Pls take a minute to vote for Invest in ME Research & help them receive a share of £500,000 in grants at MyGivingCircle.org. Every vote counts, so let's rally together & make an impact. It’s free to vote so go on… pls 🙏🏻 mygivingcircle.org/invest-in-me... #pwME #MECFS

Coping Over Christmas chronicpain.ie/information-... Written by a chronic pain group but relevant for anyone who needs to pace their activities. #ChronicPain #LongCovid #MEcfs

Please vote for free for the small volunteer-run charity INVEST in ME RESEARCH & help them receive a share of £300,000 in grants at MyGivingCircle.org at the end of the year. Every vote counts, no pressure to donate #VoteForImpact #MECFS #pwME mygivingcircle.org/invest-in-me...

#MECFS #PwME Pls vote for Invest in ME Research at MyGivingCircle.org It’s free to vote & will help Invest in ME Research win a share of £300,000 in grants. It’s easy! This is the page you get to when you click on this link: mygivingcircle.org/invest-in-me...

This #SmallBusinessSaturday, we are excited to share new items in our store! We have a new design, Strength in Community, featuring our logo in a heart! We also have a new item- joggers! Our #MillionsMissing & #StillSickStillFighting are also available! www.bonfire.com/store/meacti... #pwME

The Calgary Herald, Canada. 30th November 1996. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

The We&Me foundation is funding a large healthcare study in people with #MECFS and #PAIS (including #LongCOVID). The larger the sample size, the better, so fill it in if energy permits and share. s2survey.net/pais/index.p... [It’s quite long but it lets you pause; better to open in browser]

I wrote an article to help people with #MyalgicEncephalomyelitis connect on Bluesky. Feel free to share. (My Substack is free) open.substack.com/pub/colleens...

Very helpful article especially for #ME #LongCovid people testing the water here. 👇

Thanks for sharing this Carole, so helpful! 👍🏻👏🏻 x

👀 👀 have a look at how you can help improve physiotherapy education

The 250,000 figure for ME sufferers is now ancient, from research done in the 1980s. There are 750,000 - 1.2 million ME patients in the UK from recent research. Funding wise the only biological research I can find since 2000 is [email protected], making it about 13p per patient a year.

Earlier, ME Research UK highlighted that there are major limitations of taking existing prevalence estimates and applying them to the UK population in 2024. The next article in this series explains why this is the case in more detail: www.meresearch.org.uk/what-are-the... #MEcfs #CFS #PwME

It's been great to see the influx of people from the ME/CFS and long Covid community in the last week. Here's a starter pack by @chromatowski.bsky.social that's worth checking out: bsky.app/starter-pack... It lists interesting people to follow and also has a feed #MEcfs #CFS #PwME #LongCovid 1/

Please take the time to sign this - one link for USians and one link for the rest of us.

Just a gentle reminder that fear of movement doesn’t correlate with cardiopulmonary exercise test results in people with ME/CFS. The cause of exercise/physical activity intolerance in living with PEM/PENE isn’t that they are afraid to move. A 20-year-old study. pubmed.ncbi.nlm.nih.gov/15283620/

There are not enough words to describe life with a chronic illness. #notjusttired #mecfs #longcovid

Mike Harley runs marathons to raise funds for ME research. A well good human. Def worth a follow! :)

Lovely people of bluesky - if you are looking for gifts this season, my book - 25 birds, one year one garden is reduced on Amazon! All profits to biomedical research (#mecfs) #ukbirding 25 Birds amzn.eu/d/cxOGiEg

We have been here a while From Broken Wings to (hopefully) Clearer Skies www.investinme.org/iimer-newsle...