Long Covid Educators For Justice

Almost 2 years ago I found an approach that worked for me. In this YouTube clip, Robin McNelis explained how to avoid overexertion by keeping your heartrate below your 'runaway heartrate' or 'lactate threshold' heartrate. For me, I had to keep my HR really low... www.youtube.com/live/TK-z-D9...

The amount of pressure from the right side of ME/CFS is really building in Norway right now. There’s a high-profile case regarding welfare for ME patients, New Guidelines in the work and a lot of people are rallying with what little energy they got. I smell CHANGE in the atmosphere!!

How this woman with severe ME/CFS is being treated is inhumane. Please help if you can. www.gofundme.com/f/severemerg...

My partner has had a truly rotten couple of weeks discovering that her beautiful artwork has been stolen & sold by sellers (a print we purchased to do detective work👇🏻) on Amazon, Temu, Redbubble, Etsy & others. Please visit her own Etsy shop & cheer her up www.etsy.com/uk/shop/Clar... Thanks 🙏🏻

There's never anything for #SevereMecfs The government tells us that PIP and other disability benefits provision will be dependent on an NHS consultant/specialist report. There are none. #mecfs

There's an update on Savannah's gfm. TW so much medical abuse. Please keep sharing and donating! By trying to find somewhere less unsafe, she has now lost her NHS provided carers. She's too unwell to do without, so needs to self fund them. Thank you 🙏🏻 #SaveSavannah #SevereMErgency #ME/CFS

#Spring #Hope #Flowers #Friday

The small, brave band of MPs who represent the trampled, not the tramplers, has a very welcome new member. We should all ask ourselves why, in a supposed democracy, such representatives are so rare. www.theguardian.com/politics/202...

@zackpolanski.bsky.social : "Once again Reform are spreading misinformation & smears, and the press & the media seem to repeat them.. its really important that the media.. take responsibility so when Reform or Farage says something they don't just keep repeating it"👏👏👏

Terrible headline (this is NOT what the new research - link below - shows!), terrible AI image! Argh! Here’s the actual research: www.science.org/doi/10.1126/... Where do I start?! 1/4

And the picture!!! If you ever needed a great example of how AI lazily reproduces sexual stereotypes (and other stereotypes) then this is IT!!! FFS

In which people CHOOSE TO VOTE for a female plumber representing a party with broadly liberal values and an unelected life peer declares it to be the end of liberal democracy.

Regret to announce that we’ve reached Wrong Coat season. Every coat you wear from now til mid April will be The Wrong Coat for the weather

Friends! If you know any primary school teachers, please share this offer with them:

Charlie Stayt, "A lot of people think those leaflets are the nasty side of politics" Zack Polanski, "Genocide is quite nasty"

The end of Digging for Britain. For me, at least. But I’ll still be making television about archaeology, on other channels. So watch this space…

@ashleydaltonmp.bsky.social Your words “these must become never events” PLEASE INTERVENE TO SAVE LIFE Savannah has not eaten for 9 weeks. There are no NHS services for severe ME - 7 months since publication of the Delivery Plan for ME/CFS www.meresearch.org.uk/claims-of-nh...

#SaveSavannah #SevereMErgency #pwME please repost and boost the below. Nobody is willing to intervene. The health minister must step in and prevent a tragedy

A record 129 journalists and media workers were killed in the course of their work in 2025, two-thirds of them by Israeli forces, according to the Committee to Protect Journalists (CPJ) https://www.theguardian.com/media/2026/feb/25/record-number-journalists-killed-2025-israel-gaza-war 1/3

More than 50,000 people have now written to their hospitals asking them not to use the terrifying Palantir's software. Why not add your name to theirs? goodlawproject.org/campaign/sto...

Weatherwise, it has been a strange winter here in England, from very mild at times, to cold and wet, and even a little sunshine in parts today. Our friend, the hedgehog, is out and about looking for fresh water and food, after hibernation. Always wonderful to see them, and hear them munching.

Man man man, Neurologie, wann steigt ihr endlich sinnvoll in die Long COVID, ME/CFS et al. Forschung ein? Ich habe eine 🧠-Forschungsfrage und kanns einfach nicht alleine machen.

Starting a newsletter-thing. What would you like me to write about? There'll be photos too, of course. I have 17-32 years' ME/CFS experience. From early onset, to mild, then moderate to severe, briefly, and back to moderate.

A recent piece in Mungyo oil pastels, I absolutely love Nasturtiums.

If you'd like to email the English Cricket Board and ask it to scrap its blanket ban on trans women, a ban we're suing over because we think it is unlawful, we've made it easy for you to do exactly that.

To do this, anti-trans lawmakers in Kansas moved fast to change the law, overrode the governor’s veto, and pushed for the legal changes to go into effect nearly immediately. That kind of power—to void gender on official documents, to compel gender conformity—is terrifying and it will not stop here.

“If you want a sign of where a nation is heading, there are few clearer litmus tests than how those with power see disabled children. Are they a problem to be erased? Or valuable kids to be included?” My col. on Labour’s Send reforms, progress, and Reform. www.theguardian.com/commentisfre...

This is an attack on human rights. Kansas is stripping trans people of their drivers licence unless they change it to the wrong gender. This will make it so they can’t drive and can’t vote. Get loud. If they can take rights away from trans people, they can take them from you.

We need to absolutely put pressure on UK charities to fund something like this. We also need to put pressure on them to set up an emergency fund for pwSevereME at acute risk from NHS. Should not be down to other severe patients! And would prevent issues with fundraisers affecting UC.

Such an oddly familiar picture:

I've been so bad twice in the last 4 years that I've spent entire months travelling slowly back and forth with my eyes the length of the folds of the same curtain. Couldn't even look at the phone for 1 second. 3 full months last time. Just wild to actually write this shit down.

💻 Join our ME Friends Online forum & connect with others who truly understand. Our friendly forum is open to users aged 18 & over from the UK. There’s a range of topics being discussed, including a section for games! Sign up & read the Terms of Use 👇 www.actionforme.org.uk/sign-up/

Can you name the place behind the snowdrops?

Oh hello, winter aconite (Eranthis hyemalis). I thought I’d lost it (the mice ate the others I put up the garden), but this one has persisted amongst the daffodils.

I'm sorry but at what point did I agree to let the government process my medical records in order to attempt to starve me to death?

"And the next election under first past the post, if it stays anything like that, is just going to be chaotic... So we've got to bring in proportional representation." Compass Director Neal Lawson on the need for PR on Sunday Morning with Trevor Phillips on @skynewsrss.bsky.social.

Want to help keep our mosaics looking spick and span? We're looking for a (very) part time mosaic cleaner. Flexible hours and.... and we wouldn't joke about this.... YOU GET TO STAND IN THE HYPOCAUST!!! 🤩 sussexpast.co.uk/jobs/

First butterfly of the year, a peacock on gorse. Photo taken 22nd Feb 2026, St Cleer. Can’t decide if it was hiding its fourth eye or if this was a mutation/aberration. #Cornwall #Butterflies #Insects @savebutterflies.bsky.social

#pwME URGENT - looking for someone ME literate who can sit with Savannah in hospital in London from 4:30pm TODAY for a few hours. Travel will be reimbursed. Please share widely #SaveSavannah #SevereMErgency @tomkindlon.bsky.social @abrokenbattery.bsky.social @drelke.bsky.social

If you want concentration camps in the UK, people being grabbed off the streets, or murdered on them, five year olds being separated from their parents and locked up #VoteReform

St Mary's Lighthouse North Tyneside Oil Pastels on a postcard @ beth.paints

You cannot ethically administer a dignified death without first guaranteeing a dignified right to life. That’s the conversation we need to be having.

Some heinous people wrongfully insist that ME is deconditioning. Did I look deconditioned in that video? Even though those weren’t even close to my best performances. However, it doesn’t matter if you exercised or not, that statement is just plain wrong. 8/11

A few weeks ago, my friend came over to pick up my old weightlifting shoes so that he could try them out. I haven’t seen or worn the shoes in years. The last time I trained in them was on May 5th, 2018. 1/11 #Photography #MECFS #pwME

The blizzard canceled all flights to New York so my week of neurosurgery, neurology, endocrinology care is gone This while online medical advice for worse neurologic symptoms I’m having says to seek urgent medical attention — but no neurosurgeon in Iowa will help me www.gofundme.com/f/help-emily...

Spring is springing. 🌱

This is a lot of fun! I got back to 1200, but I think a degree in Linguistics and a year or so of learning Dutch played a big part in that

Gmail are accessing private messages 🫠 This is how to stop that, screenshot the steps to follow.

Can anyone explain what Reform Ltd has against - all workers - women - people with disabilities - LGBTQIA+ people - black & brown people - religious people ... Farage 'Hitler was right' Farage wants their legal protection against discrimination & abuse to be scrapped! #SocialistSunday