Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed their minds” Clip from Hope 4 ME & Fibro NI Collaboration

Helen Gibson and Edward Monroe on BBC Radio 4’s Feedback challenge Suzanne O’Sullivan’s claims that #LongCovid is largely psychosomatic when she was interviewed on Amol Rajan’s podcast. Mentions #MECFS, NICE’s 2021 guidance and DecodeME genetic findings.

Important post from Dr Todd Davenport about PEM. likeannopeningbandforthesun.substack.com/p/in-pursuit...

@johnrain.co.uk just realised what your profile pic reminded me of… Are there any more Columbo eps in the podcast pipeline btw? 🤞

Happy 8th anniversary to the tweet that changed us forever. Look at this absolute unit.

@syskpodcast.bsky.social Stuff You Should Know: How to pronounce Rochdale 😂 The cooperative idea wasn’t about building utopia, mill owners in the 1800s trapped workers in debt, paying them in tokens that could only be used in the mill owner’s expensive shops. Co-op was a way to help those workers

The last couple of days of Long Covid Awareness Month. Was fortunate to have Dr David Putrino on The Butterfly Pavilion Podcast. "The Long Covid Kaleidoscope" podcasts.apple.com/us/podcast/t... 👀 @mileswgriffis.bsky.social #LongCovid #LongCovidAwareness #podcast #cancer

Thank you @mrkennycampbell.bsky.social for a superb, well-informed episode. Claire was utterly brilliant. Thank you @quietriotpod.bsky.social @pimlicat.bsky.social and @sturdyalex.bsky.social for highlighting this important issue, it means a lot — sufferers have largely been forgotten & abandoned 🙏🙌

❤️‍🩹 A THANK YOU TO OUR COMMUNITY ❤️‍🩹 Today is Long Covid Awareness Day. Around the world, people will be talking about Long Covid, learning more about what it is, and hearing about its impact. 1/3

Long Covid awareness Day (March 15) aims to raise awareness of the long-term health problems people may experience after a COVID-19 infection. You can find out more about Long Covid and the symptoms here: https://meassociation.org.uk/vqei #LongCovid #LongCovidAwareness #LongCovidAwarenessDay2026

@alexlowe1.bsky.social Great show, the spirits in Derby were strong tonight! Just wanted to say thanks for saying hello when I was waiting outside for my mate to arrive — you made my day x

Best appreciated whilst watching it with this as the soundtrack:

“Is it any wonder that people in this room, people who are watching at home get so angry with GPs who dismiss it, with people who say it's psychiatric… they don’t want to be ill” Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s.

Dr. Anne MacIntyre speaks about the importance of early diagnosis of #MECFS so patients can get appropriate rest. She also raises concerns about children being forced into things such as exercise programmes. Clip from Kilroy, early 1990s.

I've sent an email, I used the one from the Canary article and changed it a bit. This is so heartbreaking. 💔💔💔

Medscape: 'Multiple Abnormal Responses to Exertion Seen in ME/CFS' 'The new plasma profiling study focused on PEM..6361 unique proteins with patient-reported symptom data gathered before, during & after 2 days of maximal cardiopulmonary exercise testing..' www.medscape.com/viewarticle/...

Respectfully Jon Stewart, you were wrong on the @weeklyshowpodcast.bsky.social to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further 1/

Was at a Christmas party with a load of clergy last night and as some people were leaving they found a person collapsed on the street outside so the Verger took over and called an ambulance and sent all the clergy away because "if they wake up surrounded by priests that'll just make things worse"

Appreciate all the new follows but have been low on energy to catch up. If you haven't caught the latest podcast, I'd encourage a listen and share. Akiko Iwasaki talks long Covid and stage IV cancer with us on The Butterfly Pavilion Podcast. podcasts.apple.com/us/podcast/a...

Why do I wear an N95 mask? Bc Covid will happily destroy your immune system, more each time you get it. It can give you a whole new syndrome and/or awaken & worsen dormant viruses+syndromes. You do not want a mystery disease like my loved one has now. Our system does not know what to do with you.

Happy Fenton Day to all who celebrate. Jesus Christ, fourteen years. youtu.be/3GRSbr0EYYU

School pupils are to be taught how to tackle conspiracy theories, spot 'fake news' & root out misinformation. The Daily Mail, ajudged by Wikipedia to be an unreliable new source, is furious. You don't have to be Sherlock Holmes to work out why.

Sorry for the silence: The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.

Mirror: “Covid Inquiry reveals ‘forgotten’ children left disabled by Long Covid” www.mirror.co.uk/news/uk-news...

Boris Johnson Faces COVID Inquiry as Long Covid Children Demand Recognition and Accountability. He's called Long Covid: 👉 B*ll*cks 👉 Made up like "Gulf War Syndrome" It's time for answers... Our #PressRelease: www.longcovidadvoc.com/borisjohnson...

The BBC are accidentally running the subtitles to Mrs Marple over the Mercury Prize, and it’s rather wonderful. A few of lines could plausibly have been written by Jarvis.

@marciles.bsky.social Incredible 😅Surely worth having to rewrite your match report for!

Every time I accidentally ping the arm off my glasses 🙄 If you know, you know!

Today is a day when arts degrees are worthless, but the product of those degrees is so valuable it would kill an entire industry if they were made to pay for it.

Please sign & share if you can 🙏 Ensure UKHSA monitors & reports on the numbers of COVID infections that occur in healthcare settings through its routine surveillance programmes, & advises on how to prevent & control infection in hospitals, care homes & schools petition.parliament.uk/petitions/73...

I’m watching and it’s astounding. We all knew something like this was going on - but the extent of it! While so many were suffering, dying, sunk into loneliness - a few were absolutely RAKING IT IN. The COVID health crisis was a very, very lucrative opportunity for some.

Metro UK: “The long Covid legacy: ‘People don’t want to think about us” ‘Alex Sprackland caught Covid-19 in March 2020, he thought he’d be back to normal in no time…five years on, the 34-year-old still grapples with the severe, life-limiting effects of the infection’ metro.co.uk/2025/09/20/l...

This is how you do it. UK media take note.

Wordle 1,535 1/6 🟩🟩🟩🟩🟩

I will die on this hill: it isn’t hard to say “at the height of the pandemic” or “at the start of COVID” during a podcast interview. Producers, hosts, don’t let your guests say “during COVID” like this thing is over. Correct them. Ask them to say the sentence again. This is your job.

Clip from The Guardian’s Science Weekly podcast: @nickyproctor.bsky.social describes how doctors dismissed her #MECFS as psychological, before she crashed completely and became mostly bedbound, unable even to hold a conversation.

www.notjustfatigue.org/past 2011 "The UK funds a £5 million study known as the PACE Trial, offering participants cognitive behavioral therapy and graded exercise therapy to combat their “false illness beliefs” (29)

Great thread 🧵

Missing that view already #Criccieth #Wales

"This is important, this is big actually"

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. - Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s

Pursue engagement at the cost of credibility and you’ll deserve neither and lose both.

The BMJ has not published a rapid resopnse from Maeve Boothby O'Neill's mum, @swastrosarah.bsky.social‬, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here. virology.ws/2025/07/23/t...

Incredibly powerful watch about the government plan on ME from @binitakane.bsky.social and Sarah, whose daughter Maeve died from ME. NHS urgently needs to commission specialist services for the 100,000s people living with this debilitating condition. watch here youtu.be/GZbSrdtiA9k?...

Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."

2:41 in from the start - some of my response to the long awaited DHSC _Plan for ME_ and where we are now. Thanks to BBC Radio 5 live for the opportunity www.bbc.co.uk/sounds/play/...

BBC: 'Chronic fatigue is not in your head, it's in your blood - experts' 'University of Edinburgh researchers said their findings could pave the way for a "game-changer" diagnostic test.' www.bbc.com/news/article...

www.theguardian.com/society/2025... Ondine did such a huge job to get recognition for all with Long Covid👇