This is a lengthy survey with deeply biased premises BUT anyone in the UK (or UK citizens elsewhere) who wishes for a compassionate immigration system that doesn’t privilege the rich & penalise the vulnerable would be advised to fill it out, carefully. I will now sit here in rage for a while.

I made cheese scones! The ingredients where weighed out a week ago, then I crashed so couldn't make them

Great to have this new review for a relatively neglected area in the research literature An Overview of Severe Myalgic Encephalomyelitis Free fulltext: www.mdpi.com/2077-0383/15... #MyalgicEncephalomyelitis #SevereME #MEcfs #CFS #PwME #ChronicFatigueSyndrome #SevereMECFS

I have a new paper out, based on the keynote I gave last year :-) How to design the perfect lecture iopscience.iop.org/article/10.1... via @epl_journal

I have a new paper out, based on the keynote I gave last year :-) How to design the perfect lecture iopscience.iop.org/article/10.1... via @epl_journal

A lot of the #pandemic and #longCOVID literature focuses on its physical effects, but neglects to mention that social isolation is one of the most serious and widespread harms caused by the disease. #healthcare #chronicillness #disability

Young kids pedalling - literally - drugs for organised gangs. And what we did about it. Please boost if you can @annakwood.bsky.social @emmaburnell.bsky.social @markpackuk.bsky.social @ducklings.bsky.social @premnsikka.bsky.social @chairmanmoet.bsky.social @hannahfearn.bsky.social

Anyone looking for a gift for your chronically ill loved one? I recommend this by a friend with severe ME. Link below but available from all good bookshops. Only £16 #mecfs www.amazon.co.uk/Crafting-Pat...

Very excited to be part of this - looking forward to working with my mentor @pollyrowena.bsky.social

Reflection on water droplets by @annakwood.bsky.social I’ve been meaning to read for a long time now. Beautiful. annakwood.substack.com/p/ladys-mantle

oo I have exciting news - you can now buy my book 25 birds directly from Ingram Spark (who print it) for £14.50! Much better than the Amazon price and still making a good amount for Action for ME (to go to biomedical research). Link here shop.ingramspark.com/b/084?params...

Right beloveds we had so little uptake of this that I’ve extended the deadline indefinitely — if you’re someone who loves sales and marketing and wants to work for my small but mighty disabled-majority social enterprise, please apply!

When you go to Auschwitz they have piles of jewellery and watches which were confiscated from those arriving.

I had the most beautiful message from an acquaintance recently about my 25 Birds book 'the perfect book to inspire an interest in wildlife ' 😊💕 All profits to Biomedical research #mecfs #NatureWriting

Should have tagged this with #NatureWriting

Eeeek! I have some exciting news - I've been awarded one of the Curtis Brown Breakthrough Mentoring Scheme places for disabled writers! 😁 🎉 I'm writing a narrative non-fiction book about discovering nature in my garden, my experience of being housebound and chronic illness

See that gorgeous smile, there? That’s recent birthday girl @annakwood.bsky.social having just opened the 🎁 I made for her big birthday: a cushion inspired by Rennie Macintosh, upcycled from purple fabric I had saved for special use. #sewing #upcycling #charlesrenniemackintosh #chronicillness #MECFS

If they only knew how to zoom in, they might just be able to make out the red poppy too....

We own and adore this book! #BookSky #BirdSky

Thank you so much for this fabulous review of my book 25 birds, one year one garden - if you'd like a gentle book for the bird liver in your life then find it on Amazon All profits to #MEcfs research

This thread is adapted from my substack "Heist of the century - could a simple maths problem have foiled the Louvre robbery?" Please check it out. open.substack.com/pu... 9/9

Hi all I'm doing a birthday fundraiser (big birthday coming up next week). It's for the Daratumumab trial which is really exciting, via Joan Crawfords just giving page. I think this has huge potential and needs a proper clinic trial. Please share #mecfs www.justgiving.com/crowdfunding...

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Headline is inaccurate. The results need to be verified. Patient selection isn't clear but it seems all were homebound. The paper includes a good list of immune dysfunction seen in #MyalgicEncephalomyelitis Link to the paper: translational-medicine.biomedcentral.com/articles/10....

Researchers implanted CRISPR-edited pancreas cells into a person with type-1 diabetes. The cells produced insulin for months There was no need for immune-dampening drugs, due to gene edits that allowed the cells to evade detection by the recipient’s immune system. 🧪 www.nature.com/articles/d41...

Rooks in a field yesterday! It's a bit of a joke in the birding group that I didn't see my first rook until October last year (more likely just hadn't noticed one). Beautiful birds

A great response to the salt path and nature cure narrative

I'm not at #ViCEPHEC25 but hope you all have a great conference and will follow anything posted here

Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome now on medRXiv www.medrxiv.org/content/10.1...

Channel 4 News – full segment on DecodeME results (9 mins) — the world’s largest genetic study of #MECFS — identifies eight genetic differences. Includes interviews with Prof Chris Ponting, a patient participant, Sonia Chowdhury, and MP Tessa Munt. youtu.be/c5i_K3QEbCI?...

#MEcfs #LongCovid

Israeli Ch12 Daphna Liel on the plan to get the hostages killed and ethnically cleanse the population of Gaza. Sooner or later, European sanctions will be imposed. The only question is how many more would be killed and injured.

#MEcfs @decodemestudy.bsky.social: "We plan to send you an email with [initial DNA findings] on [6 August]...We're letting you know the timing in advance so you can pace yourself if needed." This is unbelievably exciting, & how lovely that our energy levels/PEM are considered by the research group!

Anyone else listening to the cricket? #nervous

I know they are coming late in the day but I think we need to welcome each change of hear if we are to stop this genocide forward.com/opinion/7598...

A short piece on overabundance and starvation in Gaza

A very thoughtful summary of the issues. Bittersweet to see friends & s/heroes in the conversation, even whilst a door to one mode of our writing is closing. (I know there are many other doors, some about to have their time.)

"plums with the flavour profile of an expensive red wine; deep, fruity, sweet but also sharp. Hints of lemon with a nutty undertone. But the taste of the plums is tarnished by tears" #natureWriting #Gaza annakwood.substack.com/p/on-overabu...

I'm shocked and horrified by this

More donation links from The Sameer Project... (a donations based aid initiative for Gaza led by Palestinians.)

Rosebay willowherb - often seen as a weed, but it has the most beautiful flowers, loved by bees and a favourite food of the elephant hawk moth catepillar

josephfinlay.com/ending-war-a... The time for equivocation is over - primarily for the sake of Palestinians but also for the well being of Jewish tradition. An immediate end to the war and unrestricted entry of aid to Gaza is the bare minimum we should be calling for.

@nicwilson.bsky.social I've just started your book which I'm enjoying - I just wondered if we were in Durham at the same time - I was there 1994-1997 and then till 2000 doing my PhD (Collingwood)

Three of our local family of 5 ravens. Nice to see them still around

Link here

This is such a great interview! Highlights include: the joys of collaborating with people with lived experience, the excitement of seeing results of rigorous trials (even though results have been mostly negative), and that across the field, we're all on the same team

Do my writing friends know if I wrote something on substack if I can put it in a (potential ) book at a later date, or does the book need to be completely unpublished?

I know everyone is exhausted, but if you can possibly bear it, please pop on this link, copy and paste the email, and get it sent to your MP today. There’s a link here + MP address: docs.google.com/document/d/e... #BinUCBill

It's so lovely to read pieces that come out of my workshops. This, by @annakwood.bsky.social, focuses on the ethos: take only what you need, give back if you have too much. Wise watery words...

ICYMI Inspired by @nicwilson.bsky.social workshop recently: #NatureWriting open.substack.com/pub/annakwoo...