Health Rising: tinyurl.com/3c6e53mn #LongCOVID #pwME #FM 1/26

Registration for online participation in the @mecfsresearch.bsky.social International ME/CFS Conference 2025 on 12-13 May 2025 is now open events.mecfs-research.org/en/events/co... Image is from the latest Science for ME weekly update #MEcfs #LongCovid

⚠️ “Als corona zich ongecontroleerd blijft verspreiden, dan moeten we ervan uitgaan dat uiteindelijk veel, of misschien wel de meeste [‼️] mensen #invalide raken door #LangeCOVID” 🆘 - Salvatore Mattera @salvmattera.bsky.social 🦠 #virusplicht☠️ #zwevendeAIDS #CovAIDS #LongCOVID

I’m demonstrating virtually outside the 🇩🇪 @bundestag.de. Day 1️⃣7️⃣6️⃣ 📢 #CallForPublicHealthAction 📢 Demonstration for the right to #CleanAir, vaccines, evidence-based infection control, scientifically sound public education, adequate care & biomedical research for #LongCovid / #MECFS

Good News🎉🎉🎉🎉🎉🎉 Thanks to everyone who called or emailed their reps!! It worked! I’m so proud of yall. #LongCovid

Mysterious Wave of Sudden Mental Disorders in Children Linked to COVID-19 Infections Alarms Doctors www.thailandmedical.news/news/mysteri...

“I don’t know how you do it! I could never be chronically ill!” We didn’t get a choice. No one asked our permission. Disability just happens. It can happen to you too. We cope because we have no choice. We can’t trade our bodies in for new ones. We can’t “try harder” our way out of it.

My response: “I don’t have a choice. The alternative is quitting. I can’t do that to my girls. They’d rather have a mom like this than no mom at all.” Maybe it’s harsh, but it’s my reality that I’ve thought through a thousand times over. #LongCovid #ChronicIllness

In advies over coronavaccinatie doet Gezondheidsraad ook een belangrijke uitspraak over long covid. De Gezondheidsraad erkent long covid als chronische aandoening. 👇 www.gezondheidsraad.nl/onderwerpen/...

Very important podcast and literature summary of the relation between #MCAS and #MECFS and #LongCovid. MCAS often falls off the table, or is viewed as a mere food allergy rather than the complex immunological illness it is 👇 www.mastzellenhilfe.de/mcas-und-me-...

BREAKING! Australian Scientists Uncover a New Approach That Might End Autoimmune Diseases for Good! www.thailandmedical.news/news/breakin...

The Fourteen Best Mindfulness Techniques For Denying You Have Long Covid

SARS-CoV-2 Disrupts Eosinophils While COVID-19 Vaccines Cause Eosinophilia and Induce Immunopathogenicity! www.thailandmedical.news/news/sars-co...

COVID-19 Induces Epigenetic Changes in Nasal Cells, Resulting in Long-Term Breathing Issues www.thailandmedical.news/news/covid-1...

BREAKING! Asymptomatic COVID-19 Infections Found to Quietly Damage Male Fertility Without Any Warning Signs www.thailandmedical.news/news/breakin...

This is going to make some noise. “NIH Agrees, Living with Long Covid is Living with Airborne AIDS.” www.youtube.com/watch?v=O5vJ...

Was ik er toch een beetje bij! #tegenfascisme #longcovid

En dank voor alle namen van virtuele meelopers @esthersuzette.bsky.social ! #PAIS #MECFS #NAH #protest vanuit huis.