UK #pwME, ask your MP to attend the All Party Parliamentary Group on ME on 10th Dec! appgme.co.uk/contact-your... #MECFS

Email your MP to show support for complex, overlapping illnesses! actionforme.eaction.org.uk/dropin #MECFS #EhlersDanlos #POTS #MCAS #hypermobility #HSD

Fed up with Farage? Me too. I’ve signed the Never Nigel Pledge. Add your name today, and help show that division and hate have no place in our communities. secure.hopenothate.org.uk/page/170649/... @hopenothate.org.uk

Police questioned Géza Buzás-Hábel, organiser of Pécs Pride, as a criminal suspect – just for holding Hungary’s only rural Pride. The EU must act now to defend equality and freedom. Sign & share! a.allout.org/s/P29lG/

🚨BREAKING : The Green Party has passed 150,000 members 🥳 Thousands are joining right now to help us replace Labour and take the fight to Reform. Are you in? Make hope normal again. Join the Green Party now ⤵️

~$100 million of the SAG-Producers Pension Plan is invested in fossil fuels. More than 120 actors have called on the pension fund’s trustees to divest. Will you stand in solidarity with SAG-AFTRA members and demand the pension divest from fossil fuels? act.stand.earth/page/84854/a...

2/2 She’s suffering seizures, infections, & fainting, and risks losing her safe housing. 🎯 October goals: 🏠 £834 rent 🥣 €200 food & water 🩺 £295 night carer Please help keep her safe. 💜 PayPal.me/SaveLizNevra 💜 GoFundMe.com/f/save-nevra #SaveLizNevra #SevereME #MECFS #CCI #POTS #MillionsMissing

💖 Save Nevra – October Update 💖 1/2 (thread) Nevra is in severe medical decline after mold exposure & overexertion while fundraising beyond her limits. 💜 PayPal.me/SaveLizNevra 💜 GoFundMe.com/f/save-nevra #SaveLizNevra #SevereME #MECFS #MillionsMissing

I told my MP to Scrap the Bathroom Ban. We need you to do the same. Write your letter here: actionnetwork.org/letters/scra...

I called this out on #BBCQT last night and I'm calling it out again now. He is gaslighting a nation.

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Kemi Badenoch blames those crossing borders for our problems. It’s a lie aimed to distract. The real issue is a system protecting the super-rich while nurses & carers can’t make ends meet. Tax wealth fairly, fund public services properly. This is how we give Britain hope again.

Enter: 👉 Donate £5=1 entry / £12=3 👉 paypal.com/paypalme/saveliznevraofficial or gofundme.com/f/save-nevra 👉 Send proof to @ helen_melon__ (Instagram only) 👉 UK only (others can donate & gift a UK friend!) 🕛 Deadline: EXTENDED til Oct 8, midnight BST

🚨 Raffle for Nevra - 48 hours to go!🚨 🎉 2 Prize Bundles 🎉 💐 Pet embroidery, Lego, treats & more 📚 Audiobooks, crochet, zines & more UK only!

Urge governments and foreign offices to demand the release of their citizens who were on board the Global Sumud Flotilla to Gaza and to call for an end to the siege and genocide! globalsumudflotilla.org/contact-offi...

Millions of us are still struggling to access affordable NHS dental care. I’ve signed 38 Degrees’ petition demanding Keir Starmer properly funds NHS dentistry now, will you join me? you.38degrees.org.uk/petitions/fu...

Millions of us are still struggling to access affordable NHS dental care. I’ve signed 38 Degrees’ petition demanding Keir Starmer properly funds NHS dentistry now, will you join me? you.38degrees.org.uk/petitions/fu...

WE WILL BE HOMELESS ON 9/30‼️ If you know of quiet temporary / month-to-month housing w/ no stairs & allows cats in the #KingCounty / #SnohomishCounty areas - or can get highly discounted rates at hotels/motels, PLEASE lmk. More ways to help: linktr.ee/EthyricalArt... #Disabled #Community #Seattle

Our social security system was set up to be there for all of us. But accessing support is leaving people feeling ashamed and stuck. That’s why I’ve invited my MP to a @turn2us.org.uk reception, to hear more about what needs to change. Will you invite your MP too? act.turn2us.org.uk/page/177936/...

Our social security system was set up to be there for all of us. But accessing support is leaving people feeling ashamed and stuck. That’s why I’ve invited my MP to a @turn2us.org.uk reception, to hear more about what needs to change. Will you invite your MP too? act.turn2us.org.uk/page/177936/...

10 years on from the Dieselgate scandal, justice still hasn’t been served in the UK. While other countries made carmakers pay, ours let them off the hook. Sign the petition now and demand accountability now! you.38degrees.org.uk/petitions/ma...

I just signed the petition calling for the Green Party to refuse to platform organisations that want to undermine trans rights at official Party events. Will you join me? you.38degrees.org.uk/petitions/st...

www.instagram.com/p/DOYrWoriJz... 🌺 Nevra’s 30th Birthday Raffle 🌺 www.gofundme.com/f/save-nevra #MutualAid #pwME #SevereMECFS #SevereME #DomesticViolence #Birthday #MillionsMissing #SolarReturn

A new law could give millions of us better rights at work, but corporate lobbyists & politicians are trying to gut it. Tell the Government: protect workers, not profits! you.38degrees.org.uk/petitions/uk...

Every single share, every single donation counts. Nevra’s survival depends on this. www.gofundme.com/f/save-nevra ^ Link to her GFM and her story. Thank you for reading till the end! ❤️All links in bio PayPal.com/paypalme/SaveLizNevra GoFundMe link GoFundMe.com/f/save-nevra #pwME #DV

95% of lab animals are mice — not because they’re the best models for humans, but because they’re cheap and disposable 🐁

Vaccines don’t cause autism. Tylenol (acetaminophen) doesn’t cause autism. Miniscule trace pesticide residues don’t cause autism. Aluminum doesn’t cause autism. Fluoride doesn’t cause autism. The biggest predictor of autism? Genetics. And we recognize autism better today. 1/

[CW] Latest update from Team Gordon: PICC line change, virus & Karen has hired a solicitor. www.change.org/p/save-karen... Come on Streeting! Karen's situation shows just why ppl with #SevereME need hospitals that are able to care for them properly. She shouldn't be going through all this. 😢

A couple of people have said the petition doesn’t take account of fact we have OFCOM & BBC regulators & doesn’t explain why we think these aren’t working currently. Well there’s a word limit but I think it’s self evident it’s not working. Keep signing folks petition.parliament.uk/petitions/71...

I just signed a @stopburningtrees.bsky.social petition: Say No to New AI Data Centre Powered By Drax. Sign here: actionnetwork.org/petitions/sa...

📢 APPG on ME The APPG is opening an enquiry into Severe ME next Wednesday. 📆 Wed 10 Sept | ⏰ 4pm Template to ask your MP to attend 👇 appgme.co.uk/contact-your...

Please send this template letter to Queen Elizabeth Hospital, who are mistreating #SevereME patient Savannah! Share widely! #MECFS #pwME #GreatestMEdicalScandal #CanYouSeeMEnow docs.google.com/document/d/1...

As a disabled person who’ll have to be unmasked for a procedure in 2 weeks, I’d be so grateful if folks who don’t usually mask considered pitching in to help curb this surge. N95s work best but if what you’ve got is cloth, popping it on to go into the grocery store is way better than nothing! Ty<3

gofundme.com/f/save-nevra The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME #MutualAid #DisabilityJustice #SevereME #VerySevereME #DomesticViolence

🪬🧿 There is no amount of money, oil, or gold in the world that is worth more than having bees, trees, and clean water.

Sign & share German petition to raise the funding for ME / LC research open to all countries - : #Initiative #MECFS, #LongCovid, Post Vac - 650.000 Erkrankte brauchen mind. 1 Milliarde Forschungsgelder! www.openpetition.de/1milliarde

I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue. This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2

www.instagram.com/reel/DNiSXQL... Nevra's last advocacy work before we lost contact. It is a reel about DecodeME. Please keep sharing OR donating to ensure her safety via means of IV fluids, carers, and nurses so she isn't forced back to DV! www.gofundme.com/f/save-nevra #PwME #DomesticViolence

Homelessness is rising and I want my MP to act. Join me and ask your MP to meet with Crisis at their party conference to find out how they can build a future free from homelessness. campaigns.crisis.org.uk/page/176060/...

Petition: Fund NHS COVID boosters for Clinically Vulnerable people – keep covid boosters petition.parliament.uk/petitions/73...

Request US FDA to Issue Informed Consent for all Fluoroquinolone Antibiotic Prescriptions - Sign the Petition! www.change.org/p/request-us... via @ukchange.bsky.social #EDS #hEDS #MECFS #

Urgent 🚨 Please boost! 400 pounds left to meet rent, or we are looking at VERY severe #pwME now going back to DV or homelessness. - Iman Links below ❤️Paypal PayPal.com/paypalme/SaveLizNevra ❤️GoFundMe GoFundMe.com/f/save-nevra Her story^ #MutualAid #pwME #SevereMECFS #SevereME #DomesticViolence

❗It's Greyhound Board of Great Britain's week of "celebrating" dog racing. But what is there to celebrate about an industry that is responsible for the deaths & injuries of so many dogs? 👉 Back the Bill that would ban greyhound racing in Scotland: bit.ly/UtGScotland   #UnboundTheGreyhound

"Instead of tinkering around the edges, with a wealth tax the government could win the argument on fairness – and finally start to reverse toxic wealth inequality in this country." Your weekend reading, from our Executive Director @faizashaheen.bsky.social! www.theguardian.com/commentisfre...

I just signed this important petition on Organise, please can you add your name? Transport for London: Give us 6 years of our life back! organise.network/s/ee3d424b6fb3

Sign & share! 38yo Sanne van Enckevort from Hegelsom has #SevereME & gastroparesis -cant tolerate tube feeding, weight gone from 70 to 48kg, hospital REFUSES to provide TPN (feeding in2 vein). Petition is in Dutch. Input name, email, location. Click verify link in email petities.nl/petitions/ge...

Petition: Direct the UKHSA to monitor COVID infections that occur in particular settings petition.parliament.uk/petitions/73...