"The ICB told councillors that "most patients" recover within four to nine months. But a recent review in The Lancet, external said 71% of people with the condition had symptoms for more than a year." Well the ICB is lying then.

If you can help us please consider donating to our fundraiser and if not, please share widely. Everything helps ♥️ Thank you localgiving.org/fundraising/...

Dr Lucy Moore, chairperson of the Long Covid SOS charity, said: "If the motivation behind the closure is an ideology that long Covid is a thing of the past or over in months, it sets a concerning precedent. #LongCovid #Charity #BBC www.bbc.co.uk/news/article...

Thousands of us are still fighting debilitating symptoms that have changed our lives forever. Our volunteers at Long Covid SOS were forced to become campaigners while living with life-changing illness, just to get #LongCovid recognised Can you help us today? Donate: localgiving.org/fundraising/...

"We can no longer do this alone. The crisis is hiding in plain sight and we need help to act." - Dr. Lucy Moore, Chair of Long Covid SOS We need urgent support to continue the fight for research, better treatments & recognition for people with #LongCovid tinyurl.com/DonateLCSOS

GIVING TUESDAY 🤝 We’re asking the #LongCovid community to share & repost our donation link & help us reach a wider audience. (Or donate!) Your support helps us: ✨ Raise awareness ✨ Advocate for better care ✨ Give people living with Long Covid a voice localgiving.org/fundraising/...

We stand in solidarity with our Dutch friends at today’s PAIS protest in Den Haag. We ask our friends in the Dutch #LongCovid and #mecfs communities to support this powerful call for recognition and action

My thoughts are first and foremost with those who lost loved ones or live with life-limiting conditions like Long Covid. The Inquiry’s finding that an earlier lockdown could have saved 23,000 lives is devastating. We must learn lessons: act early, protect lives & jobs, and ensure Govt is prepared.

TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious. www.theguardian.com/uk-news/2025...

The Module 2 report and recommendations can be read here: covid19.public-inquiry.uk/reports/

The Government knew the long-term risks posed by viral infections yet failing to inform the public or collect new data undermined &invalidated those with Long Covid, created stigma and delayed access to the right care. Joint press release from the LC Groups: www.longcovidsos.org/post/covid-i...

UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support. @longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social

The Inquiry report states that by October 2020 the government was sufficiently well aware of the scale and severity of #LongCovid and should have incorporated the risk of LC into decision making, as well as communicated the risk of long term sequelae to the public. They failed us.

Our Chair Dr Lucy Moore quoted in the BBC News Live blog on the Covid-19 Inquiry Module 2 Report: “…those with Long Covid still have more questions than answers.” #LongCovid

23,000 deaths in England could have been prevented in the first wave of Covid if lockdown had started a week earlier, a new report by the Covid Inquiry has found. Read more in The Doctor Magazine👇 thedoctor.bma.org.uk/articles/hea...

We never had to capitulate to Covid. If we had taken collective steps to protect one another, we would have been able to drastically reduce transmission. I will never understand why so many people were willing to subject themselves to repeat infections when there was (and is) another path

Thanks to our amazing volunteer @helenld.bsky.social for speaking up about just how awful #LongCovid *still* is for so many of us.

#LongCovid #Charity #Volunteers #Fundraising @longcovidsos.bsky.social www.bbc.co.uk/news/article...

KPBS News: 'Obesity drug seen as effective for long COVID, gets clinical trial' “The Scripps trial is unique because it’s the first long COVID clinical trial that enables patients to participate remotely,” said John Redd, CEO of SILC www.kpbs.org/news/science...

I've never really understood the logic of "targeted vaccination". Of course, money is a huge issue and we seek to get the most out of every £ spent. Of course COVID and flu waves would be far worse without it. But, what doesn't sit well for me is the following...

We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood. The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵

As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind. Share this post or support us today  🔗 tinyurl.com/535u79va

Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.

Recently we asked our #community to share their experiences of living with #LongCovid. What they told us was powerful, urgent and impossible to ignore.

Protecting others protects us all With #Covid currently circulating there are steps we can take to prevent ongoing transmission 🏠 Stay at home 😷 Mask up 🧪 Test for Covid 🗣️ Tell others

Press & Journal UK: “Westhill mum of long Covid girl invites SNP health chief to see suffering for himself” ‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’ www.pressandjournal.co.uk/fp/politics/...

Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air. stevebheadteacher.wordpress.com/2025/09/30/d...

Croakey: 'Closure of long COVID clinic leaves patients without tailored support and care' 'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.' www.croakey.org/closure-of-l...

PsyPost: 'This is the devastating, long-term reality for hundreds of thousands after COVID' www.psypost.org/this-is-the-...

2/2: 🛟 wear the best mask you can 🛟 stay home and isolate if ill 🛟 test if you have symptoms 🛟 ventilate or meet outside Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org Please share & stay safe

Covid infections are climbing again. the only way to prevent #LongCovid is to avoid catching Covid. There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2 Longcovidsos.org

@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more We need research, support & compassion Let’s #MakeNoiseForTurquoise this October

October is #DysautonomiaAwarenessMonth For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more We need research, support & compassion Let’s #MakeNoiseForTurquoise this October #POTS #Dysautonomia #invisibleillness

Can I get a ❤️ and a repost for my cancer journey podcast? The Butterfly Pavilion Podcast, "Finding light in darkness" along my stage IV #cancer journey co-hosted with my amazing daughter. open.spotify.com/show/5YPniI4...

The arc of the moral universe is long, but it bends towards justice. Except it doesn’t bend on its own—it bends because we pull it in the direction of justice. What keeps me hopeful during times like these is being surrounded by people who are doing just that.

@longcovidsupport.bsky.social @longcovidkids.bsky.social @helenld.bsky.social

The organizers of the UN event for healthy indoor air used a canary on all their materials and gave everyone canary pins. Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.

We're at a turning point. Since losing Co-Founder Ondine Sherwood in March ‘25, we need your help to continue our vital work. We’ve launched a funding appeal to hire our first paid team member to keep fighting for those with #LongCovid. Can you help secure our future? Donate today: shorturl.at/J5aan

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

📣Your voice matters. Help shape our future - what brought you to Long Covid SOS? What matters to you now? Just two minutes could help shape our future: form.typeform.com/to/WKRgCwn7

Thank you for being part of the Long Covid SOS community. A volunteer-led charity founded by people with #LongCovid, we've been fighting for recognition, research & real support since day one. 4 years on our mission is more vital than ever. Follow us and watch this space for news & updates…

The boys Patrick and Sunday enjoying my breakfast in bed! #Pets #Rats #PetRats #RatsOfBluesky #CuteAnimals #PetPhotography #RatCompanions #RatLove #SnackTime #BerryThieves #BreakfastBuddies

Happy to have arrived in beautiful Santa Fe for this #kslongcovid26 symposium where the aim is to catalyse some real difference for the 400 million sufferers

Derek didn't magically get long covid. He was infected with sarscov2 by someone who was themselves infected and spread it. We know about Derek because he was notable. Millions of others with long covid are out of sight. Condolences to f and f. www.hollywoodreporter.com/movies/movie...

I guess she’d aged out. But still seems to fit a certain pattern.

Santa Fe New Mexican: 'Long COVID symposium in Santa Fe aims to improve diagnoses, treatment' 'Altmann said the symposium is about inviting international experts on long COVID together to “knock their heads together” in search of answers for patients.' www.santafenewmexican.com/news/local_n...

Cosmos ‘Cup and Saucer’ flower grown from seed by my sis #Flower #FlowerPhotography #FlowersOfBluesky #Homegrown #Nature

NEW: A cancer drug with a fascinating history is being explored in a phase III clinical trial for Long COVID & an observational trial for ME. Past research suggests it could target a biological pathway seen in people with ME. @frogsandstars.bsky.social reports! thesicktimes.org/2025/07/29/c...