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On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

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Third delay to #ME care plan prompts backlash from patients. We #pwME are put firmly onto the back burner once again. No ring fencing for research, apparently no money available at all. Let’s face it, they just don’t care. www.thetimes.com/article/a09b...

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I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses. Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue #May12 #MEcfs #PwME

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well, the crowdfunder has reached two-thirds of the goal and there's still several days left! It's a very tough time all around so I'm pleased it's done this well: crowdfund.berkeley.edu/project/46120

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Pls take a minute to vote for Invest in ME Research & help them receive a share of £500,000 in grants at MyGivingCircle.org. Every vote counts, so let's rally together & make an impact. It’s free to vote so go on… pls 🙏🏻 mygivingcircle.org/invest-in-me... #pwME #MECFS

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I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC 1/

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It's 8-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe. journals.sagepub.com/doi/full/10.... #MEcfs #CFS #MyalgicE #CBT

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Daily view! #severeME The flowers will change but will the circumstances. It’s the same for millions of us and is anyone listening?

#internationalwomensday #ME disproportionately affects women by a ratio of approx 4:1 & women are more likely to have #SevereME than men. We are disbelieved, mocked and ignored. Very little funding for research, treatment or education. Would this be the same if the ratio was reversed?

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Do @actionforme and @MEAssociation support the #FundThePlan initiative? Have they seen the incredibly moving videos? Perhaps they would like to lend their support and voice to try to save the Delivery Plan and the requests that #pwME are asking for Many members would support this if they knew.

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it.  We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️

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From #TheRedTreeandME @putrinolab.bsky.social Let’s believe it 🤞🙏

From Ronald W, Davis, PhD. - HOPE FOR 2025 - I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure…. New post on my blog: www.whitneydafoe.com/mecfs/?post=... #MECFS #LongCovid

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(6-minute video) Life with a Low Battery: Living with ME/CFS www.youtube.com/watch?v=gKWk... Image from AMMES newsletter #MEcfs #CFS

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