As a full time carer for someone with very severe ME, I am starting to feel that indifference is the real killer.

On Windrush Day, we celebrate the Windrush Generation and their profound impact on our capital. They faced terrible injustices yet continue to shape our city for the better. We stand with them today and always.

I made this.

(the card in this thread is from www.stickmancommunications.co.uk/product-page...

1/3 Reminder to any of you who get overwhelmed easily: In this heat, it'll probably be more than usual. I find it easier to handle the overwhelm when I'm prepared for it. So I'm making myself rules like "Air con or fan on between 11am and 8pm - at least!" "If I randomly feel I want to cry, I will-

Florida Surgeon General announced ALL vaccine mandates will be ended As a polio survivor, i was joyous when a vaccine became available. No other child would endure such fear & suffering. He said "who am i to tell u what to put in your body. it's God's business". Hes a doctor! This is lunacy

and that they were asked about their experience of health care and social care, and both scored very low. Would you be willing to share the actual raw data for that q so we can see stdev etc and show how consistent our experience of "care" is in the UK? Thank you!

"For more than two decades, Mona Khalil protected the endangered sea turtles that laid their eggs on a beach near her bed-and-breakfast in Lebanon and kept predators away from the vulnerable hatchlings running to the Mediterranean Sea." Gift link: www.nytimes.com/2026/06/20/w...

🧵 Another excellent blog by Fred Rossi who is well worth following "The Patient Who Isn’t Supposed to Exist" darthfoo.substack.com/p/the-patien... Nominally on the recent, controversial WIRED article but the points are pretty general #LongCovid #MEcfs #PostExertionalMalaise #PEM #PwME 1/

Today marks the Summer Solstice, the longest day of the year. Whether you're heading out into nature for a morning stroll or savouring the golden evening in the garden, we hope you enjoy the daylight hours. 📷Arnhel de Serra at Iyam Park, Derbyshire

Was it terrorism? www.theguardian.com/uk-news/2026...

Happy solstice

My FOIA request has been mentioned here. [Just to clarify - I'm a *not very patient* advocate, rather than a "patient-advocate" 🙂] bsky.app/profile/bets...

A Quiet Storm is an online art gallery showcasing the artwork of people who have lived with severe ME/CFS meglobalchronicle.wordpress.com/2026/06/04/a... #SevereME #SevereMECFS #MEcfs #PwME @nikosuvisto.com

5 Muslim's injured after being attacked by a man armed with an axe in Edinburgh. I hope this will get the coverage it deserves. This is where all the anti-Muslim hatred leads, they want violence on our streets to win votes for them. They are a disgrace.

I also rate greenhouse shading paint, which we roller onto the windows/glass we don't mind not seeing through; www.amazon.co.uk/Greenhouse-P... This is the most shading solution, it then washes off with warm soapy water once summer has passed. Again, ME/LC folks may need assistance to apply this.

Acrylic mirrors - to bounce the sun's heat out of the room - are an essential part of my summer survival kit. The best value I've found are these ones, e.g. £20 for a 750 x 750 plastic mirror, usually delivered in 48 hours. AMA :) www.ebay.co.uk/itm/17414221...

Happy summer solstice ! #Dartmoor #Devon #photography

Yes. If you're a bigot who wants to divide communities, a billionaire wanting to preserve your wealth or a "newspaper" that wants to preserve power: we're very sinister indeed. To everyone else: feels a lot like hope. Join.greenparty.org.uk

It's obvious to point out attacks against Muslims get ignored - but still needs repeatedly calling out. An Antisemitic attack should be reported and action taken. But where is the same media outrage, cobra meetings and calling of national emergency when 5 Muslims are attacked?

I’ve got a friend who was non functional after a few hours with a GI bug. I gently pointed out their symptoms matched the ones I deal with every single day. Their response? “You’re used to it. It’s not the same”. That’s how disabled people are treated in a nutshell.

Wildflowers at Whinlatter Forest in the Lake District. #Stunday #LakeDistrict #Wildflowers #Bloomscrolling #Landscape #Photography

Previous studies have suggested that infections by certain microbes can trigger or worsen Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 🦠 ✅ If you’re a woman aged 18-45, take part in our new study to better understand the role of microbes in the disease ➡️ buff.ly/WUzegml

Afaik it takes two-three days to hydrate properly, so now's prolly the time to get yer fluids and electrolytes on board. I sleep much worse if I'm even the slightest amount dehydrated, by say, one glass's worth.

A pwME on FB has received a reply from Sharon Hodgson MP about the ME Final Delivery Plan. #SevereME #FDP www.facebook.com/permalink.ph...

The attacks in Edinburgh, in which an armed bare-chested white man terrorised Muslims, leaving five people injured, don't feature on a single newspaper front page this morning. Two tier journalism

You may not sympathise with the Elbit four’s methods. But you should be outraged by their treatment under the law | Geoffrey Robertson www.theguardian.com/global/comme...

Happy #FindsFriday! A beautifully decorated 'gladiator glass', on display at the Vindolanda Museum. Expensive & probably imported. Love the vibrant blue 💙, & the fact that the fragments were found during 2 different digs, 15 years apart! 📸 us #romanbritain #vindolanda #archaeology #romanmilitary

Let's talk: SEND review Join me online on Monday from 7-8pm to hear from I.P.S.E.A, the leading charity in the field of SEND law in England, and share your views. 👉🏾 www.ipsea.org.uk Please email [email protected] to sign up for the link.

A reminder of the deep evilness of the Iranian regime. A regime now strengthened and emboldened by a venal and worthless US administration.

Foxgloves and the church at Brentor in the distance seen from Peter Tavy last June, #Dartmoor, #Devon #photography

It is astounding (depressing) that this cartoon is 18 years old.

people with ME. We were disappointed by the government’s response given by Baroness Merron, The Parliamentary Under-Secretary for Health and Social Care who offered nothing new for the very severely ill who have no NHS service.

Our thanks go to Baroness Scott of Needham Market for yesterday’s debate on severe ME and for speaking so eloquently about the plight of people with ME, We are grateful to Lord Evans of Rainow, Baroness Walmsley and Lord McCrea of Magherafelt and Cookstown for advocating for

Starling babies I've only seen out on my afternoon rides: - Fluffy brown fledglings on the fence of a drainage pond. - 4 taking flight in turn looked like a series composite. - Parent pulling a fat worm, a few weeks earlier. #UKbirds #MEcfsEgress DailyNaturePics 327

Almost all bigotry is taught, it's usually not natural, it needs to be enforced and reinforced again and again. Obviously it shouldn't be taught at medical school. It is, specifically against disabled people. Why? And also WTF?

“I’m ashamed to say that my very first reaction to that diagnosis was, oh my God, I don’t want her to have that because that was a label, a stigma that you are taught in medicine.” @binitakane.bsky.social speaking about her daughter’s diagnosis of #MECFS following Covid.

This was incredible. No hope but peace and justice: A dialogue between Israeli and Palestinian humanists: Yaniv Aknin, Jasr Kawkby - chaired by Sharon Booth A rational, constructive, empathetic discussion. Listen to their podcast here: podcasts.apple.com/gb/podcast/h...

The deaths are almost all young people too—mostly younger than me. Mostly women. And the world simply doesn't care. If the media reports on a #SevereME death at all, it's often in the context of talking about assisted suicide as if it's a mercy—

Today, I learned of the 4th death in the #MEcfs community within a single week. None of this would have seemed possible to me before my own illness. Why anyone would think this is not a medical emergency is completely beyond me. We are both witnesses to and victims of a complete systemic failure.

Regular reminder that what Britain desperately needs is “low skilled” care workers - and that these jobs are not actually low skilled at all and should be welcomed by an immigration system that appreciates their huge value. www.theguardian.com/politics/202...

Demand for blood to treat rare disorders like sickle cell has soared by 132%over the last 10 years. Black heritage blood donors are more likely to be a good match. We urgently need more Black donors to start giving blood and keep giving it #WorldBloodDonorDay

My sketch of Poppies is finished #sketching #poppies #blueskyart #illustration @ beth.paint on Instagram

On World Blood Donor Day, I’m urging everyone to give blood. 1 hour of your time can save up to 3 lives. @givebloodnhs is looking for donors of all blood types but particularly those with O- , B- & Ro blood. Book in today at blood.co.uk 🩸 #WorldBloodDonorDay

SOCIAL MEDIA OUTREACH TOMORROW! At 10am Paul Garner, Trudie Chalder & Alan Carson are presenting on Long Covid at RCPsych Congress. The community have serious concerns about this framing. 58 orgs & 1200 signed an open letter. Template to C+P below 👇️

A crucial issue: deregulation by stealth, which could expose us to a greater range of hazardous chemicals than the EU permits, contrary to government promises. We at Fighting Dirty are suing. We need your help. Please see crowdfunder in next post. Thank you 🧵 www.theguardian.com/environment/...

Them: "Of course other cultures did not conceptualise childhood as we do." The Past: "Toys"

Thousands have turned out for an Anti-Racism rally in Belfast city centre, organised by United Against Racism and supported by Trade Unions

Sometimes the hardest conversations are the ones we avoid. Speaking gently, listening fully, can save more lives than silence ever will 💛🐦‍⬛ #DaddyBlackbird #MentalHealth #Wellbeing #Compassion #Kindness

"Paint what you love.." David Hockney