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📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 5️⃣0️⃣ ❗ Journalism must stop promoting false, outdated medical knowledge about #PAIS and #ME/CFS from dogmatic medical professionals through false balance! This destroys medical progress!

Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.

Some days are just filled with sadness and hopelessness. The old, healthy me seems like another person; like someone made up; like a dream I had. It's like I've been sick for an eternity or only a week -- like time has been redefined. Still waiting for my life to resume. I make no other plans.

Here's just one of the reasons we keep demonstrating for clean air, evidence-based infection control and public education on COVID-19 👇 The science grows clearer by the day — we just need to act on it. #CovidIsntOver 📢 #CallForPublicHealthAction www.ajpmfocus.org/article/S277...

Well, it doesn't have to be like this. This is a choice we're making by not cleaning the indoor air or informing the public about the need for infection control. Moreover, these numbers also mean a new, year-round baseline of chronic illness. This is not sustainable! #CallForPublicHealthAction

📢 #CallForPublicHealthAction I’m demonstrating virtually for the right to - #CleanAir - #InfectionControl - adequate care & biomedical research for #LongCovid/#MECFS #CovidIsNotOver #MaskUp #CovidCautious

Has anyone else with ME or LC tried Mestinon and experienced an odd creaking sensation and sounds in the throat or esophagus when swallowing — and the sensation that food or drink wants to come back up?

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 4️⃣6️⃣ While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different. Support us with Reskeet! 🤍

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

“Study challenges notion that Covid is ‘mild’ for children.” You mean, just like EVERY OTHER STUDY on Covid in children? This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it. www.independent.co.uk/news/health/...

This week's must-read 👇

A presentation that lays out some of the harms associated with the BPS model and the psychologisation of ME, Long COVID, etc., and why criticism of it cannot be reduced to "patients just don't want to be associated with psychological illness".

📢 #CallForPublicHealthAction Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇

#VioletAffleck speaking at the UN meeting "Healthy Indoor Air: A Global Call to Action", saying all the things that need to be said. The knowledge, passion, brains and determination of this young woman are amazing. She should be put in charge of public health everywhere. #CallForPublicHealthAction

This! 👇 #CallForPublicHealthAction

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 4️⃣3️⃣ It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well. www.blaetter.de/ausgabe/2025... Support us with Reskeet!

📢 #CallForPublicHealthAction I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.

Actual public health messaging 👏🙏 It's always been this easy — most authorities just choose not to do it. #MaskUp #COVIDIsntOver

I really wish the Swedish press would understand how platforming or referring to Martin Kulldorff is something that only right wing nuts do in US. Yes, he's Swedish. He's also currently sitting in US government platforming RFK Jr's antivax agenda.

With all the interesting studies from the past week, it's like we're so close to a *big* breakthrough in ME and LC research. Another example, new from @drmaureenhanson.bsky.social: news.cornell.edu/stories/2025... Let's continue pushing and we will get there! 🙌 #CallForPublicHealthAction

🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)

Today is #SevereMEday. It commemorates those most severely affected by #ME/cfs. Who suffer the most from the continuing denial of care and stigmatization. Today I wish above all for #moresolidarity and less repression of those not affected. Take a look and show solidarity! #callforpublichealthaction

New press release: "Key genetic differences found in people with ME/CFS" www.ed.ac.uk/news/key-gen... "At least two of the genetic signals relate to how the body responds to infection" #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 3️⃣7️⃣ Viruses can trigger the development of cancer. Therefore, clean the air so no more cloaca to breathe! Reskeets and quote posts are very welcome! 🤍 www.nature.com/articles/d41...

💯 #CallForPublicHealthAction & ICYMI this by the awesome @juliadoubleday.bsky.social: "unfortunately, we have a public [...] unaware of the problem, thanks to the tireless efforts of our political leaders [...] who pushed for a 'new normal' of forever COVID" "...what can we do about it anyway?" 👇

One of the reasons why we need prevention of airborne diseases: www.nature.com/articles/d41... #CallForPublicHealthAction

Starting to doubt that a treatment or cure will come soon enough for me to witness it, and that's a really sad thought.

📣 #callforpublichealthaction We will not give in and will continue to demonstrate until, for example, the German Society of Neurology finally removes its dogmatic anti-scientific stance on the psychologization of #ME/cfs! Week 3️⃣6️⃣ Reskeets and quote posts are very welcome! 🤍

Full article in the Times My daughter died from ME. This new plan fails her and others like her - Maeve died at 27 from severe myalgic encephalomyelitis. What’s been published after years of waiting is little more than warm words archive.ph/2025.07.21-2...

If we've learnt anything from the Covid pandemic, it should be that we need to continue to look after each other. We demand: 😷 Masks in care spaces 🌬️ Clean air in public buildings 💉 Access to vaccines 🔬 Research 📢 Open communication #LongCovid #CovidIsNotOver #CallForPublicHealthAction

🧵Today marks the 1-year anniversary of the #CallForPublicHealthAction demonstration 🥳🎂 and we're celebrating by making a few updates! Most importantly, we've created an account 👇 dedicated to the demonstration, and our plan is to post from this account once a week. >>

📢 Online demonstration, day 3️⃣5️⃣4️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

Day 2️⃣7️⃣2️⃣ and I continue to #CallForPublicHealthAction with friends outside the 🇨🇦 🇸🇪 🇩🇪 🇬🇧 🇺🇲 parliaments for the right to cleaner air, vaccines, evidence-based infection control, public education, and healthcare and biomedical research for PostCovid and ME/CFS!  #VirusesNeedYou #WearARespirator

I’m demonstrating virtually outside the 🇩🇪 @bundestag.de. Day 2️⃣8️⃣4️⃣ 📢 #CallForPublicHealthAction 📢 Demonstration for the right to #CleanAir, vaccines, evidence-based infection control, scientifically sound public education, adequate care & biomedical research for #LongCovid / #MECFS

📢 Online demonstration, day 3️⃣5️⃣3️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧,🇺🇸+🇩🇪 parliaments for #CleanAir and care + biomedical research for #PAIS + #MEcfs! Day 2️⃣8️⃣1️⃣ Why is the silence from the unaffected about PAIS + ME so loud? Are you afraid that it might affect you? #CallForPublicHealthAction Please reskeet us!🤍

📢 Online demonstration, day 3️⃣5️⃣2️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧,🇺🇸+🇩🇪 parliaments for #CleanAir and care + biomedical research for #PAIS + #MEcfs! Day 2️⃣8️⃣0️⃣ Chronic diseases have increased dramatically since COVID. End the silence and fight for #CleanAir! #CallForPublicHealthAction Support us with reskeet! 🤍

I’m demonstrating virtually outside the 🇩🇪 @bundestag.de. Day 2️⃣8️⃣2️⃣ 📢 #CallForPublicHealthAction 📢 Demonstration for the right to #CleanAir, vaccines, evidence-based infection control, scientifically sound public education, adequate care & biomedical research for #LongCovid / #MECFS

📢 Online demonstration, day 3️⃣5️⃣1️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

I’m demonstrating virtually outside the 🇩🇪 @bundestag.de. Day 2️⃣8️⃣1️⃣ 📢 #CallForPublicHealthAction 📢 Demonstration for the right to #CleanAir, vaccines, evidence-based infection control, scientifically sound public education, adequate care & biomedical research for #LongCovid / #MECFS

Day 2️⃣7️⃣0️⃣ and I continue to #CallForPublicHealthAction with friends outside the 🇨🇦 🇸🇪 🇩🇪 🇬🇧 🇺🇲 parliaments for the right to cleaner air, vaccines, evidence-based infection control, public education, and healthcare and biomedical research for PostCovid and ME/CFS!  #VirusesNeedYou #WearARespirator

📢 Online demonstration, day 3️⃣5️⃣0️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧,🇺🇸+🇩🇪 parliaments for #CleanAir and care + biomedical research for #PAIS + #MEcfs! Day 2️⃣7️⃣8️⃣ Chronic diseases have increased dramatically since COVID. End the silence and fight for #CleanAir! #CallForPublicHealthAction Support us with reskeet! 🤍

Day 2️⃣6️⃣9️⃣ and I continue to #CallForPublicHealthAction with friends outside the 🇨🇦 🇸🇪 🇩🇪 🇬🇧 🇺🇲 parliaments for the right to cleaner air, vaccines, evidence-based infection control, public education, and healthcare and biomedical research for PostCovid and ME/CFS!  #WearARespirator #DoNoHarm

📢 Online demonstration, day 3️⃣4️⃣9️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

I’m demonstrating virtually outside the 🇩🇪 @bundestag.de. Day 2️⃣7️⃣9️⃣ 📢 #CallForPublicHealthAction 📢 Demonstration for the right to #CleanAir, vaccines, evidence-based infection control, scientifically sound public education, adequate care & biomedical research for #LongCovid / #MECFS

📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧,🇺🇸+🇩🇪 parliaments for #CleanAir and care + biomedical research for #PAIS + #MEcfs! Day 2️⃣7️⃣7️⃣ Chronic diseases have increased dramatically since COVID. End the silence and fight for #CleanAir! #CallForPublicHealthAction Support us with reskeet! 🤍

📢 Online demonstration, day 3️⃣4️⃣8️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social