This WHN editorial breaks down the long-term health, economic, and policy consequences of unchecked COVID spread. From Long COVID and immune disruption to labor force impacts and public health failures, the evidence is clear: silence is costing us. Read the full piece: whn.global/scientific/t...

Incredible work. What a great way to communicate the toll of long covid and break the dominant narrative of "you just need to push through a bit"

The Fight to Be Believed: Long COVID’s Toll on Black Americans Black people made up about 32% of long COVID cases, one study found, but are “not being taken as seriously,” said one patient capitalbnews.org/black-americ...

Dr. Pam Roussos "says the best way to combat long COVID is proper ventilation, including air purifiers with MERV 13 air filters and even moving indoor activities outside": Via @teachrprecarity.bsky.social www.yourcentralvalley.com/digital-ente...

1/4 We’re excited to announce our collaboration with @emergeaustralia.bsky.social to strengthen global efforts supporting those with #MECFS, #LongCOVID, and other infection-associated chronic conditions (IACCs). #GlobalCollaboration

Children with Long COVID Deserve Better Care Many children with #LongCOVID face debilitating symptoms, yet struggle to access basic symptom management. Clinical trials, clear guidelines, and better physician education are urgently needed. Children deserve real relief — and real action.

'Preventing COVID-19 infections in the first place, including through vaccination, appears to be the best way to avoid long COVID.' ✍️ Professor Yong Chen et al Article @thelancet.bsky.social www.thelancet.com/journals/ecl...

Micropacing to LIVE more than I used to, with #LongCovid Keeping my heartrate low, to avoid #PostExertionalMalaise in the days ahead. An hour of exam marking done ✔️ Almost an hour of relaxed driving ✔️ It's only 10:30am and I've only used 2% of my #VisibleHealth PacePoints

There’s still time to participate in our long COVID family planning survey!

CBS News // 2022 Still holding on and trying my best to spread awareness #LongCovid #ChronicIllness #Chronic #Stillsick2020 #StillSick #PostCovidSyndrome #America #Covid19 #CovidStillExists #Disease #HealthOverWealth #PeopleOverProfit #Cure #WeNeedaCure youtu.be/tvYbPJ5m9GY?...

An ounce of prevention is worth a pound of cure…or as in my case, worth many thousands of $$$ and no cure. #LongCovid #MECFS #NoLongCOVIDCuts

We need public health campaigns on how to prevent COVID infections (respirators & clean air!) as well as who can get Long COVID & how it presents Stigma, denial & misinformation are leading folks to think that Long COVID is rare. That they don’t know anyone impacted by the condition They’re wrong

Our monthly online support meeting (at LCAI) for spouses/partners and carers is tomorrow, Sunday at 7pm Irish time. Follow LCAI at @lcaireland.bsky.social Reposts much appreciated #LongCovid #pwME #pwLC #MECFS #LongCovidKids #Ireland #Irish #ChronicIllness

Global experts reach consensus on Long COVID caused by airborne SARS2 virus 🔹LC = organ damage, immune dysfunction, neurological injury 🔹Kids are affected 🔹Clean indoor air is vital 🔹Most standard tests miss it 🔹Invest in diagnostics & treatment 🔗 ann-clinmicrob.biomedcentral.com/articles/10....

📢 Online demonstration, day 2️⃣7️⃣1️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

Here's a 🎁 link for a useful explainer about what Trump is doing to US science (including that related to public health). Trump vs. Science www.nytimes.com/2025/04/25/b...

Recent flight back from Florida- treatment at the Center for Collaborative Research- NeuroImmune Clinic. Being treated for MECFS and Long Covid- repeat infections are dangerous. Persistent coughing on the flight home. CO2 readings at the start of the flight and the end= ☢️ #MaskUp #LongCovid

I’m pissed we have paid for him to golf like 27 percent of his term so far 🤬

Proud of my #Vermont neighbors in Waitsfield. Housebound and bedbound due to #LongCovid- but I was there in spirit. Vermonters are an independent bunch and don’t put up with bullshit. Go ski in Russia- traitor. #VanceInVermont #SlavaUkraini

🚨 BREAKING: After torpedoing yesterday’s meeting with Zelensky, JD Vance fled to Vermont for vacation—only to be met by hundreds of furious protesters. Couldn’t have happened to a better guy!

“There may be times when we are powerless to prevent injustice, but there must never be a time when we fail to protest” - Elie Wiesel #Vermont Not all Americans worship fools and tyrants.

“A healthy child wants 1000 things, a sick child only wants one.” Google VP Royal Hanson’s son has been severely ill for five years. Where is the urgency? How many more children will be disabled? #LongCovid #EduSky #MaskUp #CovidIsAirborne www.linkedin.com/pulse/growin...

Inner dialog: No nope nopety NO NOT STOPPING FOR A COFFEE!!!!! HAVE A NICE NO SPENDING DAY!!!

Flu in Mass.: Health officials warn of seizures, encephalitis in children's flu cases www.capecodtimes.com/story/news/2...

THE COVID-IS-NOT-OVER NEWSLETTER Covid still demands a strong response, Ed Yong enjoys not being sick, Losing faith in politics, and more Bonus utter failure of influencers and politicians open.substack.com/pub/johndupu...

Hey guys, we’ve now created a Google Doc for the #LongCovid Light Up Challenge. We hope this makes it easier for people to follow and share to other platforms. docs.google.com/spreadsheets...

#LongCovid #MECFS anyone in Australia?

WSJ: “White House Preparing Order to Cut Thousands of Federal Health Workers” “The executive order could come as soon as next week, if the Trump administration goes ahead with plans” www.wsj.com/health/healt...

BioCentury: “Call to action: Defending the NIH, the NSF and the foundation of American science — a Guest Commentary” ‘There is an assault on the foundation of U.S. science: Silence is not an option’ www.biocentury.com/article/6549...

Don't let shame or overwhelm stop you from taking a few basic steps to protect yourself and your community. Maybe you've used your cats name for your password on everything for years. All your shit is on social media. You get stressed out about tech stuff. It's all good. You're not alone. 🧵

Know your rights guide for ICE raids available in: ENGLISH: wearecasa.org/know-your-ri... ESPANOL: wearecasa.org/conozca-sus-... FRANCAIS: wearecasa.org/connaissez-v... And here's a useful card.

Masking saves lives. Everyone around me is sick. Sharing is not caring. I volunteer for a healthy aging organization. Save our elders, test before visiting and put a mask on. #MaskUp #CovidIsAirborne

My lab has an NIH grant to investigate chronic illness from #Lyme disease and work towards building illness trajectory maps that allow us to distinguish between those making a protective response and those who aren't, to identify and help those who need us most. We have a pending #LongCOVID grant.

Analysis shows significant financial burden of long COVID in US www.cidrap.umn.edu/covid-19/ana...

An #Exeter-based research firm has developed what it believes is a "world first" breakthrough test to help confirm the existence of #LongCovid in some patients. It could be done "via a simple finger prick test sent through the mail" #LongCovidkids #LongCovidTest

The videos coming out of the California fires are heartbreaking. Remember that when you see people running for their cars, or jumping on bikes to flee the fires … what you don’t see are the disabled people who can’t run. Who can’t drive. Who can’t flee in a hurry. We need help to escape.

Long COVID Breakthrough: Spike Proteins Persist in Brain for Years (Jan 6, 2025) scitechdaily.com/long-covid-b... #LongCovid #Brain #BBB #BoneMarrow #Neurodegenerative

Here's a reminder: you don't get sick by accident. Much of the time it's by pathogens and these can be avoided to a large extent. #wearffp3, #ventilate avoid breathing other people's exhaled air.

🧵Wow…what a powerful book! It made it more powerful that one my son’s fav books growing up was Goofy’s Big Race. @mrschureads.bsky.social #EduSky #literacy

I’m doing research into the experiences of disabled people looking for employment. I’d be grateful if you could share this survey with people it might be of interest to. The survey is at: cambridge.eu.qualtrics.com/jfe/form/SV_... #Disability #AcademicSky Thank you

She is an amazing resource of OT and PT information for stroke survivors. Check her videos out. #Disability #Strokes #BrainInjuries www.tiktok.com/t/ZP8NsSTcY/

The Corsi–Rosenthal Box is a design for a do-it-yourself air purifier that can be built comparatively inexpensively. airspothealth.myshopify.com/a/blog/corsi...

ME/CFS braucht mehr Forschung und eine größere Bekanntheit der Krankheit sowohl bei Ärzt:innen als auch in der Bevölkerung. Christinas Projekt versucht beides zu fördern. Website mit Grundlagen➡️ me-christina.de Spenden für die Forschung➡️ me-christina.de/its-me-chris... #MECFSAwareness Noch eine⬇️

Social media should be safe for trans people Pass it on

Today's rock from the past is a cat in an Xmas tree

A kind of #selfcare that I’ve found to be wildly enjoyable and feel good is stretching, which is important for everyone but especially women. I have been using this video in particular and think that it has alllll the best feel good stretches. #edusky youtu.be/y87vSUoIMGU?...