Doing a little celebratory dance (in my head) - just finished another chapter, that's 6 written, another 4 to go. It's slow going with ME and trying to pace. This is actually the final one in the book - it's weird knowing how it ends!

Looks like an incredible resource

Rubbish day today, always frustrating when feeling worse than I think I should based on how well I have been packing/sleeping Anyway here is a hover fly from the other day

Help! I'm looking for people with ME/long covid or similar who do something creative (eg painting, photography) that is inspired by nature to feature in my book. Ideally people more severely affected than me, so bed bound or partially bed bound #mecfs

Wonderful writing, Anna. I look forward to reading more.

A sneak preview of chapter 1 of my book - about dunnocks and ME. There's an audio for those who struggle to read open.substack.com/pub/annakwoo...

I've now read it Anna. What a striking description of your epiphany - noticing the beauty and wonder in the commonplace. And helpfully answering my question about nomenclature before I asked it! Good luck with the the other half 🍀

Time for celebrations 🎉🎉 - I've finished another chapter which means I've written HALF A BOOK! I can't quite believe it! Would anyone like a sneak preview of chapter 1? I'm going to publish a post on substack tomorrow to celebrate #mecfs #NatureWriting

The new motability mileage cap (10,000) is 27 miles a day. I work from home and we still somehow do 8000 miles a year. What are folks who have to drive to work supposed to do?

It's that time of the year - got my @ALCS_UK payout 😁 Not as much as usual as so many of my papers are open access now, but still over £100 so I'm happy 😊

Having a day off writing today - instead letting my brain ponder the next chapter and how I'm going to make it work. Just as important as writing actual words

Celebrating finishing writing a chapter yesterday 🎉🎉. It feels so slow - is this everyone's experience or just mine because I'm so limited in how much I can do each day? #IAmWriting

@clairerwade.bsky.social hi Claire can I be added to the starter pack please?

In Authors with Disabilities and Chronic Illnesses (ADCI) we are discussing the issues and obstacles disabled, chronically ill & neurodivergent authors face when asking for access requests. This follows the launch of our access document, download it here: societyofauthors.org/groups/autho... 1/

@ashleydaltonmp.bsky.social Your words “these must become never events” PLEASE INTERVENE TO SAVE LIFE Savannah has not eaten for 9 weeks. There are no NHS services for severe ME - 7 months since publication of the Delivery Plan for ME/CFS www.meresearch.org.uk/claims-of-nh...

The trouble with writing a book is it's so hard to stop and pace and I keep forgetting how much cognitive energy it takes and that it's the easiest way to crash myself 🫣

OH MY! Land Beneath the Waves is one of BBC Wildlife Magazine's seven best adult books of 2025! And in such wonderful company! Totally made my year! 🥰💚 @summersdalebooks.bsky.social #naturewriting #chronicillness

This is a lengthy survey with deeply biased premises BUT anyone in the UK (or UK citizens elsewhere) who wishes for a compassionate immigration system that doesn’t privilege the rich & penalise the vulnerable would be advised to fill it out, carefully. I will now sit here in rage for a while.

I made cheese scones! The ingredients where weighed out a week ago, then I crashed so couldn't make them

Great to have this new review for a relatively neglected area in the research literature An Overview of Severe Myalgic Encephalomyelitis Free fulltext: www.mdpi.com/2077-0383/15... #MyalgicEncephalomyelitis #SevereME #MEcfs #CFS #PwME #ChronicFatigueSyndrome #SevereMECFS

I have a new paper out, based on the keynote I gave last year :-) How to design the perfect lecture iopscience.iop.org/article/10.1... via @epl_journal

I have a new paper out, based on the keynote I gave last year :-) How to design the perfect lecture iopscience.iop.org/article/10.1... via @epl_journal

A lot of the #pandemic and #longCOVID literature focuses on its physical effects, but neglects to mention that social isolation is one of the most serious and widespread harms caused by the disease. #healthcare #chronicillness #disability

Young kids pedalling - literally - drugs for organised gangs. And what we did about it. Please boost if you can @annakwood.bsky.social @emmaburnell.bsky.social @markpackuk.bsky.social @ducklings.bsky.social @premnsikka.bsky.social @chairmanmoet.bsky.social @hannahfearn.bsky.social

Anyone looking for a gift for your chronically ill loved one? I recommend this by a friend with severe ME. Link below but available from all good bookshops. Only £16 #mecfs www.amazon.co.uk/Crafting-Pat...

Very excited to be part of this - looking forward to working with my mentor @pollyrowena.bsky.social

Reflection on water droplets by @annakwood.bsky.social I’ve been meaning to read for a long time now. Beautiful. annakwood.substack.com/p/ladys-mantle

oo I have exciting news - you can now buy my book 25 birds directly from Ingram Spark (who print it) for £14.50! Much better than the Amazon price and still making a good amount for Action for ME (to go to biomedical research). Link here shop.ingramspark.com/b/084?params...

Right beloveds we had so little uptake of this that I’ve extended the deadline indefinitely — if you’re someone who loves sales and marketing and wants to work for my small but mighty disabled-majority social enterprise, please apply!

When you go to Auschwitz they have piles of jewellery and watches which were confiscated from those arriving.

I had the most beautiful message from an acquaintance recently about my 25 Birds book 'the perfect book to inspire an interest in wildlife ' 😊💕 All profits to Biomedical research #mecfs #NatureWriting

Should have tagged this with #NatureWriting

Eeeek! I have some exciting news - I've been awarded one of the Curtis Brown Breakthrough Mentoring Scheme places for disabled writers! 😁 🎉 I'm writing a narrative non-fiction book about discovering nature in my garden, my experience of being housebound and chronic illness

See that gorgeous smile, there? That’s recent birthday girl @annakwood.bsky.social having just opened the 🎁 I made for her big birthday: a cushion inspired by Rennie Macintosh, upcycled from purple fabric I had saved for special use. #sewing #upcycling #charlesrenniemackintosh #chronicillness #MECFS

If they only knew how to zoom in, they might just be able to make out the red poppy too....

We own and adore this book! #BookSky #BirdSky

Thank you so much for this fabulous review of my book 25 birds, one year one garden - if you'd like a gentle book for the bird liver in your life then find it on Amazon All profits to #MEcfs research

This thread is adapted from my substack "Heist of the century - could a simple maths problem have foiled the Louvre robbery?" Please check it out. open.substack.com/pu... 9/9

Hi all I'm doing a birthday fundraiser (big birthday coming up next week). It's for the Daratumumab trial which is really exciting, via Joan Crawfords just giving page. I think this has huge potential and needs a proper clinic trial. Please share #mecfs www.justgiving.com/crowdfunding...

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Headline is inaccurate. The results need to be verified. Patient selection isn't clear but it seems all were homebound. The paper includes a good list of immune dysfunction seen in #MyalgicEncephalomyelitis Link to the paper: translational-medicine.biomedcentral.com/articles/10....

Researchers implanted CRISPR-edited pancreas cells into a person with type-1 diabetes. The cells produced insulin for months There was no need for immune-dampening drugs, due to gene edits that allowed the cells to evade detection by the recipient’s immune system. 🧪 www.nature.com/articles/d41...

Rooks in a field yesterday! It's a bit of a joke in the birding group that I didn't see my first rook until October last year (more likely just hadn't noticed one). Beautiful birds

A great response to the salt path and nature cure narrative

I'm not at #ViCEPHEC25 but hope you all have a great conference and will follow anything posted here

Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome now on medRXiv www.medrxiv.org/content/10.1...

Channel 4 News – full segment on DecodeME results (9 mins) — the world’s largest genetic study of #MECFS — identifies eight genetic differences. Includes interviews with Prof Chris Ponting, a patient participant, Sonia Chowdhury, and MP Tessa Munt. youtu.be/c5i_K3QEbCI?...

#MEcfs #LongCovid

Israeli Ch12 Daphna Liel on the plan to get the hostages killed and ethnically cleanse the population of Gaza. Sooner or later, European sanctions will be imposed. The only question is how many more would be killed and injured.

#MEcfs @decodemestudy.bsky.social: "We plan to send you an email with [initial DNA findings] on [6 August]...We're letting you know the timing in advance so you can pace yourself if needed." This is unbelievably exciting, & how lovely that our energy levels/PEM are considered by the research group!