You cannot optimize yourself enough that you will not die.

I think what progressives miss about mass disability from covid is it takes people out of the movement. I canvassed, phone banked, called reps, volunteered at the polls, wrote letters, advocated locally, mentored. Now, all I can do is… couch. From one stinking covid infxn.

The journalist who coined the phrase “the #GreatestMEdicalScandal of the 21st century” got interested in ME after this same psych lobby accused him of spreading Long Covid by writing about it. He was so taken aback by their absurdity that he investigated further: www.theguardian.com/commentisfre...

For those lucky enough to live outside the nightmare world of Myalgic Encephalomyelitis, the man discussed here (Simon Wessely) leads a powerful psych lobby w/ a long history of gaslighting sick people—from Gulf War vets to 9/11 first responders to poisoned Iranian school girls to ME & Long Covid

People with the most severe #LongCOVID symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. They are not beyond the reach of science; they are where real progress begins. Read more from @neurologistmom.bsky.social: bit.ly/49TMXdz

having #LongCovid means telling people “I’m not feeling well” like every other day. I’ve just stopped saying it. I can’t figure out what else to say.

I'm not going to RT the fucking Atlantic but I do want to remind everyone that one in four U.S. adults is disabled, so one in five students accessing accommodations at their uni is among the most non-story stories ever penned.

We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year! Support our work: patientresearchcovid19.com/donate/

Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid

"526 (14%) did not meet criteria for Long COVID at 3 months but had increasing symptoms by 15 months" I thought I was "finally recovering" multiple times the first year, then got much worse in year 2 and have stayed there.

i can’t believe a good thing happened we should do this more often

The landscape of this country would be entirely different if the Reconstruction Era electoral wins secured by newly freed Black folks had never been stifled by lynchings and pogroms. The violence now, after decades of wins for queer, trans, Black, Brown, disabled, and migrant folks, same energy.

People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏

Great to see a UK GP writing a BMJ e-letter like this: "Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid" www.bmj.com/content/390/... #PEM #LongCovid

It’s an absolute shame that DC fired Gretchen Felker- Martin for exercising free speech and then @bsky.app suspended her account. Every writer here should be decrying this because we have to stand up for each other! This is ridiculous.

I don't mourn white supremacists

Thinking more about the quiet violence & deaths than the loud ones 💙🕯️

The MSNBC commentator saying that most political violence has historically come from the left just once again showed how we suffer from failing to learn history. Lynching, pogroms, race riots, the political violence that ended Reconstruction, and against the Civil Rights Movement. Come on.

Two students & the shooter are in critical condition after a shooting at Evergreen High School in Evergreen, Colorado. The shooting happened outside the school. This is the 47th shooting that took place at a school in the US so far this year 23 were on K-12 school grounds www.cnn.com/2025/09/10/u...

Save any empathy you were about to give Charlie Kirk, the TPUSA founder, double it, and send it towards Evergreen High School instead. Three kids in critical condition…. www.cbsnews.com/colorado/new...

Three high schoolers, who likely didn't make a career out of enabling and encouraging fascism, were shot in Colorado today.

Michael Peluso slide from the RECOVER-TLC conference today. ADRD = "Alzheimer's Disease and Related Dementias" As someone affected, I am actually relieved to hear someone be straight about this: Long Covid "brain fog" is dementia. Enough soft-pedaling; it's a crisis.

people are always telling me that we just have to wait for olds to die off & then everything will be fine. i usually respond with, "the woman who lied about emmett till whistling & got him lynched was 21. the murderers were 24 & 35. there's more to do than wait.” there will always be hitler youth.

Need this to get national attention, this is such a massive victory for people in Atlanta.

Living with severe #MECFS often means being bedbound. One community member shares practical tips, like bedside setups & sensory relief, to make daily life more manageable. 💙 Read more: buff.ly/nkcCa5r

It's hard to feel hopeful about us defeating fascism when a bunch of liberals with large accounts on this site waste time punching down on disabled folks, minimizing Covid & chronic illness. Fascism starts with normalizing eugenics

Working on a story for @thesicktimes.org about the quality, utility, and risks of exercise trials in Long COVID (and how often they mention/measure PEM). Looking to speak with anyone that's participated in these trials and experienced PEM/other negative side effects as a result.

One of the most annoying things about having Long Covid is that people who see me infrequently ALWAYS ask if I’m better when they do see me. And like… No 😀 I am chronically ill 😀 chronic means it doesn’t go away 😀 there is no treatment or cure 😀 I’m tired of doing this 😀

My perspective on Covid-19 vaccination as an “OG Long-Hauler” in the Long Covid community: 1) It was not a silver bullet, & other protective measures were dropped or ignored to the detriment of many ppl who continued to die from or become disabled by covid…

I wake up with long covid every day. Decisions about my leisure or work are now guided by disability. When I see doctors, I have to manage their level of ignorance about the illness. In public, I am ostracized, sometimes confronted for wearing a mask. None of this has anything to do with anxiety.

Are acute Covid deaths down? Absolutely, and huzzah. Are infections down? No. Is long covid dropping? No. Is it rising? Yes. Is it curable? No. Are excess deaths normal? No. Are healthcare resources still strained? Yes. Is vaccine uptake high? No. Are waves still unpredictable? Yes.

You think death is the worst thing that can happen from COVID? Honestly, Michael, do fucking better. The millions of people who have Long COVID and the 3 in 10 that get it from even “mild” COVID cases would beg to disagree with you. Also, death data reporting has changed *drastically.*

This is a good piece. Both because it details what Long COVID can be like and also because it gets into how when you're miserable due to illness or injury you will try just about anything (and that makes you really vulnerable). (I hate people who prey on people who are hurting.)

To understand more ab #LongCOVID, pls read up on these conditions: ME/CFS POTS MCAS Most have never heard of these conditions They can be extremely disabling & they’re NOT the only long term effect of COVID infections COVID can exacerbate ANY pre-existing health condition #LongCOVIDAwareness

I wish people would stop blaming COVID mitigation policies for the acceleration of right wing extremism, and instead acknowledge the fact that we endured a mass casualty and mass disabling event that was mismanaged by narcissistic authoritarians who shifted the blame to marginalized communities

Wear a mask because long covid is a bitch

Dr. Dmitri Daskalakis, who resigned from the CDC says that RFKJr said he believes that Avian flu should be allowed to "burn through" the chickens and then children and others, so we can propagate a "stronger species". RFKJr believes in eugenics. RFKJr needs to resign or be fired.

ICE took 2 firefighters OFF THE FUCKING FIRE LINE!?

That’s how we got here in the first place. Powerful people who spread lies caused the division. The only antidote is the truth. And if some are too stupid to at least entertain listening, that’s on them.

You don't fight fascism and medical disinformation by trying to placate the eugenicist fascists.

I’ve heard from a couple of messaging strategists now that people shouldn’t post so much about COVID19 vaccines because it’s “divisive”. I am here to say that I do not give a damn what is popular. I will never ignore scientific evidence for the sake of expediency, and neither should anyone else.

Ive had it with people pretending to care about marginalized groups but completely abandoning disabled people.

You’ve cared more about your own comfort & convenience & vibes than about disabled / immunocompromised lives You’ve cared more about “fitting in”, than how many people you’ve harmed by going maskless in public spaces

Ol’ Kathy “You Do You” Hochul has already demonstrated that she doesn’t care about protecting her constituents from repeated COVID infections. She’s done irreparable harm to New Yorkers already. Making the vaccine available to everyone is a step in the right direction, but it’s a drop in the bucket

Many people are going to suffer because of what RFK is doing. You know who can slow the march toward death and disability? You. You can save lives. You can keep folks well enough to fight for justice. To work so they can feed their kids and stay housed. You just have to wear a mask. Mutual aid:

US federalization of Labor Day was intentionally designed to disconnect the day from international Labor Day (May 1st). To weaken international solidarity and US worker consciousness about transnational labor power.