It is an awful time arguing with my disability insurance to cover my ongoing leave due to Long COVID, so I’m asking for some help to bridge the gap until I can get paid the 4+ paychecks I am owed (I may have tried to avoid begging until it was urgent)

– You see, if so many were indeed housebound, you’d expect to see them everywhere! #longcovid #ableism #satire

Right, what we are not going to do this month: Tell people they don’t count as disabled Tell people who are not ready to self ID they are disabled Claim we can reclaim the r slur Install “you must be this incapacitated to ride” signs Deny the experience of long COVID havers

Damnnnn All Stars, I was already bummed out before I watched the episode. I’m devastated, that should’ve been a double shantay 💔💔💔 #RPDR

One infection. That's all it takes. For millions around the world, a single COVID infection led to symptoms that lasted months or years. Long COVID can affect the brain, heart, lungs, immune system, and more. (...)

Can anybody signal boost this? Long covid has messed me up this week. Could really use some help, have been unable to do what I normally do to meet needs.

@wired.com this is what your shitty article leads to. Stop denying all of our lived experience. Stop making out like #pwME & #LongCovid aren't experts on our own bodies, our own illness. Lots of us have lived with this for decades. We KNOW what works and what doesn't. Stop publishing eugenics!

WIRED has decided to hide comments pointing out that the author of the “It’s your fault for having Long COVID, you have it because you’re thinking and talking about having it instead of ignoring it” article has no qualifications to be talking about disease management.

Here's a WAY better Long COVID article. After you've read this evidence-based one, the Wired article will seem very silly

Wonderful day for a new #LongCOVID paper! Thanks to an incredible collaboration with @VirusesImmunity and brilliant work done by @keylas3, we studied the effects of injecting antibodies taken from people with LC into mice compared with what happened www.sciencedirect.com/science/arti... 1/

Having #ME/CFS MEans waking up feeling worse than when you went to sleep, no matter how long you’ve managed to sleep. It also means that your day ends almost at the same time that it’s started. Our bodies not only cannot recharge, but they are trapped inside multiple broken physiological cycles.

Just observing that parties who consistently say they back vulnerable communities now have an opportunity to actually back that up in practice by loudly committing to policy to support those impacted by Long Covid, if elected - this is what aligning to the values you say you have actually means 💡🤔

The immune system going rogue and attacking healthy tissue seems to behind some cases of long covid, a discovery that could open doors towards treatments

People really memory holed-covid, due to a huge far right propaganda effort. That's why all you hear about is lockdowns, and not: - hospitals out of capacity - Skype calls with family members in quarantine as they died - bodies stored in freezer trailors - mass graves in NYC

Some #LongCovid news—Rep. Valerie Foushee has introduced a resolution to recognize Long Covid Awareness Month! 🧵 on how you can support this resolution—and help pave the way for further action!

I introduced a resolution to recognize March as Long COVID Awareness Month to raise awareness about the millions of people living with persisting symptoms after a COVID-19 infection. www.congress.gov/bill/119th-c...

Friends with ME/CFS who have had an upper scope & colonoscopy - did it (including the prep) set off PEM for you, and how badly?

Please donate & share to help a #pwME who has been involuntarily committed to psychiatric ward - #MECFS is not psychological! whydonate.com/fundraising/...

Important piece of the article -

I sometimes wonder if people think we’re exaggerating when we say ‘there’s no medical help for ME/cfs’ but there’s genuinely almost nothing. One fairly useless course (exercises, condescending ‘advice' and CBT) and maybe some low dose amitriptyline, which did fuck all for me.

Desperately needed this little sliver of hope today

Ghana's President John Dramani Mahama, speaking in ​New York on Tuesday, criticised the U.S. administration for what he described as normalising ‌the erasure of Black history, warning such policies could have ripple effects elsewhere. www.reuters.com/world/africa...

The irony of me being in a PEM flare from the mental exertion of trying to find answers about PEM… 😞

ME/CFS Advocacy Week 2026 starts today and it's not too late to join! Solve M.E. & #MEAction Network are building the case to make ME/CFS part of standardized medical education. Register: https://tinyurl.com/MEActionAdvo2026#MEAction Virtual kickoff call today at 12 pm PT/ 3 pm ET! #MECFS #pwME #MedEd

I’m seeing more and more people claiming to have PEM but not ME/CFS. Is there some new study or something I missed? Is it not pathognomonic?

"there is no cure for long Covid" Also no supports while you recover - financial, physical, mental health

The “long covid is going away on its own“ myth was started by an influencer named “Health Nerd” who is an Australian epidemiologist who thinks US kids shouldn’t be vaccinated against COVID-19 (cuz AUS/UK don’t) and that NYC should have ran unethical RCTs on hospital visitation in 2020. Not science.

You cannot optimize yourself enough that you will not die.

The journalist who coined the phrase “the #GreatestMEdicalScandal of the 21st century” got interested in ME after this same psych lobby accused him of spreading Long Covid by writing about it. He was so taken aback by their absurdity that he investigated further: www.theguardian.com/commentisfre...

For those lucky enough to live outside the nightmare world of Myalgic Encephalomyelitis, the man discussed here (Simon Wessely) leads a powerful psych lobby w/ a long history of gaslighting sick people—from Gulf War vets to 9/11 first responders to poisoned Iranian school girls to ME & Long Covid

People with the most severe #LongCOVID symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. They are not beyond the reach of science; they are where real progress begins. Read more from @neurologistmom.bsky.social: bit.ly/49TMXdz

having #LongCovid means telling people “I’m not feeling well” like every other day. I’ve just stopped saying it. I can’t figure out what else to say.

I'm not going to RT the fucking Atlantic but I do want to remind everyone that one in four U.S. adults is disabled, so one in five students accessing accommodations at their uni is among the most non-story stories ever penned.

We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year! Support our work: patientresearchcovid19.com/donate/

Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid

"526 (14%) did not meet criteria for Long COVID at 3 months but had increasing symptoms by 15 months" I thought I was "finally recovering" multiple times the first year, then got much worse in year 2 and have stayed there.

i can’t believe a good thing happened we should do this more often

The landscape of this country would be entirely different if the Reconstruction Era electoral wins secured by newly freed Black folks had never been stifled by lynchings and pogroms. The violence now, after decades of wins for queer, trans, Black, Brown, disabled, and migrant folks, same energy.

People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏

Great to see a UK GP writing a BMJ e-letter like this: "Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid" www.bmj.com/content/390/... #PEM #LongCovid

It’s an absolute shame that DC fired Gretchen Felker- Martin for exercising free speech and then @bsky.app suspended her account. Every writer here should be decrying this because we have to stand up for each other! This is ridiculous.

I don't mourn white supremacists

Thinking more about the quiet violence & deaths than the loud ones 💙🕯️

The MSNBC commentator saying that most political violence has historically come from the left just once again showed how we suffer from failing to learn history. Lynching, pogroms, race riots, the political violence that ended Reconstruction, and against the Civil Rights Movement. Come on.

Two students & the shooter are in critical condition after a shooting at Evergreen High School in Evergreen, Colorado. The shooting happened outside the school. This is the 47th shooting that took place at a school in the US so far this year 23 were on K-12 school grounds www.cnn.com/2025/09/10/u...

Save any empathy you were about to give Charlie Kirk, the TPUSA founder, double it, and send it towards Evergreen High School instead. Three kids in critical condition…. www.cbsnews.com/colorado/new...