I’ve just donated to this worthy cause

Chris Ponting is an absolute hero. He's involved with this work because of his friendship with Simon McGrath who was at Oxford Uni with him. Chris has spent hours travelling to visit Simon. Amazing guy. #c4news #DecodeME #MEcfs

Proud to be on the Science Advisory Board for DecodeME, a peripheral role but a fantastic vantage point from which to witness such outstanding work by Chris Ponting @cgatist.bsky.social and colleagues #MECFS #pwME www.theguardian.com/society/2025...

#DecodeME on Channel 4 news #MEcfs #MyalgicE #pwME #MEscience youtu.be/DWCF1_-0yP0?...

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more. These findings reflect the lived experience of thousands of #pwME. Thanks to all our participants & supporters who made this possible! Read a summary of our results: shorturl.at/pgsjk

Clip: Channel 4 News, Prof Chris Ponting tells a participant that the DecodeME study found eight genetic differences in people with MECFS — demonstrating that it’s a biological, organic illness.

“DecodeME also looked at genetic signals associated with depression and anxiety that were near the genetic signals found for ME/CFS, and found that neither involved the same causal variants as ME/CFS” www.decodeme.org.uk/x-marks-the-... where ME/CFS biology can be discovered - DecodeME

For the statistical geneticists among you, the GWAS summary statistics are now freely available to be downloaded. Look under DecodeME Summary Statistics here: osf.io/rgqs3/files/...

www.change.org/p/save-savan... www.change.org/p/the-nhs-mu... www.change.org/p/save-karen...

Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!

Ashley Dalton is @ashleydaltonmp.bsky.social

@rthonwesstreeting.bsky.social I can't find Ashley Dalton on here so tagging you in with total support for what you have had to do. Hope BMA negotiations are going better.

@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear. #MEKills #HumanRights

It’s #MEAwareness Day! MECFS has one of the lowest QOL of any disease and yet most providers incorrectly believe it’s psychological and refuse to use current best tx practices. For my healthcare friends, the Bateman Horne Center just released a very comprehensive clinical care guide.

Bailouts won't fix the sewage scandal and won't reduce bills. Join me and @GoodLawProject to call on Steve Reed to stop water company greed goodlaw.social/uk6y

Pyjamas and #TOTP

Christmas cards still available from the charity 10 cards per pack - £2 per pack (includes postage, for UK delivery - email us for outside of UK) www.investinme.org/ccard2024.sh... #mecfs #research #philanthropy #Christmascards #CofEforME

#InvestinMEResearch - How We Effectively Energise ME Research Finding, Funding and Facilitating Research into ME investinme.org/invest-in-me... #mecfs #GivingTuesday #research #philanthropy #CofEforME

🆕 Our researchers have helped develop a new multiple organ-on-chip system to help study how neurotoxins move from the gut to the brain 🧠 A collaboration with @universityofessex.bsky.social University of Hull and UKHSA 🔬 https://buff.ly/3BlKH0l

Her Royal Highness The Princess Royal today visited the Quadram Institute on the Norwich Research Park to hear about our work in protecting and improving health. @nnuh.bsky.social https://buff.ly/41y6NY6

mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME

Every journey has to start somewhere. Back running after a month off. Got round 3 miles and it nearly killed me. Up and running for Belfast Marathon (european country 33) Aiming to get to £55k by end of 2025 for @investinmeresearch.bsky.social www.justgiving.com/mikeseumarathons

Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.

@abrokenbattery.bsky.social video on #myalgicencephalomyelitis is brilliant. Includes everything you would want people to know about the history of ME. www.youtube.com/watch?v=RiwX...

📣 Don’t forget this evening, Weds. 11th Dec. at 7pm GMT: 🔥 Fireside Chat Series - Lessons from the US #2: Mast Cell Activation Syndrome with @binitakane.bsky.social, Long Covid Support’s @helenoakleigh.bsky.social & guest Dr Tania Dempsey. #LongCovid #MCAS ➡️ Link: www.youtube.com/watch?v=i4M3...

A statement from The Onion about InfoWars.

One year ago today. #longcovid rfh1955.blogspot.com/2023/12/phot... rfh1955.blogspot.com/2023/12/phot...

Here are some nice mushrooms

I was today years old…

It’s seductive to think that people with ME who are in remission might be “cured,” but I would have significant concerns about force readiness involving a population who may relapse into severe forms of disability with they types of exertion military service requires. inews.co.uk/news/politic...

www.thelondoneconomic.com/news/media/o... I’m shocked. Shocked and stunned. Stunned and shocked.

Another reminder: Respiratory infections spread mainly through the air. That’s why they affect the lungs. Masks, worn correctly and consistently, reduce the spread of respiratory infections. Respirators work better than masks. Washing hands isn’t wrong, but it won’t stop airborne transmission.

Thread: 1/4 The AGM of the MEAssociation is being held today. With the current interest in, and focus on, governance at the Charity, I requested remote access to the meeting, as an observer (I am not a member). My request was denied on the basis of a "members only" attendance policy.

On the one hand an MP found to have told the truth about a minor conviction, on the other an MP found to have lied about being locked up for kicking seven bells out of a young woman...

Contrary to popular belief, there are only four kinds of bats.

There IS a left-wing agenda, and it’s to prioritize compassion over greed. Kindness isn't a limited resource.

@abrokenbattery.bsky.social video on #myalgicencephalomyelitis is brilliant. Includes everything you would want people to know about the history of ME. www.youtube.com/watch?v=RiwX...

@abrokenbattery.bsky.social #greatestmedicalscandal “George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century" New 27 min explainer video about the scandal. #myalgicE #disability www.facebook.com/brokenbatter...

Jeremy Clarkson, who owes his fame & fortune in large part to the BBC, sneers at the brilliant @vicderbyshire.bsky.social for being ‘classic BBC’ when she uses *his own words* to describe his position.

**COMPETITION TIME** Repost, Like & Follow us to be in with a chance to #WIN a REGA Planar 3 RS Edition turntables worth £999.00. Find out more here: shorturl.at/Z6rsp One lucky winner will be selected at random from all entrants on the 18th December 2024. Enter on X and IG also. Good luck!🤞

I ripped this video from Eleonora Svanberg on X (she’s not on 🦋) She wrote: “I'm a PhD student at @UniofOxford and I think I'm living in a fairytale :-) Foxes playing around in the snow at Magdalen College this morning — absolutely magical!”

Fighting Dirty, our campaign to challenge the legal loopholes polluters use, is now on Bluesky. Please do give us a follow: @fightingdirty.bsky.social‬

In March, colleagues and I wrote to BMJ to express concern about a paper claiming online rehab was "clinically effective" for treating #LongCovid. The data reported did not support this, given the study's effect size & niche sample. Here @davetuller1.bsky.social describes how BMJ responded #pwME

#ThereForME rightly suspends collaboration with the ME Association. "In good conscience, we cannot continue our collaboration with the ME Association until the community’s valid concerns have been sufficiently addressed." #MyalgicEncephalomyelitis #pwME #MECFS #LongCovid

Thanks for following if you don't know me. I've just passed the 10 year anniversary of when I began running marathons for ME research. I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet 🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪

Please follow Mike! He is an incredible Human who has run over 9000 miles to raise money for @investinmeresearch.bsky.social over ten years raising over £50k to help #pwme #myalgicE 💙