1/6 🚨 ME on the BBC We are delighted to have been selected for a BBC Lifeline Appeal - a unique opportunity to increase understanding of ME and share the voices of the ME community across national TV! #pwME ⬇️

justice4me.uk call for evidence - time sensitive!! If you know anyone who has severe/very severe ME, or severe/very severe Long Covid, in England or Wales please ask them to fill out the form and send it back to [email protected] by Friday 17 April 2026. 1/3

People have accused Reform of giving two of their members a handout, and now the police are looking into the raffle

Long Covid to cost OECD economies up to €115bn a year

“We need to talk a lot more about #LongCovid” - @nataliegreenpeer.bsky.social We sure do. @zackpolanski.bsky.social @boldpolitics.bsky.social @garyseconomics.bsky.social @adrianramsay.bsky.social @natashadevon.bsky.social

Such a powerful account I heard at the weekend about a young woman bedridden with very severe Myalgic Encephalomyelitis following Covid-19 in 2021. We need to talk a lot more about #LongCovid www.theredtreeandme.com/p/red-leaves...

It looks like they're repeating the same mistakes as with covid. "Oh no it's not spread by aerosols. Just wash your hands. No need for masks." Why do they do this? People will die.

We're appreciative of Zack's understanding, as shown in his interview on #BoldPolitics with Dr Khan. #GreenParty policy calls for funding and prevention. Not engaging with the harms of Covid is a #PoliticalChoice #ventilation #Covid #LongCovid #LongCovidAwareness #HopeNotHate

Millions of people in the UK including myself have had their long term health impacted by COVID infections and @zackpolanski.bsky.social is the only political leader talking about it. We need treatments and indoor clean air policies to protect the public's health.

It’s been six years since Covid was declared a global pandemic. Most people moved on years ago. Decided to go “back to normal” whether it was safe or not. They left people like me by the wayside. They abandoned the vulnerable. They embraced the comfortable lie.

Thanks @elliechowns.bsky.social , @greenparty.org.uk MP for this reflection and the understanding that the harms are ongoing. #Covid-19DayOfReflection #CovidIsNotOver

On #Covid19DayofReflection2026 we think of all who have been harmed by the virus and we acknowledge the ongoing pandemic. We call for action on #Covid and #LongCovid to prevent further harm from Covid infection. #ffp3 #n95 #Ventilation #MasksInHealthcare #IndoorAirQuality

Ella’s Law has been published 👏 No child should have the growth of their lungs stunted because of dirty air where they live and play, yet this is the reality of air pollution in England. Ella’s Law would change this. My thanks to Rosamund and all the hard-working campaigners demanding change.

What do DHSC plan to do if training like this goes against NICE and contradicts the new NHS e-modules on ME/CFS? @sharonhodgsonmp.bsky.social @tessamunt.bsky.social

Thank goodness Savannah is receiving better care 💙 Also: THERE NEEDS TO BE MORE THAN ONE HOSPITAL IN THE ENTIRE DAMN COUNTRY THAT CAN TREAT SEVERE ME PATIENTS APPROPRIATELY!! 🚨 @tessamunt.bsky.social @sharonhodgsonmp.bsky.social

Delighted to see @sharonhodgsonmp.bsky.social become the new Minister for Public Health and Prevention. Her dedication to public health and advocacy for those harmed by sodium valproate and pelvic mesh stands her in good stead to take up this role. I’ll be cheering her on from the backbenches.

This is why @greenparty.org.uk@greenparty.org.uk and @scottishgreens.org policy on covid and long covid and me/cfs is so important @zackpolanski.bsky.social @mothinali.bsky.social @rachelmillward.bsky.social @greensorganise.bsky.social

URGENT: An NHS hospital is starving a severe ME patient & has now stopped giving her fluids. Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk. @h-sharland.bsky.social has the story www.thecanary.co/uk/analysis/...

“I think more than 350 of those cameras have gone out and are already deployed in the community now,” he said... www.404media.co/how-one-guy-...

More shenanigans from Simon Wessely 👀 @natashadevon.bsky.social

So his response to the criticism of his app generating sexual deep fakes of children is... to try to monetise it as a feature

Thank you for posing this question and raising the issue again @nataliegreenpeer.bsky.social It is important that we use the scientifically valid tools to deal with #airborne viruses.

ahem

So why are NHS leaders and the newspapers sounding the alarm? Well, the NHS never copes well in winter and this year is no exception. Also, I imagine they want to put pressure on doctors not to strike. 8/10

Delighted to have the opportunity to discuss the current influenza surge in today's Belfast Telegraph; the virus itself, what we should be doing to mitigate it - vaccination, ventilation, masks - and how infection control has become ideological. www.belfasttelegraph.co.uk/news/health/...

This research was carried out in 2021. We are living with unnecessary infections. #CleantheAir Respirators for airborne risk Ffp2 Ffp3 for staff Not gappy FRSM We need masks that seal to the face. www.theguardian.com/world/2021/j...

They’re saying the vaccine is giving people flu, or that all viruses are a hoax, that asking ppl to wear masks is an attempt at ‘control’ 🫠 Every comment section on a mainstream media post about flu (or indeed Covid) is an absolute bin fire.

🧵PUBLIC HEALTH SHOULD NOT BE A CULTURE WAR 😷 It’s bizarre watching politicians, like Kemi Badenoch perform trauma around masks while millions live with the reality of not masking; death, disability, ME, Long Covid. The Guardian are asking for opinions on masking 🖇️👇 /1

This from Ed is weak but at least it's *something*. Where is the Green leadership on this? The one party that actually has a policy on proper infection prevention & control? Come on, folks!! 💚 @zackpolanski.bsky.social @rachelmillward.bsky.social @mothinali.bsky.social @nataliegreenpeer.bsky.social

Should you wear a mask if you've got symptomatic flu? YES. If you wear it at home *from the onset of your symptoms*, your family members are much less likely to catch flu from you (but you must avoid unmasked co-sleeping and eating around same table - have your meals alone). 1/

We urge you to not hold gatherings unmasked in unventilated public spaces. You are increasing the chances of your guests becoming ill or making someone else ill, putting pressure on health services with knock on consequences.

Document from NHS England which basically says when there is another Pandemic we can’t be bothered to protect you, it’s too costly. We are on our own folks. H/T @catinthehat.bsky.social

Clip from January 2022, @mark_bonnar appeared on Celebrity Catchphrase supporting @actionforme. He explained that he backs the charity because #MECFS is very misunderstood, very underfunded and affects several people he knows personally.

We’ve been rolling out air filters across London schools, all delivered by electric vehicles (Mango Logistics), fully installed with pre-set timers. Now we’re looking to bring this to Bristol. As the @bristolgreenparty.bsky.social shares our goal of cleaner, healthier classrooms, we’d love to talk.

Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a baroness — I’ve put together a short thread about her involvement in #MECFS. twitter-thread.com/t/1981309222...

Surprised nobody’s talking about this on here (lots on X)… This is Simon Wessely’s wife and she was an active accomplice in his mistreatment of #pwME #MECFS #GreatestMedicalScandal #MyalgicEncephalomyelitis @georgemonbiot.bsky.social @natashadevon.bsky.social

Update: 128,000. Accept this is slightly wild now. Join.greenparty.org.uk

I just donated, again. One week to go before Judicial Review deadline. Please support these brave families www.crowdjustice.com/case/justice...

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Tomorrow, Tue 7 Oct, the Welsh Senedd Business Committee will consider allocating 15 Oct to a Severe/Very Severe ME debate. It has a good chance of being selected. #pwME in Wales please help, email your MS and ask them to back MS Adam Price’s Motion. Find your 1/2 record.senedd.wales/Motion/8884

Seconded! @zackpolanski.bsky.social has done a great job raising this in interviews recently. Greens are the only party w/ a policy Re: ongoing covid harms incl. #LongCovid although @johnmcdonnellmp.bsky.social has started work on something. Hope @sianberry.bsky.social & other Greens will join him.

Eligibility for an NHS Covid booster has been HUGELY restricted this Autumn. Studies show that both acute & long-term impacts of Covid are substantially WORSE than flu on almost every measure. www.thelancet.com/journals/lan... So why are the government offering so much LESS protection for Covid?

Thank you for really listening to caller @annemarie1.bsky.social & as you succinctly said: "The short termism of prioritising the economy has led to the economy suffering because there have been so many people infected (w Covid) & are now unable to work". @zackpolanski.bsky.social #BoldPolitics

lol this joker saying families on benefits “aren’t engaging with the state” Obviously he’s never been on benefits as the state are breathing down your neck when you are!!! @natashadevon.bsky.social

#LongCovid #CovidIsNotOver #COVID19 #MECFS #MyalgicEncephalomyelitis #CleanAir

Coming up from 6pm on LBC (Sat 4th October) - With people already trying to foster division and hatred following Thursdays terror attack, how do we promote unity? - Why are so many British people long term sick? (Non judgmental asking) - Should we legalise all drugs?

Violet Affleck is to the Covid movement what Greta Thunberg is to climate. Both represent the next generation, are articulate, focused, & grounded in science. That scares people. And there's a gendered aspect to all the vitriol they face