12/12/2025- Pirate of the Caribbean www.timesfreepress.com/news/2025/de...

@kristinwrites.bsky.social @exceedhergrasp1.bsky.social @binitakane.bsky.social @kaufmanmd.bsky.social @chromatowski.bsky.social The mistreatment of ME/CFS patients isn’t a minor oversight — it’s one of modern medicine’s greatest failures. Millions harmed. Decades wasted.

The next step has begun. Ratchet up the fear, attack those that disagree, arrest, detain. This is Adolf, Vladimir, Xi....this is what we have become. And it is only just starting. Give it three months and you will not recognize this country. It was never going to stop with "immigrants".

Beautiful @thesicktimes.org essay on how to be a friend to your friends who are affected by Long Covid—and why you should. Def worth a few minutes of your time.

#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM. "= Minimum age of 18 years = Physician-confirmed diagnosis of ME/CFS = Ability to read and answer the questionnaire in German or English = Voluntary consent to participate" www.soscisurvey.de/V-PEM-AQ_eng...

Please share with people with #LongCOVID in your life. It would be incredible to hit 1000 in the next week! (They are already over 700 since this post!)

Not an ME/CFS researcher? Perfect. That's exactly who we need. The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc. #MECFS #LongCOVID #AcademicSky 🧪

This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know. substack.com/home/post/p-...

Really moving artistic visual of a POTS experience

Pete Buttigieg would be a good DNC spokesperson. He would do a GREAT job of going around the country, being on TV all the time, and putting out Dem messaging on EVERY issue. He would be an excellent counter-Leavitt. And we NEED one. He should be holding regular press conferences and putting

Once again, this is adorable and very informative 🧪

A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well. Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents. youtu.be/wZFEUnjWgOA?...

@tomkindlon.bsky.social @bhanlon15.bsky.social @kaufmanmd.bsky.social @colleensteckel.bsky.social @1goodtern.bsky.social @davetuller1.bsky.social

Yup. Think Seimens, BMW, I.G. Farben, steel and coal company Krupp, BMW, and Daimler-Benz (Mercedes-Benz). In 2025 it's the tech bros and their trillions, choosing fascism over morality and democracy. Will we have our Nuremberg? Will these thugs and corporate billionaires be held accountable?

🧵 Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome www.sciencedirect.com/science/arti... "Severe ME/CFS patients face deep social, medical, and structural exclusion." #SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME 1/

ME/CFS is awful—but our community is kind of amazing. Our researchers, clinicians & advocates work together like no other, wearing many hats & fighting fiercely to improve patients’ lives. 💙 www.facebook.com/whitneydafoe...

It’s awesome to see awareness of the seriousness of this disease growing. Check out the paper here: 👇 journals.lww.com/tnpj/fulltex...

Happy Halloween to everyone stricken with this monstrous disease. @tomkindlon.bsky.social @maddow.msnbc.com @erictopol.bsky.social @rivkabluesky.bsky.social @kaufmanmd.bsky.social @kaine.senate.gov @mrsbettybowers.bsky.social @seastarsal.bsky.social

Those are actually the hallmark features of ME/CFS. Medicine has completely botched everything dealing with ME/CFS for decades, has refused thousands of opportunities to do better about it. And yet again it has been botched so completely that the past doesn't even exist, erased from existence.

This is a great idea

Dr Oz: “I think we all agree that Covid has passed”. No we do not agree! Anyone who thinks Covid has passed has no business in charge of public health. It’s still here. It’s still killing and disabling. Get your booster if you can. Wear a mask (ideally an N95) and clean the air!

If I were running the DNC, there would be Democratic Party sponsored food relief banks across the country right now that specifically welcomed anyone regardless of party affiliation. Along with the food, there could be voter registration and links to runforsomething.net

Or we could have our own fricking press secretary

We need our own opposition press secretary/spokesperson. And Pete is the perfect person to do it.

10/24/2025- Ballroom Dancing www.timesfreepress.com/news/2025/oc...

Just published: Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study. J Transl Med 23, 1148 (2025). doi.org/10.1186/s129...

But RFKjr knows better because he is a brilliant scientist.

Cameron Winklevoss and Tyler Winklevoss – crypto billionaires Kelly Loeffler and husband Jeff Sprecher – Benjamin Leon Jr. Miriam Adelson MAKE THESE ASSHOLES PAY FOR THEIR CORRUPTION. PUBLICIZE THIS, BOYCOTT THEM, BE RELENTLESS.

Apple Inc., Meta Platforms Microsoft Corporation Comcast Corporation Altria Group and Reynolds American Carrier Global Corporation Individuals / Families: Stephen A. Schwarzman (Blackstone CEO) Harold Hamm (oil magnate)

Google – Google to donate at least $5 million; YouTube paid ~$22 million via a settlement redirected to the project. Booz Allen Hamilton – identified among donating companies. The Economic Times NextEra Energy – listed among donor companies. Palantir Technologies Amazon .com

Their names must be broadcast, posted, written about daily in every public way possible.Scroll thru this list and consider what you can each do The publicly reported (though incomplete) list of corporate and individual donors includes: Corporations: Lockheed Martin – pledged over $10 million.

Trump has destroyed the East Wing of the WH. He has defecated on American History. Please note, via ChatGPT, who has funded this desecration. We cannot stop Trump since, as our new fascist dictator, he can do whatever he wants. BUT we can and must hold these people and corporations accountable.

This is what “living with COVID” really means for too many families. Long COVID is not rare, and it’s devastating. We could’ve protected kids better — we still can. Sending love and strength to every parent living this reality 💔 Source: x.com/rebeccaoco/s...

Donald Trump’s AI Video Is a Psychosexual Confession drstaceypatton1865.substack.com/p/donald-tru...

Party of family valu-- www.yahoo.com/news/article...

People with ME/CFS are the antithesis of quitters. To keep showing up and choosing life and trying to find ways to be more alive in the face of immense physical and societal challenges is courageous, disciplined, and heroic.

1) Remember the intramural NIH study about effort preference in ME/CFS? Today, a letter from several experts in the field was published in the journal Nature Communications, criticising the conclusions of the original paper.

Our youtube Unraveled: Understanding Complex Illness covers all aspects of ME/CFS and Long Covid and the underlying pathologies. Over 100 hours of recorded episodes with more to come. We did this for educational purposes for patients and healthcare clinicians. www.youtube.com/channel/UCkJ...

Berkeley's crowdfunder has reached 32% of the goal, with 199 donations so far. Who will make the 200th donation? crowdfund.berkeley.edu/project/47768

#LongCovid needs to be part of a conversation about school absenteeism in Ireland, even if it is hard & uncomfortable Children are still getting Long Covid, & it’s preventable

😄

Stellate Ganglion Block reduces symptoms of SARS-CoV-2-induced ME/CFS: A prospective cohort pilot study www.tandfonline.com/doi/full/10.... From the October 2025 AMMES Newsletter #MEcfs #LongCovid

I just completed this after feeling overwhelmed the first time I tried. It’s less complicated than I thought, & Lenny confirmed you can leave questions unanswered if you don’t have an opinion. I hope especially longtime #pwME who have seen many severity scales come & go will offer your insights!

"Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions (IACCs)" batemanhornecenter.org/why-rheumato... New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS

I got a perfect score! (There's a short version and a long one; I took the short one.)

Pete Buttigieg says leftist “scolding” has alienated young men - buff.ly/8TpJIDZ

totally agree. Long Covid has multiple causes/pathologies and it is silly to think ONE drug/intervention will do the trick. Like HIV, TB, tick borne infections, cancer, multiple drugs to attack from multiple directions while preventing the evolution of resistance.

The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group The process so far has been extremely progressive I am hugely optimistic that a world-leading guideline will be produced #pwME #MECFS

This one is too infuriating, not to post. People with Long Covid, ME/CFS, etc are struggling, desperate for care vs this: "Seven large U.S. health care corporations have avoided paying over $34 billion in collective taxes because of Trump 1.0’s 2017 tax law...

Clay Bennett @BennettCartoons Sep 5 9/6/2025- Washington D.C. #Trump #washingtondctakeover #NationalGuard #ICE #PoliceState #MPD #DCPolice timesfreepress.com/news/2025/se...