Press & Journal UK: “Westhill mum of long Covid girl invites SNP health chief to see suffering for himself” ‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’ www.pressandjournal.co.uk/fp/politics/...

Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air. stevebheadteacher.wordpress.com/2025/09/30/d...

Croakey: 'Closure of long COVID clinic leaves patients without tailored support and care' 'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.' www.croakey.org/closure-of-l...

PsyPost: 'This is the devastating, long-term reality for hundreds of thousands after COVID' www.psypost.org/this-is-the-...

2/2: 🛟 wear the best mask you can 🛟 stay home and isolate if ill 🛟 test if you have symptoms 🛟 ventilate or meet outside Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org Please share & stay safe

Covid infections are climbing again. the only way to prevent #LongCovid is to avoid catching Covid. There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2 Longcovidsos.org

@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more We need research, support & compassion Let’s #MakeNoiseForTurquoise this October

October is #DysautonomiaAwarenessMonth For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more We need research, support & compassion Let’s #MakeNoiseForTurquoise this October #POTS #Dysautonomia #invisibleillness

Can I get a ❤️ and a repost for my cancer journey podcast? The Butterfly Pavilion Podcast, "Finding light in darkness" along my stage IV #cancer journey co-hosted with my amazing daughter. open.spotify.com/show/5YPniI4...

The arc of the moral universe is long, but it bends towards justice. Except it doesn’t bend on its own—it bends because we pull it in the direction of justice. What keeps me hopeful during times like these is being surrounded by people who are doing just that.

@longcovidsupport.bsky.social @longcovidkids.bsky.social @helenld.bsky.social

The organizers of the UN event for healthy indoor air used a canary on all their materials and gave everyone canary pins. Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.

We're at a turning point. Since losing Co-Founder Ondine Sherwood in March ‘25, we need your help to continue our vital work. We’ve launched a funding appeal to hire our first paid team member to keep fighting for those with #LongCovid. Can you help secure our future? Donate today: shorturl.at/J5aan

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

📣Your voice matters. Help shape our future - what brought you to Long Covid SOS? What matters to you now? Just two minutes could help shape our future: form.typeform.com/to/WKRgCwn7

Thank you for being part of the Long Covid SOS community. A volunteer-led charity founded by people with #LongCovid, we've been fighting for recognition, research & real support since day one. 4 years on our mission is more vital than ever. Follow us and watch this space for news & updates…

The boys Patrick and Sunday enjoying my breakfast in bed! #Pets #Rats #PetRats #RatsOfBluesky #CuteAnimals #PetPhotography #RatCompanions #RatLove #SnackTime #BerryThieves #BreakfastBuddies

Happy to have arrived in beautiful Santa Fe for this #kslongcovid26 symposium where the aim is to catalyse some real difference for the 400 million sufferers

Derek didn't magically get long covid. He was infected with sarscov2 by someone who was themselves infected and spread it. We know about Derek because he was notable. Millions of others with long covid are out of sight. Condolences to f and f. www.hollywoodreporter.com/movies/movie...

I guess she’d aged out. But still seems to fit a certain pattern.

Santa Fe New Mexican: 'Long COVID symposium in Santa Fe aims to improve diagnoses, treatment' 'Altmann said the symposium is about inviting international experts on long COVID together to “knock their heads together” in search of answers for patients.' www.santafenewmexican.com/news/local_n...

Cosmos ‘Cup and Saucer’ flower grown from seed by my sis #Flower #FlowerPhotography #FlowersOfBluesky #Homegrown #Nature

NEW: A cancer drug with a fascinating history is being explored in a phase III clinical trial for Long COVID & an observational trial for ME. Past research suggests it could target a biological pathway seen in people with ME. @frogsandstars.bsky.social reports! thesicktimes.org/2025/07/29/c...

A few oil painting close-ups from The Axolotl Parade 🌿 Photos never quite do a painting justice, so I hope these short videos help give a better feel for the textures and details. #AxolotlArt #OilPaintingDetails #FantasyArt #AnimalIllustration #AmphibianArt

Today @thesicktimes.bsky.social & @statnews.com: A deep-dive on BC 007, the German drug that many people with Long COVID closely followed -- only to learn its phase II trial failed with a brief press release. But the drug still has a future. (1/8) thesicktimes.org/2025/07/22/b...

🚨 This morning we turned the street outside Labour Party Headquarters in London into Jabaliya camp in Gaza. Listen to @ahmedmasoud02.bsky.social talking about what the Israeli army did to his neighourhood and family.

🚨 RIGHT NOW opposite Labour Party HQ in London. We’ve turned their street into Jabaliya camp in Gaza. A genocide is happening, but the Labour government is supplying weapons, intelligence and diplomatic cover to the perpetrator. Protesting this is not terrorism.

89% of patients with Mast Cell Activation Syndrome (MCAS) had significant reduction in symptoms from GLP-1RAs. It is thought that these drugs stabilize mast cells and reduce inflammation. The authors recommend future randomized trials of these drugs in patients with #LongCOVID.

A heart in the sea 💛 #sea #sun #reflections #sunset

Thread of art where the artist has never seen a baby or child before. Mary Hirst, 1710

Now that everyone has had five years to learn about it, I think it says a lot that most people don’t understand even the most basic facts about Long Covid e.g. Long Covid can last five years and counting

Dr Amir Khan talked about the risks from #Covid and what long Covid is. It’s not mild and anyone can get it.

Nigel Farage says abortion laws are “utterly ludicrous.” MPs are watching. We have days to show them: the public backs abortion rights. Join me and sign the petition now! you.38degrees.org.uk/petitions/de...

Covid #Vaccination today just before they stop doing walk-ins at pharmacies 16/6 Some protection is better than not at all! Pharmacist was pretty clueless about #LongCovid but said he’d ’done a course’ Was surprised at all my #Covid onset illnesses and said he’d never heard of it lasting 5+ yrs

Long COVID destroys teenage lungs in ways doctors never saw "The assumption that children and teenagers would recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage." rollingout.com/2025/06/03/l...

✍️Doubled in Signatures in less than 24hours! Let’s hit that 10,000 mark!🥳 🇬🇧❤️🇪🇺🇬🇧❤️🇪🇺🇬🇧❤️🇪🇺🇬🇧❤️🇪🇺 #ExitBrexit petition.parliament.uk/petitions/72...

just the perfect story

The world feels like it's falling apart. You feel like you're falling apart. What are we supposed to do? I'm so excited to be joining my friends for this talk to show you how to be happy even now, and make our world a happier place too. Sign up here: us06web.zoom.us/webinar/regi...

"She points to the decimation of youth services – in England, there was a £1.1bn cut in funding between 2010 and 2021. The internet has filled this void. 'The boys I speak to are usually 14 to 19 and some have never had a conversation about consent before'." www.theguardian.com/society/2025...

Funky little guy #bugsky #Maybug #Melolontha #Cockchafer

📢 Online demonstration, day 2️⃣7️⃣4️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

Hello Sir Cockchafer of Maybug #Bugfeed #BugsOfBluesky #Maybug

We have a responsibility to ensure those most clinically vulnerable in society aren't unnecessarily exposed to infection. Whether NHS IPC will admit their mistakes or not, aerosol transmission IS inherent for SARS2 and other diseases. Please sign 👇 petition.parliament.uk/petitions/70...

Today @thesicktimes.bsky.social: writer @annawenner.bsky.social describes how COVID-19 triggered a pulmonary embolism, how healthcare providers dismissed her symptoms, and offers advice for others who might need to advocate for themselves in similar situations. thesicktimes.org/2025/04/25/c...

More Covid related problems for kids. Diabetes Type 1 and Coeliac Disease. www.tandfonline.com/doi/full/10....

Incredible carjacking story out of Australia….just wasn’t ready for the two witnesses to recount their perspective

Anyone with #LongCOVID has/had recurrent haemoptysis? Not looking for medical advice, I'm well supported & a/w bronchoscopy 🫁 but just wondered if anyone else had had this & what the cause was? (I have many theories 🙈) #LongCOVID #PwLC #TeamClots #NEISVoid