Katharina Heldt
@katharinaheldt.bsky.social
📤 108
📥 315
📝 54
Library/Long Covid Project
@rki.de
private account
reposted by
Katharina Heldt
Dr. Blome aka Dr. Strange
23 days ago
Neue Umfrage von KidsCarePVS zu Personen, die 0-20 J. alt sind & die ärztliche Diagnose
#LongCOVID
,
#MEcfs
oder
#PostVAC
erhalten haben. Der Survey ist lang, kann aber von Angehörigen ausgefüllt werden. Er wurde zusammen mit Betroffenenorganisationen ausgearbeitet.
limesurvey.ovgu.de/index.php/93...
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reposted by
Katharina Heldt
Robert Koch-Institut
28 days ago
Heute gepostet!
bsky.app/profile/rki....
add a skeleton here at some point
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reposted by
Katharina Heldt
JBI
about 2 months ago
🔥 Hot tip! Before starting a systematic review, make sure an information scientist/research assistant is part of the review team. They have specialised skills to develop and implement a comprehensive search strategy 🔎 https://synthesismanual.jbi.global
#MedLibs
#EvidenceSynthesis
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2
reposted by
Katharina Heldt
Dt. Ges. für ME/CFS
about 1 month ago
📰 Ein neues Qualitätszirkelmodul der Kassenärztlichen Bundesvereinigung (KBV) zu
#LongCOVID
und
#MECFS
bringt praxisorientierte Unterstützung für Ärzt*innen, die sich weiterbilden und zur Behandlung von Betroffenen austauschen wollen. (1/4)
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reposted by
Katharina Heldt
Bundesministerium für Gesundheit
about 2 months ago
„Wir möchten mit der neuen Allianz eine wichtige Botschaft an alle Betroffenen und ihre Angehörigen senden: Wir setzen die angekündigte Stärkung der Versorgung und Forschung durch eine enge Zusammenarbeit aktiv um. Wir lassen die Betroffenen nicht allein!“
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reposted by
Katharina Heldt
about 2 months ago
The German Federal Minister for Research and the Federal Minister of Health are launching the research decade on post-infectious diseases -
#LongCovid
#PostCovid
#MECFS
#PAIS
www.yahoo.com/news/article...
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Germany pledges €50 million per year to tackle Long Covid
Germany has pledged €50 million ($58 million) annually over a 10-year period for research into Long Covid and better care for patients. The initiative to tackle "post-infectious diseases" was introduc...
https://www.yahoo.com/news/articles/germany-pledges-50-million-per-104624597.html?guccounter=1&guce_referrer=aHR0cHM6Ly93d3cuZ29vZ2xlLmNvbS8&guce_referrer_sig=AQAAAA2kQLZojLUL7DRlMh3wHT0qwMqZOTrnGmmdOACtu4OPPT9KbIvryMzUE19q7_qkYbVEUrxcAoqjlWT3Xacav176zWCHXsvpo9ZXuu_gokRpEirYGJQC2IJDfgpPc4iQ1SPH9MCULg7xfyH6QpYHJdMJEa-N6N9U7k2qOTOEyJid
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7
4
reposted by
Katharina Heldt
Abigail Goben
about 2 months ago
Bug in Springer Nature metadata may be causing ‘significant, systemic’ citation inflation
retractionwatch.com/2025/11/11/b...
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Bug in Springer Nature metadata may be causing ‘significant, systemic’ citation inflation
Millions of researchers could be affected by a “dramatic distortion of citation counts” likely caused by flaws in how the academic publishing giant Springer Nature handles article metadata, accordi…
https://retractionwatch.com/2025/11/11/bug-in-springer-nature-metadata-may-be-causing-significant-systemic-citation-inflation/
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Wenn Serviceleistungen der
@zbmed.bsky.social
nach Budgetkürzungen eingeschränkt werden müssten, bedeutet das im schlechtesten Fall eine schlechtere Informationsversorgung für Arztpraxen, Krankenhäuser oder andere Einrichtungen der öffentlichen Gesundheit
www.aerzteblatt.de/news/mittelk...
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Mittelkürzungen für Deutsche Zentralbibliothek für Medizin geplant – Deutsches Ärzteblatt
https://www.aerzteblatt.de/news/mittelkurzungen-fur-deutsche-zentralbibliothek-fur-medizin-geplant-60081893-1346-40c2-8f66-ce76b8e04051
2 months ago
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www.tagesschau.de/eilmeldung/t...
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Patientenversorgung: Verfassungsgericht kippt Triage-Regelungen
In der Corona-Pandemie lernten viele Menschen den Begriff Triage kennen. Bei der Triage entscheiden Mediziner in bestimmten Situationen, wann sie welchen Patienten helfen. Nun hat das Verfassungsgeric...
https://www.tagesschau.de/eilmeldung/triage-bundesverfassungsgericht-100.html
2 months ago
0
1
0
reposted by
Katharina Heldt
P. Djéli Clark | The Disgruntled Haradrim
2 months ago
Happy Halloween
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5871
1292
reposted by
Katharina Heldt
Rolling Stone
3 months ago
Long Covid Is Real — And It’s Changing an Entire Generation Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize.e Feature:
www.rollingstone.com/culture/cult...
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highlighting the importance of a supportive, non- judgemental, expert approach to the management of people with PCC [...], these insights could serve as a foundation for screening, improved prognostication, mitigation of stigmatizing behaviors such as “gaslighting”
www.thelancet.com/journals/ecl...
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Exploring the temporal relationship between stigma, disease manifestations, and health outcomes in post COVID-19 condition: a longitudinal descriptive study
This study provides insights into the temporal relationship between PCC-related stigma, disease manifestations, and health outcomes and could establish a foundation for screening, prognostication, tre...
https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(25)00464-X/fulltext
3 months ago
0
3
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Job Opportunity - Student Assistant -
#LongCovid
#PAIS
Mapping Evidence on Post-Acute Infection Syndromes Across Africa: Insights From a Systematic Review in the Context of Long COVID
www.linkedin.com/posts/global...
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student_assistant_PAIS_RKI.pdf | German Alliance for Global Health Research (GLOHRA)
#Jobopportunity The Robert Koch Institute is looking for a Student Assistant to support a systematic review on post-acute infection syndromes in the context of Long COVID. 📅 Start: asap ⏳ Applicatio...
https://www.linkedin.com/posts/globalhealth-de_studentassistantpaisrkipdf-activity-7376148424401899520-qyb7?utm_source=share&utm_medium=member_desktop&rcm=ACoAABECBeoBGPrqpXeDv8TDJFsNxSDfzdUPGn8
4 months ago
0
2
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reposted by
Katharina Heldt
New Scientist
4 months ago
We're still learning about long covid, with the latest research linking it to heavier, longer-lasting menstrual periods.
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Long covid may be making your periods longer and heavier
Half a decade since the arrival of the SARS-CoV-2 virus, we're still learning about its complications, with the latest research suggesting that long covid may disrupt menstrual periods
https://www.newscientist.com/article/2496524-long-covid-may-be-making-your-periods-longer-and-heavier/?utm_medium=SOC&utm_source=Bluesky#Echobox=1758039173-1
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5
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reposted by
Katharina Heldt
Open Medicine Foundation (OMF)
4 months ago
OMF Collaboration Investigates Molecular Basis of Post-Exertional Malaise (PEM) 👉 Read more from Dr. Moreau:
www.omf.ngo/haptoglobin-...
. Key findings: ➡️ After a mild stress challenge,
#pwME
showed a sharp drop in haptoglobin (Hp) levels, while healthy controls did not. (1/2)
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New Publication from OMF Collaboration Investigates Molecular Basis of PEM - Open Medicine Foundation
New publication reveals first strong evidence of a genetic contribution to post-exertional malaise (PEM) in ME/CFS.
https://www.omf.ngo/haptoglobin-pem-mecfs/
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reposted by
Katharina Heldt
Cochrane_US
4 months ago
👀 New tool detects problematic trials before they distort evidence 🎊A new tool has been developed to help researchers detect problematic clinical trials before including them in systematic reviews.🤔 🖇️
www.cochrane.org/about-us/new...
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New tool detects problematic trials before they distort evidence | Cochrane
https://www.cochrane.org/about-us/news/new-tool-detects-problematic-trials-they-distort-evidence
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reposted by
Katharina Heldt
Tedros Adhanom Ghebreyesus
4 months ago
@who.int
calls for protection of public health excellence in the US CDC
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reposted by
Katharina Heldt
Bettina Grande
4 months ago
👉 7. Treffen des Psychotherapie Netzwerks ME/CFS, 11.09.25, 19:00-20:30 Uhr (online). Schwerpunkt: Post Exertional Malaise (PEM) Wir freuen uns auf die Expertise von Claudia Schreiner
@schreinerorg.bsky.social
& Sonja Kohl
@eskabadu.bsky.social
!
#MECFS
#PEM
#NoGET
#NoRehab
#PEMistnichtverhandelbar
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35
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reposted by
Katharina Heldt
Dt. Ges. für ME/CFS
5 months ago
🩺 Die Deutsche Gesellschaft für ME/CFS hat in Kooperation mit dem Charité Fatigue Zentrum (CFC) und unter der wissenschaftlichen Leitung von Dr. Herbert Renz-Polster sowie unter Ko-Autorinnenschaft von Dr. Monika Dräger einen Praxisleitfaden zu
#MECFS
erstellt. (1/4)
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reposted by
Katharina Heldt
thetranscendedman
5 months ago
Scientists are calling for studies on post acute infection syndrome, where illnesses like long COVID, Lyme, and Q fever leave lasting fatigue, breathlessness, and cognitive issues long after the infection is gone.
www.nature.com/collections/...
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Post-acute infection syndrome (PAIS)
This Collection welcomes studies into improving diagnostics and tools to determine disease progression, pathways affected, and clinical interventions, both ...
https://www.nature.com/collections/djdahbcchj
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reposted by
Katharina Heldt
Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen
5 months ago
Was, wenn die wichtigsten Quellen für die professionelle Recherche nach medizinischer Evidenz weltweit ausfallen würden – PubMed (MEDLINE) und Clinical
Trials.gov
? Dieser Frage geht das IQWiG mit dem Gemeinsamen Bundesausschuss (G-BA) und Cochrane Deutschland nach:
www.iqwig.de/presse/press...
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4
4
reposted by
Katharina Heldt
Robert Koch-Institut
5 months ago
👩⚕️👨⚕️ Haus- und Kinderarztpraxen aufgepasst! Mit wenigen Klicks pro Woche könnt ihr dazu beitragen, akute Atemwegserkrankungen wie
#Grippe
,
#RSV
oder
#COVID19
besser zu überwachen. 💡 Wie das geht? Alle Informationen findet ihr in diesem Video: 📽️
www.youtube.com/shorts/TiRaQ...
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www.spektrum.de/news/long-co...
#ME/CFS
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ME/CFS: Eine Stellungnahme ohne Quellen
Die Deutsche Gesellschaft für Neurologie hat eine neue Kontroverse über ME/CFS ausgelöst.
https://www.spektrum.de/news/long-covid-stellungnahme-der-dgn-zu-me-cfs-sorgt-fuer-kritik/2280959
5 months ago
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Neueste Grafik von
@crunchme.bsky.social
zu Pacing und GET
#ME/CFS
#LongCovid
crunchme.notion.site/homepage?p=2...
5 months ago
0
3
1
reposted by
Katharina Heldt
Nina Weber
6 months ago
"Wir müssten mindestens eine Milliarde Euro investieren." Karl Lauterbach spricht über nötige
#ME/CFS
Forschungsförderung, über Staatsversagen, seine persönliche Verantwortung und über die dramatische Situation der Erkrankten. (Spiegel+ Interview, ein paarmal über diesen Geschenklink gratis)
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(S+) Karl Lauterbach über ME/CFS-Forschung: »Das ist ein Staatsversagen«
Seit Corona leiden viele Menschen an der chronischen Krankheit ME/CFS. Hier spricht Ex-Gesundheitsminister Lauterbach über eigene Fehler und erzählt, warum ihm der Fall einer jungen Frau besonders nah...
https://www.spiegel.de/politik/deutschland/karl-lauterbach-ueber-me-cfs-forschung-das-ist-ein-staatsversagen-a-a583df20-2959-4aa4-be14-4da688e01a6b?giftToken=bb375f6d-31c1-45b3-be9d-178646a1c80c
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reposted by
Katharina Heldt
Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen
7 months ago
IQWiG supports ZBMED's project
#OLSPub
to strengthen resilience and independence of the life sciences research infrastructure in Europe - together with IQTIG, G-BA, Cochrane and many more:
www.zbmed.de/en/research/...
1/2
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OLSPub
Securing information provision in biomedicine and the life sciences
https://www.zbmed.de/en/research/current-projects/olspub
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1
1
reposted by
Katharina Heldt
Billy Hanlon
7 months ago
The Sick Times by Lauren May: Emergency departments aren’t trained for Long COVID — and patients are paying the price 'What I want is simple: to be heard, to be taken seriously & to have access to timely, informed care that recognizes the reality of these diseases'
thesicktimes.org/2025/06/02/e...
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Emergency departments aren’t trained for Long COVID — and patients are paying the price - The Sick Times
What do you call a system that doesn’t believe you’re sick until you’re dying? While emergency clinicians are trained to handle acute medical situations, many lack even a basic understanding of Long C...
https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/
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www.spiegel.de/wissenschaft...
#MECFS
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ME/CFS in Deutschland: 600.000 Betroffene und der Stand der Forschung
Rund 600.000 Menschen in Deutschland leiden an ME/CFS – oft mit dramatischen Folgen. Noch fehlt eine anerkannte Therapie. SPIEGEL-Redakteurin Nina Weber berichtet, warum Betroffene jetzt auf einen Dur...
https://www.spiegel.de/wissenschaft/medizin/me-cfs-in-deutschland-600-000-betroffene-und-der-stand-der-forschung-a-790e318d-47b4-42b7-ace1-8373cd16212c
7 months ago
0
3
2
reposted by
Katharina Heldt
Jon Cohen
7 months ago
Headline says it all.
www.science.org/content/arti...
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‘Devasting.’ NIH cancels future funding plans for HIV vaccine consortia
Researchers decry agency’s decision just as new leads reinvigorate search for long-sought vaccine
https://www.science.org/content/article/devasting-nih-cancels-future-funding-plans-hiv-vaccine-consortia
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reposted by
Katharina Heldt
Ruth Ann Crystal
7 months ago
New article in JAMA: Long COVID in Young Children, School-Aged Children, and Teens
buff.ly/Fj6KIeB
Long COVID is common and affects 10% to 20% of children after COVID, which equals 6 million kids. This is higher than the number of children with asthma. Symptoms depend on age.
#medsky
#pedsky
🛟😷
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Long COVID in Young Children, School-Aged Children, and Teens
This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.
https://buff.ly/Fj6KIeB
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reposted by
Katharina Heldt
Putrino Lab
8 months ago
Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack
#LongCOVID
,
#MECFS
and other complex illness as psychosomatic it is important we strike back:
www.bmj.com/content/389/...
1/
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Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
https://www.bmj.com/content/389/bmj.r977/rr-16
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reposted by
Katharina Heldt
ZB MED - Informationszentrum Lebenswissenschaften
8 months ago
🚀 OLSPub als Alternative zu PubMed – infrastructure made in Europe! Am 14.5. haben wir das Projekt vorgestellt: ✅Open Life Science Publication Database ✅Zugang zu PubMed-Inhalten ✅Erweiterbar ✅Technisch & administrativ unabhängig Ein Schritt in Richtung Open Science & digitale Souveränität!
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reposted by
Katharina Heldt
Hilda Bastian
8 months ago
This is so exciting! The German National Library of Medicine
@zbmed.bsky.social
just had its first open meeting on the plan for an open & independent PubMed safety net. Here's my write-up
@plos.org
on the meeting & how institutions & others can help
absolutelymaybe.plos.org/2025/05/14/g...
#MedLibs
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Germany's Plan for an Open and Independent PubMed Safety Net - Absolutely Maybe
A few months ago, I wrote about reasons to be concerned about the reliability of PubMed under the new regime at the…
https://absolutelymaybe.plos.org/2025/05/14/germanys-plan-for-an-open-and-independent-pubmed-safety-net/
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Katharina Heldt
New Scientist
8 months ago
Putting air filters in classrooms seems to reduce student sick days by more than 10 per cent.
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Air filters in classrooms reduce sick days by more than 10 per cent
Putting air filters in classrooms seems to boost student attendance, which may be due to them reducing levels of air pollution, pollen, pathogens or all three
https://www.newscientist.com/article/2478252-air-filters-in-classrooms-reduce-sick-days-by-more-than-10-per-cent/?utm_medium=SOC&utm_source=Bluesky#Echobox=1745936180-3
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reposted by
Katharina Heldt
Al Haddrell
8 months ago
So, this is the meeting room for the Bristol Aerosol Research Centre at
@bristoluni.bsky.social
. Notice anything unusual?
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reposted by
Katharina Heldt
John Vibes
9 months ago
676
46436
11894
😞
cen.acs.org/policy/resea...
#LongCovid
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NIH cancels grants through flagship long COVID initiative
Termination ‘a waste of the money we’ve spent already’
https://cen.acs.org/policy/research-funding/NIH-cancels-RECOVER-grants-long/103/web/2025/03
10 months ago
0
0
0
reposted by
Katharina Heldt
Robert Koch-Institut
10 months ago
Die
#Lebenserwartungslücke
zwischen wohlhabenden und sozioökonomisch benachteiligten Regionen in 🇩🇪 hat sich in den letzten 20 Jahren vergrößert,
#GesundheitlicheUngleichheit
nimmt zu. Eine Strategie zur Verbesserung der gesundheitlichen Chancengerechtigkeit ist erforderlich. Mehr: 🔗
www.rki.de/johm
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44
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reposted by
Katharina Heldt
Science X / Phys.org
10 months ago
MIS-C in children post-COVID is linked to Epstein-Barr virus reactivation, triggering excessive inflammation. Targeting TGFβ may offer new treatment avenues for MIS-C and potentially long COVID.
doi.org/g875b
x
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Cause of post-COVID inflammatory shock in children identified
MIS-C is a serious inflammatory shock that affects children. It can occur several weeks after a COVID infection and can be life-threatening.
https://medicalxpress.com/news/2025-03-covid-inflammatory-children.html?utm_source=bsky.app&utm_medium=social&utm_campaign=v2
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reposted by
Katharina Heldt
Seth Abramson
10 months ago
In a world of Matts, be a Derek.
447
31702
8216
reposted by
Katharina Heldt
Robert Koch-Institut
10 months ago
📢 Join the "AI in Public Health Research" Symposium by the Centre for Artificial Intelligence in Public Health Research at
#RKI
! 📆 14-15 May 2025 | 📍 Berlin, Germany Explore
#AI’s
impact on
#publichealth
with top experts. 🔗
www.rki.de/SharedDocs/T...
#AIinPH
1
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reposted by
Katharina Heldt
Alt CDC (they/them)
10 months ago
Palate cleanser.
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Mice, Ranked From Least to Most Transgender
No matter gay straight or bi, lesbian, transgender mice.
https://www.them.us/story/transgender-mice-trump-speech-remy-ratatouille-redwall-pikachu-stuart-little
25
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reposted by
Katharina Heldt
Kathryn Hoffmann
10 months ago
Die SARS-CoV-2 Pandemie aufarbeiten zu wollen, ohne die Fülle der medizinischen Folgeschäden und deren Versorgungskrise zu erwähnen, ist tendenziös und unseriös.
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Das ist fantatisch für alle Insitutionen die sich Embase so nicht leisten können. Für pharmakologische Recherchen zwingend nötig!
add a skeleton here at some point
10 months ago
0
1
0
reposted by
Katharina Heldt
Ronja Büchner
10 months ago
"Die Psychologisierung postviraler Symptome wird als stigmatisierend und als Hauptursache für die prekäre Versorgungssituation von Menschen mit Long COVID beschrieben."
www.zefq-journal.com/article/S186...
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https://www.zefq-journal.com/action/showPdf?pii=S1865-9217%2825%2900046-7
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Katharina Heldt
Canada Healthwatch 🍁
10 months ago
‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten
www.theguardian.com/society/2025...
@kathryn42.bsky.social
@theguardian.com
𝗚𝗲𝘁 𝘄𝗲𝗲𝗸𝗹𝘆 𝘂𝗽𝗱𝗮𝘁𝗲𝘀:
CanadaHealthwatch.ca/newsletter
🍁
0
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reposted by
Katharina Heldt
Liz Szabo
10 months ago
President Trump disbanded the Health and Human Services Secretary's Advisory Committee on
#LongCOVID
,
www.statnews.com/2025/02/27/l...
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The Trump years will be grim for long Covid sufferers
The federal government’s work on long Covid has been fitful and disappointing. Now even those efforts seem to be nearing an end.
https://www.statnews.com/2025/02/27/long-covid-hhs-secretary-advisory-committee-disbanded-trump-rfk-jr/#:~:text=For%20people%20suffering%20from%20long,Reduction%20of%20the%20Federal%20Bureaucracy.%E2%80%9D
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reposted by
Katharina Heldt
European Medicines Agency
10 months ago
📣 The EU has launched a new map of
#ClinicalTrials
. Thanks to this new tool patients will be able to locate trials for potential enrolment in their area. Read more about this map 🗺️
www.ema.europa.eu/en/news/new-...
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New clinical trial map launched in the EU | European Medicines Agency (EMA)
Patients can locate trials for potential enrolment in their area
https://www.ema.europa.eu/en/news/new-clinical-trial-map-launched-eu
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‘A bloodbath’: HIV field is reeling after billions in U.S. funding are axed | Science | AAAS
www.science.org/content/arti...
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‘A bloodbath’: HIV field is reeling after billions in U.S. funding are axed
USAID’s promises to support lifesaving efforts are broken, putting millions in peril
https://www.science.org/content/article/bloodbath-hiv-field-reeling-after-billions-u-s-funding-axed
10 months ago
0
0
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